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CT results as I move toward 7 years with stage 4
Hello all, I am sorry I am not around as much. I still read many posts and just don't respond as I should. To any new members, I am stage 4 ( 4 lung resections, 1 liver rresection, colon, 10 months chemo, pulmonary embolism) and I am still here. The randomness and unfairness of this disease is the part that is so hard. I…
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Clean scan last week, surgery tomorrow.
Well I'm checking in to the funny farm for a week, rectum removal, ovary removal and expected just an ileostomy. Doctor is telling me that I should prepare myself in case he can't spare the muscle. I'm going with I'll worry about it if it happens. He says the tumor was really close to the muscle and he'll do his best.…
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If you would have told me I lived in such a way that I could post this, 20 years ago, I would have l
Queen Beatrix will abdicate in April...we will now have a King for the first time since 1890! Kingdom of the Netherlands (King/Queen): 1813 – 1840 William I (as Sovereign Prince 1813 – 15, abdicated) 1840 – 1849 William II 1849 – 1890 William III 1890 – 1948 Wilhelmina (abdicated) 1948 – 1980 Juliana (abdicated) 1980 -…
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“Is the Immune System Really the Answer to Fighting Cancer?”
I know that is the current theory that we fervently believe holds the promise for our futures – but how much of that is right, and how much is an illusion? For the past eighteen-months, I have grappled with this subject and have read and listened intently to everyone’s opinion on what they were taking to “boost” their…
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Doc Hawk
I was going through looking at clinical trial....spurred on by Coloncan's post on Reolysin (checking to see if maybe it's listed as a possible clinical trial up here) ..... anyhow another clinical trial I came across was for Botox injections to help.... The Value of Botox-A Administered as a Single Intra-rectal Injection…
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Store of Hope
As I came home from an appointment with a pulmonologist I noticed a strip store front that needs to be leasesed. I thought what about a store named "Hope ". Stock it with support staff, hope gift items and. alternative therapies. What would you stock or add? I "hope " you can have some creative fun with this idea.....i
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Update on my daughter
Hello, everybody. I can't believe I actually got onto the site easily today. I am once again going to try to post a topic - so many times I lose them. I am still so upset about losing all my private messages, especially those from the ones we've lost since I've been coming to the site - Jennie, Lori Lepper (lepperl), etc.…
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wahine56
Welcome...i read your post in the stage 4 post and wanted to say hi and sorry for all you have been through. You will find lots of support here...as well as answers to any questions you may have. I hope you have lots of family and friend support too. Let us know how your treatment goes.
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East Georgia Cancer Coalition, What Makes a Man and Woman Feel Loved
Found this just wondering how you all think based on experience, From a Healthcare Perspective Page 4 What Makes a Man and Woman Feel Loved Lemont C. Monroe, Sr., LPN II, TH.B, M Div. When the institution of marriage was established well over 2000 years ago, it was established by GOD with much flavor and favor, with every…
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5fu iv versus 5fu orally. Any advice???
Dr is considering halting oxi temporarily and continuing 5fu and is offering to continue the iv every two weeks with pump for 2days like we have been doing or switching to oral 5fu which I believe is daily. wondering about any of your experiences with this. thanks
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Doc Hawk
I was going through looking at clinical trial....spurred on by Coloncan's post on Reolysin (checking to see if maybe it's listed as a possible clinical trial up here) ..... anyhow another clinical trial I came across was for Botox injections to help.... The Value of Botox-A Administered as a Single Intra-rectal Injection…
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Anyone had to have a stint put in kidney?
My latest CT scan showed I have a tumor now on my left kidney and causing a partial blockage. It has been recommended and I am scheduled to go in next week and they are going to put a tube in my back to my kidney and I will have to wear a bag...hopefully temporary. Anyone else done this before? The bag scares me and I…
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What are the side effects for Folfiri and Erbitux???
Well, the Tumor Board reviewed my case and liver resection surgery is not an option at this time. There are two larger tumors in my liver (3cm and 1.8cm) that are clearly visible on the MRI. Unfortunately there are also three other likely smaller tumors visible on the MRI as well. And the five tumors are located in…
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Hi mates this is FRIDAY , any interesting plan for the weekend?
Here nothing special we go to the cinemas ,probably LINCOLN ! Did any of you have seen the movie?. What about you MATES?
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Interesting? Test to predict 6 possible reactions to folfox,including neuropathy/plus new article on
www.marketwatch.com/story /inform-genomics-presents-results-for-onparttm-showing-high-degree-of-accuracy-predicting-six-common-side-effects-of-folfox-chemotherapy -for-colon-cancer I can't get link to work but if you're about to do FOLFOX, you might want to read more as test can indicate if you'll experience studied side…
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CEA up a little... concern???
Greetings I had a blood test on Monday, and received the report today. my CEA level over the past year went from 65 down to 8, then down to 2, then down to 1.6 which was about six weeks ago. (after 24 weeks of Folfox6 & Erbitux) this week is week 12 of the Xeloda/Avastin... and my CEA level today is up a little bit. it…
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PhillieG How Be U?
Haven't seen your smiling face or any of your great pics you use for avitars lately. Hope you are doing so well, that your days are full of fun and laughter. Marie who loves kitties
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Brain Mets: Stereotactic Radiation?
I hope this doesn't double post. I am not understanding the trimmed versus the full version in the preview of this email I am writing. If it does, apologies. If anyone has any experience with stereotactic radiation for brain mets I kindly request they post or send me a pm. My husband has recently been diagnosed with two…
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Wills and paperwork - running out of time?
I met with a lawyer on Mon. (referral from a friend) and he was 40 minutes late and asked me how long the doctor gave me....that didn't sit well with me. I told him no doctors really know that and he shared he knew someone who outlived their timeliness by 12 years. Grrrrrrr... He is lucky my steroid had worn off some…
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2nd Line Treatment Option ?s for Stage IV Colon Cancer
My 67 year old father (Stage IV Colon Cancer mets to liver & peritoneum) has finished 1 year on a clinical trial with 5FU + metmab or placebo. he only did 6 months of Oxiliplatin) after he had colon resection 11/2011. We've learned that his CEA is rising (I know some docs don't care about CEA) and that some of the lesions…
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Hipec if cancer other places
Does anyone know if they can do HIPEC if there is cancer other places? I have three spots in pelvis but have spots other places too. I just figure if they can get as much out as possible it helps my odds.
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folfox with 21 day cycle and xeloda
my dad just started ( 4 days back ) on folfox 6 with 180 mg oxaliplatin infusion followed by 2X2 oral xeloda (500mg) tablets for 14 days and then a 7 day break. making it a 21 day cycle.... has anyone had this protocol ? please share your thoughts/experiences.
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rgcc molecular cancer stem cell profiling
http://petertrayhurn.blogspot.com.au/2013/01/ordering-rgcc-molecular-ctc-test-kit.html I ordered this a few days ago, going direct using email orders. bypassing the previous distributor of the test reduced the price by $2000. now thats exploiting cancer patients. i have my old dec2011 rgcc results already published on my…
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Fever and low white blood cell count from chemo?
www.benzinga.com/news/10/01/3276805/amgen-phase-3-trial-of-neulasta-in-patients-with-colorectal-cancer-met-primary-en Link doesn't seem to work but results thus far are favorable if on FOLFOX or FOLFIRI,with Avastin as per PAVES (Pegfilgrastim and Anti-VEGF Evaluation Study) , the phase 3 trial - goal is to mitigate low…
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Went to a dutch swap meet today....
... in the southern part of The Netherlands...went through FAST! So, instead of driving right back...we decided, instead, to have lunch in Germany! We had pork roulade, red cabbage, and potatoes with a lovely brown gravy! Gotta LOVE the geography of Western Europe!!!! (We filled up on gas...20 Euro cents per liter cheaper…
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Anyone have any experience with TACE
Hi everybody, Steve and I met with the Chief of Surgery at a hospital in Montreal. This is where he had his HIPEC surgery last Spring. In fact, this surgeon participated in Steve's surgery. This doctor was happy with the tumors (liver) response to the systemic chemo. Recommended to do 15 sessions of chemo (goes for #8 next…
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ATTENTION: wisdom/suggestions for crc patients
I know there is a ton of knowledge on this netwrok! And I hope that others will try to distill some knowledge that just might help other crc patients with there battle against cancer! In my case I have learned a couple important things that I'd like to share with others -- and I hope that these couple things might actually…
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Doc Hawk - Ray
How are you doing? Haven't seen a post from you in awhile, getting concerned. Hope you are feeling better. Sandy :)
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Being an activist, starting with a media release! what do you think ?
I got no real idea what I am doing, but it was fun on the radio tonight. Not knowing what I am doing has never stopped me before. I don't think this will go anywhere, but at least I have had a go. I emailed it to a few large sydney newspapers, and spoke on radio tonight. off to sleep. As a co-incidence i got the full…
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Ramucirumab:"Novel Drug Shows Promise in Gastric Cancer"
www.medpagetoday.com/MeetingCoverage/MGICS/37022 and there's something with no name from Dainippon Sumitomo Pharma Co that targets cancer stem cells and is in trial somewhere in US (have no more info on this one;just citing it as an example of research being done all over even if not ready yesterday)