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CELEBRATION!!
Since there seems to be an array of inspirational stories lately, I feel that I need to remind everyone about the party we're having to celebrate in NASHVILLE, TN. Colon Palooza 5 will be held Sept 12 to Sept 16, 2007. It is a full-blown celebration of life. We go sight-seeing, check out local bars/restaurants, and meet…
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first treatment
hi everyone Had my first treatment on Monday, did pretty well, better than I thought I would do. side effects were minimal mainly just tired. I'm sure I'll have some bad days as treatments go on but for now feeling pretty good. thanks for all your support, getting through the first one was the scariest now I know kinda…
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Chemoemblization
Hi All, Been a really long time since my last post, but I read every day :) My husband is no longer responding to systematic chemo's, and the radiologist's have reviewed his scans & said he is a good candidate for "chemoemblization". Has anyone here had it? A catheder is inserted thru the groin and fed directly into the…
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Update - good news
Hello all. Her is a quick history: dx stage 4 colon cancer on 8/28/06. Colon surgery on 9/1/2006 removed 21 nodes, 1 positive. I had a CEA of 17. I had a 3 cm tumor located in right posterior lobe of the liver, by CT and PET. I went on 6 months of chemo (xeloda, erbitux, oxyliplatin) interrupted by a Thanksgiving pulmonary…
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reversal question
My onc is aginst me getting my reversal done. He said he is afraid of "blockage". I was upset in his office today so he said after chemo we'll do some scans if all looks good we'll talk about the reversal. I'm on number 10 of 12 for the second time around. I've been wanting this since I got the bag in April 2005. Anyone…
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NED
Hi, I haven't posted for a while but I read the posts every day. I was dx and had surgery in 8/06, stage 2 - 4 rounds of chemo and couple of stays in the hospital. My last hospital stay was at Christmas and that is when my chemo ended. Anyway, I just had a colonoscopy (not even a polyp) and CT Scan and blood tests - all…
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bladder issues!!!
Hi all, Having some issues and would like some advice. My pelvic muscle have been very weak since my surgery 2/5. I had a full hysterctomy at the time of my resection. Anyway I have been having a bit of pain at the end of urinating pretty much since surgery. They tested me for a UTI and it came back negative. Since then…
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One GREAT BIG NAKED HAPPY DANCE!!!!
Congrats to sue (jerseysue), **** (vinny3), Shoda, Annie, and Julie (littlejulie) mom for dancing with NED....and Kate for the good news on Jim!!!! I have been having dizzy spells,can't use the computer very much...sigh...gets in the way being a computer consultant..hehehehe, so, I missed some VERY IMPORTANT posts... YEA…
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US Doc Contrasts His Cancer Care - Article
U.S. doctor contrasts his cancer care with uninsured patient who died By LINDSEY TANNER (AP Medical Writer) From Associated Press April 03, 2007 6:51 AM EDT CHICAGO - Frustrated by the U.S. health care system, an Oklahoma doctor being treated for colon cancer decided to write an essay for a medical journal. But it is not…
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Recovery from Total Mesorectal Excision
My 76 year old mother is having a really hard time recovering from this colorectal surgery. She has terrible gas, bloat and and has developed hemmoroids from the rectal urgency. She is 8 weeks post-op and I was wondering if and when this will all go away and will she have normal bm's again. Can anyone share in this…
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REVERSAL
I'm so excited my reversal is scheduled for Thursday April 12th! Those that had reversals what am I in for? How long does it take to heal? My sister read on the internet that taking Avastin can have an effect on healing? The surgeon didn't think much of that information. We decided to do Avastin every 2 weeks for a year to…
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No More Treatment!!!
Hi All: Well, all of my prayers have been answered. Went to my Oncologist yesterday for ct scan results. The cancer that I had is DEAD. Very small spots left that could barely be seen on the ct scan. I was told that it was probably scar tissue. I can't believe I made it through this. I was diagnosed on August 16, 2006 with…
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More good news...another NED!
I don't post often, but read daily. Everyone in my thoughts and prayers. Brief history, dx Apr 05 with Stage III colon cancer, 2/27 lymph nodes positive. Emergency surgery to remove large colon and immediately reconnected. Followed by 6 months 5FU & leucovorin. So far, complete test workups every 6 months and on April 2/07…
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More good news
Well, not NED yet, but cryoablation went well today. The radiologist got 80-85% of Jim's largest tumor, which is about the size of a baseball. The radiologist is ready to schedule another cryoablation surgery for next month to try and get the rest of the largest tumor, as well as some of the others. Hooray! It's a great…
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inspirational not educational
Even though this is not educational, I think many of you will enjoy it. Be sure to read the very last part or you'll miss out. Jo Ann www.libertyhigh56.net/special%20pages/dancing.htm It really isn't 20 pages. Don't know what that is about.
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so upset right now
well, I am an absolute mess right now...can anyone tell me about cancer that has spread to lung, liver, bladder and spine? This is what they have said with my mom, and everything I have been reading says that once it spreads to the spine there is not to much time left. Wow, is life unfair...we have bought all kinds of…
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CT Scan Results
The news is GREAT!!! Completely Clear!!! Doing the happy dance in Canada on a cold and rainy afternoon. Thanks again for all your help. Persistance paid off. My Father has called the clinic 2ce a day since Monday and finally we got the news. Paula
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NED!
Hi all, Happy to report that the CT done a week ago shows no evidence of disease. I'm glad that I can add that to the other reports we have been getting lately of NED. One note of caution as to why one should get the actual reports and have an advocate. The original report indicated that there were two small spots in the…
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To drmrgirl47
I just read the post for last cpl days and saw that u are having same symptoms I was having with the diarrhea flare ups. I had tried everything as well. Took Immodium, Lomotil, Fiber all like candy plus several other things that onc Rx'd that had side effect of constipation w/o any luck. In Jan this yr, I was at my wits…
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Good News....
Hi there, My mother was diagnosed March 2004 with Stage 3 rectal cancer. She got ct scans results yesterday and she is still NED!!! 3 years later and still going strong! We're very happy! I'm hoping this message is read by NEWBIES to give them hope and strength! Best of Luck! Julie :)
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Gabepaten for neuropathy?
Hi. Has anyone taken Gabepaten for the peripheral neuropathy (tingly fingers/toes due to Oxaliplatin)? My oncologist is suggesting this for me. He says I might get quite drousy on it. I'd appreciate input from anyone who has tried or has any opinions. I'm already taking vit B6 every day.
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last chemo ? advise on xeloda....
Taday was my last ( ?) chemo...it was supposed to shrink/dissapeared my tumors in the psoas muscle, but it did not...well, 1 shrunk, 1 grew 1 mil....My Dr's advice is to do a Pet scan in 4 weeks and depending what it hsows ( no new tumors) he will operate on me....but because I was on Avastin, he said that he cannot do…
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NED FOR ME
I got my results today and I'm NED! I have my referral set for tomorrow to see my surgeon about my reversal my onc doesn't want me to get the reversal done but I really want it! Wish me luck!
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wow ! so many good news......
This is why this site is so important to all of us...it keeps on going...I believe we are starting to see the light...... God, please bless us all....find this cure... Love, Ileana
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Oxy tingling
Do most of you that get the Oxy get a break in the tingling within a few days after treatment or does it always stay? I'd just love to have a few days that I could drink something cold. I still forget that I can't drink anything cold. Went out for lunch and bought myself a milkshake, had to put that one in the freezer for…
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Need prayers and positive thoughts!
Hello friends- Please keep us in your prayers tomorrow. Jim goes in for his cryoablation at 11:00. I am feeling positive, as is he, but it's always nice to have the prayers. Best to everyone- Kate
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Quick Update On My Dad
His lymph node is enlarged due to the fact that the dr cut into the salivary gland during surgery. It may take up to 6 months for that to correct itself. Next the thoracic spine, the doctor felt that it has been there for so long that it is a non issue. He had all copies of x-rays from March 2006 to March 2007 and he (who…
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herbal treatments?
hello everyone, Just a question, Ive been doing research about cancer treatments and have read about herbal or supplements, and have read some pretty incredible claims. Have any of you ever tried these herbs or supplements and did they have any positive effects. there are sooooo many claims out there and I'm willing to try…
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why ? afraid of saying it or true ?
I'm confused or is it that I dont like to hear the word NOT curable ??? 2 1/2 years ago, when I was dx, I remembered reading that cancer was going to be treated as chronic disease in the next 2 years...And that is what we have been hearing...but also we keep on hearing NOT curable( for stage IV )Mrs. Edwards said it and…
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more stress and worry
Hi all. Firstly let me apologise for not responding to recent posts but the reason will become clear here. You will have read my recent posts on my daughters siezure a week ago and until 12th april when she is due for an MRI I have no more information. Mieka is doing ok for now and hopefully things will remain that way.…