Chefdaddy New Up-date on Mike 5-30-10

sweetblood22 said:

debbiejeanne
Glad you just have a few side effects, and are doing well with healing. I like to hear that. I told Mike I would call him tomorrow. I would call him more than I do, but I don't want to wear him out.

I went to the hospital today, for my check up with my RO. When he saw me he said, "WOW! Is it my imagination, am I dreaming, or do you look GOOD AGAIN??" I laughed and said, well I look better. Amazing what some hair dye and some highlights will do. All the nurses said they loved it as soon as they saw me. I layered up with as much clothing as I could get away with. Long jeans, 5" wedge silver heels, black and white sleeveless short dress, wide black belt, black cropped sweater, black flower pin, phone in pocket, and bright yellow bag. I was 101.5 when I stepped on the scale. hehe. I am 94 on my scale at home. I am bad, I know. He looked at my weight on the computer and was happy, it has been steadily going up since the last time I saw him. I am on the 3 month plan. He did his thing, and when he looked at my tongue and in my mouth, he said my tongue still looks awful, but is v e r y s l o w l y looking a little better. My mouth is so dry that the tongue depressor stuck to my tongue. He sent me for a routine chest xray. I am out of radiation a year tomorrow! I asked if he thought my tongue would ever be normal. He said he was still hoping, but probably not. I am going to try to step down to 25mcgs of Fentanyl. He said if I am in more pain than I am in now, then don't do it. He wants to make sure I can still eat and swallow. The last time I tried, my tongue hurt so bad, I could not drink again. And.....he said my speech sounded sooo much better. YAY! He said, "What did you do?" I told him I am trying like heck to retrain myself to sound like I used to. My tongue does not move like it used to. I am telling you, they fricasseed my poor tongue. I cannot even stick it out. I can't whistle any more, and I can't 'roll' my tongue, or even touch the sides of my teeth with it. It is really weird. So, he bumped me to 4months, unless I have a problem.

Well, I am going to try to eat some new things. I got some fresh udon noodles, and some miso soup to try. Or I may just be lazy and do my tiny tortilla wrap. I am beat from being out running around since noon.

Hope all is well with everyone.

Hondo said:

Hi Dave

His children are in protected custody because of the ex wife boyfriend so I don’t think he will give out the address until after the court hearing. I know it does make him happy when I tell him that there are a lot of his friends on CSN praying for him.

Take care

Hondo said:

Up-date 5-15-10
Mike did sound a lot better today and he believes that they will let him go home Monday. When I called him he was in the Emergency room with his son who was running a 103 deg fever, this poor guy just does not get a break. I could not talk to him very long and hope to get an good up-date tomorrow.

Thanks everyone for your prayers

debbiejeanne said:

Update 5-17-10
Hi, all. I spoke with Mike today and things aren't looking good. He is still having problems with his intestins and the doctors told him that if they don't start working, he will not make it. He is very worried about what will happen to his children. I told Mike to hand in there and not give up because he has a lot of friends who are pulling for him and praying for them all EVERYDAY! I wish there were more we could do for him and his children. Hondo, you are right, he just cannot get a break. It is really sad. Mike also said that he had fallen a couple times because he is so weak. He said the hospital would be moving him to a home b/c he will need assistance with his meds. He didn't say when this will happen. I guess the hospital feels they've done all they can and thus the home (like a nursing home b/c of Mike's needing help with the meds). Please, please keep Mike and his family in your prayers. In fact, let's all pray extra prayers for them.
God Bless,
Debbie

delnative said:

Oh, gosh
I am so sorry to hear that. The poor guy has been through so much already, I can't even begin to imagine how he must feel.
He'll be No. 1 in my prayers, for sure.

--Jim in Delaware

dennis318 said:

thanks Hondo
Prayers are with you and your family, hang tough, alot are pulling for you here, Thanks Hondo for the extra leg work to keep us updated. Dennis

Hondo said:

Mike up-date 5-20-10
I have been trying to deal with this the best I can but still find it so unbelievable, A few days ago Mike informed me that the reason he was going home was not because he was getting better but as Deb said worse. Some how when the doc was giving him the radiation they had radiated down too far into his esophagus killing it as well as the stomach and causing a back up of everything in his body, his bowels are moving but everything else is dead.

They have move Mike to a half way house until he passes. Mike is a very nice guy and does not deserve any of the problems he is going through, it is hard to believe with all his problems why this.

I believe all things are possible because I know the God I serve and ask each of you to please continue to put Mike on your daily prayer list.

Thanks everyone
Hondo

dogsrule said:

I'm praying
I am so sorry to hear about what is happening to Mike. I am praying for him and his family.