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Cervical Adenocarcinoma after UPSC misdiagnosis
Hello, I am joining you ladies after discovering that I have cervical cancer which was originally misdiagnosed as a rare, aggressive uterine cancer (UPSC). After surgery, the pathology report came back with 1B1 Mucinous Adenocarcinoma of the cervix with lymph node involvement. This is quite annoying since I have researched…
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What to expect after a simple vulvecomy
I had a simple partial vulvectomy on 3/13/13 - 13 days after my 63 birhtday--should have played those numbers. I am requesting a topic of what happens during recovery. A lot of us have been through the surgery, but need to know what happens after. One week-two-three-four, etc. Can anyone help me. I think it would be good…
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VIN progression
Hello all. I have just seen a gyno for a white vulval lesion. I'm now scheduled for a biopsy and colposcopy, so I'm unsure of the stage, but the doctor says he doesn't think it's cancer yet. My question is, can vulval cancer appear spontaneously, or does it progress through the various stages of VIN first? I'm 44 years…
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Looking for VIN info, please?
Hi, I'm new and I've been looking for info and support/people who can relate & understand, because I think I'm going to need it. I'm 38 and last Thursday finally wondered why the heck I was itching (and have been for a while). We changed detergents a couple months ago & I thought that's what it was, but grabbed the ol'…
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Back from the gyno oncologist - VIN iii surgery, need advice!
I wanted to start a new thread instead of hijacking the old one. I had the appt with the gyno oncologist today and will be having surgery to remove the 1 VIN iii lesion on April 12th. They did the acid test and only saw the 1 lesion. Everything else looked clean. But the 1 lesion included both the biopsy sites that I had.…
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ccfighter
CCfighter, I haven't seen you on the forum for a while, I hope you are doing ok. Hang tough!! D.
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Stage 4 Vulvar Cancer
I'm new here but am trying to find a community of people who have experience with vulvar cancer. My mother was diagnosed with Stage 4 vulvar cancer about two months ago. When it was diagnosed, her cancer was in her vulva, groin lymph node and skin. Later, her physicians found a small tumor in her shoulder, which was…
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Seeking feedback about my mother's treatment options for Stage IV UPSC, after first chemo cycle
Dear friends, I think I'm on the right discussion board for my mother's form of cancer, which is uterine papillary sereous carcinoma. She was diagnosed in December of 2012 and is finishing her first line of chemotherapy, having undergone radical hysterectomy in December. Disease has metastized to her liver and is present…
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VIN/Cancer and Associated Itch
HISTORY: I am 55, had CIN 28 years ago and then had both pre-cancerous VIN and CIN growths removed back in 2005. In 2005 one doctor removed most of my cervix then my oncologist removed my left inner labia. Now, over the past several years, I've had incessant itching which I've been asking my gyno about. I didn't get any…
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Is the VIN Spreading???
I just had surgery for VIN II back on Feb. 2nd and yes, I do have HPV. The vulvar tissue the doctor removed had turned white. Now, three weeks later, and even though the doctor told me there were clean margins for the tissue he removed, I'm noticing a lot of the area around the incision site (I had 12 stitches) is turning…
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recurrent cervical cancer-carbo/gemzar
Got a third opinion today on treatment for recurrent cervical adenosquamous where mets located in lung and abdominal wall showed up. Seems carbo/gemzar or cisplatin gemzar are good choices and possibly adding avastin to the mix, as a new study shows improved survival with that. Not eligiable for clinical trials at the…
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cervical adencarcinoma stage 1b1
I have been suffering alone with my dx since December. I have not spoken to or met one other person who has the same type of cancer that I do. I do not want anyone to have to go through the nightmare that I have experienced. I was misdiagnosed back in the fall and was told there was no reason to worry, and that cervical…
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DAUGHTER HAS MILD DYSPLASIA
My 26-year-old daughter has had 'mild to moderate dysplasia' this past year. Her doctor is keeping up every three months with pap tests, and she had a colposcopy in December of 2011 which was negative. Two pap tests ago, there was 'nothing there'. This last one showed 'it was back' as the doctor phrased it. I am a two-time…
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Excessive JP drainage post radical hysterectomy
I am looking to hear from anyone who has been in my current shoes. I am one week post op after having a radical hysterectomy and bilateral oophorectomy for what ended up staging as 1b cervical adenocarcinoma (found only by the grace of a routine annual pap smear). I have a JP drain and have been recovering at home for 5…
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Good News!
All of us on this board have gone through so much with diagnosis, treatments and just coping with cancer. We are there to encourage, pray, cry and uplift each other when we feel at our most vulnerable with words of our own experience. I would never want to diminish the pain that another person is going through yet, I want…
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body odor
I was diagnosed with Bartholian gland squamous cell carcinoma and had chemo and 31 radiation treatments. When I was in treatment my body started to have a sickly-sweet slightly decaying smell (I've smelt the same odor on old people) and now a 6 weeks after treatment has finished I still have this smell and it might be…
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Cervical Cancer Stage 2B
My mom was diagnosed with cervical cancer in Dec 2012. She had surgery in January 2013. Her right ovary, lymph nodes, fallopian tubes and mass in her uterus were removed by robotic Davinci surgery. She went to her Dr today, and he told her even though he did a partial hysterectomy, the tumor on her cervix still exists and…
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Clinical trial
ADXS11-001. Anyone on this?
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Please help
Hi there, I'm new here and don't necessarily like being associated with anything relating to cancer but I had an 8 kg Germ cell tumour removed from my left ovary in October 2012 and during my 2nd cycle of chemotherapy (in which I never thought I'd get) I had a nervous breakdown. This has left me with severe depression and…
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Cervical cancer symptoma
What symptoms did y'all have before diagnosed?
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Vulvar Cancer - Lost
I am new to this site and I am so happy to find other women who understand what I am going through. In May 2011, at the age of 35, I had what I thought was a blister that turned out to be vulvar cancer. I had never even heard of that type of cancer and wish now I never had. A week after being diagnosed I had my first of 11…
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A non-sence question
Do you ladys that have cervical,vaginal,vulva, or any other gyn cancer (besides uterine, ovarian, or breast),have an Awareness Ribbon and if so, what colors are they? I am making pins, hats, slippers for my local Cancer Center(M.D. Anderson here in Texas) and I would like to include everyone. I tryed to look up the…
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Vulvar Cancer: Lymph Nodes removed from Groin Area...healing problems/pain.
I had surgery two and a half weeks ago for a very rare form of cancer in the vulva. It's not vulva cancer but a very rare form of cancer called Adenoid Cystic Carcinoma of the Vulva http://www.accoi.org/ . I am told I am only the 26th case in the USA to have this. Nevertheless, I am dealing with many of the things you guys…
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Looking for support Group in Las Vegas
Hi everyone I am 34 yr. female and been Dealing with cervical cancer for sometime diagn. 12/11, I have had lymph nodes removed10/12/12 and what was thought to be possible breast cancer removed 12/9/12 and now focusing on the cervical cancere which is at stage 1b (4 1/2 in tumor size) I really need to find a public facility…
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Recovering from chemo suggestions and experiences wanted
Two years ago, I was diagnosed with thyroid and cervical cancer. Since then, I've had 5 surgeries, including a double ostomy, 3 rounds of radiation and 3 rounds of chemo. My last chemo was December 11th. Do any of you have suggestions for a quicker recovery of energy or experiences with chemo you want to share? I take…
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Surgery Soon
Boy, this website is truely a great source of information and inspiration from all of you who have already been through so much. I truely applaud your strength and courage and wish everyone the best. According to my doctor I don't have cancer but, I am having surgery in February to remove VIN III. I have to admit that I am…
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Have a burniing question...
I hope someone can me with a burning question... Due to a growth that I recently found and the subsequent biopsy, I've been told that I have VIN III and have to have surgery. I've also suffered terrible itching for several years, always in the same locations but different from where the growth was localized. I'm hoping…
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Clinical trial with Dalantercept?
Hello ladies, I am from the ovarian cancer board but I am entering into a clinical trial for a new drug called Dalantercept. I have been told that women with endometrial cancer have also been put on this trial. I was wondering if anyone has heard of it or maybe tried it? It supposedly blocks blood and nutrient supply to…
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HOW IS BARTHOLIN GLAND CANCER STAGED?
When is it stage 1, 2 or 3? How do they tell?
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Pelvic Resection and Ablation
Has anyone out there ever had a pelvic resection, specifiaclly of the pubic bone? Just wondering what the recovery of this type of surgery is and if there is any disability with it? Also, has anyone ever had ablation of a tumor either with heat or cold, also in the pelvic area? I have a stage 4 metatstaic vulvar…