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Regarofenib in India
My dad is on reagrofenib since Jan 4th 2013. Anyone else on it here ? ritu
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Cancer is back..On phase 1 clinical trial MPDL3280A
My last scan reflected cancer had returned.....several nodes in my lungs and found a mass in left pelvic area. My Oncologist sent me to SCRI in Nashville and I qualified for a Phase 1 clinical trial .....drug is MPDL3280a, given every 3 weeks. I would really appreciate if anyone on the trial has had good results. At this…
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unreasonably angry tonight
I had a really bad day,I thought I'd give talking to my wife another try. The conversation was brief mostly about what I have become tether to bathroom; muscle gone again; so standing or walking is a real problem but I can stand and walk short distances. Even though we spent the holidays with our family out of State and it…
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RIP Rob in Van
My heart hurts tonight. Rob passed today. He was a wonderful friend and a good mentor to me as I came to terms with my stage IV dx. He was a minister, and a very wise man. He posted here a lot until a few years back. We stayed in touch. He didn't let anything stop him, and even was aggressive having extensive surgery for…
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A New Scan & Lung Biopsy
Hello All, For the "newbies" who may wonder why I'm posting on this board, my daughter, Johnnybegood, is a 4+ years survivor of Colon Cancer, we are both members here and this is our "cyber family". Just wanted to clear that one up. Yesterday, we saw the second onc at MDA. Next week, hubby will have another…
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Newbie says Hi
I really am a newbie at all this...both having cancer and getting involved with an on-line support group. I was recently diagnosed with stage IIIb colon cancer. I had colon resection surgery on December 14th and I have my first appointment with an oncologist this Wednesday, Jan 16th. That's when I'll find out what my…
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ct results today.
My wife received the results of her ct scan from last week. They said some of her cancer has shrinkage and whatever hasnt shrunk are stable. There is no new growth either. The Drs. were happy with the scan results. My question is, after four treatments, is this considered good results? Or is this pretty standard? I am…
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Chemo + melatonin
some people might be interested in this; http://www.ncbi.nlm.nih.gov/pubmed/12820485
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Prayers needed update
Very bad news. All per vinous cancer spots have grown and new ones have appeared in liver and perinatal. No remission for me. Chemo changed to irrotecan and Eurbitux. Another scan in three months. I asked doctor how long can you live on chemo for life and he said it depends on how I react to chemo. Wondering if I should…
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Need Your Prayers
Hi everyone. I get my Petscan results tomorrow and I am hoping you will find it in your heart pray for me. Last scan five months ago showed multiple spots in both lungs. A spot on pelvis and a spot on adrenal gland. Chem for me was reduced to Avastin and Xeloda due to low platelets. Since the switch my CEA has been rising.…
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Dr. Heinz Lenz USC, a Worth while trip!
We went and spoke to Heinz Lenz MD at USC Norris Cancer Medical Center. We knew he was brilliant and have read many articles that he has written. We had never looked up a picture of him and was expecting a little old German man, (Kind of a bad movie mad scientist.) in comes this bright eyed energetic man that was extremely…
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Survived another 'country switch'....
We arrived safely in The Netherlands on Tuesday. It is very cold here, and today I was gifted with a soft snowfall. I am busy putting the house together, and settling in, contacting friends, and planning our days. The end of February we have booked a cruise from Rome to Turkey, Israel, Greece. By then, this sun-loving gal…
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Liver Mets
Hi! EVERYBODY. I've been away for some time - busy with the grandkids and work. I always have kept everybody in my prayers and I love everyone of you. Question? My CEA level has been rising so I went for the normal PET and they saw a 2 1/2cm lesion on my liver that now has to be removed along with follow up chemo. I'm…
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Fear
How do I overcome the fear that I'm going to die? I was just diagnoised with colon cancer the first week of December. I had been having problems with swollen lymphnodes on the right side of my neck for a couple of months. I was being treated with antibiotices for what a doctor at a walk-in clinic felt was due to a bad…
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Hi Mates it is FRIDAY any interesting plan for the weekend ?
Not very much here ! Probably going to the cinema to see " Les Miserables " What about you Mates?
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My young caregivers
Since being told I had Colorectal CA stage back on 16 Jan 2009, my 2 young children have been there thru think and thin. They seen me go thru several surgeries, come home with a feeding tube, seen me with a ilescompty (sp), dressing changes, being connected to TPN via PICC lines, more then once, several times. I am in…
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Sandwich chemotherapy
I'm shopping around for liver surgeons. Found one who, "Has a large experience with sandwich chemotherapy for colorectal liver metastasis undergoing liver resection." Can anyone tell me what the heck this means? Googled sandwich chemotherapy and got little. Does anyone understand this terminology? Thanks, Chelsea
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Hello Everyone/update
Hi Everyone, It has been awhile since I posted anything on here. There has been alot going on in my life. Most of you know that I am a colorectal cancer suviour stage 3. Under went numberous sugeries on my colon, some was removed, Had a resection. And a ilesctompy bag, feeding tube, PICC lines x 4 with TPN and medication.…
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Visitor Five Year Survivor Stage 4 ~
Hi everyone just wanted to visit and let everyone know I'm still around five years later.... Stage four with four liver mets. Went through a year of chemo/radiation/liver resection. I had adenomcarinoma ??? Diagnosed Feb. 04 did chemo April 04 til April 05. Have been NED every since no more chemo and no surgeries.... They…
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Lynch Syndrome? Kras, signet cell, etc?
My husband's surgeon has been recommending that he do the genetic testing. I asked him if it comes back negative does that mean our kids will not need to be tested early and he said no that they should still be tested 10 yrs before their dad's diagnosis. I can't help wondering why bother with this - just another expense.…
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Cheryl Hutcherson
please forgive me if I have missed her passing.....has anyone heard anything? maggie
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Elevated CEA...more Chemo...Lost Job...Help
Today was a bad day. My recent scans show more cancer, CEA highest ever and today I was Laid off. Unemployment and no insurance is very scary. I live and work in Californiia. I moved here for a new career in 2011. All seemed well until today. I want to pursue Legal recourse for Cancer/Insurance cost discrimination. Anyone…
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Vitamins 'blocking cancer treatment'
Interesting article on taking vitamins whilst under chemotherapy treatment: http://www.watoday.com.au/world/vitamins-blocking-cancer-treatment-20130109-2cfjs.html
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update and happy new year
Hello Family, Firstly I want to thank those who sent me a Christmas card, it was really very sweet and it put a smile on my face every time I received one. Finances prevented me from sending any out abroad, but (touch wood, god willing) next Christmas those on the list will not escape me. :-) I have been lurking, I think…
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Kathleen808 and others with distant lymph node involvement - also bone involvement ?
Hi everyone - a bunch of old post were brought up last night by a spammer and many were lymph node posts which I hadn't found in my searches. Kathleen I see your husband had peri-aortic involvement some time ago. I believe that is the same as para-aortic? My husband was diagnosed with rectal, stage 4 in August and just…
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Ct scan results
Well, I got my ct scan results yesterday and it was a mixed result. A recap is I started taking the new chemo Zaltrap in September to hopefully do its thing against the tumors in colon, liver and lungs. Zaltrap was a little hard for me but I prevailed! The good news with the scan is the tumors in colon and liver are the…
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PET Scan results **UPDATED**
I had my PET on Friday and got the results today. The good news is that the tumor in my right lung is gone. The bad news is that instead of one medium size and shrinking tumor in the upper lobe of the liver, there are now two very large tumors that occupy from 1/3 to 1/2 of the lobe. The onc says surgery is out because the…
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Chemo + Aloe
http://iv.iiarjournals.org/content/23/1/171.full.pdf Aloe was a complete surprise, immune stimulant and cancer killer + anti viral. A Priest has a special formula from Brazil, Google it. "The percentage of both objective tumor regressions and disease control was significantly higher in patients concomitantly treated with…
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Mushrooms and cancer
http://www.ncbi.nlm.nih.gov/pubmed/20694295 Agaricus sylvaticus. one of many mushroom species that have amazing properties. Similar to Blazei.
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Braelee - Natalie - How are you doing?
I was wondering how you were doing? We both had surgery on liver last year, and started Folfox about the same time. Did you have all 12 doses? Just thinking about you. Hope everything is good. Sandy :)