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anyone had chemo first than radiation FIRS TIME
hi there my daughter has Never started chemo yet. she just finished colon resection and then liver resection , now it is supposedly all gone. this is the FIRST time she will ever have started chemo , they discuseed instead of full chemo they might cut it short and do radiation the last month. Anyone similar to this? You…
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I
Does anyone know when cea levels are normal, will they stop chemo or do they continue with the planned chemotherapy?
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Vickilg - How are you doing?
Hey Vicki - Did you get treatment this week? I just got home from #9 and was thinking about you. Hope you are feeling good. Sandy :)
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Christmas/Holiday card alternatives
Dear Friends, It occurs to me that there may be many of you who either don't have the health, time or financial resouces to do postal mailings. So I am looking for suggestions for electronic alternatives. I know that the CSN site is often slow and we might overload it for sure if we were to try to use it in that way. It…
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calling all warriors...
My friend Carol, whom many of you were kind enough to send encouraging messages to a few weeks back, has had her liver resection on 10/24. She is home now. Experiencing pain of course (as well as the loss of her Jersey Shore home - the bottom level anyway..but she is fortunate to have a second home North that just lost…
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CATT protocol another diet ? is this the one for me ?
https://www.apjohncancerinstitute.org/caat-protocol play nice, bring it on, remember all we got is each other. the science in the diet backs up my other research on amino acids and sugar. and yes its a tough diet by any definition! i will try it soon! hugs, pete ps if you want more detail google ketogenic diet, if you want…
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baden baden will never be the same! adults only!
for adults only! so after a full conference day http://www.medwoche.de/fileadmin/content/2012/Abstracts_12/Kursinhalte_Onkologie.pdf my doctor mikael from denmark took me to the most famous spa in baden baden. anyone ever got naked with your doctor before ? the caracalla is spectacular…
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first day chemo since 14 april 2011, fasting today, praying, crying and smiling
still recovering removab, up all night to the bathroom getting over it. just like reconnection poos. my bp dropped to 60/30/60 which is about as low as one should go, so the treatments take you close to the edge here, which is what i want. so subject to bp and liver enzymes bouncing back i should be on low dose systemic…
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Cathleen Mary
Hi Cathleen Mary, I tried to send you a PM but your account does not accept PMs. You just need to click one of the buttons on in your profile section. :-) Cyn
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Have to be kidding
One step forward and you know the saying! This morning siitiing and waiting for the on call oncologist in my hospital room I started feeling not so good. Pretty much as soon as he walked in I started to puke. It was almost all blood. The onc now has ordered a colonosopy and the other scope down the throat for tomorrow.…
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What a weekend!
Well, maybe I should have gone to Monaco! As all y'all know, I had my appendix taken out today. The pain I'd had last weekend turned out to be acute appendicitis, which they found on yesterdays CT scan. My onc called at 4 in the afternoon and wanted to see me ASAP to get examined and to speed up the hospital check. The…
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Hi mates it is FRIDAY any interesting plan for the weekend?
Nothing here just resting ! What about you?
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surgery tomorrow
need prayers ... surgery tomorrow ... my surgeon said since she couldnt find tumor she will just have to mop the place and cut the lymph ... love to all
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Thank you so very much
Your most kinds words of love, encouragement and sympathy has warmed my heart beyond words. Christy and I are relaxing a bit now as all plans have been finalized. George's visitation will be tomorrow and a memorial service Saturday morning followed by a luncheon at one of his favorite restaurants. We think we did things…
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Sstill in hospital
Still in the hospital...cant get the counts high enough. Been giving white blood and plates. WBC. 09 PLATES dropped yesterday from 66000to 48000. WBC went up from. 08 to. 09. Have diarea about every 2 hours (sore butt) . My daughter is driving up from Cincinnati today which is great. Depending on how I do my precious…
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had or have - whats your view
So had 3month scan- everything clear and bloodwork good. Been this way for 16 months now. Just curious for those who are NED do you consider yourself as having cancer or that you had cancer? Semantics but just wondering.
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ted talk electric field therapy
dear friends, something a little different, any takers on this one ? http://www.ted.com/talks/bill_doyle_treating_cancer_with_electric_fields.html i wonder if this will help colorectals, i hope so! My wonderful American Integrative Doctor Todd Lepine sent me the link. If you are looking for one of the best in the USA i…
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Christmas
Hi, guys. I've been rather absent lately, so I may be behind the time in asking about this. Has anyone talked about Christmas/holiday cards this year? Do we want to do that? I would have to say that I so crazy busy that I wouldn't have time to compile the list myself, but if there is one, I would love to have it. *hugs*…
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Steve? are you home yet?
I have been so busy with my own life- new granddaughter, Charlotte, born last Thurs, 5 weeks early- That I am thinking I missed the post you were home and getting used to your new world~
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Update on my George:
Well where do I start. George is in big trouble. We went into the hospital last Monday and things are not going well. His poor body is just beat up. He is experiencing kidney failure, horrific diarrhea even while not eating anything. His heart is irratic giving them a bit of trouble, his breathing is labored although…
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Pete, Where are you???
Has anyone heard from Pete the past couple of days? Winter Marie
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Hey Pete - "Got Coffee?"
Know what an avid fan you are of coffee and enemas… So, here’s an alternative therapy sure to prick your interest… It’s organic – and all natural… And comes from coffee beans digested by elephants… The beans are then picked out of their own poop…sun dried…and sold to make gourmet coffee… So, whether you’re in Baden…
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Living with a J-Pouch
August 12, 2011, the Doctor came in my room after a routine colonoscopy told me that he found cancer. The tumor was real close to the anus. My husband and I went into shock. Now, what? Appointments were made. Test were taken. Then the news that the tumor make be too close to the anus to be saved. The cancer was stage 2.…
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change in meds
well i have been taken off folfiri and just started on folfox please will you all tell me any thing that might help? john
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Maintenance chemo of erbitux after resection of colon and liver
I had resection of sigmoid colon in July 2012 and liver resection in august 2012. RFA to mets in august 2012. Pathology report of colon tumour shows pT2 N0 Mx, liver mets pathology was mostly necrosis from the chemo. This was after 10 cycles of FOLFOX plus erbitux biweekly and erbitux weekly. Adjuvant chemo started mid Oct…
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PICC line blood clot
I had a port that leaked and ended up getting a PICC to complete my 4 weeks of 5FU. The first few days it hurt then started to turn red and swollen. Ended up going to onc and being admitted to hospital for blood clot. So had an ultrasound couple of months ago and clot was still there but small. I have been doing Lovenox…
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Avastin
My husband stage 2 in 2008 did surgery & Radiation all good until 2011. Then in 2011 CEA started going up and peaked at 46. This year he did Avastin & Oxi for 5 months. Had surgery Aug 10, 2012 for Colostomy due to three blockages 2 from radiation and 1 from dead tumor after surgery CEA 1.9. Now it is going up again it is…
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Had a scope done today
I had a scope done today. Dr. said that the had shrunk some. I hope all goes well with this surgery. I also have a question didd anyone with rectal tumor have any back pain? Thanks, Pat
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Angela/port issue
Hello Angela, I know today you see the onc about the port, I sure as h@ll hope they are going to do something STAT! Until your update I didn't realize how "open" his port was, OMG, unbelievable that they let it get to that point. I had a nightmare about my port last night and it was horrible, but the reality of what your…
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Avastin on CBC this Morning
Hi: Did anyone happen to catch the program on Avastin (and other expensive drugs) on CBC's White Coats Black Arts this morning? Some provinces in Canada cover Avastin (British Columbia for one) but most don't because it is so expensive - $10,000/month they said. I know it isn't covered for me here in Ontario. Anyone out…