Gynecological Cancers (other than ovarian and uterine)
Discussion List
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NED
Got my scan results on Thursday and jumped up and down in Walmart's parking lot. I've been having bathroom problems and pain in my shoulder, so I was very concerned. Guess this is just more of the joys of hysterectomy and surgical menopause. Not complaining, though. Life is good and I'm NED!!!! You ladies have a wonderful…
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I'm new here - Just diagnosed with VIN 3. Scared.
Hi Everyone, I'm 51 years old and a few weeks ago I started bleeding (post menopause). My GP referred me to a gynocologist and he did a uterine biopsy. While doing the biopsy the doctor saw discoloring on my vulva and told me he was not concerned about uterine cancer but was concerned about what he had found and that I…
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Intraepithelial neoplasia, grade III, of cervix, vulva and vagina & poss uterine CA
Please can anyone tell me what their experience with this is? I also have possibly adenocarinoma endocervical which im assuming is cervical cancer? I'm reading all of this from my internet health portal from the DRs office from a Pap smear & biopsy back in June. I need answers. I was all set to have a radical hysterectomy…
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19 months post recurrence diagnosis
Still dancing with NED. Latest ct results and visit with onc keeps me in the clear. Relief. Every day is a gift. Keep fighting. Hugs to you all.
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vulvar cancer possibly spread to pelvic bone ..
Hi, I'm new here and am a 4 year vulvar cancer survivor. I just had an unrelated CT scan done at the ER this past Tuesday and they found a lesion on my pelvic bone that is conducive with metistative (sp) . I am wondering if anyone else has had that experience and what tests and treatments they had and or went through. I am…
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Did any of you start out wit VAIN III, CIN III, or VIN III & have yours turn into CA?
Hi to you all! While awaiting talk with my Gyn/onc I'm doing a lot of research on these DXs and was wondering if any of you had either or all or any of these DXs before ending up with a vaginal, cervical or vulva cancer? I was initially told that I have endometrial & endocervical cancers PLUS the VIN, VAIN & CIN III. What…
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No Subject
looking for a cervical cancer survivor or current patient to give support and information to my mother in Ohio.
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VULVAR CANCER SUPPORT
Hello again. It's been almost 2 months since my surgery for squamous cell vulvar cancer. I AM DOING GREAT!! I had my entire right inner labia removed and both sides (on the outside) of my vaginal area were fixed using the wide local excision. Yep, it sucked. And yep, it hurt. But here I am 2 months later!! I wouldn't have…
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I am new and need some advice
I was diagnosed a week ago with adenocarcinoma in situ, I had a conization done less than a week ago now have to go back to the dr tomorrow for results of the tests they took during my procedure, I asked my dr about doing a hysterectomy since I am done having children but he always says no but then tells me that there is…
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New Here..Dx'd with VIN iii and ???
Hello, I've got 2 + biopsies back with VIN iii and they are pretty far apart. So gyno is sending me to be "mapped"? With more biosies from a gyno onco. And I've called for another gyno onco opinion too. It's been crazy and I itch all over down there..... So I'm worried that I've got this stuff all over! I'm freaking out. I…
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Vulvar Dysplasia III
I just received word that I have VIN III. I am afraid. he lesion wil be removed soon and I will be seeing an oncologist soon. The Dr. spoke of reconstructive surgery and all of this is overwhelming. The only comforting words i heard is that I don't have a cancer. But he kept emphasizing how severe the dysplasia was. I'm…
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Vin III / Sonopet Surgery
Hello ladies.... I was diagnosed with Vin III for the second time. My first surgery was two years ago. I was so devistated how could I get this, but I will never know so I need to focus on how to get rid of it. My doctor wants to do surgery again, this time he wants to use a new instrument called Sonopet instead of laser…
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Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
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Ren 12-thinking of your family
I hope things are well with you, your mother and your family with your sisters upcoming wedding in a few days. I hope that your mother is able to attend and enjoy seeing her daughter get married. It is such a proud moment. I will be raising a glass on Saturday, sending positive energy and light to you all on such a special…
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new approach that involves finding and amplifying the body’s own immune response to cancer
Saw this on NBC new tonight. I hope my cervical cancer sisters see this: http://www.nbcnews.com/health/cancer/fighting-back-patients-own-immune-cells-tackle-cervical-cancer-n119286
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All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
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Pet scan
Pet scan Monday was good, oncologist was pleased. Though I am grateful for this & the excellent care I had to get me here, I feel so horrible that others, esp my good friend Kitty (Ronmybaby) did not. It's just not fair. She should still be here, 56 yrs old is too young.
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Ren12
Haven't heard from you in a while. I hope all is well with your mom. Stay strong. Still thinking of you both. Hugs.
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Newly diagnosed and textbook symptoms
One year ago, i had a rare occurance..i had, what i thought, was 3 periods within a 6 week timeframe. I went to see my doctor who quickly dismissed my concerns and gave me a simple, "you are most likely getting ready to start going through the change". My doctor offered to place me on birth control pills to help regulate…
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Prayers for Kitty
Please say a prayer for Kitty (Ronmybaby), they had discontinued her chemo (it wasn't working) and the cancer has spread to all of her organs. She is in the hospital now, it is only a matter of time. She is such an inspiration & fighter. We met on this board & constantly stayed in touch with each other. We hated that…
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Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
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Scanxiety time again.
Had CT Monday. Waiting for results. Though I am feeling pretty good, this doesnt seem to get any easier for me. Trying to think positive and keep busy. to vent a little frustration, as I drove to my ct scan I had a panic attack and had to pull over on the side of the beltway. After I regrouped, I got my self to the…
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Hard bumps
Hi I'm crossing boards again. I had rectal cancer, rectal and anus removal. I've been having breast pain for years went onto the breast board to discuss. No one can explain it. Crossing again because there are three distinct hard bumps in my vagina. They felt like normal bumps a few weeks ago. Now they are hard and…
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uterine stump possible seroma
I've recently been diagnosed with a dermoid cyst in my right ovary extending across my pelvis on the left side they said after the ultrasound there's a tranverse exphotyic mass on my uterine stump, possible seroma. Five years ago I had an tvh. I've been referred to a gynecologic oncologist for immediate surgery. I have no…
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Ladies, September if Gynecological Cancer Awareness Month we must do something
We ALL can do something. We can email the local television stations and contact the health beat reporter do a piece in September on Women's Gynecological Cancer. Ladies, this is OUR cancer. I will ask the Ovarian and Uterine Cancer women to do the same. You could consider using something like this: Dear (reporter), I…
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What to expect
I've just been diagnosed (last week) with Stage III Vulvar Cancer. My Doctor doesn't want to do surgery yet but as of 5 days ago I now have a port, a lymph node removed and met with the Radiation team. Tomorrow I meet with the Radiation team to get me set up with my 5 weeks of treatment as well as the nurse who will be…
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Milestones
Since I was dx with stage 4 vaginal cancer in Sept. 2011, I have seen my daughter graduate with her master's degree, pass her board certification (she's now a Board Certified Behavior Analyst), get her 1st great job and helped her move to Nashville. I wasn't sure if I would ever see this during my treatment, but by the…
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Time to pull out my running shoes and run the race again
I was DX with Vulvar cancer in 2010. I had a vulvectomey (right side) lymph nodes removed and laser treatment. Now that I am one year from hitting my 5 year mark read below. So I was doing my yearly CT scan plus I have having some other issue my doc wanted to check out. I was peeing blood and not from the vaginal area. It…
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stage 3b cervical cancer
My daughter started her 2nd week of radiation today. She gets cisplatin once a week on Wednesdays. This past Friday i took her to th er because she felt like she wasnt getting enough O2. They did a ct and abgs and said it was probably the chemo that hit her hard. She sleeps most of the day if not throwing up and awake at…
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Possible cancer occurrence
in 2012 at the age of 35 I was diagnosed with stage 2 Cervical Cancer. I had a radical hysterectomy, chemo and high dose radiation therapy. After 5 months of treatment they cleared me and said my cancer was cured. Now, almost 2 years later I have noticed some issues. Over the last month or so I have had blood/mucous in my…
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