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how soon can you tell if the chemotherapy is working?
Just wondering how soon can you tell if the chemotherapy is working? My daughter will be starting soon. I am wondering if they check often and how they check, thanks
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Australian Scientists using new targeted therapy to kill cancer cells
Pete, why are you in Germany? They're trying this new cancer therapy in Australia! LOL. Sounds promising, it's supposed to spare the healthy cells, they take and grow mini cells and fill them with chemotherapy drugs and they are programed to head directly to the tumor, testing so far shows it's safe and doesn't have the…
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How did you pick your screen name
My name is Kim, but almost every site I am on is Annabelle41415. Annabelle was my grandmother's name (well Ann) but she said it was Annabelle. When I went to join Pogo I wanted Annabelle but it was taken so I put in my age 41 after Annabelle and that was taken, so they suggested Annabelle41415 so that is what I have been…
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How to never get that nurse again, and do it without hurting her feelings? **UPDATE** had the talk
***UPDATE: So I listened to you all and today was the new infusion open house day, so I went just before they closed and there was one oncology nurse (known her since I've been going there) and the receptionist, so I asked the nurse how do I go about NOT getting a particular nurse again, she said to just tell her and they…
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Chemo and Immune System Question
This may sound really dumb but I don't understand how chemo and the our immune systems work in the sense that they seem to be fighting each other not working together. Chemo knocks down our white blood cells which are supposed to kill the cancer; right? How does that help? Won't that just make us worse? I know the chemo is…
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Christmas/Holiday card list tradition/Update: Currently who is on list
Dear Friends, Tootsie1 posted asking about the Christmas/Holiday card list this year. It has been a bit of a tradition in years past. I have offered to pull it together if there is interest. I will be using the list from last year as a starting point, so if you were on that list and prefer not to be on it this year let me…
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Autonomy vs. Auto, not me
A year ago I'd bought an older model RV with the intention of traveling the country in between treatments. That's just not feasible anymore, so I'm going to sell it. What I'm debating now is if I should buy a car or not. Currently, a bit more than half of the time I'm just not fit to drive because of the chemo so I have to…
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To End a Friendship or Not
Good morning, everyone... Dealing with cancer is hard, the physical toll as well as the emotional toll it takes on us is extreme. I try to stay as positive as possible about staying on this earth for a long time and fighting every step of the way to make that happen. My goal and focus is on my living. I get enough reality…
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Soursop Tea
I live in South Florida and have recently been encouraged by many people to drink tea made from the leaves of the Soursop tree. I did some online research and it promoted as having better results on cancer cells than chemo. Several sites all said the same thing as well as many people I have been talking to. Its hard to get…
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Low Dose Naltrexone?
Just saw this mentioned on another board....anyone use this, try this or research it?
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Who was treated successfully for liver metastases with chemotherapy alone?
Hi everyone - ok so I am losing my mind ... I can't remember under which thread, but I recently read a post by a member who was successfully treated for her liver mets with chemotherapy alone and has been in remission since (couple of years). I have looked but the search engine isn't the best or easiest on this site ... so…
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Good CT!!!
The last CT was declared clear with NED. The oncologist wants to do 4 more rounds of chemo and then scan again. He said if that scan is clear we will stop chemo and go with scans for a while to identify and new recurrences. The point of the chemo holiday is to let my body regenerate so in the event of a recurrence there…
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CT colon or colonoscopy
Both my two younger brothers have died from colon cancer. So I was advised to get tested. I am 81. I had RT for prostate cancer Jan/Feb this year. Should I have Ct colon or colonoscopy?
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Kenny H & steveandnat check in please
Hi fellas, just wondering how you are doing. You have both been having a real rough patch recently and I want you to know that we are thinking of you and praying for the best. Hugs, Marie who loves kitties
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Amazing Journey
Just a week ago, my right side was giving me bad pain, my feet hurt so bad that I had to use two canes and even then had to try to walk on the instep of the foot as much as possible, and my BMs burned something fierce. After they "done did ripped my guts out" on Saturday morning all of those symptoms have disappeared. My…
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D@mned if we do, d@mned if we don't
We were given 2 options today concerning Roberts port. Neither of which is an option that bodes well. 1. Stop all treament at the end of the month, wait 3 weeks, fix the port issue, and wait three more weeks before starting the trial all over again. This means no treatment for 6 weeks and given Robert's history of…
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Hi mates need your experiences on that!
I'm very fine with my cancer , chemo is working successfully and levels are near normality, but not completely yet! My main concern is that my liver enzymes are fine but bilirrubine have rise to 2.4! Doctors say not problem since it is caused by chemo and use to be frequent! But even that I'm still afraid about, so the…
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normal cea levels and chemo
does anyone know if cea levels are normal will they stop the planned chemo or do they continue on, thanks
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My Turn To Bitc#
Hello All, Well, has everyone received their insurance enrollment for next year? I did, and even called the company to verify the horrible news. The premium has more than doubled. And I discovered, which I should have realized before, that when I turn 70, the supplemental life insurance is no more. I told the customer rep…
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post surgery chemo-yes or no??
Hi all - I've been battling colon cancer for over 5 years now, had my first surgery in 2005 to remove tumors which had metastized to my ovaries and omentum followed by 12 rounds of FOLFOX. After a year, some tumors showed up in a bit of omentum that was not removed originally and I had HIPEC surgery to remove them along…
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How often do you get your CEA #'s and when to get PET... Still in chemo phase
Ok...just a couple of quick questions.... How often does your onc check your CEA? My Dr ran it right before starting chemo and I asked him to do it again in Mid-September. it will be November 1st tomorrow...my next office visit. I am going on treatment #8 of Folfox out of 12 next Tuesday., My other question is when did…
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Avastin & Xeloda - Anyone On This?
Well gang... my platelets just won't cooperate. Was only able to get chemo once every 4 weeks so the ONC put a halt to the folfiri. If my platelets are fine on Monday, I will start Avastin only plus Xeloda. Its not as strong but ONC feels not as strong is better than none at all. Has anyone been on Avastin and Xeloda only?…
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Thanks for welcoming me back
Here is our journey thus far....Roger was diagnosed in Nov. 2010 and had his port installed on Dec. 8, 2010 thus our life changed. Stage IV with numerous liver mets!! Inoperable due to the mets in the liver surrounding the whole inside (middle) 65% compromised. We started with the norm 5FU, Oxy and leucavorin after tx #10…
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anyone had chemo first than radiation FIRS TIME
hi there my daughter has Never started chemo yet. she just finished colon resection and then liver resection , now it is supposedly all gone. this is the FIRST time she will ever have started chemo , they discuseed instead of full chemo they might cut it short and do radiation the last month. Anyone similar to this? You…
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I
Does anyone know when cea levels are normal, will they stop chemo or do they continue with the planned chemotherapy?
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Vickilg - How are you doing?
Hey Vicki - Did you get treatment this week? I just got home from #9 and was thinking about you. Hope you are feeling good. Sandy :)
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Christmas/Holiday card alternatives
Dear Friends, It occurs to me that there may be many of you who either don't have the health, time or financial resouces to do postal mailings. So I am looking for suggestions for electronic alternatives. I know that the CSN site is often slow and we might overload it for sure if we were to try to use it in that way. It…
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calling all warriors...
My friend Carol, whom many of you were kind enough to send encouraging messages to a few weeks back, has had her liver resection on 10/24. She is home now. Experiencing pain of course (as well as the loss of her Jersey Shore home - the bottom level anyway..but she is fortunate to have a second home North that just lost…
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CATT protocol another diet ? is this the one for me ?
https://www.apjohncancerinstitute.org/caat-protocol play nice, bring it on, remember all we got is each other. the science in the diet backs up my other research on amino acids and sugar. and yes its a tough diet by any definition! i will try it soon! hugs, pete ps if you want more detail google ketogenic diet, if you want…
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baden baden will never be the same! adults only!
for adults only! so after a full conference day http://www.medwoche.de/fileadmin/content/2012/Abstracts_12/Kursinhalte_Onkologie.pdf my doctor mikael from denmark took me to the most famous spa in baden baden. anyone ever got naked with your doctor before ? the caracalla is spectacular…