We met with the radiation oncologist today.
A few things that she mentioned I would like to pass by here and get your thoughts on.
Sloan will not prescribe Amifostine any more. They say that the side affects and possible negative interaction with the treatment outweigh the benefits of small percentage of protecting the salivary glands.
She said that she predicts he will have about 30% permanent loss of salivary glands but will know more after tomorrow's CT scan to know where they are going to target the rad. (mostly left tonsil area). I thought that was a reasonable percentage not to use the Amifostine. Also she said that there can be things, like accupuncture that he can do after treatment to help in saliva production.
No LGlutamine and other anti-oxidants:
Joe should not take LGlutamine because it could negatively impact the treatment since it is an anti-oxident. (Something about free radicals from the radiation being impacted by the LGlutamine)
She will probably give Guaifenesin for phlegm instead.
She mentioned we may use some of the other stuff for phelgm and mout sores that was mentioned on this board (eg Biotene and Salagen).
Should I keep pushing her on the Glutamine?
No feeding tube yet:
She does not recommend getting a feeding tube yet. She feels it's more important to try to keep swallowing to get nutrition. She did say that the medical oncologist will advise us differently and that we can make a tentative appointment to get the tube later in the treatment if indeed Joe gets malnourished.
From this board it sounded like getting the tube in was better, so it doesn't get to the point where Joe is malnourished or dehydrated.
Thanks for your thoughts on this and advice.