Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Caregivers

It's Been Quite the Journey
My husband Mike who was diagnosed in April 2012 he had Stage IV adenocarcinoma esophageal cancer. On April 21, 2012 Mike had his first surgery to have a power port and G-Tube put in for he lost 40 pounds. He named his IV pole, Keith Richards because it was so skinny and quiet. Endless medical supplies in my dining room as…
Any nurses out there?
Hi, all! I'm new to the site. You all look like an awesome group of folks so I thought I'd test the waters... My mom and I have both been fighting cancer in our own ways since 2007. That year, she was diagnosed with stage 3 breast cancer (now stage 4, systemic mets) and I started my career as a bone marrow transplant…
When do you start hospice care?
My mother has stage 4 blader cancer that has spread to her lungs. She is not in pain. Her prognosis is that she has months to live and there will be no treatment. She is able to take care of her self, but is weak. She is able to walk around but spends most of her day in bed watching tv. Should we start looking into Hospice…
Should I leave my mother? Please help!
Hello everyone! I'm new to this site but sure am glad I found it. Maybe you all can shed some light for me. Here's my story: I am 31 years old. I have an amazing boyfriend (finally - been together 4 months and ready to move on). I am currently living at home with my mother whom has been diagnosed with stage 4 lung cancer…
RCC - Starting Sutent
My father has had a kidney removed due to RCC and now over 10 years later has been diagnosed with an in-operable tumor in the lung. He will be starting Sutent in a few weeks. We really have no idea what to expect at this point besides some possible side effects the doctors have mentioned. I thought joining the Survivors…
Losing my spouse
Yesterday my husband entered inpatient hospice with a few days to a couple of weeks to live. He started out with oropharyngeal cancer in July 2012 and in November 2012 was diagnosed with plasma cell leukemia. We got it in remission in January, but unfortunately it came back on March 21. It has spread to his brain, spinal…
My wife, esther
All of you have been so supportive during my time of grief. My wife died this afternoon at 3:30 PM. I wanted all of you to know how grateful I am for your encouragement. I was with her at the time with hospice. Our journeys never really end do they? David
Riding the roller coaster once again.
My Journey........ Started in 2009 with my mom down playing not feeling well for a while. She ended up in the ER in May of that year. In a matter of hours my life changed in a way I never expected it to. My best friend, my mom had cancer. The tumor on her ovary was causing a bowl obstruction. She had surgery the next day.…
Brother with cancer who is angry and abusive, what do I do?
My younger brother was diagnosed with stage 4 stomach cancer on January 1, 2013. He is 38, unmarried and has no girlfriend. We were told there is no cure and he would have 6 months without chemo and maybe 2 yrs with. I am his older sister, I have a husband and 3 kids. Our Dad, his brothers and my Grandfathers have also…
My Father has Colorectal Cancer
Last March 2, 2013, my auntie, who is in the US with my father and their other siblings, called me up in the Philippines and told me that my Papa has stage 4 Colorectal cancer. Since she couldn't contact my mother who was at an out-of-town seminar, she opted to call me instead, and told me to be the bringer of bad news to…
Dealing with anger from father with cancer
MY FATHER WAS DIAGNOSED A YEAR AND A HALF AGO WITH PANCREATIC AND LIVER CANCER WITH AN ENDOCTRINE TUMOR. THE SAME KIND OF CANCER STEVE JOBS HAD. I RUN HIS COMPANY FOR HIM AND WORK WITH HIM DAILY. HE IS 77 YEARS OLD AND HAS NOT MISSED A DAY OF WORK OR TWO DAYS OF 18 HOLES OF GOLF. HE IS GETTING VERY CRUEL AND HOSTILE TOWARD…
Second round of chemotherapy for my mother and a question about chemo drugs...
My mother's story... In June of 2012, mom went to see a vascular and skeletel surgeon to evaluate a large mass on the tibia region of her leg. At that time a biopsy was done, but, the results of that biopsy had to be sent to the cleveland clinic. During this time, mom was having a lot of troubles with walking and standing…
Since cancer I have no voice.
I have never been on a forum like this and do not know what to say. I came here to get advice and to see how other people are dealing with this disease that has turned our lives upside down. I am appalled at the defensiveness and selfishness that I saw and was brought to tears by the first few things that I read. I heard…
Anger-child of last stage cancer patient
My Step Father, who is my "Father", was diagnosed March 2012 with pancreas cancer. He was ugly in his abuse of everyone and really let my Mom have the full extent. My Dad died from a car crash when I was 11 and this man has been a father to a large blended family of 13 kids. He has always been critical and never perfect,…
Book Recommendations?
Hello, Any "must have" books for being a caregiver to someone with cancer? Any books in general that you all would recommend on cancer/alternative treatments/diet etc. ? Thank you!
Will I ever feel light and joyful again?
Hello, I am new to this network and have been very inspired by all of the prior posts and advice everyone so kindly offers. My boyfriend is 29 years old... we've been together about a year and a half. When I first met him he told me that he had been diagnosed with testicular cancer in 2010 and it was surgically removed,…
New, you've been a great help, let me introduce myself
My husband has stage IV EC. Diagnosed @ time of surgery 12/4/12. Presented unusually; intermucusal. CT did not pick up the extent. Surgeon performed his duty, yet did not get all that was in the esophogus. Performed total gastrectomy. Margins to the pancreas and lower abdomen; 6/6 lymph nodes positive upon biopsy. EGAD.…
Help?
I am here, looking for someone that is going through something similar, that knows what I'm going through. I have searched the internet looking for online support groups, with little success. Last month my husband was diagnosed with GBM (brain cancer). During surgery to remove the tumor, the doctor just happened to make…
New, you've been a great help, let me introduce myself
My husband has stage IV EC. Diagnosed @ time of surgery 12/4/12. Presented unusually; intermucusal. CT did not pick up the extent. Surgeon performed his duty, yet did not get all that was in the esophogus. Performed total gastrectomy. Margins to the pancreas and lower abdomen; 6/6 lymph nodes positive upon biopsy. EGAD.…
Mom Passed away
Well after a long battle mom passed away this morning and I have lost the greaest person in my life. I just want to thank everyone that has given me support and encouragement through this troubling time, I can not express how greatful I am for the advice I was given from everyone of yall.
Make a wish
i am the caregiver to my husband with cancer. We are about to start Hospice care, we have three little boys and would like to have one vacation with them before they lose their Dad. Does anyone know of or have used a reputable group who grants these wishes to adults with cancer? Thank you, Wendy
What is happening
Mom has been doing as good as she can, the last few days though she has been going out of her right mind talking crazy, and gooing into panic attacks, She will not sleep at all, I have not changed her medicene schedual or anything. Anyone have any idea of what to do, i am putting her in hospital today but her regular…
How to Handle Mom's Denial
My mom has uterine cancer, stage IVB. Diagnosed 18 months ago, and she went through surgery and chemo. When she was first diagnosed, the doctor's office was all sunshine and rainbows "Oh, you're going to be just fine, we'll do surgery, you'll have chemo, we'll get it all." I listened very closely to what they said,…
How do you deal with anger?
I find myself being angry a lot. I am not angry at my sweet wife who is battleing stage 4 cancer. I am angry at the disease for destroying our dreams. I am angry at my two older step kids for there lack of support. I have no one to help me. I have no one to talk to. I am so tired from lack of sleep. How do you get through…
New here and just looking for some support.
Hi, my name is Tonya and I wanted to introduce myself. In advance, sorry if this starts to sound like a poor me post. It's not meant that way, I just don't have anyone around me that really understands. I am a 37 year old mother of 4 children ages 5, 7, 12 and 15. My 12 year old is ADHD diabetic so he is a handful by…
My husband is not eating-please help!
My husband completed radiation treatments for prostate cancer on March 9. He has no appetite or taste and is eating less than 700 calories/day, if that much. He is 6'3" and has already lost over 10 pounds since Feb 18th and last weighed 165 pounds. He is drinking Boost, but can't seem to eat solid food. Nothing appeals to…
I am losing my mom to cancer
As many others before me - I am losing a parent to cancer. Although she has lived a full life (she will be 74 in March) it saddens me that she fought and won a previous battle with breast cancer 10 years ago, and I have slowly seen it reoccur, attack the lymph nodes and spread, and finally the liver has a growing tumor…
My mum's dying........
My Mum was diagnosed with Stage IIIA gastroesophageal juction cancer mid Oct 2012 and is being treated the same as a gastric/stomach cancer. She had her entire stomach removed late October 2012 and it took her a month before she was discharged from hospital. We thought we'd almost lost her then as recovery from surgery was…
to Vivian Lee
Vivian, Nobody wants to use much less see the word 'hospice' but please remember it is not only for end of life care. Most areas have a not-for-profit hospice group, as well as for profit ones your insurance may pay for. They are there to give advice and encouragement, information and support and many things a family…
.
.

Caregivers

Discussion List

Discussion Boards