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Mayo Clinic in Minnesota
Thinking about getting a second from here and be treated at Mayo Clininc in Minnesota. Anybody have any pro's or con's on this clinic?
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Surgery Dec 14
I have a surgery date for MIE on December 14, 2010. I'll be traveling to Los Angeles to USC University Hospital on 12/6 to get a place for family to stay. Dr. Steve Demeester will do the operation. Appreciate any thoughts from those who have gone through this before me. God Bless you all!! John Haynes
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Asking Doctors for Options
I just replied to Bob's Wife's post and it got me thinking. Wouldn't it be great if EC doctors would read our board sometime and see what is working for the patients and families here? Almost every single medication and things that have helped my dad's quality of life came from recommendations from this board. Thanks to…
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Thank you all!!
Hi, Just wanted to thank all of you for the support and advice and love and prayers all of you have given me and my family this past year. It has been a year full of ups and downs but now instead of walking around with an NG tube hanging out of my nose and not being able to swallow, I am doing the Thanksgiving dinner for…
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Update on Diana and I
Hi everyone, first I would like to wish everyone a Happy Thanksgiving and second, to let all of you know who has been in touch with us since last year when we first went on this website, that we are doing ok. The holidays are going to be especially tough after losing Eddie and my mom. We are going to my sisters today, it…
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Clinics or Hospitals
After recently joining this forum I have been reading a lot of the posts. I would like to know how or where I would go to find out where the best clinics or hospitals are in my area. I'm located in Northern Wisconsin, and am especially interested in the MIE if I qualify, but would have to know where to go. Will find out…
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Giving Thanks
If you are on this board, Esophageal Cancer has touched your life in some way. Last year at this time, I had little to no knowledge of Esophageal Cancer, in April 2010, an "abnormality" was found, in May I got my diagnosis of, in July I got my MIE Esophagectomy. Today, my recovery continues, hopefully 1 final trip to…
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Wishing ALL a Happy and Blessed Thanksgiving
Though we share heartbreak on this board and sometimes struggle to find things to be thankful for in the midst of this dreaded disease, one thing I can be thankful for is the support and encouragement I've found on this board! I thank God and all of you for sharing your stories, both good and bad, and will be thinking of…
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a little hello and have a great holiday
Hello All, I spoke with Lori and she wanted me to post something. I know that I havent been around much. I read and it just takes too much out of me to post. But today I am. I know that life must go on and Ive been doing well. So heres an update. Yesterday was a year ago since my dad went for his scope to find out that he…
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Newbie
I'm a newbie to this board so, please bare with me. A little info about me 56 year old male and just received the news about having this cancer. We(my wife &I) meet with the surgeon yesterday, and let me tell you he scared the HELL out me, with the treatment plan. So, now I'm trying to find out more and what I should do.…
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Staging Question
I have been looking at this sight under staging and I have a question. When my husband wae originally diagnosed with esophageal cancer in Feb 2009 his stage was IIB. In Sept his cancercame back and now the dr said it is Stage IV. According to this sight Under "IN TREATMENT" There is an area on staging. It says that even if…
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My Mom Ginny's Update as of 11/23/10
All my CSN friends, Just a quick note that mom had a successful procedure done yesterday, 11/23/10. Her leaking heart valve will be being replaced. Everything else looked normal, which is wonderful! She will have her pre op appt. on 11/30/10. Her triple bypass/heart valve replacement surgery will be on 12/6/10. Thank you…
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white blood cells at zero
Dad in hospital after first cycle of carboplatin and 5FU. White blood cell count zero and platelets at 7. Getting antibiotics, platelets and nutrients via IV. Also in sterile environment. I'm told this is not uncommon with chemo. Any idea how long it takes for WBC count to rebound?
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This may interest some.....
My hubby is constantly low on magnesium and has to get infusions regularly. I was curous as to what role this mineral has to the body, how to replace it and why is may become low. I was amazed on how much this mineral does for us and that many humans may be low and not know it. I thought maybe you all might find this…
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hacker
Hello All, Looks like we have another hacker, trying to interrupt again. I've checked some other topics and they are also on there. Sandra
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Dad out of Sloan ICU. Swallow test tomorrow!
Hello All. Thanks for your prayers! My Dad is out of the ICU and getting better each day. He had his nasogastric tube removed and one of the drains as well today. Still requires oxygen but is walking great and coughing up alot! He will be 1 week post op tomorrow! Yeah! I am starting to think about when he comes home. Where…
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update my father in law
My father in law is on his seventh week of chemo for stage 3. Every 21 days he gets injections of Epirubicin Hydrochloride and Cisplatin. Every week he gets a new bottle of Flourouracil for his 'port' infusion. Now he gets severely chapped lips where he can't eat or drink without pain. Twice he has been to emergency for…
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Roller Coaster from H*** continues for my dad
An update on my dad. We thought last weekend after his party was going to be the end. He had all the signs, the preist came, and dad was ready too. No words had gone unspoken. He made it through the night, but on Sunday he was a mess, falling, not making sense, ect. We were afraid because it was not safe for him to be at…
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Oxaliplatin+oral 5-FU for EC
Hello All: My father has been a patient of Esophageal cancer for almost last two years. He had his lower esophagus operated in Feb, 2009. His tumor was in stage 3B. After that he received TCF for a cycle. Due to grade 4 GI toxicity in cycle 1, he received TC for next 4 cycles and then he had a Myocardial Infraction. After…
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cleared it
hi, I e-mailed csn about the hacker and they have cleared it before he got too wild. SAndra
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Hi. We're new.
Hi everyone! I am so glad to have found this board. The courage and support from all of you is so inspiring. I'll start by introducing myself. My name's Jackie and my husband and I were married last year. Earlier this year (Feb 2010) Anthony was diagnosed with EC (ge junction). They staged it at IIB and he was started on…
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Husband passed away this morning
Sorry to say, my husband, Hal, lost his life to this terrible disease this morning. thank you all for your words of encouragement over these past 12 months. He is in heaven now - pain free and no cancer! Jethro-t Rhonda
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The Holidays
Hi everyone, I know it has been a while since I have posted anything...and many new people on here that I don't know...but do understand your journey. It has been 5 months since my Prince, Lyle, went to be with the Lord. I thought I was doing ok in the beginning...but I find now that I am having meltdowns on a more…
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Found out stage and treatment....
Well it has been one heck of a week as we have learned more about my brother Raymond. Wednesday Radiation consultation, Thursday first visit with the surgeon and today the Oncologist has explained when they plan to start. Novemeber 29th is the first day of chemo and radiation. He will start with 6 hours of Cisplatin and…
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On Dad's HIPAA form. What do I ask doctor for?
Dad gave me clearance to communicate with Genesis Cancer Center in Hot Springs, Arkansas about his care. He doesn't want me to be a bother to them and will remove me if he gets feedback that I am. I want to know his specific diagnosis with nodes and markers. I want to know full results of his PET scan. I want to know what…
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dad is near the end
Dad made it to his party last night, barely. He is near the end, the rattle, delirum, and showing other signs. Please pray for a gentle transition to his next world. I love him so much! Deb
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Esophagectomy scheduled in Los Angeles with Dr. Demeester
I am early stage EC and failed endoscopic treatment when a new lesion was found 11/4/10. Scheduled for surgery 12/13/10 at the USC Norris Cancer Center in Los Angeles. I am hoping to hear from others who have had the surgery as to recovery experiences, etc. Anyone who had the same surgeon would be helpful also. I have…
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Just found y'all
A little background. I began my journey with cancer in the early 1990's when my wife was diagnosed with breat cancer. Lost her in 1996. I had surgery for anal cancer in February 2008 and remain cancer free. My fiancee was diagnosed with EC in January of this year (I'm my own little cancer cluster) and had her surgery June…
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Esophageal Cancer Awareness Month
Just got an email from the Governor Crist's office....FL had declared April National Esophageal Cancer Awareness month!! Jane
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Linda's husband home from hospital AGAIN!
Jim is home from the hospital, feeling better, weaker, thinner, but his counts are up! The Pro-time is back to normal and for now he is off of his Coumadin. We have our appointments set up for Portland for Oregon Health & Science University Hospital. We go the 29th of this month and he will have his after chemo/radiation…