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Joyful
I haven't been here in a while. I had surgery the week of Thanksgiving and after a few setbacks, I am doing well and looking forward to spending the holidays with my 5 children! I finished chemo Oct. 24 (CEA 1.7 and clear PET results- yay!) and then began the process of preparing to reverse the colostomy. All is well and I…
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To my new family!
Just think about it. A person should be lucky and extremely happy to find just one good friend in his or her life time. This year I found dozens of exceptional people in you all. And this is truly amazing. Happy Holidays to all of you! Laz
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5000mg per day?
After 4 rounds of Folfox my oncologist is concerned that the numbness I feel in my toes and fingers is getting serious. I was gonna get two more rounds of Folfox, but now he just wants me to do 5 rounds of 5000mg a day for 2 weeks and 1 week break. He showed me the charts and calculations and it looked acurate. I'm 175…
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Good news!
As you may recall, two weeks ago I was really bummed because my CEA was rising, well I went in for cycle 5 of Irinotecan & Avastin & Xeloda to find that it went down over 6 points! Serious happy dance . Not sure why, but I hope and pray it continues. I've neer had a CEA spike from cancer dieoff, so I don't think that was…
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Chemo chest pain
Has anyone had or deal with this. Had my first chemo session on dec 17. Felt fine for firdt 2 days. On 3rd day experienced terrible chest pain. Had to be hospitalized. Cardiologist said my ejection fraction was low at 14%. Normal is 55%.
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Major Colon Cancer Fear
Hi guys, I know this is a board for CRC survivors but I figured who better to ask than you guys if I had a major fear about CRC. I Know you get asked this a lot but I dont have insurance and Im trying my best to gather all the information I can while I find somewhere to get help. Thanks.
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update :)
I know I dont get on this site very much lately. Have alot going on. On 19 Sept 2013 I went in for another colonscopy, the procedure went well. I was in the recovery room for 45 mins, all of a sudden I was complaining of not being able to breathe, my eyes were closing also. I was put a ventalitor for approx 4 days, xrays…
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What are your winter/holiday traditions?
I thought it might be fun, with the longest night of the year coming this weekend, to share some of the things you do now, or enjoyed doing as a child, during the dark and gloomy months of winter! Holiday, outdoors, or whatever comes to mind. It's fun learning a little something about each of you that isn't related to our…
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"Slowly Learning to Live with the Physical Pain of Cancer"
Note: I need to talk here and this could be one of my last chances to write a good post. Thanks for listening. What does it feel like when the body starts dying? I’ve asked myself that question the past several months as I’m battling my 4th recurrence. There are times where I feel like my body feels like it is physically…
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Christmas Gift
Today we went to see Dr. H.J. Lenz at USC. Dr. Lenz comes in and he sits in between my wife and I. He then asks us in his jovial voice, "Why do you two keep coming here and bothering me?" He then starts laughing. He shows us our file and the last medical reports. He shows us the pics etc.... Everything shows no cancer. The…
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Tedd? Craig? Phil?
Just wondering how you all are doing. I think of you guys often, and hope that there are plenty of bright moments in each day. I'm sure I'm not the only one here doing that...we miss you!
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Just because we have cancer we are not immune from other problems
hi everyone , it is unusual for me to post other than an occasional reply. I am in a position that most here would envy. I have made it to nearly 15 years cancer free after aggressive stage 3 c colon cancer into 6 nodes. I had some pretty awful chemotherapy , namely levamisole an immunomodulator most commonly used by vets…
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Merry Christmas & a Happy New Year!
I just wanted to wish you all cancer fighters and caretakers a Merry Christmas and a Happy New Year! I hope that God keeps providing you the strength to fight this desease. I hope that science can keep advancing and truly make cancer a chronic desease. You all show such strength, wisdon and dignity in extremely difficult…
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Top 13 Holiday Tips for Patients & Caregivers
Found this excellent blog on the Colon Cancer Alliance web site: Top 13 Holiday Tips for Patients & Caregivers http://ccalliance.org/blog/13-holiday-tips-for-patients-survivors-and-caregivers/ The holidays can be a tough time of the year when you’re dealing with cancer. Check out this list of personal tips from our Patient…
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Our friend tachilders ... Sad update
Some how I missed this until reading today that our friend tachilders (Tedd) is having a challenging time. I do not know if his family checks this site ... Likely, this is not a time that they would be as they are concentrating on their time together. Perhaps those who read this can send some quiet love/prayers/thoughts to…
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Nine years goes by fast, despite cancer...
Hey gang, It's that time of year again, 9 years ago I was dx's w/ stage iv colon cancer and mets to my liver. I've gone in and out of remission 4x and today finds me with several spots on my liver along with several enlarged lymp nodes. For the most part I'm pretty healthly, have little to no pain, and my over all quality…
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Good News in Time for Christmas
Hi all, We received great news this past week. My dad went in for a three month check PET scan and here's the stats: All mets from liver and lungs are gone and both primary tumors have shrunk. The doctor was so excited when he called that my dad could barely understand him. He was allowed to push his treatment back to next…
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1st chemo session
I had my first chemo session of FOLFOX 6 on DEC 17. Everything was great for first 36 hours. Then at 230 am i began having horrible chest pain. I was transported to the hospital to cardiac unit.. cardiologist said my ejection fraction was at 14% when normal is over 55. I am being treated for stage 3c colon cancer. Has…
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new to this site
Hi I am new to this site. I was diagnosed one year ago with early stage 2. I had surgery but no other treatment. So far, I am doing well. But this diagnosis has changed who I am. It is always just under my toughts, it always comes to me at night. Some days the fear is overwhelming and most nights are sleepless without a…
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CEA down 234. I'm at 150.
This is after 3 Erbitux, 3 oxy, and the Xeloda. My my rash is doing better. My feet now get hot and my feet are starting to peel. I'm tired, maybe because I'm not working thus time around. But tough to get out of bed in the mornings and up and running n
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MY CEA LEVELS
Hello Friends, The day I was discharged after my rectal resection for stage III CRC, a CEA was done & the result was 2.5 This was on 30th of July 2013. When I went for my 1st cycle of Adjuvant Chemo (Oxy + Xeloda) on 28th of November, my Onc did another CEA test & the result was 2.86 Can my friends who have gone through…
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5 Years Ago Today I was diagnosed with stage III B colon cancer
Hello, I have not been on here for a long time, I think the last time I posted was after I had heard Buzz had died. But you are all never far from my thoughts. Sadly many of the people that held their hand out to me and talked me off that ledge, when I was scared out of my mind, are gone now. I think about them a lot, they…
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How do I support my cancer survivor?
Hi all, I'm new to this community but very happy to have found it. My stepdad was diagnosed with Colorectal Cancer in February of this year. After surgery and about 8 months of chemo he has now been deemed "Cancer Free". His last round of chemo was in October. Since he finished, he has gone back for a couple of CEA level…
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Best Christmas Gift I Ever Got Was........
CC Forum, I thought it might be interesting to start a chain of the best Christmas Gift you ever got. I will start with.... my second daughter, born December 26. She was due on Dec 25, so she was my Christmas present that was 1-day late. Thanks and Merry Christmas!
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Happy Birthday Laz (lp1964)
Many wishes for a wonderful day filled with love, laughter, health and happiness.
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There's a light at the end of the tunnel! (Update)
My brother was hospitalized for the 3rd time in a month. He had 1.5 liters of fluid around the heart. I insisted that he be sent to the hospital of my choice, and it was done. The cardiothoracic surgeon said that the people who removed the clots at the "hospital from hell" left a wire under his heart and it could be why he…
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Still NED after 25 months
Time to check in with some good news... "Our" Story so far... husband diagnosed Nov 2011 with stage 4 colon cancer (2 mets to liver and one in the peritoneum). Resection of tumor and mets, 6 months chemo (oxi + xeloda), 7 months temp ileostomy, successful takedown. Last CT in Aug 2013 found a suspect area in the peritoneum…
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Happy Birthday LivinginNH - 20th Dec
May your day bring you joy and happiness.
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New to website
I am new to the website. I have been wondering if there is anyone like me who just needs to be able to "talk" to someone who can relate/understand how I feel about what I've been through over the last year and half. Although I have close family and friends, I just don't feel as though any of them can truly know what it's…
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PET Scan today
I just had PET scan this morning, Drs appt Thursday but I can't wait for that, I work tomorrow, so I will be getting results tomorrow. I work at the hospital where I had my PET. My CT scan in September showed a lung thingy with no changes. What is no changes when they didn't address it in June on my CT???? I feel like time…