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bummy news today
I'm stage 4, on my 4th recurrance and started chemo 6 weeks ago. I'm on Xeloda (3 pills morning and night), Irinotecan (40% strength to keep diarrhea at bay), and Avastin. After the first cycle my CEA went from 18.6 to 15.9. A good drop. Second cycle my CEA went back up to 18.4, not good. Third cycle, I had a bad cold and…
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Treatment centers
I have recently been diagnosed with stage 3 colon cancer. I am looking at several treatment centers. I am looking at Moffitt and UM Sylvester. Has anyone had any experiences with either place?
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molecular tumor profiling
found out that there is molecular tumor profiling avalible in india and at the hospital my dad is being treated at. however i am not sure how useful genomic testing is. Are there folks here who have been able to action on the findings of genomic testing? finding out abt the wrong genes are right chemo is one thing but…
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Is this a good CEA #
Hello all, I hope everyone is enjoying thier Thanksgiving holiday! On friday I had my CEA checked 8 months after my bowel resection and 3 months since my ileostomy reversal. It was 1.63. I think the highest it was at the beginning of my chemo was 3.80 or something like that. (That was my number during stage 4 colon cancer)…
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Don't know if any of this is helpful but if you have a few minutes to investigate
maybe check out: Imprime PGG (esp if KRAS-mutant); Masitinib; AZA197; CRLX101; Lenalidomide; TAS-115 each od which rec'd some decent press recently
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Confused!!!!
Hi! Hope all is well! I just had a follow up MRI post abdominal hernia surgery and a liver ablation! They spotted something else on my liver. The doctor gave me myy options today: Another ablation, obe technique (Spelling?) up thorugh the groin and kill it at the root hmm never heard of this one, chemo, or a total…
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Genes Are Not The Only Drivers Of Colon Cancer
Genes are not the only drivers of colon cancer. A new study suggests cellular factors play an equally important part, and these not only drive tumor growth, but also affect how well the disease responds to chemotherapy. Senior study author John ****, of the Princess Margaret Cancer Centre, University Health Network,…
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Eating chocolate and other 'bad' foods.
I just posted this on another thread, but thought I'd start a new thread and get others opinions. After my bowel resection I asked my GI Doc about taking Pro Biotics, his advice was to go out and order a big steak. My Oncologist on the other hand, when I told him I was buying a box of my favourite chocolates (love…
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Thank you, John23
I wanted to say thank you for all of your information regarding TCM. I know you, as well as Pete, have taken heat on your alternative posts but my wife and I thank you for your persistence. A little background for you as well as others before I explain the post. My wife was diagnosed in September of 2010, 5m after the…
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Eributux
I've started eributux and wondering if any one on it can tell me about the side affects. In particular the rash. Any pics available of the rash? How long did it take for it to appear? Did it gradually get worse? Better? Ive be just noticed some blemishes around my mouth and nose. Thanks. Appreciate the feedback.
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5 Years ago today
It was five years ago today that I've received the devestating news. Thanksgiving is a bitter/sweet memory for me as I'm thinking that the day before was a mixed emotion because they told me I'd have to wait until the following Monday for results and then having to go through Thanksgiving dinner (which was at my house) and…
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Surgery on hold for iv chemo
I am very confussed my husband is dx w/satge 3 crc he is also done w/oral xeloda and radiation and instead of going door surgery he is getting a porta cath and will do 6 mo iv chemo then be reevaluated for surgery , they are treating him like stage 4 and I am concerned that the scan that showed lung scarring could that be…
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HELP!!! Having issues while on "Maintenance Therapy"
I was diagnosed with stage iv colon cancer in april this year. Was told the the Xeloda (2 wks on 1 wk off) worked and now in remission as of October. The Oncologist wanted me to remain on the Xeloda for maintenance therapy but increased the dosage from 3 in am and 3 in pm to 3 in the morning and 4 in the evening. Now I am…
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what you did for Thanksgiving.
I thought it would be nice if we shared how our Thanksgiving went. Two of my wifes sister came down with thier kids. We watched football rode atv's and ate a big traditional dinner. Friday we did more atv riding shot some baskets had left overs for dinner and watched a great basketball game (go Thunder). I also got in…
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Update from Pepe
I messaged his wife on FB and Pepe replied! Here is what he said: Hi Marie,im typing from my wife,s PC, .Got a kind of Virus on my Ipad since last week. Tomorrow i will send it to the MAC shop to see wats on , something simple i think.In the other hand im fine got scaner results today and everithing stable and the ascites…
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5FU take home 24 hr pump
i have fortnightky chemo plus irrinotecan at the hospital over three hours then take home 5 FU 48 hour pump. My question is this. Has anyone decided not to take home the pump and if so any changes in results. my onc had said there was no scientic proof the pump had or had not helped or hindered things?
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Study shows obese patients have lower CEA levels
http://cebp.aacrjournals.org/content/19/10/2461.full Prior studies suggest that obesity is inversely associated with tumor marker concentration and may reduce diagnostic precision. This study was undertaken to evaluate the association between body mass index (BMI) and serum carcinoembryonic antigen (CEA) concentrations in…
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Santa Craig, This One's for You
As we were sitting down for Thanksgiving dinner, my husband said it was too quiet and he asked me to put on some Christmas music. Can everyone guess where I'm going with this? The first CD I grabbed was the one Santa Craig compiled and sent out several years ago! Craig, I just want you to know how thankful we are for you.…
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Pepe
How are you my friend?
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CHEMO TOMORROW
Dear Friends, I am getting myself admitted to the hospital tomorrow morning for my 1st cycle of Chemo (CAPOX) Would love to hear the experiences of friends who were treated with CAPOX. What can I generally expect after the IV infusion of Oxaliplatin for the 1st time ? I know each person may have different experiences as we…
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I HAVE SOME WONDERFUL NEWS!!!!!
my brother was released from the hospital and is now home. He's feeling much better. I don't think he'll be well enough to come to our house for Thanksgiving dinner, so I'll pack up some food and bring it there for him and dad. He will have a visiting nurse come to check on him and he has an appointment with his oncologist…
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CEA count after Irinotecan
My CEA count went from 24 to 14.8 after one dose of Irinotecan. WHOOP WHOOP!!! So loss of hair no big deal, much better to have loss of cancer cells!!! Very happy today!! Winter Marie
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Thankful for you all
So thankful to have you all. My sister and I could have nutted up a long time ago without having you all to encourage us. the first time we had to take the reigns in my parents care was when my mom first got cancer. We didn't know what to expect or do. This board helped us (helps us) through cancers everlasting joys (scans…
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Happy Thanksgiving!!! 10 years NED
Hi everyone, 10 years ago I was on TPN - IV nutrition for my chemo induced diarrhea. I remember eating 2 bites of turkey and spending the afternoon in the bathroom and crying all at the same time while at my sister in laws for Thanksgiving. Now I am spending the day at my sons house tomorrow --his wife is due with their…
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Compensation, Survival, and Acceptance Modes
I spent 5 years in compensation mode with moderate to occasional good results from chemo always keeping my mets in check. On Sept 9 when my last PET scan indicated significant carcinometosis with reactivation of many of my liver lesions, the para-aortic lymph node, and new lesions in the peritoneum, omental fat, and a…
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Happy Thanksgiving Everone!
Mixed feelings this year. Could live without this illness, but once I have it I'm thankful that there are people, medicine and technology that hopefully can help us. I started folfox last Monday so I feel pretty crapy, mainly with this really bad taste in my mouth that nothing seems to take away and with all this yummie…
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Radiation Fibrosis
Guess thats what I've got. Spent half a day at the Doctors getting my poorly rear-end looked at. My butt is one big sore and the natal cleft has a huge fissure. Its not a happy bum for sure. Doc gave me some cream for the haemorrhoids (which he says are impressive), Witch Hazel for the tear, and oh, the Thush (mouth) is…
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Experiences please!
I'm somewhat new here. My father on law was diagnosed with stage 4 cc with mets to liver and peritoneum. The surgeon explained after colon resection that it was like a bomb went off inside him sending cancer seeds everywhere. At the time of diagnosis his cea was 45. After 4 weeks of healing at home he went to md anderson.…
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Pain block
Has anyone ever had a pain block to help with pain from colon cancer with mets to liver and abdominal lining?
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SPAM: Do not open any messages from KrissyDueder
Why oh why do people/bots/whatever spam a cancer message board ... sigh.