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Thank you, John23
I wanted to say thank you for all of your information regarding TCM. I know you, as well as Pete, have taken heat on your alternative posts but my wife and I thank you for your persistence. A little background for you as well as others before I explain the post. My wife was diagnosed in September of 2010, 5m after the…
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Eributux
I've started eributux and wondering if any one on it can tell me about the side affects. In particular the rash. Any pics available of the rash? How long did it take for it to appear? Did it gradually get worse? Better? Ive be just noticed some blemishes around my mouth and nose. Thanks. Appreciate the feedback.
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5 Years ago today
It was five years ago today that I've received the devestating news. Thanksgiving is a bitter/sweet memory for me as I'm thinking that the day before was a mixed emotion because they told me I'd have to wait until the following Monday for results and then having to go through Thanksgiving dinner (which was at my house) and…
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Surgery on hold for iv chemo
I am very confussed my husband is dx w/satge 3 crc he is also done w/oral xeloda and radiation and instead of going door surgery he is getting a porta cath and will do 6 mo iv chemo then be reevaluated for surgery , they are treating him like stage 4 and I am concerned that the scan that showed lung scarring could that be…
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HELP!!! Having issues while on "Maintenance Therapy"
I was diagnosed with stage iv colon cancer in april this year. Was told the the Xeloda (2 wks on 1 wk off) worked and now in remission as of October. The Oncologist wanted me to remain on the Xeloda for maintenance therapy but increased the dosage from 3 in am and 3 in pm to 3 in the morning and 4 in the evening. Now I am…
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what you did for Thanksgiving.
I thought it would be nice if we shared how our Thanksgiving went. Two of my wifes sister came down with thier kids. We watched football rode atv's and ate a big traditional dinner. Friday we did more atv riding shot some baskets had left overs for dinner and watched a great basketball game (go Thunder). I also got in…
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Update from Pepe
I messaged his wife on FB and Pepe replied! Here is what he said: Hi Marie,im typing from my wife,s PC, .Got a kind of Virus on my Ipad since last week. Tomorrow i will send it to the MAC shop to see wats on , something simple i think.In the other hand im fine got scaner results today and everithing stable and the ascites…
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5FU take home 24 hr pump
i have fortnightky chemo plus irrinotecan at the hospital over three hours then take home 5 FU 48 hour pump. My question is this. Has anyone decided not to take home the pump and if so any changes in results. my onc had said there was no scientic proof the pump had or had not helped or hindered things?
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Study shows obese patients have lower CEA levels
http://cebp.aacrjournals.org/content/19/10/2461.full Prior studies suggest that obesity is inversely associated with tumor marker concentration and may reduce diagnostic precision. This study was undertaken to evaluate the association between body mass index (BMI) and serum carcinoembryonic antigen (CEA) concentrations in…
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Santa Craig, This One's for You
As we were sitting down for Thanksgiving dinner, my husband said it was too quiet and he asked me to put on some Christmas music. Can everyone guess where I'm going with this? The first CD I grabbed was the one Santa Craig compiled and sent out several years ago! Craig, I just want you to know how thankful we are for you.…
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Pepe
How are you my friend?
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CHEMO TOMORROW
Dear Friends, I am getting myself admitted to the hospital tomorrow morning for my 1st cycle of Chemo (CAPOX) Would love to hear the experiences of friends who were treated with CAPOX. What can I generally expect after the IV infusion of Oxaliplatin for the 1st time ? I know each person may have different experiences as we…
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I HAVE SOME WONDERFUL NEWS!!!!!
my brother was released from the hospital and is now home. He's feeling much better. I don't think he'll be well enough to come to our house for Thanksgiving dinner, so I'll pack up some food and bring it there for him and dad. He will have a visiting nurse come to check on him and he has an appointment with his oncologist…
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CEA count after Irinotecan
My CEA count went from 24 to 14.8 after one dose of Irinotecan. WHOOP WHOOP!!! So loss of hair no big deal, much better to have loss of cancer cells!!! Very happy today!! Winter Marie
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Thankful for you all
So thankful to have you all. My sister and I could have nutted up a long time ago without having you all to encourage us. the first time we had to take the reigns in my parents care was when my mom first got cancer. We didn't know what to expect or do. This board helped us (helps us) through cancers everlasting joys (scans…
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Happy Thanksgiving!!! 10 years NED
Hi everyone, 10 years ago I was on TPN - IV nutrition for my chemo induced diarrhea. I remember eating 2 bites of turkey and spending the afternoon in the bathroom and crying all at the same time while at my sister in laws for Thanksgiving. Now I am spending the day at my sons house tomorrow --his wife is due with their…
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Compensation, Survival, and Acceptance Modes
I spent 5 years in compensation mode with moderate to occasional good results from chemo always keeping my mets in check. On Sept 9 when my last PET scan indicated significant carcinometosis with reactivation of many of my liver lesions, the para-aortic lymph node, and new lesions in the peritoneum, omental fat, and a…
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Happy Thanksgiving Everone!
Mixed feelings this year. Could live without this illness, but once I have it I'm thankful that there are people, medicine and technology that hopefully can help us. I started folfox last Monday so I feel pretty crapy, mainly with this really bad taste in my mouth that nothing seems to take away and with all this yummie…
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Radiation Fibrosis
Guess thats what I've got. Spent half a day at the Doctors getting my poorly rear-end looked at. My butt is one big sore and the natal cleft has a huge fissure. Its not a happy bum for sure. Doc gave me some cream for the haemorrhoids (which he says are impressive), Witch Hazel for the tear, and oh, the Thush (mouth) is…
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Experiences please!
I'm somewhat new here. My father on law was diagnosed with stage 4 cc with mets to liver and peritoneum. The surgeon explained after colon resection that it was like a bomb went off inside him sending cancer seeds everywhere. At the time of diagnosis his cea was 45. After 4 weeks of healing at home he went to md anderson.…
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Pain block
Has anyone ever had a pain block to help with pain from colon cancer with mets to liver and abdominal lining?
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SPAM: Do not open any messages from KrissyDueder
Why oh why do people/bots/whatever spam a cancer message board ... sigh.
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Home from the Hospital
Hi Friends, **** made it home from the hospital on Monday after 18 days in the hospital. I have to say, it was a very tough 18 days on him. He has lost a lot of weight and is going to focus on getting his healthy body back (yes, he knows he has metastasized cancer). Today,Thursday, he had chemo. He just had the folfox as…
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Those gone
I don't post much anymore. My husband has the cancer. I can see by what everyone goes thru that they mostly can't cure cancer. George is very active but our lives are consumed by Dr. Visits and treatments. The stress is so overwhelming. George tolerates the treatments well, but a remission would have to be a miracle. I…
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News about Sundanceh (Craig)
Craig's wife has shared that he was again hospitialized...complications from the appendix surgery. He is home now, but she is not sure things are resolved. Please send your love, prayers, good vibes, etc. his way that he may soon be recovered from this and back to being able to fight the cancer. Marie who loves kitties
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4 doses of Stivarga (regorafenib) ended up in the hospital
My husband Pat started Stivarga (regorafenib) on 11/17 and by 11/21 he was so ill that he ended up in the hospital on 11/22. Couldn't drink/eat, sleep, walk, and his whole body was in pain, especially his stomach. Even with all the chemos/treatments he has been on these last 2 plus years, nothing hit him as hard as this…
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UP DATE AFTER CHEMO RAD
Hello Friends, I am logging in to the forum after some time. Rad sessions in the morning, back in office in the afternoon, working late to catch up the time loss & I was missing the forum. I finished with 28 Fractions of Rad with Xeloda on 4th of November. What relief it was I experienced a few side effects like Proctitis,…
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Son in Law is Home
I've mentioned a couple times that my SIN has been in Afghanistan serving our country and just wanted to let you know that he has made it home safely today. My daughter and grandkids are just beside themselves. Our daughter and grandkids are going to make just a huge adjustment to him being home since he has been gone more…
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Remember friends that are gone.
When someone on this forum passes away, we promise to the family and to ourselves that we never forget them. And we don't. The Day of the Dead or Halloween just passed and I dont know why I didn't bring this up then, but I'd like to start a thread when everyone of us amoungst the living would write down the name of a…
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Denial or just surviving
Since my husband has been in the hospital with one broken femur and one with a hair line fracture, it seems everyone is working very hard to get him to accept his crappy reality and outcome. He was so upset on the second day after surgery ...insisting that we needed to talk about finances etc. I finally said ok lets talk…