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Help re: diagnosis and scans
About 10 years ago I had an enlarged thyroid. I got a biopsy which was inconclusive, was told I needed surgery to have it removed, and got to spend what amounted to a couple months pondering the if I had thyroid cancer or not. Luckily, I didn't. Two years ago though, I had a total hysterectomy due to being diagnosed with…
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Mom has scan today
My mom is having a PET/CT scan today. Her last one was at the end of January and it showed progession. She has two mets, one on each adrenal gland. She decided not to do further chemo and instead she recieved Cyberknife treatments to both adrenal glands. The Cyberknife treatment was 4 weeks ago. She has been off all chemo…
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Scared and Frustrated...
Hi all, I've been absentee for awhile but I read posts here semi-regularly. My story briefly is that my (then) husband Chris was dx w/ stage II Rectal ca in April '03, chemo/rads/surgery ensued. He prevailed except for our marriage which deteteriorated in fall of '05. Speaking of which, I need a new tag name, chrisswife…
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Good news for mom
Hello Everyone: Finally finished around of test from heart, bladder, colon and stomach from the ct scan results. Everything went very well. All biopsies came back negative (wonderful). But, however, there are 4 areas in the lungs we are watching (hopefully nothing). We start all over again with ct scans in June. I feel…
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Anyone Hoarse with Avastin/Camptosar
My husband has been taking Avastin and Camptosar for four months. He has had dry mouth for some time but now he is having a problem with hoarseness. Anyone else have this experience? If so, any suggestions for what to do to relieve this side effect? Hatshepsut
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CSN HOME PAGE 2 OF OUR OWN
Check out Scouty and JaDot on the home page. Two mighty fine looking women!
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IV line
On Wednesday I am having what is known in the UK as a "Hickman line" inserted under my collarbone in preparation for six months of Folfox. I had presumed this was what is referred to on this board as a "port" but I've just read something which suggests I may be having an old-fashioned and cumbersome device compared to what…
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Scan tomorrow
Hi Everyone. My husband's first scan after starting chemo is tomorrow. We are hoping and praying for some positive signs that the tumors in his liver are shrinking and no progression. I know you will all keep us in your thoughts and prayers and want you to know it means a lot to us as I believe prayers are the most…
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NO REVERSAL FOR ME
I had my reversal scheduled for this Thursday. I called the onc today and left a message that it was scheduled. He called me back and told my husband that because I'm taking Avastin that if I stop I can't start again. I guess I'm on some type of trial. So it looks like another year of pooping in my bag. It was just an all…
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trying to start a support group
In Minneapolis where I live, I have not been able to find any type of cancer support group to attend. So... I am looking to start one. Has anyone done this, or does any of you attend any cancer support groups? I would be interested in learning from you. thanks Limey (Mark)
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Previous Stage III - more GREAT news
Hi All~ A little background...My Dad was diagnosed with stage III colon cancer (4 of 15 lymph nodes positive) at the age of 59 in January 2004. He had surgery and they took out a foot of his colon and resected the remainder. He endured six months of FOLFOX. Fastforwarding to now...I am THRILLED to say that we just received…
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WBC dropping!
I had my "port" put in Friday. During the pre-surgery testing, I was told my white count had dropped to a 3 something. I go to the onc tomorrow and I'll have my blood work done Thursday for my chemo treatment this weekend. I'm curious as to what is done as far as medical treatment when the count drops and what precautions…
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THANKS!
I'm new to this and have trouble navigating the system, but I want to thank all of you who responded to my request. I'm thinking hard about chemo this time and maybe using a holistic approach. Someone told me about a site called Cancerfightingstrategies.com and I was amazed at the testimonials some people gave. I hadn't…
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Frustrated with the medical system
Well I'm 18 months after treatment and may still be NED from Stage III. I went in for the usual 4 month blood draw on Wednesday. Onc said my white blood cells were just about normal but that the platelets were still down but not so low to be of a big concern. Red blodd cells normal. The tests I was obviously concerned…
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panitumumab
Anyone taking or know someone who is on panitumumab only? What were your side effects? Did it shrink tumors? Do side effects diminish or become less severe over time?
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CELEBRATION!!
Since there seems to be an array of inspirational stories lately, I feel that I need to remind everyone about the party we're having to celebrate in NASHVILLE, TN. Colon Palooza 5 will be held Sept 12 to Sept 16, 2007. It is a full-blown celebration of life. We go sight-seeing, check out local bars/restaurants, and meet…
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first treatment
hi everyone Had my first treatment on Monday, did pretty well, better than I thought I would do. side effects were minimal mainly just tired. I'm sure I'll have some bad days as treatments go on but for now feeling pretty good. thanks for all your support, getting through the first one was the scariest now I know kinda…
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Chemoemblization
Hi All, Been a really long time since my last post, but I read every day :) My husband is no longer responding to systematic chemo's, and the radiologist's have reviewed his scans & said he is a good candidate for "chemoemblization". Has anyone here had it? A catheder is inserted thru the groin and fed directly into the…
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Update - good news
Hello all. Her is a quick history: dx stage 4 colon cancer on 8/28/06. Colon surgery on 9/1/2006 removed 21 nodes, 1 positive. I had a CEA of 17. I had a 3 cm tumor located in right posterior lobe of the liver, by CT and PET. I went on 6 months of chemo (xeloda, erbitux, oxyliplatin) interrupted by a Thanksgiving pulmonary…
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reversal question
My onc is aginst me getting my reversal done. He said he is afraid of "blockage". I was upset in his office today so he said after chemo we'll do some scans if all looks good we'll talk about the reversal. I'm on number 10 of 12 for the second time around. I've been wanting this since I got the bag in April 2005. Anyone…
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NED
Hi, I haven't posted for a while but I read the posts every day. I was dx and had surgery in 8/06, stage 2 - 4 rounds of chemo and couple of stays in the hospital. My last hospital stay was at Christmas and that is when my chemo ended. Anyway, I just had a colonoscopy (not even a polyp) and CT Scan and blood tests - all…
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bladder issues!!!
Hi all, Having some issues and would like some advice. My pelvic muscle have been very weak since my surgery 2/5. I had a full hysterctomy at the time of my resection. Anyway I have been having a bit of pain at the end of urinating pretty much since surgery. They tested me for a UTI and it came back negative. Since then…
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One GREAT BIG NAKED HAPPY DANCE!!!!
Congrats to sue (jerseysue), **** (vinny3), Shoda, Annie, and Julie (littlejulie) mom for dancing with NED....and Kate for the good news on Jim!!!! I have been having dizzy spells,can't use the computer very much...sigh...gets in the way being a computer consultant..hehehehe, so, I missed some VERY IMPORTANT posts... YEA…
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US Doc Contrasts His Cancer Care - Article
U.S. doctor contrasts his cancer care with uninsured patient who died By LINDSEY TANNER (AP Medical Writer) From Associated Press April 03, 2007 6:51 AM EDT CHICAGO - Frustrated by the U.S. health care system, an Oklahoma doctor being treated for colon cancer decided to write an essay for a medical journal. But it is not…
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Recovery from Total Mesorectal Excision
My 76 year old mother is having a really hard time recovering from this colorectal surgery. She has terrible gas, bloat and and has developed hemmoroids from the rectal urgency. She is 8 weeks post-op and I was wondering if and when this will all go away and will she have normal bm's again. Can anyone share in this…
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REVERSAL
I'm so excited my reversal is scheduled for Thursday April 12th! Those that had reversals what am I in for? How long does it take to heal? My sister read on the internet that taking Avastin can have an effect on healing? The surgeon didn't think much of that information. We decided to do Avastin every 2 weeks for a year to…
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No More Treatment!!!
Hi All: Well, all of my prayers have been answered. Went to my Oncologist yesterday for ct scan results. The cancer that I had is DEAD. Very small spots left that could barely be seen on the ct scan. I was told that it was probably scar tissue. I can't believe I made it through this. I was diagnosed on August 16, 2006 with…
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More good news...another NED!
I don't post often, but read daily. Everyone in my thoughts and prayers. Brief history, dx Apr 05 with Stage III colon cancer, 2/27 lymph nodes positive. Emergency surgery to remove large colon and immediately reconnected. Followed by 6 months 5FU & leucovorin. So far, complete test workups every 6 months and on April 2/07…
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More good news
Well, not NED yet, but cryoablation went well today. The radiologist got 80-85% of Jim's largest tumor, which is about the size of a baseball. The radiologist is ready to schedule another cryoablation surgery for next month to try and get the rest of the largest tumor, as well as some of the others. Hooray! It's a great…
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inspirational not educational
Even though this is not educational, I think many of you will enjoy it. Be sure to read the very last part or you'll miss out. Jo Ann www.libertyhigh56.net/special%20pages/dancing.htm It really isn't 20 pages. Don't know what that is about.