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Off Topic: Info if you've ever had a stroke or have a loved one who has
I've been in the hospital for the last two days and wanted to share some important information I found out the hard way. I had a moderate brain stem stroke this time last year. The accute symptoms have resolved with time and rehab, but I'll always have a balance problem. A few days ago I felt a wave of vertigo, just like I…
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Breast surgeon suggested
Plastic surgery to even up my left side after two lumpectomies in 5 yrs-i am small breasted but left side way misformed-I have phonbia big time of stitches (passed out in DR office one time having stitching out of finger -post surgery and close to passes out then stitches "2" out of my leg recently. I really scared the Dr…
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Sad news to share...Rest In Peace MyTurnNow
Unfortunately, our dear sweet pink sister, Debbie, passed away this morning. She hasn't been on here for awhile. Olga and I have both been corresponding with her through e-mail. I have recently been in touch with her sister through Facebook. Her sister sent me a message early today with the news. This really hit me hard,…
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I'm 'normal' and 'routine' again!
I went for my yearly diagnostic mammogram on Monday, and was told I was no longer 'eligible' for it....that I am having no problems, and that I need to be on 'screening' mammograms from now on. The gal at the radiology place was VERY quick to say we needed to reschedule, but you know me...I had to call the back office of…
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Happy New year 2014
Hello again sweet pink Sisters, it's been a while since I stopped by. I'm so sad to lose "MyTurn Now" she was very supportive when I was going thru treatment. Each day I realize just a little more how much I hate this stinkin disease. We have lost so many sisters since I joined this group back in September of 09. I'm…
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This is my SIX year mark-when it all started
HI all and Happy New Year. I went last week to see my surgeon (scar tissue scar just over a year ago) I had mammo and check up-ALL IS well and NOW I can wait ONE FULL year before my NEXT Mammo. I have been waiting to graduated to ONE year. I see on oncologist next week-regular check up and follow up on blood work. HAPPY…
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I am really blessed!
My sister called.me a couple of.days a go and said she had san extra Kindle, would I use it? Today I received it in the mail. THey sent it fully loaded with tons of good books, games, They even loaded movies on it. I love it. I am so excited. I had no idea that it did all of this. I though you could only read books on…
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six years next week
tomorrow I have a mammo and surgeons appointment just made me realize its bern six years next week I found out I had cancer. Anyone want to jump on the punk bus at8:30 tomorrow? Denis e
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Does anyone understand? I feel so alone at times...
I celebrated several health milestones this year; September 17th marked three years from my Triple Negative Breast Cancer Diagnosis; March 31st marked two years from my last chemotherapy treatment, June 1st marked two years from the last of three breast cancer surgeries and August 15th marked two years from my last…
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Ideas for an Encouragement Basket
A young woman I know -- not too well, but know -- is just now recovering from a double mastectomy, with the added promise (based on pathology) of chemo and radiation. She is in her early 30s. She has two young children and husband who are concerned. Just this week she had problems surface due to the DR not inserting her…
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❀ ✿ Cat, Dog, Goldfish, Gerbil? Do You Have A Pet? ❀ ✿
I know a lot of us pink sisters have pets, and, I thought you might want to tell us what you have and a little something about them. I know how much so many of them helped us thru our journey with bc and still are. So, can you share with us please? Susie
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Radiation and arm pain
I have just had my 11th day of radiation. Had a modified radical mastectomy (left side), 16 rounds of chemo...and am now in the radiation phase. I am experiencing horrible pain in my left arm that is constant and never ending. I believe it is because of the radiation. Ibuprofren is temporary but does not fix it. My friend…
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More Disney Magic
I decided to put my recent post in a thread by itself. I want you all to know Rachel and Steve, because they are my new, special friends: I met a prince (of course Danny is my main prince...lol) and a princess at an unforgettable night at Fantasmic in the large arena where you watch the nighttime fireworks extravaganza…
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JOHNS HOPKINS HOSPITAL HOAX
I recently came across an article (http://premaseem.wordpress.com/2012/12/19/how-to-avoid-cancer/) called How to Avoid Cancer which is supposedly from Johns Hopkins Hospital. This DID NOT come from John Hopkins Hospital. They have released information on THEIR official website denying and calling it a hoax at this website…
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Thank You....
Dear Traci, Thank You for the beautiful Christmas ball. Plus the thought you put into it, remembering how i loved the one from the year before. Humming birds are my favorite and that just added to the ball. Will hang on my trees for years to come. I am sorry it has taken me so long to let you know how much I love it. No…
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Bad Bad News From Pulmonologist
I saw my pulomonologist and got the results of my latest CT Scan. I have been sick with a cough/hoarseness since we went ice fishing up north (I got sick up on vacation). The hypersensitivity pneumonitis that took 15% of my left lung in that painful thoractomy in July 2013(which I am STILL in severe pain from), is back. It…
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I need encouragement from my fellow survivors
I went in today for treatment and to see my onc. 3 years ago I was dg with tripple neg breast cancer. I had chemo 2 rounds the tumor grew. They changed the chemo. The tumor shrunk but I went into kidney failure. My onc got scared so he had my surgen take out the tumor. That outcome was great. The tumor was removed along…
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Breast Reconstruction Latissimus Dorsl Flap
I have had nine surgeryies over the last 2 years for both breast removal and reconstruction. Because my left breast was damaged during removal it's having a hard time reconstructing. On the 13th I am going in for a Latissimus Dorl Flap. I am so worried because of all the failures I have had on my left side (I would…
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My Turn Now
i was so saddend to hear of My turn now losing her battle. It just doesnt seem fair that so many have lost their battle that were here 5 years ago when i joined, it always takes something like this to draw me back to you pink sisters and CSN. Maybe i have my head buried in the sand, but with each one that passes I wonder,…
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Stage IV Breast Cancer with Mets to Bone
I am just looking for others out there in a similar situation as me. I'm 35, married with a 4 year old daughter. I am going into my 3rd year since my original dx which was Stage 2 April 2011. Reoccurence in Sept 2012 with Mets to bone. I am taking Xeloda now after trying Tamoxifen and Femera both of which failed. Hoping…
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Scammers on this board. I received a scam mail form Helen 212
I received a private message from someone named Helen 212 asking to send her money. Anyone else? How do I report this? I truly can't believe the nerve of some people. :-(
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I made a decision
After almost 7 months of only palliative treatment, I got up Monday and made an appointment for a second opinion at the Cancer Center here. I was able to get an appointment with the doctor who has been heading up trials with the immune system. I am not sure anything will come of it. I realize that I have had massive doses…
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ONCOTYPE IS 18
Well, 18 is just 1 point above the 'low' mark, and into the mid-range. As I was told earlier, this is 'up for discussion' as to whether or not I should do chemo. To recap, DX of Stage 1 Invasive Lobular Cancer, 100% ER, 10% progesterone; umpectomy on December 3, clear borders, lymph nodes are clear. Radiation planned after…
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mzlove Thank ypu for the beautiful butterfly.
I hope you received mine it was sent 2 weeks ago? Merry Christmas. Carol
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SHOUT OUT to ManWithaMission: How are you doing with chemo, Robert?
Just thinking about you, Robert, and wondering how you're doing? Looks like it's been 2 weeks since you and your new port started chemo? Sending warm, positive thoughts your way, Traci
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Dawne update, sorry I was so slow
Sorry I have not been better at updating lately. Dawne is fighting the fight with all she has in her. She has not had to be in the hospital again so that is a blessing. She did find out the cancer has spread to her aorta, not sure if I had posted that or not. I have been able to go see her a few times in the last few…
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5 year survivor f/u care?
Hello everyone. I am new here. Should have come here long ago. I just recently celebrated my 5th year post triple neg ductal CA insitu. Yipeeee. I have some questions regarding my care from here on. I belong to a major HMO and though I have received good care, I truly do not believe it has been the best. I really don't…
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Why do people who say 'I will pray for you' annoy me so much?
I just can't cope with this innocuous crap! They all assume that I believe in this so called GOD? Did GOD stop me from getting this death sentance? NO! So please do NOT preach to me, me and God are just fine, it is his fan club that I have a problem with... :)
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Happy Birthday - Carkris .. December 28th!
Hoping you have a very special, special Birthday dear Sister. Enjoy Vicki Sam
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Happy Birthday Greetings to our dear 'ChristmasGirl' - Susan
A day early - Hap Hap Happy Birthday dear Susan - December 25th... Enjoy your very special day. Vicki Sam