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Caregivers

Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
Chemotherapy Side Effects Management
I created this to help managing chemo side effects for my wife. It has helped a lot so i decided to share it. https://drive.google.com/file/d/0B9yr7eveHucKYU1oZUxGY3ZhbFU/edit?usp=sharing This is a PDF file, you can safely open it.
feeling guilty when things overwhelm me
My husband has Non-Hodgkins Lymphoma. He's had it nearly 3 years but has to get his chemo no matter what. They recently stretched out the interval to every 6 weeks and he had a reoccurance.He went back to every 3 weeks which seemed to do the trick. His general status has deteriated though. I am a nurse so I have knowledge…
Oncologist said Mom's Cancer is Advancing Rapidly
Good Afternoon Caregiving Angels, My mother has been fighting her stage 4 Colon cancer for two years and 4 months. A couple months back it spread to the bone. As of last week her Oncologist told me her CEA has gone up and is off the wall. He is going to try the last chemo treatment he has in a last ditch effort. I have…
Caring for my mother, alone, all day-five days a week
My mom was diagnosed with pancreatic cancer in 2011. It was considered to be found early and easier to treat. She's fought hard, through two different cancer treatment centers. One local and the other was Cancer Treatment Centers of America. I had only just moved to Seattle, WA 6-9 months before she was diagnosed so I…
What is PALLIATIVE CARE TO YOU ?
Palliative does not mean surrender. MedicineNet.com definition - palliative care is medical or comfort care that reduces the severity of a disease or slows it's progress, but does not provide a cure. A quick overview of palliative care see site - getpalliativecare.org/whatis/ Your thoughts on a subject that many people mix…
survived, now wants to die
Hello everyone, I am hoping that someone can help. My husband was diagnosed with breast cancer in 2008, he was only 23 when he was diagnosed. Its been a very long six years. We were only married for about three and a half prior to his diagnosis and most of that he spent in Afghanistan. When he came home he had PTSD and…
Financial assistance for Caregivers
Hi, I am new to this site. My mom has been battling breast cancer for the last 7 years. It had spread to the bone. In December, the scan showed it was in almost all the bones including the entire length of the spine. A few weeks ago she had stroke like symptoms and called me. Went to the ER and the scan showed it was in…
surrounded by cancer
I lost my step - father to complications of lung cancer treatment, it gave him leukemia and he died last May, 2013. I had been angry for most of this time since but had just started to show signs of getting better during the last month or so. Then I found out a coworker was hospitalized with a mass on his lung, suspected…
my mom has metastatic lung cancer and she's decided she hates me
Hi, This is my first post. My mom was just diagnosed with very aggressive metastatic lung cancer. They found multiple diffuse brain tumors after a seizure 3 weeks ago. Before that she was healthy. She just turned 60 in the end of January. I've been sensing that she's been acting off for months already. At one point I…
Comforting Song List
I'm new to csn and find the site to be of the best for resources,support,and all the cancer subjects on one site. I was wondering if it would be possible to add a section in resources for members to contribute to a song titles list. Just a song title,artist and category. This is all that is required to input in search…
new to the cancer journey
Hi! My husband was diagnosed last year with stage 4 colon cancer. We are young (early 30's) and it is a rare aggressive form of colon cancer. We have 3 young kids. I am writing because I have always been the more practical one in the marriage, while he is more optimistic, assuming everything wil just work out and tends to…
lost just lost 2x times survivor
so i missed the first part of my life with hodgkins at 17 no prom no grad no college very difficult battle took them 6 months just to get the diag right to begin with and i almost died b4 they did - it was in my neck almost wrapped all the way around and choked me out...so i won that...in my 20s..left me with bad…
Where to get meals on wheels for my mom when local chapter will not be of help
Wondering what to do when the local meals on wheels will not be of any assistance to my mom; they said they will put her on a waiting list, and when someone drops off this list, she'll be called. I live in PA, she lives in Elkton, MD. For the meantime, I'll just make meals ahead of time, so she can microwave them, but,…
Frustrated, exhausted, overwhelmed and unappreciated
My husband was diagnosed with CLL seven years ago. For those who are unfamiliar, chronic lymphocytic leukemia has a long trajectory that heads inexorably towards death. My husband is in the middle of the survival range right now. He probably won't make it to ten years. Even before he was diagnosed, we made the choice for…
Dont know how much more i can take
Hello everyone. I guess i will start my saying i am 46 and i am a caregiver to my husband 48 we've been married for 24 years with 2 children and the last 8 have been hell. I work full time, i take care of the husband and the kids and everything in the house like cleaning, cooking, yard work, pay the bills, when i say i do…
I don't understand what she expects of me
I was reading a bit of everyone's stories, and find that lots of people are talking about their spouses... Perhaps I am in a unique situation, but I really could use some advice because I feel like I'm going to just start screaming or crying from frustration and guilt. A few months ago I found out that a distant relative…
Cancer Round Two
Hi all. I've been on this site since 2010 after my wife was diagnosed with CC in 2009. After three years of treatments she passed peacefully last year. Now my brother has been diagnosed with Liver cancer. I just hope that my caregiver experience with my wife will help them through this time. Mark
CSN study FAQ
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
Don't know how to feel
My husband was told in January that he had stage 4 non aggressive lymphoma. The only reason it was stage 4 was it was in his bone marrow and no where else. He did 6 chemo treatments and was told it was in remission, last month I took him to the er with shortness of breath and fatigue. After being admitted and countless…
lost my mom to AML treatment, please help.
I'm 23 years old. I lost my mom when I was 20 at midnight on August 10, 2003. I was there when she died and she did not die in a hospital thanks to hospice. But, she did suffer, more than I thought was humanly possible over a period of four years. She was diagnosed on July 4, 1999 the summer before my senior year in high…
Worse news possible
Well we got the news we never wanted to hear. At an appt the docs have told him they are going to stop treatment. The cancer is everywhere. They want him to be comfortable. They have turned his care over to hospice. They said he may have 6 months. How do I go on. He's my best friend. My whole world is going to change. I…
Don't know whether to stay or go
My husband has stage 4 cancer, I still work. He gets around ok and is still going through treatment. Him and I don't get along for longer than a day. I'm making him miserable and he drives me crazy. If I leave he will die in a month. I am going crazy, I am angry all the time. I snap at him all the time. I'm starting to…
Help! Caregiver Mom Wants To Die
I need some help. This is my first time on the forum. My dad has advanced kidney cancer and was placed on hospice this past Tuesday. My mom is so distraught at the thought of losing him that she is now in hysterics and is saying she wants to die. I am an hour away, so I'm not far, but just far enough that I can't jump…
02 and running nose, HELP
Husband has had Soft tissue Sarcoma, hip replacement, triple by pass, numberess lymphadema infections. His Dr. is confussed as to what to do about his nose running all the time, it's like a sanomie (?sp) any way there is a lot of OTC meds for this but he can not take them do to the heart problem. Any…
Feeling Alone
On 6/13/13 we found out my husband had stage 4 renal cell carcinoma that has spread throughout his body. The kidney tumor was the size of a volleyball and he had a lemon size tumor in right hummerous bone, cancer in his lungs, scapula, lower lumbar spine and ribs. Now is has moved into his liver. Why is it everyone was…
Is it normal to feel this way?
I am in my early 40s, single with no kids, had a wonderful but very stressful job and decided it was time to give it up and do something new. The job had taken its toll on me emotionally and physically so I knew I needed time to heal. I paid all of my bills and put money back so I could travel and rest for a few months…
Relay for Life FSU
Hello fellow survivors and caregivers! My name is Zoe Regas and my journey with cancer compelled me to become the co-chair of Survivorship and Caregivers for Relay at FSU. My co-chair and I are having a lot of trouble finding survivors and caregivers in the area to register for Relay because we can't use any pre-existing…
How to get your loved one to eat??
Hello everyone, Have a lot on my mind tonight so figured I would come here for some support..was wondering if anyone can help, my Mom has a very difficult time eating any sort of food all the time. She loses her appetite very often gets nauseous a lot doesn't have cravings for food, since gone through chemo treatment she…
My Mom
Hello To All, I have been here since 2009, when my dad was battling Esophageal Cancer stage 4. He passed in 2010. I am posting this here today to ask for your prayers for my mom. She does not have cancer, but I know my friends here will help me in praying for her. She has had diabetes type 1 since she was 15. She is now 70…

Caregivers

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