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wow
hello everyone wow this is all new wow .well i hope hope you guys are doing well with everything thats going on with the good the bad and the sad i just wanted to drop in and say hello you all of yous sorry i haven been on just so busy with everyday life but i can sure say that i miss you all hugs to you all Tina
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OT
My mom passed away on Monday @ 6am from complications resulting from vasculitis and a staph blood infection. She was a 30+ year breast cancer survivor. 4 out of 5 kids were by her bedside when the ventilator slowed down and her BP and heartrate declined. I have to believe she knew we were there, holding her hands, stroking…
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scan results
I just got my scan results back and still no evidence of disease. For those of you who dont know my story i have been battling stage IV colon cancer for over 7 years. I have had 2 recurrences. The last one was at the end of 2011. I had my 4th surgery in December 2011 and have been NED since then. I hope this gives some of…
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Clinical vs Empathetic
So, we go to visit my Wife's prospect Endocrine Surgeon. She has a cyst or tumor on her thyroid gland. We speak with the surgeon and he tells us from the pathology report it may or not be a cyst, and could be a tumor. If he had the actual pictures he could instantly tell the difference. My wife says I am sure it is cancer,…
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8 Join us Walking, Swimming, Cycling, Weights, Paddling, Jogging, Hurling, Yoga, Sauna 4 SURVIVAL BO
8 Join us Walking, Swimming, Cycling, Weights, Paddling, Jogging, Hurling, Yoga, Sauna 4 SURVIVAL BOOST Yes its back for 2013, Happy New Year all colorectals who made resolutions to exercise, feel free to post away. *** GET MEDICAL OK AND ONGOING SUPPORT BEFORE STARTING ANY EXERCISE PROGRAM, I did *** *** DO YOUR STRETCHES…
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Life Extention membership & $25 credit...and questions
Just came across this link for a free 6 month membership to life extension, that comes with a $25 credit. I used it to buy 120 5000 IU Vit D3 and 500 1000 IU Vit D3 - for $9 shipped, which seemed to be a good price. Does anyone know anything about these guys (Tans?) and how their vitamins compare to other brands - like…
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First ct scan today.
My wife has her fitst ct scan today to compare against the first one they took back in october when they dx her. We will get the results back on monday when she goes in for her next treatment. Needless to say we will be worrying all weekend. Please keep her in your prayers for a good scan result.
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is this normal?
my wife has undergone four rounds of chemo with oxy and 5/fu pump for 48 total hours of treatment. The last two treatments they added a half hour of avastin to the mix. Her last treatment was on 12/27/12. The problem is she is so weak. Dhe has no appetite and no energy. Should she be feeling this way? Is this normal? I…
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Options for liver mets
Steve is still in the hospital with the blood clots. He was granted an LOA this am to meet with the liver surgeon. He did not feel that resection was an option,at this time, due to the extent of the disease. Felt Steve would be left with an inadequate amount of liver. Feels even sequential resections would be difficult in…
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How long does your chemo treatment take?
Just curious - my husband typically has a 2 to 3 hour wait before chemo starts. So a 2 1/2 hr treatment can easily last 6 hrs. Is that typical? It's a bit frustrating. He gets early morning appts - usually 9 or 9:15. And then he sits there until almost lunch time some days. He is doing folfox plus 30 mins of avastin. He…
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For those unfamiliar with Dr Lenz, a little on some of his current work on Wnt:
www.onclive.com/publications/Oncology-live/2012/December-2012/Five-Wnt-Related-Questions-for-Heinz-Josef-Lenz-MD-FACP/1 WHERE DID THIS LINKAGE COME FROM? CSN STAFF? I sure didn't do it!!!!!!
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Update on STAR Ablation - RFA for spinal mets
Unless you are stage IV, or another stage with recurrence/progression to the spine, you wouldn't ever have to deal with this. But I thought you all might find this interesting, and it is something to keep in the back of your mind should you need it some day. I know a lot of people complain a lot about no cure for cancer…
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is this normal?
my wife has undergone four rounds of chemo with oxy and 5/fu pump for 48 total hours of treatment. The last two treatments they added a half hour of avastin to the mix. Her last treatment was on 12/27/12. The problem is she is so weak. Dhe has no appetite and no energy. Should she be feeling this way? Is this normal? I…
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Great diarrhea help
I know that many people have a terrible time with diarrhea. It has been a constant problem for **** since his second surgery in May 2010. However, when Dr. Lenz wrote up ****'s current chemo mix he also said **** should be taking a probiotic 3 times a day. He said that people are doing great with probiotics 3 times a day…
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Using DHEA to boost immune function
I got results for my DHEA, I was advised to start supplementing, I did lots of research see the blog for details if your interested in boosting your immne system this could be an area of research and testing. http://www.ncbi.nlm.nih.gov/pubmed/9008662 this is the basic possible science I have started DHEA supplementation.…
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“The Sundance Army Needs You” – Help Get Me on the Jeff Probst Show
Well, we were shot down in flames by Dr. Phil…I think I’ve mentioned before how “Deafening” that Silence can really be. But, it was worth a try…and it was a good try…I wanted to thank everyone again who put in a good plug for me and supported my project…and for the others who followed the story…(Sorry, Maggie May…The Lion…
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“Society’s Perception or Misconception on the Image of What Cancer Really Represents?”
In the midst of a hectic schedule and all of the associated mayhem I’ve found myself dealing with, I paused for just a few minutes to check out one of the football game that was playing yesterday – Indianapolis vs Houston The head coach of Indianapolis has had leukemia and for the past three-months had been under going…
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surgery very worried
hey guys, out of the hospital after 29 days, what a ordeal, after a battle with a severe infection and almost not making it, somehow i did!!! turns out i had a ruptured bowel and that caused the infection, i have surgery scheduled for the 17th, my fear is after 2 colon resections there is a huge chance that im going to…
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Did you know Hemerrhoids has two rr's and not two mm's and now that we've broken the ice on this lov
I love telling the world I have hemerrhoids since I've had my kids. And better is having to say that the radiation obliterated them and now I can't sit or go to the bathroom without cringing. Does anyone have any solution to healing this situation faster? We're already tried lidocaine, Hydrocortisone suppositories,…
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Hi mates it is FRIDAY , any interesting plan for the weekend ?
We are still in full christmas time ! We are preparing the last day of Christmas ( nativity ) on the 6 th. This is the most important for the Childs , because The 3 wise man are coming with the big presents for the kids ! ( Santa just brings part of it ) .So is a magic night ! . What about you mates?
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Neuroendocrine Colon CA
Hi All, My husband Frank, was diagnoised in April with Neuroendocrine Small Cell Poorly Differentiated COlon CA with met's to liver and multiple lymph nodes. We went thru 6 sesseion's of VP16 and Cisplatin, after 3 treatments, the tumors in the left arm went down 1cm, and the large one on his liver went from 2cm to 1.8 cm,…
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CEA steadily rising, new chemo Irinotecan
Well, as I thought, the CEA is steadily keeping up it's rise, up to 24 this week, so onto Irinotecan every two weeks. New chemo for me. This sure bites, but what is one to do?? Oh, well, onward to fighting it a bit more. Winter Marie
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BRAIN METS FROM COLORECTAL CANCER
Just doing a little research on the likelyhood of brain mets. from colon cancer. Information from the members would be good. Am I right in assuming it is quite a low risk. Cheers dinkydi8
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Will I ever get used to the Port?
Its 3:50 AM and I'm up because my port is irriitating me. I had it placed on December 17th, so just shy of three weeks. I would have thoguht by now that I would be used to it, but I'm not. It has not been accessed yet as treatment has not started. The area pulls if I move in certain positions (I can't lay on my port side -…
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Hi mates, it is Friday here ! Any interesting plan for the weekend?
Nothing special here just making figures to see how can I pay cristmas bills ! LOL. Don't have any plan as most of friends and family are out of city until new years eve. What about you mates?
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Watch out for old posts brought forward by spammer
Once again we have been invaded by a spammer. I have flagged many and have contacted CSN about it. Please check the original post date on messages before replying as many old ones have been brought forward by this "robotic" pest. Marie who loves kitties
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Second Colonoscopy and Update
Today I had my second colonoscopy (1st and history http://csn.cancer.org/node/251118). As few posters suggested in the earlier thread, the doctor seems to want to confirm and verify the first diagnosis. Having read and seen the earlier scans and colonoscopy and read the histological report, he does not seem too impressed…
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Colonoscopy yesterday
Back in NOvember, I was having dry heaves and unable to go to the bathroom. An emergency room visit showed suspicious areas on my liver. I was sent home, only to go back to a different hospital. They did another catscan, and opened me up the next day. I had a major infection at the end of my anus (absess). They put in a…
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chemo and radiation effects on babies in families
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been gone awhile
hey everone i know i have been gone for a bit i decided to come let you all know what is now going on with my situataion. ok here goes. when last i was here i was on folfiri (i think spelling is wrong) anyway it stopped working and we tried to do the folfox and after a month even it stopped working. i have one shot left…