-
Dropping by to say hello
Just dropping in to say hello to everyone and do a little check in reading. I just finished my chemo/rad and will hopefully be returning to work this Thurs to try to gain some days back for the surgery. It's a sit down job so we'll see if I'm healed enough. Nervous as expected because we'll find out what stage I'm really…
-
Protein in Kidney on Avastin
Being on Avastin they always check my urine for protein in kidney. It's always been negative but this time it was 1% which the nurse said was no big deal. My urine is a weird amber color. Has anyone else had this? Will drinking a lot of water help with this or does it get worse the longer I stay on Avastin. Can it be…
-
scan on tuesday
Hi All, Well I have 1 more treatment, but now I have a scan on Tuesday Dec 4th..kinda freaking out about it. Know when I go in on the 10th to the Dr's I will be looking out the window with my eyes closed and my ears blocked so the Dr. can't tell me anything, and I'll be saying out loud lalalalallalalalala I can't hear you.…
-
Did your Onc. mention diet?
The anecdotal info. I have is that most Dr's do not give diet/lifestyle advice to cancer patients, in fact some will even say 'eat what you want', personally I believe better to be happy and have a cookie than be miserable eating brown rice crackers. This paper shows diet can change gene expression;…
-
Wish people would stop asking 'How do you feel?' or 'How ARE you?'
So yesterday I'm running up two flights of stairs to get to a class on time (I'm 62 in 12 days) and had 2 people stop me and ask those questions. I know they mean well, but I'd really like to just be 'normal' again and not always be 'the person who had cancer twice'. The sympathy in their tone really dampens my spirit. The…
-
A Merry Christmas!
I had wanted to get on earlier and wish all of you wonderful people a very merry Christmas but I've had trouble loading the page - just tries and tries and then nothing. I hoped the "upgrades" would make it better, but it hasn't helped yet for me. I hope all of you had a good Christmas and will have an even better new year…
-
"Can Metastatic Colorectal Cancer Be Cured?"
You might have to be a member of site to access (free to join) and i haven't read all of it yet (lengthy) but some might find it useful: cancernetwork.com/print/article/10165/2044871?printable=true seems if mets limited to one organ,esp liver,with a good team,........ as usual,lots of other stuff on CRC research from all…
-
Had Stage 3 colorectal cancer: 3 years later I'm doing fine
Hello friends~ Three and a half years ago I was diagnosed with Stage 3 rectal cancer and my world as I knew it changed forever. Recently I had my routine labs and CT scan and received the "all clear" from the oncologist. Of course I was elated (mild understatement but no one word describes the sense of relief and joy). I…
-
Word Of Warning
This is something I was told by a Walgreens pharmacist tonight when I went to pick up an antibiotic for my hubby. I was discussing his recent reaction to the CT contrast dye, and she asked me if he was on Metformin. He is not, but I know that some cancer patients have recently started taking Metformin. She said that there…
-
Rest in peace - lizzydavis (Lou Ann)
To those of you who have been on this site for a while, you will remember a fine lady whose CSN name was lizzydavis. It seems each of us who had tried to contact her via email here got the following message from her husband George: I just found Lou Ann's password to this site tonight after many attempts and trying to email…
-
Treated like diabetes?
My CEA doubled to 30.6. Doctor says we are limited in treatment because platelets are low and he does not see them coming back up. Said he doesn't think we can get this into remission. He said that these days colorectal cancer can be treated like diabetes but that he cannot promise I will get that either. What exactly does…
-
to honor my mom
I have not posted in quite some time. I hope all of you who recognize my name are still doing well! My story is that my mom was dx in '07 with stage 4 CC. I was her caretaker through out her battle. She went through the "usual" with treatments, oxy + avastin, K-ras mutation, folfiri + avastin, back to oxy, had sirspheres.…
-
Updater
This is my update on my (http://csn.cancer.org/node/251526). Ok, I made it home yesterday (Thursday) afternoon (driving alone). Had my surgery endoscopically on Sunday noon; woke up to find myself in my bed. Things felt great. I was connected right away, walking around at the doc’s instructions. Many internal movement of…
-
how many more ?
how many more xmas ? I asked myself the other night. As I walked through sydney city looking at xmas display windows, xmas trees really holding both the kids hands very tightly amongst 1000s of other families. I felt like this xmas is extra special for us. i asked myself quietly how many more xmas's with the kids, wife and…
-
avemar
anyone having experience using avemar with or after chemo ?
-
Oh what a night!
Well, my Christmas Eve was nice up until the part where my sister had to take me to the ER. I'd been out of breath and had a bad pain in the upper part of my right chest. After a CT Scan they found another blood clot in my right lung, so kept me over night for observation. When the doc came in this morning I told him "The…
-
Hi just intoducting myself
hI all First of all I should warn you this will be a long post. My kids kid my that when I send an email its like I'm writing a book Ok I was diagnoed in March...had surgury to remove tumor from my colon and has spred to my bladder. Surgery went very wellhad no lymph node involement...yea. Started chemo end of April. Ended…
-
neutrophils and platlets
I am pleased to report, that my Husbands bloods have come back to pre chemo levels. He was able to have his treatment this time, only missed one, however they dropped the Oxaliplatin by 35% and rehydrated him on disconnect day. It seems to have done the trick as he is starting to get his determination back (with a little…
-
Merry Christmas from snow covered Virginia
Dear Friends, Yes, Virginia...there is snow...lol...at least in the northern most part where I live. It is our first white Christmas in a long time. We got about 3 inches of the fluffy stuff. I hope that each of you has a Merry Christmas with family and friends. May peace and happiness be yours. Hugs, Marie who loves…
-
Waiting on PET/CT scan results - UPDATE
I had a PET/CT this morning and I had the onc promise to call me by 5pm. I am not a patient patient. I guess that is the nurse in me too, they can say something takes 1 or 2 days but I know better. I am scared, nervous, and tired. I got my last chemo treatment yesterday Folfox #12 and get my bag disconnected tommorrow. So…
-
"You don't have to do that."
Recently a friend of mine sent me a pair of those colorful, wooly socks that are so popular these days. She said that she was going to send me a pair every month. My first thought was to tell her "you don't have to do that" then it occured to me that maybe she did. She lives in New Jersey and all she can really do is sit…
-
Good news ... Ct scan was clear
I h admay appointment with my dr today and my ct scan came out pretty clean.. I have a couple of lesions on my kidneys and liver looks good. I have just 2 more Folfox treatments to go...the dr is lowering myoxaliplatinagain. The neuropathy is pretty bad...he is also prescribing a drutoo help with the neuropathy. Ihope…
-
7 years
Today is the 7 year anniversary of when i was diagnosed stage IV. I currently am NED per my last scan. I started this post not to brag but to give hope to others who are new to this. The same way that Craig Phil and Mags have inspired me in thier many years of beating this disease. Some might say surviving the disease. But…
-
site problems
The developers are working to address the many issues that have occurred. The upgrade worked perfectly on the dev site; it's very disappointing that so much has gone wrong. I'm very sorry for the situation. :-( Greta
-
In this days , l Want to thank all of you ...
Your generosity ,help , optimist and friendship your joy of life ,support, and wisdom. It's been 4 years since starts on this jurney, 4 years of pain and frighness ,4 years of feeling like a zombie, but also discovered that has been 4 years of friendship ,solidarity, love beyond my little circle of family and friends .Also…
-
Treatment scheduled for tomorrow
Christmas was so nice because I felt pretty good and was able to enjoy the family. This was especially true with the grandbaby celebrating her first Christmas. Everyone is gone and now it's back to reality...treatment tomorrow. Does anyone else dread it! Oh well I have to tell myself it keeps me going so I can celebrate…
-
A christmas hug...
from Germany. Or better a "glad-there-are-few-days-off-to-spend-with-family-and friends-hug" from that agnostic german girl that's sooooooo happy you all are out there. Thanks for your help during the past turbulent 13 months. Thanks for ypur kindness and knowledge, your shoulder to cry on and your comments who made me…
-
Brain Tumor-surgery Fri. - scan results, too
Had a seizure Mon., in my car while stopping to explain scan to a friend. Luckily, he was able to get help and send me to the hospital by ambulance. Am mri and scan revealed a small encapsulated tumor. The Dr. feels best to remove and radiate. He has residency and fellowships at Sloan and MD Anderson. He spoke to my…
-
okay taking advantage
okay so here is the deal....we can only post..so I am going to take up your time and tell you a Christmas cancer story. I have one daughter only who married last year at the age of 29 .....her husband (Jewish) love him love him.....has a younger sister who married a young man with jaw cancer .....diagnosed 3 years…
-
Christmas and New Year.
Just like to wish everyone a great Christmas, and hoping that all your dreams come true in 2013.