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Proctectomy (not colectomy)
Surgery is scheduled for the 15th. I did a pretty poor job of explaining in my prior posts, so here is a description of what I THINK is going to be done: Abdominoperineal resection (also called APR). APR used to be the standard surgery for tumors of the lower rectum. Now, it is usually limited to large tumors that lie very…
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Questran is used to treat diarrhea UPDATE!!!
I thought I’d update everybody now that I’ve been on Questran now for about a week. The results have been life changing. I’m now having regular BM’s about 5 times a day. I know to some people 5 times might be a lot but I was going 40 to 100 times a day with NO control!! I couldn’t take my kids to school or even go check…
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Winter Marie
The last thing I saw on Winter Marie was that she was going home. Anyone know how she is doing?
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Why do I scare myself? update!
So, I'm making myself nervous, most likely for no reason at all. As many of you know, I've had IBS for many years, and the symptoms (constipation, for the most part) have only gotten worse since my colon resection. In the last few days I've had even more difficulty with that, plus I'm wiping away a little blood sometimes.…
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We need to make a funny movie about colorectal cancer
This movie would focus on the dark humor side of it. It would cover the lives of a few of us with our journey from the very beginning of this crap. It would show the pure idiot doctors we have all encountered right along with the damn good ones like my super doc Todd Arends. The fun of finding out your insurance is…
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Paula G's husband:
It is with horrible sadness that I am posting that Paula G.'s husband John (JR) lost his battle with colorectal cancer on 12/31/10 at 9:30 p.m. John was diagnosed November, 2008, Stage IV. Paula notified me today. It has been pretty rough over at their home the last few weeks and Paula is one of the bravest, caring, loving…
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Blood test to spot cancer (lung, breast, colon, prostrate); 4 Top centers to start using test this y
This news can make a big difference. http://www.usatoday.com/yourlife/health/medical/cancer/2011-01-03-blood-test-cancer_N.htm BOSTON (AP) — A blood test so sensitive that it can spot a single cancer cell lurking among a billion healthy ones is moving one step closer to being available at your doctor's office. Boston…
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New to this site!!!
hi everyone! my name is Jennifer & my husabnd was DX with colorectal cancer stage IV on May 2010. We were so scared to hear the words cancer that our world would be crumbling down. But after i got myself together (Matt is so laid back & says im so inpatient- he said this will take time but will be alright). We went to our…
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I am so done with recouperating! update 1/4/10
It has been 3 weeks and 3 days since the big hernia repair. I am done with this sitting around, I am losing my mind. I am feeling better every day. I got through the holidays, started driving and doing errands and managed to meet a few friends one night for a drink. Initially the doc told me recovery would be 4 to 6 weeks.…
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Phil and Krista
Havent seen a post from either of you in a while(atleast that this old chemo brain can remember anyway) Just wondering about you and hoping you are both doing okay. Smiles, Dawn
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If you have a high insurance deductible -
there may be help out there. I just received a call from our infusion center. Rep. from Avastin was in their office. Avastin people are starting a program to help those with a high insurance deductible. Combined income of $90,000 or less. Program will help with deductible up to $4,000 per year. Since George gets Avastin if…
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Post from LoveandHope
LoveandHope, I have reposted your entry in its own thread so people can respond to you specifically. Sometimes posts like this can get lost on threads started by other members. LoveandHope's post: someone help please!!!!!!!!!!!!!!!!!! new can someone please help me. my dad was perfectly healthy until 1 week ago when he had…
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New Caregiver
I am really new to posting on a discussion board. I think I did this once or twice in college so I don't know if this will even be read. My Husband was diagnosed last Wednesday with cancer. We still don't know exactly how bad it is. He is very shocked and needless to say so am I. 38 seems kind of young for colorectal…
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Two Years Cancer Free!
Two years ago today I was diagnosed with Colon Cancer. On Jan. 7th, 2011 I will have been cancer FREE (after surgery) for 2 years! (Stage III Colon) Psalm 16:8-11 I have set the LORD always before me. Because He is at my right hand, I will not be shaken. Therefore my heart is glad and my tongue rejoices; my body also will…
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Looking for a way to give back? Check out this page on ACSCAN/CSN.....
I am a member of a group in ACS called the Cancer Action Network. Every so often, when there is a piece of legislation ACS is interested in that is up for a vote, I receive an e-mail that alerts me of it, and asks me to send a message to my representatives in the government as to how I feel. Included is a form that I can…
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Love and hugs to all who sent me Christmas cards.
I'm sorry I haven't been able to send any out this year, just been ill with the flu or gastritis. God willing I'm still around by the end of the year I will be sending out cards to my online family. Those who have sent me cards I feel so blessed and I'm so grateful. I have got cards from people I haven't really spoken too,…
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Do you know or have heard if an ulcer can
rise the CEA? Thanks guys.
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Pushed through a CT before insurance change
I was totally shocked when my onc called today and said I showed a asymetrical thickening of my left rectum (tumor was removed from right side). WOW just a little unnerved until I see my surgeon and get a scope really didn't expect this. Laura
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Ron 50 are you ok?
Ron I was just listening to the news here and it said some areas were receding but others had not crested. how are you doing dear boy let us know how you are and that you are safe mags
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new blood test
Have u heard ofthe new blood test for cancer? Does anybody know if its different from a CEA test?I tried linking the site.. but couldn't.. just google new blood test for cancer Thanks lisa
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I'M GOING ON A TRIP
to Lake Tahoe, Reno and San Francisco the middle of January. If there's anyone out there that lives close by and would like to meet up with me, give a holler. Sometimes I think of driving cross country and meeting all my CSN family. Maybe one day I'll do just that!!!!! Laureen
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Memorials
Forgive me if I missed the post this Memorial Day Weekend, but I didn't see anything like this posted as of yet this weekend and I know some had talked about starting a thread listing everyone we can recall whom we have lost on the colorectal board this past year. BTW, I did just notice today that CSN does have a general…
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Gail ! do you know how Lori is doing? and her son?
hugs dear!
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KathiM dear! The new Avatar is that Pic from today?
Hugs!
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thank you
Thank you just doesn't do justice to the feelings I have for all all the people that make up this amazing club. I was diagnosed a year ago this month with stage 3 colon cancer. I completed 6 months of chemo in September and am now feeling great. I will be 44 this month and feel lucky for every day I am alive. I have 2…
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Happy New Year
I am 3 years cancer free. I found out on Christmas Day I'm going to be Grandma. My youngest son and his wife had wrapped up shirts for my husband and I. Mine said Grandma in training and my husbands said Grandpa in training. They had postcards that had their picture on it, It said Santa hat $5.00, Christmas tree $30.00,…
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MRI /Ct scan
I have been reading about the dangers of scans. I was dx in April 2009, and have had all the standard procedures related to CRC -- rectal tumor removed/j pouch etc. I was reconnected about 2 months ago. I was wondering what your opinions are regarding CT scans versus MRI. thanks
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Dr. says no colonoscopy needed for Stage IV's ????
Hi All, We need your opinions on this one... Rick and I went to a new doctor yesterday, and after we asked her if Rick should have a colonoscopy since it's been a year this month since diagnosis, she told us, "No, we don't give colonscopies to Stage IV patients with metastases.". Huh? Am I mistaken in the belief that if…
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Happy New Year to my Online FAMILY
Hello ALL, Just wanted to stop by and wish everyone a Happy New Year! I haven't been around much but have been checking in. I so pray that the new year brings happiness, love and above all Great Health for us all. I love you all, and there are no words to express how much all of you mean to me. I am sad to look back at all…
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It's a good life (good way to start your new year)
I forgot again who originally shared this, but it's really worth re-posting. I keep listening to it and thought it would be a great and positive start to our new year. Go to--- http://www.youtube.com/watch?v=zARiyTFUovQ The song is called It's a good life, by Ben Carroll. (don't you just love his heart!) Thank you again to…