HNC SUPERTHREAD. Excellent for people new to CSN. Answers to FAQ. Please do not bump or post to t
HNC Superthread. A COLLECTION OF HELPFUL LINKS ONLY. Help for some Frequently Asked Questions.
Head and Neck Superthread. ***PLEASE DO NOT POST OR ADD TO THIS THREAD**** There is a separate thread for any commentary about this one. I would like this one to be just a place for people to get information only. Thank you all. You can always PM me if you have something you think should be included here.
MAKING SENSE OF YOUR DIAGNOSIS
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ORAL CANCER FOUNDATION
Has tons of info for HNC patients from what to expect thru treatment, side effects, after care and support.
NAVIGATING CANCER. HEAD AND NECK CANCER
CANCER SUPPORT. GILDA's CLUB
HEAD AND NECK CANCER QUESTIONS AND ANSWERS
SUPPORT FOR PEOPLE WITH ORAL AND HEAD AND NECK CANCER
HEAD AND NECK CANCER SITE MICHAEL DOUGLASS WAS ENDORSING
I JUST FOUND OUT I HAVE CANCER
HOW LONG WE HAVE SURVIVED
YOU ARE NOT ALONE. ON ANY GIVEN DAY...
RADIATION SIDE EFFECTS:
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ESOPHAGEAL STRICTURES
Strictures can be a side effect with radiation. Sometimes dialations can remedy this severe side effect.
SIDE EFFECTS OF RADIATION LIST
DYSPHAGIA PROBLEMS SWALLOWING
ORAL HEALTH
SIDE EFFECTS OF RADIATION FOR HNC
GUIDELINES DURING TREAMENT
SHOULD I DO RADIATION AND/OR CHEMO?
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POST OPERATIVE RADIOSENSITIVITY IN PATIENTS WITH FANCONI ANEMIA AND HEAD AND NECK SQUAMOUS CELL CARCINOMA
TO RADIATE OR NOT RADIATE that is the question
IF THEY CANNOT FIND THE PRIMARY TUMOR DO WE RADIATE?
TIPS FOR HANDLING THE MASK:
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SURVIVING THE MASK
RADIATION MASK ADVICE
FIRST DAY OF RADIATION TIPS
PRODUCTS AND TIPS THAT HELP SIDE EFFECTS:
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GLUTAMINE
ARTICLE ON BENEFITS OF GLUTAMINE
ABOUT MAGIC MOUTH WASH or MAGIC SWIZZLE FOR MOUTH PAIN
STRETCHING AND NECK MESSAGE INSTRUCTIONS
GLUTAMINE
ARTICLE ABOUT GLUTAMINE AND THE PREVENTION OF MUCOUSITIS IN BMT PATIENTS
NESTLÉ CANCER NUTRITION PRODUCTS
NEW AND ABOUT TO START RADIATION
RAPIALEX WORKS TO SOOTH AND PREVENT RADIATION BURN
SWALLOWING EXERCISES
NATIONAL LYMPHADEMA NETWORK
PRODUCTS TO HELP SOOTHE DRY MOUTH
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BIOTÈNE PRODUCTS
GC DRY MOUTH GEL
OASIS DRY MOUTH PRODUCTS
STOPPERS 4
CO BIGELOW LIP BALM moisturizes lips and keeps mouth moister
TOOTHETTE ORAL MOUTH MOISTURIZER. Nurses in radiology oncology gave me packs with this in it. Also contained a rinse and sponges on a stick to brush with when a toothbrush was too painful.
To PEG or NOT to PEG that is the question:
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PEG TUBE NEED TIPS
GETTING OFF THE PEG TUBE
SKIN CARE AROUND THE PEG TUBE
THOUGHTS ON GLUTAMINE, AMIFOSTINE, AND PEG
ASK THE EXPERTS. SHOULD MY HUSBAND GET A PEG TUBE?
GUIDANCE DOCUMENT FOR PROPHYLACTIC GASTRO FEEDING TUBES FOR HNC PATIENTS
EXPLAINATION OF PEG TUBE PLACEMENT. EXACTLY HOW PROCEEDURE IS DONE
MALNUTRITION PLAYS A KEY ROLL IN MORBIDITY FOR HNC PATIENTS
SIDE EFFECTS FROM HNC CHEMOTHERAPY AND RADIATION. Malnutrition and nutrition.
NUTRITION / HEALTHY EATING / LIQUID NUTRITION TIPS:
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EASY TO SWALLOW RECIPES
TRACKING CALORIES AND NUTRIENTS WITH MY PYRAMID TRACKER
CONTAINS ADVENTURE BOB's TUBE FOOD RECIPE
LUCY's REAL FOOD. How to make real food for tube feeding instead of using canned
LIVESTRONG nutritional guidelines for HNC
Livestrong has become a great resource for great articles on nutrition and healthy lifestyle.
BEST WEIGHT GAINING DRINKS
These are good tips and recipes if you can only manage liquids.
THE 30 HEALTHIEST FOODS
HEALTH BENEFITS OF VEGETABLE JUICE
JUICER RECIPES
JUICER REVIEWS
DR OZ GREEN SMOOTHIE
SMOOTHIES
EASY TO SWALLOW COOKBOOK
HOW TO ADD WHOLE GRAINS TO YOUR DIET
EASY SLOW COOKER VEGETARIAN DISHES
WHITE WHOLE WHEAT
BENEFITS OF FLAXSEED
CANCER FIGHTING FOODS
ADVANTAGES OF EATING ORGANIC FOODS
JAMIE OLIVER VEGETARIAN RECIPES
HOW TO EAT HEALTHY ON A LOW BUDGET
An article on ask dr sears . com called THE ANTI CANCER DIET
WHAT SHOULD YOU EAT? A BETTER FOOD PYRAMID
VITAMIX Emulsifier Blender. It is my understanding they will give a discount for cancer patients.
HEALTHMASTER EMULSIFIER
WHAT IF I CANNOT WORK?:
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DISABILITY GUIDE
HNC COMPASSIONATE ALLOWANCE
DISABILITY AND WORKING GETTING PAID?
SOCIAL SECURITY DISABILITY
CANCER AND THE WORK PLACE:
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Questions and Answers About Cancer in the Workplace and the Americans with Disabilities Act (ADA)
Enforcement Guidance:
Reasonable Accommodation and Undue Hardship Under the Americans with Disabilities Act
INSURANCE ISSUES
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PRE-EXISTING CONDITION INSURANCE PROGRAM
CHEMOTHERAPY:
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CHEMOTHERAPY SIDE EFFECTS SHEET
The above link is from The National Cancer Institute.
This series of chemotherapy side effects sheets has medical advice and practical tips to help you during chemotherapy. Learn about self-care, medical problems to call your doctor about, and questions to ask your doctor.
NUTRITION DURING CHEMO
COOKING FOR A CHEMO PATIENT
NECK DISSECTIONS:
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CLASSIFICATION OF NECK DISSECTIONS
NECK DISSECTION PATIENT INFORMATION
The above answers tons of questions about neck dissections.
ACTUAL PEG TUBE PHOTO:S
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PHOTO OF MIC-Key BUTTON
The above is a great option if you can get it. No long hose attached and lays flat under clothing. Very comfortable.
PHOTO OF A PEG TUBE
MIC-KEY BUTTON LOW PROFILE FEED TUBE Kimberly Clark Site
IMRT RADIATION:
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LESS XEROSTOMA WITH IMRT RADIATION WITH HEAD AND NECK CANCER
OVER VIEW OF IMRT RADIATION
THE ROLE OF IMRT IN HEAD AND NECK CANCER (PDF)
CYBERKNIFE INFORMATION
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CYBERKNIFE DOCUMENT. CyberKnife offers alternative in head and neck cancer.
CYBERKNIFE. What we treat.
CYBERKNIFE FAQ
Da VINCI SURGERY:
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DaVINCI SURGERY HEAD AND NECK
HPV AND HEAD AND NECK CANCER:
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HPV INFORMATION
VACCINATING BOYS WITH GARDASIL
A PDF of HPV AND HEAD AND NECK CANCER
INFORMATION ABOUT GARDASIL
BEST US HOSPITALS:
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US NEWS BEST HOSPITAL RANKINGS
TUMOR STAGING:
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EXPLANATION OF HNC TUMOR STAGING pdf (long)
THREAD ON TUMOR STAGING
HNC TUMOR STAGING smaller article
DENTAL ISSUES AFTER RADIATION FOR HNC:
-----------------------------------------
Osteoradionecrosis of the Mandible
Talks about ORN and whether HBOT work when having to extract teeth after radiation. Some pictures, you may not want to see if you are squeamish.
IMPORTANCE OF A DENTAL APPROACH IN HNC THERAPY
RADIATION THERAPY AND ORAL CARE
Tooth removed today POST radiation
CONTRIBUTIONS FROM OTHER CSN MEMBERS:
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HEAD AND NECK CANCER KIT. adventurebob's thread on the kit that every HNC patient could use.
Where in the World Are You
Map of CSN members made by John G
A LIST OF QUESTIONS THAT YOU CAN TAKE TO YOUR DOCTOR BY DADDISGIRL
Dennis K7BV Cancer: Uncensored.
This is a member's personal blog about his base of tongue throat cancer journey. (I've not read it yet.)
SCIENCE BASED MEDICINE
Contributed by Hal61
SCAMBUSTER's ALTERNATIVE CANCER TREATMENT WEBSITE
LIST OF ACID AND ALKALINE FORMING FOODS. Link provided by Scambuster
WIFEFORLIFE's HUSBAND RECOMMENDS THIS JUICE+ SUPPLEMENT
WEBSITE FULL OF HELPFUL LINKS FOR HNC:
-------------------------------------------
A WEBSITE OF A LIST OF "THE BEST HEAD AND NECK CANCER WEBSITES"
HOW TO SEND A PRIVATE MESSAGE
----------------------------------------------------------------
To do a private message, just look at the upper left hand corner of this page. Under the first burgundy colored tab labeled CSN, the sixth item down says CSN EMAIL. click on that. Then on the bottom click on WRITE A NEW MESSAGE. From there you must fill in the person's screen name exactly as it appears. If you have added them as a friend, you can use the MY FRIENDS button to scroll through and select the person. You must enter in a subject, and then you can just type your message and hit SEND PRIVATE MESSAGE.
GLOSSARY OF SOME TERMS
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Definitions of commonly used abbreviations and terms.
We all use abbreviations here and new-comers sometimes have a hard time understanding them.
SCC - Squamous Cell Carcinoma
Dx - Diagnosis
Rx - Prescription
Tx - Therapy? Treatment?
BOT - Base of tongue
PEG - Percutaneous Endoscopic Gastrostomy aka feeding tube
HPV - Human papillomavirus
rad - radiation
ENT - Ear, nose, throat Doctor aka Otolaryngologist
Glossectomy - Removal of tongue
Metastasis - (mets) Spreading of the cancer
XRT - Conventional external beam radiation therapy aka EBT
IMRT - Intensity modulated radiation therapy
PET - Positron emission tomography scan
CT/CAT - Co-axial tomography scan
EBT - External beam radiation therapy aka XRT
OCF - Oral Cancer Foundation
NED- No Evidence of Disease
HBO - Hyper-baric oxygen Patient given oxygen under pressure prior to dental surgery.
Stage - Development of the cancer
TNM - System for describing the cancer (tumor, nodes, mets)
Margins - Refers to the margins of biopsied tissue; clean margins indicate that all the visible cancerous cells were removed.
Biopsy - Removal of sample or whole of suspect tissue
Xerostomia - Dry mouth resulting from reduced or absent saliva flow
RO - Radiological oncologist
MO - Medical oncologist
DO - Dental oncologist
Tumor Board- team of doctors that meet to discuss your treatment. Some hospitals have these teams. Made up with ENT, Radiologist Oncologist, Hemotologist Oncologist, Dentist, gastroenterologist, nutritionist...
(for search purposes: Superthread Superthread Superthread Superthread Superthread Superthread Superthread Superthread Superthread Superthread Superthread Superthread )
**THIS THREAD IS UPDATED AT LEAST EVERY SUNDAY. I WILL ALWAYS KEEP IT ON THE FIRST PAGE. THANK YOU FOR NOT POSTING TO IT**
Comments
-
Link to Dr questions
Link to Dr questions
The link to Dr questions is wrong. Don't know how to send you a PM. I can come back & delete this.
Is it possible to add this in your 1st section so that it's easily found? I looked for the link twice to give on other message boards; 3rd time I finally found it.0 -
DaddyisgirlDaddisgrl said:Link to Dr questions
Link to Dr questions
The link to Dr questions is wrong. Don't know how to send you a PM. I can come back & delete this.
Is it possible to add this in your 1st section so that it's easily found? I looked for the link twice to give on other message boards; 3rd time I finally found it.
Not sure why you think the link is wrong, my link to your thread works for me. I guess I can move it to the first section the next time I do updates since I JUST updated this thread yesterday. I would also make a suggestion that you can book mark your own post, or copy and paste your post and make a blog post of your own with your own questions, this way you will never have trouble finding it.
The instructions to send a PM are above in the superthread.
******Since I now have to repost this thread anyway, because it was posted to, I just want to ask everyone again NOT TO POST TO THIS THREAD. If there are no posts to it, I can easily bump it by posting to it and editing my own post. If you post to it, I cannot do that. This thread takes me A LOT of time to maintain and honestly, I am thinking about not doing it anymore. I'm not getting pissy, it's just a lot of maintenance and when some one posts to it, it creates even more work for me. Or I can just let everyone post to it and not care. But then when it gets full of extraneous commentary and a lot of posts, it will not load the thread for me to do maintenance to it. (once there are 20 or so posts to a thread it times out before the whole thing loads) I am working on a tiny iPhone with bad service. I don't think you guys realize how time consuming this can be for me. Sorry if you think I'm being a pain I'm just trying to explain. If you think the Superthread is a worthwhile thing to keep around, I will maintain it. But I need your help and cooperation by not posting to it. If you don't think it is worthwhile, I will let it sink.0 -
xxsweetblood22 said:Daddyisgirl
Not sure why you think the link is wrong, my link to your thread works for me. I guess I can move it to the first section the next time I do updates since I JUST updated this thread yesterday. I would also make a suggestion that you can book mark your own post, or copy and paste your post and make a blog post of your own with your own questions, this way you will never have trouble finding it.
The instructions to send a PM are above in the superthread.
******Since I now have to repost this thread anyway, because it was posted to, I just want to ask everyone again NOT TO POST TO THIS THREAD. If there are no posts to it, I can easily bump it by posting to it and editing my own post. If you post to it, I cannot do that. This thread takes me A LOT of time to maintain and honestly, I am thinking about not doing it anymore. I'm not getting pissy, it's just a lot of maintenance and when some one posts to it, it creates even more work for me. Or I can just let everyone post to it and not care. But then when it gets full of extraneous commentary and a lot of posts, it will not load the thread for me to do maintenance to it. (once there are 20 or so posts to a thread it times out before the whole thing loads) I am working on a tiny iPhone with bad service. I don't think you guys realize how time consuming this can be for me. Sorry if you think I'm being a pain I'm just trying to explain. If you think the Superthread is a worthwhile thing to keep around, I will maintain it. But I need your help and cooperation by not posting to it. If you don't think it is worthwhile, I will let it sink.
xx0
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