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"Slowly Learning to Live with the Physical Pain of Cancer"
Note: I need to talk here and this could be one of my last chances to write a good post. Thanks for listening. What does it feel like when the body starts dying? I’ve asked myself that question the past several months as I’m battling my 4th recurrence. There are times where I feel like my body feels like it is physically…
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Christmas Gift
Today we went to see Dr. H.J. Lenz at USC. Dr. Lenz comes in and he sits in between my wife and I. He then asks us in his jovial voice, "Why do you two keep coming here and bothering me?" He then starts laughing. He shows us our file and the last medical reports. He shows us the pics etc.... Everything shows no cancer. The…
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Tedd? Craig? Phil?
Just wondering how you all are doing. I think of you guys often, and hope that there are plenty of bright moments in each day. I'm sure I'm not the only one here doing that...we miss you!
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Just because we have cancer we are not immune from other problems
hi everyone , it is unusual for me to post other than an occasional reply. I am in a position that most here would envy. I have made it to nearly 15 years cancer free after aggressive stage 3 c colon cancer into 6 nodes. I had some pretty awful chemotherapy , namely levamisole an immunomodulator most commonly used by vets…
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Merry Christmas & a Happy New Year!
I just wanted to wish you all cancer fighters and caretakers a Merry Christmas and a Happy New Year! I hope that God keeps providing you the strength to fight this desease. I hope that science can keep advancing and truly make cancer a chronic desease. You all show such strength, wisdon and dignity in extremely difficult…
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Top 13 Holiday Tips for Patients & Caregivers
Found this excellent blog on the Colon Cancer Alliance web site: Top 13 Holiday Tips for Patients & Caregivers http://ccalliance.org/blog/13-holiday-tips-for-patients-survivors-and-caregivers/ The holidays can be a tough time of the year when you’re dealing with cancer. Check out this list of personal tips from our Patient…
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Our friend tachilders ... Sad update
Some how I missed this until reading today that our friend tachilders (Tedd) is having a challenging time. I do not know if his family checks this site ... Likely, this is not a time that they would be as they are concentrating on their time together. Perhaps those who read this can send some quiet love/prayers/thoughts to…
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Nine years goes by fast, despite cancer...
Hey gang, It's that time of year again, 9 years ago I was dx's w/ stage iv colon cancer and mets to my liver. I've gone in and out of remission 4x and today finds me with several spots on my liver along with several enlarged lymp nodes. For the most part I'm pretty healthly, have little to no pain, and my over all quality…
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Good News in Time for Christmas
Hi all, We received great news this past week. My dad went in for a three month check PET scan and here's the stats: All mets from liver and lungs are gone and both primary tumors have shrunk. The doctor was so excited when he called that my dad could barely understand him. He was allowed to push his treatment back to next…
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1st chemo session
I had my first chemo session of FOLFOX 6 on DEC 17. Everything was great for first 36 hours. Then at 230 am i began having horrible chest pain. I was transported to the hospital to cardiac unit.. cardiologist said my ejection fraction was at 14% when normal is over 55. I am being treated for stage 3c colon cancer. Has…
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new to this site
Hi I am new to this site. I was diagnosed one year ago with early stage 2. I had surgery but no other treatment. So far, I am doing well. But this diagnosis has changed who I am. It is always just under my toughts, it always comes to me at night. Some days the fear is overwhelming and most nights are sleepless without a…
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CEA down 234. I'm at 150.
This is after 3 Erbitux, 3 oxy, and the Xeloda. My my rash is doing better. My feet now get hot and my feet are starting to peel. I'm tired, maybe because I'm not working thus time around. But tough to get out of bed in the mornings and up and running n
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MY CEA LEVELS
Hello Friends, The day I was discharged after my rectal resection for stage III CRC, a CEA was done & the result was 2.5 This was on 30th of July 2013. When I went for my 1st cycle of Adjuvant Chemo (Oxy + Xeloda) on 28th of November, my Onc did another CEA test & the result was 2.86 Can my friends who have gone through…
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5 Years Ago Today I was diagnosed with stage III B colon cancer
Hello, I have not been on here for a long time, I think the last time I posted was after I had heard Buzz had died. But you are all never far from my thoughts. Sadly many of the people that held their hand out to me and talked me off that ledge, when I was scared out of my mind, are gone now. I think about them a lot, they…
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How do I support my cancer survivor?
Hi all, I'm new to this community but very happy to have found it. My stepdad was diagnosed with Colorectal Cancer in February of this year. After surgery and about 8 months of chemo he has now been deemed "Cancer Free". His last round of chemo was in October. Since he finished, he has gone back for a couple of CEA level…
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Best Christmas Gift I Ever Got Was........
CC Forum, I thought it might be interesting to start a chain of the best Christmas Gift you ever got. I will start with.... my second daughter, born December 26. She was due on Dec 25, so she was my Christmas present that was 1-day late. Thanks and Merry Christmas!
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Happy Birthday Laz (lp1964)
Many wishes for a wonderful day filled with love, laughter, health and happiness.
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There's a light at the end of the tunnel! (Update)
My brother was hospitalized for the 3rd time in a month. He had 1.5 liters of fluid around the heart. I insisted that he be sent to the hospital of my choice, and it was done. The cardiothoracic surgeon said that the people who removed the clots at the "hospital from hell" left a wire under his heart and it could be why he…
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Still NED after 25 months
Time to check in with some good news... "Our" Story so far... husband diagnosed Nov 2011 with stage 4 colon cancer (2 mets to liver and one in the peritoneum). Resection of tumor and mets, 6 months chemo (oxi + xeloda), 7 months temp ileostomy, successful takedown. Last CT in Aug 2013 found a suspect area in the peritoneum…
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Happy Birthday LivinginNH - 20th Dec
May your day bring you joy and happiness.
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New to website
I am new to the website. I have been wondering if there is anyone like me who just needs to be able to "talk" to someone who can relate/understand how I feel about what I've been through over the last year and half. Although I have close family and friends, I just don't feel as though any of them can truly know what it's…
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PET Scan today
I just had PET scan this morning, Drs appt Thursday but I can't wait for that, I work tomorrow, so I will be getting results tomorrow. I work at the hospital where I had my PET. My CT scan in September showed a lung thingy with no changes. What is no changes when they didn't address it in June on my CT???? I feel like time…
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Christmas/Holiday Greetings post for all to participate in
Dear friends, May this holiday season bring you peace in you life. May the difficulties of this past year be overshadowed by sweet memories of the past. May each of you feel the love of your friends and family. Hugs to each and every one of you, Marie who loves kitties (and you)
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Today my Daughter Graduates *UPDATE* I added a picture of the family at graduation at bottom
I am in snowy Ohio waiting to leave the house to attend my daughter's graduation from Wright State University. I am so proud!! And I am so happy to be here for this, almost 4 years of chemo and operations and I get to watch my daughter graduate!!!! Winter Marie UPDATE: well because I'm so darn proud I had to add a picture…
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Need help mom had large intestinal issues I'm worried-UPDATE Update
The doctor is concerned. She is having uncontrollable diarhea. He says there is a problem in her large intestine and has orderd a biopsy. I am worried! Any advice! UPDATE All of her tests were negative. She has to have a colonoscopy and biopsy. Her last blood work and scans in May were fine. I don't understand why ahe…
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Help with lymphedema please
Hi Friends, **** has been out of the hospital for a month now and he is feeling stronger every day. He is going to the gym for a lighter workout and gaining some weight back. However, he is having some bad lymphedema in his right leg and today it is in his left leg. He has been seeing a pt who has some experience with…
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my daughter stage 4 cancer survivor
I wanted to share my daughters website , it was therapeutic for her to write and she wanted to help others. WWW.BETHANYWITHACHERRYONTOP.COM
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Christmas Hope
I haven't posted in some time but I feel that I owe it everyone looking for hope, for those that don't remember me feel free to read my history. After be given two years to live my husband did chemo, colon resection, ilieostomy, liver embolization and 65% liver resection. He was NED for a year and then got the news that…
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why I have hope
http://www.vancouversun.com/touch/story.html?id=9236357 My stem cell recurrence s I will have a drug for un 10 weeks not years. I am very well on map ketogenic and healthy and happy Godbless us all no matter your treatment. Read it and have hope.
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IV Vitamin C infusion
Had my first infusion last week. CEA rose slightly. Anyone else experience similar ? Is there a general,pattern. Have another due in two weeks and don't want to be doing any harm? Thank you