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Hepatic Embolization of the liver
My 35 yr old Fiance was diagnosed with Stage IV Parotid Gland cancer (a salvitory cancer) in August 2010. It has spread to his spine (6 tumors- C5, C6, C7, T1, T3, T10) and to his liver (10.6cm tumor). After a surgery to remove the primary tumor, radiation and two rounds of chemo (taxol and carbo-platin)they have pulled…
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folfox club my #3 treatment
Well went in for treatment #3 of folfox today. Before #3 had a cbc and of course my platelets are down to 53000 way low but now my white blood cells are very low as well. They hudled for quite a while and decided to let me do treat #3 with the white cell shot for each time they unplug me. Nothing they can really do to…
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I spoke today to high school students
in my high school that are doing a mini-course week on Cancer. They are focused on knitting and making hats for cancer patients. I don't work with these kids generally, but I do work and have with their teachers for years. So I had a chance to talk. And was surprised at how choked up I got at various places in my talk. All…
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CEA Question
Hello all, quick question that I hope you can help with. I had surgery on 9/8 and the surgeon at that time said he was fairly certain they were able to remove everything. Only one of the 16 lymphnodes they removed came back positive. Anyway, I began my first of 6 rounds of FOLFOX on 10/25, at which time they took my first…
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Stuffing Recepies
Thought it would be interesting and fun to see how many stuffing recepies there are amoung us? Mine is very simple and goes inside the bird a) Dry herb seasoned stuffing mix b) Swanson broth c) Butter d) Apple (granny smith perfered) e) Raisins f) Seasonings - celery seed, onion powder, poultry seasoning, parsely if wanted…
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Good luck tomorrow Pepe
Wanted to send out some good luck vibes for your rad tomorrow. Hope your cold is better too. tapa tapa tapa!
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Tattoos
Have any of you got tattoos that address the cancer battle and survivorship? I have seen online some Livestrong tattoos or the various cancer ribbons on people. Have any of you got any ink related to being a survivor?
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During a chat with the National Cancer Institute....
I learned that their top (!!!!!!!) site to recommend is (wait for it!!!) CSN!!!!! I thanked her, and also told her about the 'new' long term survivor's board.... We ARE OUT THERE, CSN'ers!!!! Hugs, Kathi
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metastatic colon cancer- spread to liver and penis- has anyone experienced this? question on pain m
My 57 year old father who has alway seemed relatively healthy was diagnosed with metastatic colon cancer in September which had spread to his liver. While he was waiting to begin chemo treatment (whole process has been slow, had to wait a week to have a port inserted and the chemo started a week after that which is about 1…
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Jorge's CEA count
hey guys the doctor called today to tell us that Jorge's count is down from 11 to 4.2 i'm so happy hope to get more new on the 18th of this month YAY
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Please help! DH having a lot of trouble with FOLFOX tx #2
Hi everyone! Have some questions... Dh was unhooked last friday ...he's doing FOLFOX. This was his 2nd tx...swallowing was a bit more painful, cold liquids were painful for about 2 days, but no problem after that. His main problem is his skin on his bottom is burned, to the point that he is in a LOT of pain. We have tried…
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Outta here for the weekend!
Hi, everyone. I'm leaving tomorrow evening to go to Virgina and attend the Urbanna Oyster Festival. Can't wait to be home in my beloved commonwealth! Won't be on again until Sunday, unless I can get on tomrrow during the day. Have a great weekend! *hugs* Gail
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Update - HIPEC Surgery - It went well! :-)
Hi everyone, Thank you all so very much for the prayers and well wishes! I'm sure that God heard your prayers since Rick's surgery went very well. (It was only 7 hours - not the 14hrs as expected.) And thank God that the cancer spread was minimal to the abdominal cavity. The surgeon removed the omentum and a couple of…
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John Tinker ( JohnSFO)
Hello everyone, I am sorry to give this hard and sad news. John Tinker passed away yesterday. I asked Adrian if he wanted me to post this. I know all of you on this site would want this information. John is at peace now. I wish I could write as wonderful as he would have. He will be missed by many. I for one will keep him…
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Happy Belated Birthday
Happy Belated Birthday to all the November Babies, including Daydreamer - 7 Nov Mom_2_3 - 10 Nov TxKayaker - 12 Nov If you would like to become part of the Birthday List, please provide me with the following: a) Date of birth (including day, month & yr) b) Date of DX (including day, month & yr) c) NED (including day, month…
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Welcome to New Folks
We have a couple of new folks who have posted on other threads but wanted to make sure everyone had the chance to welcome them. AnneCan caught them both and gave them her welcome. Annad723 JoyceSteele Welcome to you both. We always say we are sorry for the circumstances which bring you here, but we are glad to have you as…
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Met with the surgeons and the surgery date is..
well, I don't have a surgery date as of yet. They found another tumor (been there the whole time, just that it's been missed apparently) in lymph node I think they said, and it's next to the kidney. So, now that I have my colon surgeon and liver surgeon, a urologist surgeon is now being added to the mix. I also now have to…
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2nd Opinion from the Duke Tumor Board is in...
Not really what I wanted to hear. But we don't always get that luxury. They recommend against surgery, and did not recommend other options either. The nodes are too close to my spine. They also said that they don't know if there is a benefit of removal of the nodes in my particular situation. He did speak with another…
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HIPEC Surgery on Monday
Hello everyone, You know, with so many people having so many problems out here tonight, I feel selfish in asking, but could you all please send thoughts and prayers up north to Boston this weekend? I don't remember if I posted this or not, but my Rick is having HIPEC surgery at Tufts in Boston on Monday morning, and all…
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bad weekend
well this weekend is chemo weekend now my son fights with everyone on chemo weekends and i dont know why today i had a cpr class so my mother inlaw came to help me with jorge and when i got home my son was in tears telling he hates his dad i keep trying to keep everyone together but now im starting to feel sick and im get…
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my scan results
Hello, I had my PET/CT scan yesterday and got my results today at an appointment with my oncologist. Results... CT portion of the scan showed that all nodules in liver and lungs are stable- all except for one nodule in my lungs & that one more than doubled in size from 0.6 cm to 1.4 cm. The PET portion of the scan showed…
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Folfox and mouth sores?
Hello all, quick question that I am hoping you might be able to help with. I did my first of 6 rounds of Folfox last Mon/Tues and tolerated it quite well. However, beginning this past weekend, I got a couple of sores in my mouth. The worst of which is on the tip of my tongue. I have been using Biotene a couple of times a…
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IDLEHUNTER
Just so you all dont worry about Ms. Jennie (IDLEHUNTER), I am here to let you know she is going to be very busy taking care of her family and her Brother Chuck. As you all know he was in a horrible situation that left him pretty banged up. Good news is he is alive, got insurance, and is being treated well! Jennie asked me…
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How are you Pepe?
I know you were having your 1st radiation treatment today; how are you doing?
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New MIT Article on Tumor-recurrance
Hi all, For those out there who might be interested in the latest scientific news on tumor recurrence, you can check out the following MIT research news article.(I apologize if the link doesn't work, it's an internal news report to the MIT staff. So I posted it here just in case...) -- Cynthia…
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Brother Hurt
I know this is not a cancer related issue but you guys are my family and I need to share this. Some of you know my brother Chuck... he attended Colonpalooza with me. When we returned from Texas his live in girlfriend (Nicole) had left him. She was not so happy about him going. It just so happens she is his next door…
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My stoma is on a different page
I have another question. I'm sorry if this one is too personal, gross,or yucky. I'll try to not get quite there. Here goes.......does anyone have or had a temporary loop iliostomy? I have one and it confuses me. I know I should not worry about it, because it's going to be reversed, and soon. But I like things to work the…
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XELIRI regimen questions
Hi all - Yesterday I had my first round of irinotecan and avastin. Today I start xeloda, 4 pills 2x a day for seven days. Off for a week, then back in for another round. Most folks seems to do two weeks and off one, so I'm wodnering if anyone is doing one on, one off? I did one round of oxy, avastin and xeloda in January…
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FYI:Oxaliplatin and Irinotecan (tho not together):
Researchers have recently reported that the severe diarrhea that often results from Irinotecan and may result in a lowering of its dosage or stopping its use, might be mitigated by 4 out of 10,000 compounds they screened (with explanation of how diarrhea is caused…
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Friday Riddle Answer
Congrats to Goodwitch for the correct answer!!!!!!!!!!!!!!!!!!!!!!!!!!!! RIDDLE: I might be a dragon, I might be a saint, Maybe I'm friendly, And maybe I ain't, If you take all my letters, And shuffle them round, "Woman Hitler" Is what can be found What am I? ANSWER: Mother-in-law