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Topotecan Drug
Has anyone else started up on this drug for their ovarian cancer treatment? I will start it today. The carbo/taxol didn't work. The cancer has spread to my spine, liver so I will start up today on Topotecan. If you have started up on this please let me know if it's the same in side effects as carbo/taxol. How long did you…
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Cervical cancer tatoos
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January is cervical cancer awareness month
It is not too late to remind your family and friends that there is a good and easy to test for cervical cancer. The PAP test is quick and painless and the earlier you can catch any cancer the better the odds of beasting this disease so many of us know. I did see an interview with a doctor (and I wish I could remember what…
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Still Dancing
Yes! With NED! Had CT scan of chest, abdomen and pelvis done on Monday and got the results today. Clean. Pelvic exam, my gyn onc said was "fantastic". (My husband told her he already knew that;)). So, see her in three months. Yeah!!! I do however, have yet another UTI. Drag. I seem to be getting one every 2-3 months. I…
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Ren12
Just wanted to send some positive energy your way today, for your mother, and good results for her scan. Hugs.
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Post Radical Vulvectomy and total Clitoridectomy
I am two months past Radical Vulvectomy and total clitoridectomy. I have been hospitalized 3 times, totaling more than 20 days. Massive infections in the lymph node incisions, seroma, jp infections, wound vac, and lymphedema. Seems I have had almost every complication you can think of. Facing yet another new drain…
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CSN study FAQ
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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LEEP PROCEDURE FOR HIGH GRADE CERVICAL DISPLAYSIA?
Hello to all of you Warriors and Survivors! I am from the ovarian cancer board (dx in 2000 and 2006), and most recently diagnosed with breast cancer. But my question for today is regarding my daughter who has high grade cervical displaysia. The gyn/onc she saw is recommending a LEEP procedure. We have researched this…
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Winning The Fight against cervival cancer - survivors story
I hope this story helps someone! I was diagnosed with cervical cancer in July 2011; I had 12 rounds of chemo, 25 days of radiation and 6 internal radiation treatments. In Jan 2012 a pet scan revealed that it had metastized to lymphnodes in my chest - drs at md anderson said they could control it not cure it - they gave me…
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Metastatic cervical cancer
Hello All.... I am new here and hoping to find others who may have been through a situation similar to mine. I am a little confused and pretty worried at this point. I am currently 34 years old. Mother of 4. I was diagnosed with 2b cervixal - adenocarcinoma in 2008. I then went on to have chemo once a week for 6 weeks and…
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Seeking info about Clinical trial for metastasis (mets) called Rigosertib
Hey, I just started this clinical trial I was dx with mets to the lungs about a year ago. Primary was Tonsil I was wondering if anyone here knows anyone who has taken this drug in previous clinical trials the drug / chemo is called Rigosertib. I'm the first at my hospital so they don;t have a lot of info for me other than…
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Effects of Pelvic Radiation
Has anyone ever experienced tingling and numbnes in the legs after completing pelvic radiation treatments? I completed treatment of 5 weeks of external and 3 treatments of internal pelvic radiation. My my legs tire very easily now and ache all of the time. Drs say this is not radiation damage. The radiation was done…
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Vulvar Cancer: Lymph Nodes removed from Groin Area...healing problems/pain.
I had surgery two and a half weeks ago for a very rare form of cancer in the vulva. It's not vulva cancer but a very rare form of cancer called Adenoid Cystic Carcinoma of the Vulva http://www.accoi.org/ . I am told I am only the 26th case in the USA to have this. Nevertheless, I am dealing with many of the things you guys…
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New and Confused (cervix)
Evening, Just after some info or if anyone experienced the same. Went for a routine pap smear on the 5th, referred by GP for a colposcopy as she wasn't happy with look of my cervix. Said it was red, bumpy and bleeds when touched. Anyway 3 days later I got my results back...'normal'. Naturally confused. Went for my colp on…
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NED
PET scan today and I am NED!!! Still in remission from stage 4a vaginal cancer!! What a wonderful Thanksgiving this will be. Babe
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para-aortic lymph node cancer
In 2011 I was diagnosed with Edometrial cancer. On halloween I had a total hysterectomy. My Onco Dr. found one cancer cell in one lymphnode so i had 22 sessions of radiation. No Chemo. In Oct. this year after having an ulttra sound and barium swallow for stomach pain, My doctor ordered a CT Scan with contrast. They found…
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Peritoneal Cancer - Anyone experience symptoms toward the end - of loved ones?
my mom was diagnosed with peritoneal cancer three years ago and started a third round of chemo in September. She has been on Doxil. After starting the Doxil she began having fluid retention and more recently has started vomiting. She is unable to eat and had a nose tube for a while. She then began vomiting due to the food…
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NED is in the HOUSE!!!
Another three months have gone by, can you believe how this time just flies. I had my scan Tuesday and got the all clear today. I am overjoyed. This month is my two year hysterversary for cervical cancer, next month is 1 year from recurrence In lung and abdominal wall. I am 6 months post chemo. I am so happy! prayers to…
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National race to end woman's cancer
Well, I registered. Anyone else interested. D.C. Nov. 3. Proceeds go to foundation for woman's cancers. Let me know also if you want to donate and I can send you a PM. Hope you all are well. Hugs.
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What to expect
I've just been diagnosed (last week) with Stage III Vulvar Cancer. My Doctor doesn't want to do surgery yet but as of 5 days ago I now have a port, a lymph node removed and met with the Radiation team. Tomorrow I meet with the Radiation team to get me set up with my 5 weeks of treatment as well as the nurse who will be…
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Possible cervical cancer?
In 2008 I had an abnormal pap, went in for further tests, was told to come back in three months. When I went back in I had CIN III removed from my cervix. Two days after it was found. A few months ago I went back for a check up and CIN I is found. I have been waiting for my Dr. to call with my referral for the Gyno and…
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looking for any info about vin 3
so... yesterday i was diagnosed with vin 3. originally my obgyn thought that it was warts because in june i was diagnosed with hpv but i wasnt responding to the acid treatments and the itching didnt match with warts so i got a biopsy and well... now at least i know what it is. apparently its very rare, especially since i…
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Side Eeffects from Cobalt Treatment 40 years ago
Anyone have scar tissue caused by cobalt treatment years ago?
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Recurrent cervical cancer
So...1 year post hysterectomy for 2A adenosquamous carcinoma of the cervix with pelvic lymp mets, 6 months post treatment with chemo, chemo/radiation and more chemo, and a ct scan revealed a new 1.7 cm soft tissue mass is the anterior pelvis. Pet/ct coming soon. I'm so sad.
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Life after vulva cancer treatment
I was diagnosed with stage 3 vulvar carcinoma. The diagnosis completely came out of left field for me. I have never been diagnosed with HPV in my entire life. I have always gotten regular checkups especiallly when I was pregnant with all three of my children I was sure to get through tests for all possible diseases. When I…
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Someone PLEASE help....severe radiation burns vaginal area
If there is anyone out there who can give me some advice I would appreciateit so much. I have urethral and vulvar cancer. I have had chemo and 6 weeks of radiation treatments. The last part of my radiation were "boosts" (11 in a row). I did my last one 5 days ago, and I am in so much pain all I can do is lay here and cry.…
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Ct scan results
Another three months have gone by and I am NED! It's a miracle! Hugs to all.
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Aggressive Angiomyxoma (cancer of the vulvar)
I was Diagnosed with Aggressive angiomyxama about a year ago. Has anyone ever heard of this? I am curious about other treatment options I'm currently on harmone therapy Tamoxifen, one side effect is the unbearable hot flashes. Im in my early 30's, so not ready for this!
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Fallopian Tube Cancer Chemo Question
Ive been diagnosed with stage 3A fallopian tube cancer (serous carcinoma)...the doctors follow the same regimen as epithelial ovarian cancer...I can get platinum based treatment via IV or IP (intraperitoneal)...my question is does anyone recommend IV over IP, or vice versa? Ive been told that IP has better success rate but…
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I HAVE A DREAM...
...that one day we will have a pink heart shape pill that cures all cancers and our biggest complaint will be that it comes only in 6 different flavors. Please, join me in this dream and until then god bless us with nothing but happy hopeful days. Laz