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The Gift of Friendship.
I hold back from posting what is really going on for me because it is not breast cancer related and so many wonderful women on this board are dealing with their own mortality with stage 4 breast cancer. However since I have a tendency to alienate myself when things get tough I decide jto do something different. I am…
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Different cancer-ulertive colitis (21 yrs)
O.T.-I go Wed for results from misc biopies on my colonscopy (I have ulcertive colitis now for 21 yrs) So O.T. but still waiting for cancer testing results-My appt was last week but canceled due to big snow storm. Denise
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Pink Bus for my Daughter
Katherine is having her routine second mammogram on Friday. Please send prayers, well wishes, good vibes, whatever you have! She is 31 now and I am a little nervous as I was 33 when diagnosed and I had 2 sisters also diagnosed at a young age. Her wedding is in April and we want happy news!!!!
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Pink Bus Request for Tuesday
Tomorrow morning, I have my yearly mammogram and I am hoping that some of my pink sisters will ride along with me. Thanks. Hugs, Mommaellen
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OT-Prayers for my daugther - UPDATE
Jennifer will be having surgery on Friday to insert a pacemaker. She is only 29. The doctors have tried meds to control her heart issues and they have not worked as they had hoped so a pacemaker is her only option. Please pray that all goes well with the surgery and that she heals quickly. Thank you all. UPDATE -…
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O.T. Fell twice , yes twice this am in the snow...not as young as I used to be
I took one of my dogs out (no he din't pull me or knock me over-he is innocent ths time) & I fell in big pile of snow...(dresses for work of course) walk down slight hill (we had 18 inches snow yesterday) and slipped yet again and hit the black top driveway with HIP and back of head...I am not as young as I used to…
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Xrays-dental xrays (new apron protection)
O.T. a bit...first time at the dentist when I had xrays...the apron they cover you with now covers around COMPLETE neck area lke big turtle neck. (prior just covered chest area) Denise
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Help
I posted a while ago that I was dx with triple negative breast cancer in 2010. Had Chemo, surgery, radiation and then chemo again. After 9 months of being in the parp trial. I was told I was done for now. Then 9 months later a small spot on the linning of my lung was found that was in 2012. i began avastine and abraxtine.…
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Tasha -- How are you doing? Please check in when possible
Tasha, We are thinking about you - Please let us know how things are going - time permitting. Vicki Sam
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Fight Dat
ACS in my area is selling the most adorable shirts. They have a fleur de lis and say "Fight Dat." I ordered them for my sisters and, of course, one for me. I can support my beloved Saints (Who Dat team) and cancer at the same time. I love it!
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Heart beat in chest advice?
Had a lumpectomy almost 3 years ago, then chemo and radiation. Just this month started to feel what feels like a pulsating in the area of the lumpectomy site. That is way up by my sternum, like almost at 12 o'clock. WHAT is it? SCARY! It can be at any time, even when I am just sitting or lying down.
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NEED ADVISE
I were diagnosed with breast cancer in 2008 I had Lumpectomy surgery chemo and radition treatment. In June 2012 in came back, I had mastectomy with no treatment in september of 2012 I were told the lymph nodes were clear, we were told it spread to the my lungs, I have been on treatment with chemo. December 2013 we had good…
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Doing great after 2nd taxol treatment
Just checking in to let everyone know I am doing okay. It generally doesn't hit me till the second day after treatment but that's not even too bad. It's tolerable and when this goes into remission It will all have been worth it. I just take a nerve pill, a pain pill and relax and go to my zen place (as my sis calls it).…
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CSN sisters and brothers How are you doing? Please check-in
How are you doing? CSN sisters and brothers Please check-in Approaching holidays keep us busy and occupied. Medical appointments take additional time and for some of us are almost like a full-time job. I have been wondering how everybody is doing especially those who have not posted for a long time. Please tell us a little…
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I need your help please - Words of Inspiration Needed
Hello!! I haven't been here in a while due to a lot of emergencies I have been dealing with (death of one of my pets, and now a sick family member). I hope you're all doing well. I will be catching up reading all of your posts. I want to reach out to all of you because I'm working on a project for my aunt, who was…
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Newer Update On LE Medic Alert Bracelet For Left Arm From the NLN's Store
I just spoke with a NLN representative about the omission of Left Arm LE Medic Alert Bracelet. She told me that their supplier is/was currently out of them, so they omitted the Left Arm choice temporarily until the shipment comes in. She said they are expecting them to come in this week. They are on backorder. The NLN…
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Happy Happy HAPPY Belated Birthday Tommaseena!
Happy Belated (Feb 2) Birthday! Sorry I'm a little late with your Birthday! Hope you had a fabulous day filled with lots of surprises! And wishing you happiness & health in the year ahead! much love, Jenny
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FAQ about CSN survey
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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Where Did You Buy Your Medical Alert Bracelet & How Did It Last?
I bought a medical alert bracelet from The American Cancer Society.It broke after about 1.5-2 years and was over $40 if I remember correctly? Just wonerdering where others bought theirs and how long did they last? Thanks.
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OFF TOPIC ... Super Bowl - Who are we rooting for ? SeaHawks, or Broncos
ahhhh .. you all knew this post was coming ....LOL I very much like both Teams - Love to see the Bronco's win - 37 year old Peyton needs another ring to cement his legacy over his brother, Eli. SeaHawks a much younger team, and I feel they will be in the Super Bowl arena next year. Just my take, or opinion. Vicki Sam
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Medical braclet posting some time back
Awhile ago someone posted site to order FREE Medic braclet (SUCH AS NOT to use arm with nodes taken out) I placed an order and never rec'd one or heard back. Anyone else order and get or NOT rec'v? Denise
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Camul - Miss Carol, Check in with us - when possible.
Carol - We have been thinking about you - we are surrounding our "Pink Wagons" - with support, love, and prayers. Please check in when time allows. Vicki Sam
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Taxol starts Tuesday, advice?
I will be starting Taxol the 28th, plus perjeta and herceptin, of course. I'll be doing it for 15 weeks, onco had said 12, but now it's 15. No neulasta for some reason (she started out saying that but changed to none). I did the taxoterene the 7th and was allergic to it, what a nightmare that was. Anyway, any advice to…
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I took NED to Disneyworld
This past week my husband and I spent a long weekend at Disneyworld. It will almost be five years from the day I heard the news that I had stage 3 breast cancer. I wanted to celebrate so I asked for a button and instead of putting " cancer survivor" I chose to write 5 years NED ( eventhough it has only been about 3.5…
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I was not prepared for the pain I went through when I was being prepted for lumpectomy surgery. Anyo
I had my surgery on Jan. 9,2014. I had to be at the hospital at 7:30 am. After they got my vidals and put an IV in my arm, I waited for another 2 hours before the next step. Which was a mammogram . Which are very painful to me. As I was waiting, the surgen came in with a tray covered with a blue cloth and gave it to the…
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Request for PINK Bus>>>>GOOD NEWS
PINK Bus-Wednesday- NO need for it really other then company on my way to my Ultra Sound due to dense tissue-but if anyone would like to ride along on Wed am at 9:00 it would be great. ALL IS good with surgeon and oncologist last week-this is just to have on file for future reference. Denise
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Ha Ha for Saturday - about our furry, 4 legged family members
TO BE POSTED VERY LOW ON THE REFRIGERATOR DOOR NOSE HIGH DEAR DOGS AND CATS. THE DISHES WITH THE PAW PRINTS ARE YOURS AND CONTAIN YOUR FOOD. THE OTHER DISHES ARE MINE AND CONTAIN MY FOOD. PLEASE NOTE, PLACING A PAW PRINT IN THE MIDDLE OF THE PLATE AND FOOD DOES NOT STAKE A CLAIM FOR IT BECOMING YOUR FOOD AND DISH. NOR DO I…
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OT a bit >2 colonscopies (looking for cancer) in two days
I have ulcertive colitis (20 yrs now) I had 2 colonscopies 2 days in a row-so from Sat am to Tues afternoon NO food...OMG terrible...dry heaves, no sleep to speak of etc...but all LOOKS good I"LL KNOW in two weeks at follow up appt. (considered HIGH RISK) Denise
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Remove ovaries?
I am on the fence about what I should do. I stop taking Tamoxifen in December. I have been thinking about having my ovaries removed. I am 48 and still having my cycle. I worry about letting estrogen back in my body because my cancer was ER positive. Has anyone had their ovaries removed because of this? Thoughts, questions,…
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Question on Osteoporosis and More Bad News
If you don't remember, I was on high dose prednisone from August 2013 thru October 2013. Then I had to go back on high dose again starting December 2013 & am on it until at least May 2014. I had a Bone Density scan back in March 2013. My pulmonologist ordered another one this January. His medical assistant called and I…