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Social Security Disability

beaver1
Posts: 7
Joined: Apr 2010

Second bout with Malgnant Melanoma on my right neck. Diagnosis fortunatly is good. After surgery anyhow and now heading for some Radiation Treatments. That required some teethe removal for the radiation treatmennts. And with the disection of quite a few of the tendons in my shoulder it now droops a bit.

Have applied for social security about disability. It is quite a process and wondering if anyone might have some insight to the process.

Thank you

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Hey Beaver. I finally applied for Social Security Disability and got it last month. I have been out of work since January 7th? of 2009. If you have already applied, that's good. I had a company that did it for me, because I was on disability from my work thru Unum.

After I filled out paperwork and they applied for me, a SSD employee called me to interview me over the phone. Took about an hour or so. The SSD employee told me that they do usually put cancer claims ahead of the pack. It only took a couple of weeks and I was approved.

I can tell you that if for some reason you get turned down, you can appeal. This happened to my step mom and then she got a lawyer to go to bat for her, and then she was approved. Apparently it is not uncommon to get turned down the first time.

Then when you are approved, you may be entitled to back pay. I was. Unfortaunately that big check had to go to Unum since they paid me disability for the last 11 months.

Also after 2 years I think, if you are still on disability you can then be entitled to medicaid. But be prepared that if you are on COBRA for your health insurance, that your premium will go up like 350% !!!!!!!!!!!! Mine will be going from $415 a month to $615 per months. Thank you goverment. Don't even get me started. That is half my income for the month.

best of luck to you.

beaver1
Posts: 7
Joined: Apr 2010

I had a Malinoma in Nov of 2008 removed and went back to work. All was supposedly taken care of. On Feb 23rd i had a biopsy on a node that had swollen which came back a Metestatic Malignant Malinoma.

So with that I made appointment with Social Security and filed for SSD. From all i have heard it will take five months to get and answer if accepted or denied. As you mentioned typically you get turned down the first time. There is a list of 50 Compassionate Allowances that SS has and i beleive i qualify under one of them for head neck cancers.

Unfortunaly the waiting and not knowing can drive one Krazy. I am prepared to get an attorney and go for it and will. I applied for my regular social security sense i was turning of age this year. The down side of that is i was going to work till i was 65 so i could get the higher amount. I have a union pension but did not want to take it for another three years either.

Plans change suddenly. I could just return to work in a couple of months but with this diagnosis i dont feel they know if im truly cured or not this time. It could pop up at any time again. They claim the got it all but they want to do Radiation and follow up with some chemo stuff. I asked why i would need radiation if they got it all. they pulled the weed they said and this is like putting weed killer on it. Well i dont think they realy know that for sure.

So with all that said. Sheesh

One has enough to battle it is just unfortunate that SSD becomes such a stresful event.

Take Care and i hope all is going well for you
Thank you for the information

MarineE5
Posts: 744
Joined: Dec 2005

Hi beaver1,

Hopefully, you will be approved and not have a headache dealing with this along with dealing with cancer. If you are denied, you then can find a Social Security Lawyer that deals only with Social Security. When you find one, they can only charge you the max. of 6 months benefits for their service. This gets paid by Social Security directly to the lawyer from your settlement first. The balance then is sent to you and then you receive your monthly payment.

As sweetblood22 mentioned, after a 2 year wait,from the date you first applied, you will be put on Medicare, as if you were 65. I hope everything goes smoothly for you.

My Best to You and Everyone Here

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

Hi Beaver,

off topic a touch but I have been taking MCP (Modified Citrus Pectin) as it has shown in some studies to have some effect on preventing mets (with melanoma). You may want to google it and check it out -there are dozens of sites & report on it.

It comes in a powder form. I couldn't take it for a few months after my Rads and Chemo (SCC of left Tonsil) as it burned like hell. It's fine now and I take 1-2 teaspoon a day in my morning shake.

Your doctors may scoff at the idea but if it doesn't interfere with your treatment, might be worth considering. My view is to hit it with all barrels.

All the best
Scambuster

pattyanny's picture
pattyanny
Posts: 523
Joined: Jul 2009

I am curious myself, if I should apply for SSI disability, as I had been on unemployment, but that has run out. Things are getting a bit tight around here, with two teens to feed, and a mountain of medical bills.I am wondering whether to check into these benefits, but feel a bit guilty after being on unemployment. Hate being on the "dole".
My "loving and compassionate" hubby told me to "Get a job, your 6 month Pet was clean, so what's the problem?" (??????)I just asked he if he was out of his mind?!!! But I digress.
I had a sonogram today, have a CT on Monday, an MD appt on Friday, ENT etc etc, as we all know, and that is just this month. In my spare time, I try to fit in 3000 -4000 calories.
Hope to also get the port out next month, if all is well with CT and tests. I am sure a prospective employer would surely understand a few days off! (NOT!!!!) I have to laugh!

Any thoughts? Maybe I have lost MY mind! Hee Hee!
Thanks for all your informative, and amusing posts, but most of all being my sounding board. Love and Healing Prayers to all! Patty

backachedp
Posts: 124
Joined: Oct 2009

My Husband was Diagnosed with Tognue and Jaw and Pallet Cancer Stage 4 Sept 29 2009 I went to the S.Sec Office right away and because of his Dx he was approved right away. He has not received a check yet we were told his first one would be April, it did not come I called they now said May third Wednesday..we will see....I am sure he will get it, but we were hoping it would come last month...most Cancer Patients I have heard get approved right away depending on stage and Dx. One thing that bothered me was the woman I spoke to there said you better hope he lives till you turn 50...I said what? She said if he passed away before I am 50 I would not be entitled to his Benefits until I am 50. I have been diabled since 2002 and could never live off my income, but he will get better. He will be having Surgery May 17th on his Tognue and 2 nodules in his Chest. He and I cannot believe it bought a bottle of Listerine and he has been loosing pieces of his tognue it looks like tobacco in the sink..shower...he will not make that mistake again. He tried to tell me it was from his teeth. He also said it hurt so bad...he has all the mouth stuff for dry mouth etc...why on earth would he do that? I hope he learned a lesson. This has been such a struggle for both of us. Most of all him, but it is taking a toll on everyone in our family. Better Days ahead...

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Sorry about your hubby. I read on the other thread that they took his peg out despite continued weight loss, and stuff.

I actually have not recieved my check yet either. I think it will come the 4th wednesday of the month. They said it goes by the first letter of your last name, so I read that is when the 'S' names go out.

I could never live alone on my income either. Thank God my parents are allowing me to live in the place that they purchased for my grandparents. I am stuffed in a tiny room, and living with my 84 year old grandmother. It's maddening, but what am I going to do? It is hard to be 42 and have no privacy. Also my gram is getting extremely senile, so it is challenging to say the least. This was supposed to be a temporary situation after my divorce, but then the house I put a deposit on fell thru, and a month later started my battle with cancer. I am glad that my parents let me come back home. The night I left I had no clue where I was going to go, but I knew I was not going to stay with my cheating ex.

Just the thought of Listerene in my mouth makes me literaly physically ill thinking about how much pain my mouth would be in if I put that in my mouth. Ack. Forgive me but do you think your husband is in a bit of a self destruct mode? You said he is not even trying to maintain weight or gain, and taking that PEG out, I would be nervous. As much as I hate mine I know I cannot take mine out yet. I still need to gain more weight, and if I try to just get enough calories by mouth, and skip my nightly feeding with the pump, I will lose at least a pound to two pounds in 24 hrs. I always have my dad or my step mom with me at every appt I go to. I am suprised he won't let you come. I must be too pushy, because if that were my husband, I would be going with him, and I would be rating him out to his doctors. But that's just me. I don't think you are wrong in thinking something is amiss. Maybe he is battling depression? I would be having some serious chats with him. Hope I have not overstepped my bounds with my post. Apologies if I have. I tend to be a very direct person. Good luck with his up coming surgery. Best of luck to you both.

backachedp
Posts: 124
Joined: Oct 2009

I was ratting him out in the begginning that's why he won't let me go he was in so much pain and looked like Death and said his pain was at a 2 I said NO IT'S at LEAST 8 or 9..he got very upset and the Dr's said don't get mad at her get mad at us...we have been having issues with his Mother who is in a Home now she was put there the day he was dx'ed we took her..she had tried to OD...we have been going to court to try and help her as his siblings have been doing things to thier Mom that we totally disagree with..our Son's Fiance's Mother is dying slowy from a disease called Cortobasal it is a horrible disease..we have enough stress on our plates and my husband was so upbeat and fighting to gain weight before and it's almost like he's giving up..I really don't know if its all the family stuff or he is just fed up with having Cancer and his upcomming Surgery, but tehy WILL be hearing from me! For him to even have soup liquid nothing with meat or potatatoes...he has to take his Oxycontin...oh yea they did wrong, but I also fault him for not being truthful...I don't care if he hated it...it was keeping him looking healthy..now his 30 inch waiste pant's are falling off of him:( I is just NOT RIGHT....they should have seen that he is loosing weight..that is thier fault. They did rx a antidpressant but he will not take it..just like in the beggining he was not taking enough pain meds now I think he is taking too much...your life does not sound likemuch fun eighter...I hope u can get a place of your own soon..it is hard to live with someone who has Dimentica..we had his Mom for 4 day's and it was very very hard...and yes the Listerine I do NOT know What the heck he was thinking...he has been suffering since and has plenty of the other mouth rinses he is supossed to take...Men...I will keep u posted on what they tell me when I call he has 3 appt's this week...they will see that he is probably down to 115 by now...:((

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

I am glad that they will be hearing from you. You need to go to bat for your hubby when he can't. I suffered for years with SEVERE depression and anxiety, even before I was diagnosed with my FA and HNC. (I can remember being severely sick and very anxious even as a young lady in grammar school. I had every single symptom of generalized anxiety disorder, and my clinical depression was extreme. it came to a nightmare explosion for me in 2005. I had a pretty bad snap, and a breakdown) My mother is bi-polar, and I have a lot of depression on the "sweetblood" (dad's) side of the family. Part of the joy when you suffer from a problem like this is sometimes you don't take your meds. I know better, and you think I would. But no, I can be stupid and stubborn sometimes. I had stopped for a while, and I realized that they ARE needed in my case. I am begining to feel balanced again. Back on my meds.

I wish there was a way your hubby would listen to the doctors and take what they perscribed. It literally changed and saved my life in 2006. Best of luck my dear. praying for you both.

backachedp
Posts: 124
Joined: Oct 2009

Thank you for your support. Todays delema is we were told we have no Insurance. He was Terminated from his STD and is going on LTD they just sent our the papers on May 6...the premium is very HIGH and we have no proof of Insurance I do not understand any of this. I am on several Narcotic Meds and they have to be paid out of pocket until they get the paperwork back and Premium....none of this makes scence to me..I have been disabled for 10 years and had no benefits so..I know nothing and today we find out our Ins thru his Company is over he is no longer concidered an employee...OMG what next? Do we cancel the Surgery? I cannot take all this MESS..I have had quite enough. Bob has too he siad I guess I better get back to work..he cannot work he is way too sick still sleeps all the time and can't eat....what to do what to do...

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

No insurance? I have been there in the past and it is a scary thing. Even with the insurance i am still fighting with the hospital about my bills, so I understand. Were you on COBRA? I know they said my payments which are $415 a month, will be going to like $620 a month. But they never said anything about dropping me. I don't think they can. I am not sure how they can drop you? I know with my insurance, I have a case manager. I did not want to do it, but they actually forced me to. If I did not take a case manager they would not authorize my liquid nutrition, whihc at the time, was the only thing I was surviving on. Do you have a case manager or advocate there that you could call.

"I am on several Narcotic Meds and they have to be paid out of pocket until they get the paperwork back and Premium"

so does that mean you will have insurance again once you pay? Like maybe getting on COBRA? If that is the case, then you can resubmit your perscriptions once they reinstate your insurance, and it should go back to the date that the regular health insurance was cancelled. You should actually really have no gap in your coverage. At least that is how it worked for me.

Also, since you are disabled, you should be eligable for medicaid? And since you are both not working, I would talk to the billing dept or finance dept of the hospital, or contact patient advocacy about seeing if you can fill out and apply for financial help. you may not have to pay, or may get help, or may pay less depending on your income. it is worth a shot anyway, good luck.

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

I would not cancell surgery. Especially if you are going on COBRA. They will just have you sign a financial liability paper before treatment if you have no insurance. If you are getting COBRA, that will kick in, and you will be covered because it will kick in the last date of the original coverage.

backachedp
Posts: 124
Joined: Oct 2009

Have you gotten a SSD Check yet? we talked about it a month or so ago and I was wondering..Bob got his on the 3rd Wedsnesday of this month....hope u got it..

debbiejeanne's picture
debbiejeanne
Posts: 2233
Joined: Jan 2010

I also get my check on the 3rd wenesday of the month.
Debbie

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Not yet. I believe I am the fourth wednesday of the month. I am hoping I get it because I a
broke right now. Lol.

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Not yet. I believe I am the fourth wednesday of the month. I am hoping I get it because I a
broke right now. Lol.

finz2lft
Posts: 43
Joined: Jun 2010

I was just diagnosed with Squmous Cell cancer of Lymph node with Occult primary tumor. I am a substitute teacher and make about 900 per month gross. School is out know for the summer. What should I do? My treatment will run about 2 months, and then see where we are. Treatments could last longer, I just dont know as of know. should I go ahead and apply for SS Disability. Does anyone know if I qualify or not. I am still in shock and do not know how or where to proceed from here. I have been told so many different things by so many people. Can anybody tell me what to do,or give me some type of rundown as to what I should do. I live in N Carolina and the local hospital said I qualify for Medicade afte accumulating $4,000 in bills. I have no insurance, and just do not know what to do Thank you to every one. Finz

D Lewis's picture
D Lewis
Posts: 1518
Joined: Jan 2010

This is buried in someone else's thread. Start a new thread so people can see your question.

Deb

PattyNC's picture
PattyNC
Posts: 65
Joined: Oct 2006

finz2lft: I see you are also in NC. I am in the midst of helping my brother (who is 53) apply for SSD. He also had squamous cell cancer of lymph node with occult primary tumor. He had radical neck in 2006 ...had a clean PET approx mid 2009. Just recently lost his job and has relocated from Sav GA now living with us. He is afraid to answer his telephone trying to avoid bill collectors. He has no income and no way to pay. He needs to see a doctor here but I am having trouble finding indigent care for cancer patients. I have a few calls in to clinics and hope they phone me back soon. Did you ever file for SSD or will you be filing? It is intimidating to say the least so I'm looking for support from those who have walked that prickly path.

Hope you are progressing well with your treatments.

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

I am mostly over feeling guilty about applying. My idiot ex was mad at me for contributing to a 401k, buying McDonald's stock since I worked there, and for purchasing disability insurance that I paid for out of my check every week. Thank GOD I did these things. As far as being on the 'dole'. You paid into disability every time they took taxes out of your check.

I have had a couple of people say that they think I should be able to work. NOT. I am really trying to gain the weight back, but I am still struggling. Plus the pain, fatigue, limited neck mobility, weakness in left arm, peg tube still in and not being able to eat and swallow actual food......please. I keep trying every day to move forward. I hope one day I will be able to go back to work. I really was a work-a-holic and loved managing people. I loved my shoe store, but as I was getting older the extreme long hours was getting to me. I think with the fanconis anemia and now after the battle with cancer, I also just cannot seem to shake this horrible fatigue.

Keep us posted with the scan. You know what your body is capable of doing. I would apply and don't feel guilty. I could see if we were lying, or scaming the system, or stealing, but certainly we are legit, and qualify. The great 98% of the people who know me, know what my work ethic was like, and how I worked like a madwoman for almost 25 years despite my FA. So they know if I say I cannot work, they know I mean it. The other two percent are weanies.

pattyanny's picture
pattyanny
Posts: 523
Joined: Jul 2009

Yes, you are right, I have worked for 35 years and that is what it is there for. I guess I just hate the idea of coming to the realization that I truly cannot work. I have been pretty independent all my life. It is a good thing you took care of your investments (401k & stock), I have my Dad's small inheritance I invested in a private a/c, after taking care of some family expenses. My hubby is still angered at me for that.
I understand about, if there was a possibility of working, you would. I feel the same way.
I had an offer for 3 days a week job, but had a bad feeling about it. I need to be available for my 15 yr old daughter and my Mom at the N.H. If I don't show up every day or so, they will kill her. I am also very fatigued, and am up in bed at 6pm.
I am so sorry about your issues with eating, fatigue, and swallowing etc. You are one tough cookie, and will get thru this too!
Your living conditions are less then ideal, but at least you had somewhere to go, like you said. And also the support is very important.
I know because I do not need the stress either. I do not eat when I am stressed.
Hey Sweet - wouldn't it be great if we could be roommates? Now that would be great! We could open a house for people like us, with just our pets, big backyard, and lots of nutritious drinks to eat. No stress - just healing! Hey, this may be an idea - a Healing Home. :)
Stay strong sweet, you are always in my prayers! Love, Patty

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

you would take one look at my room and want me out. :-D It looks like a bomb went off in here. In my defense it really does not help that I have all my stuff crammed into one room. I even had to get a tiny fridge for my room. My gram was eating my ice cream when I was at the point when that was all i could eat. Vanilla shakes. I was down to 88lbs, and I could not keep the formula down. The shakes were it. I was lucky if I could get a couple of those down in a day. A couple of times I went to the freezer and she had eaten all of my ice cream! I had nothing to eat. We are in an extremely rural area. The closest little store is 10 -12 miles away, and closes early. I was so mad, (i even write a nice little note that says it is mine, please don't eat it, and she does anyway) I let her have it with both guns. She swore she forgot. I knew she was lying. Then when she went up to dinner at my parents my step mom said she was laughing at the dinner table, saying that I was yelling at her and was mad that she ate my ice cream. Big joke, when I am 88lbs. I know she is old and I should be patient, but when you are miserable, half starved and can barely get out of bed to pee, well patience is in short supply. So, my friend got me a mini fridge for my birthday gift. I love it, and it saved me from doing the tarantella on my grandmother's head. I am like you, i cannot eat when stressed, never could. All of my friends are the opposite. They are stress eaters. They are always offering to share their extra pounds with me. Would that I could.

You hang in there too. I think it's amazing you are getting down 3000-4000 cals a day. That is so impressive!

pattyanny's picture
pattyanny
Posts: 523
Joined: Jul 2009

Hey, you would be a welcome change from living with my hubby Felix Unger! (You are probably too young to remember the Odd Couple!) I laughed at Gram eating your ice cream, because that's what happens here. He even tried to eat my fiber bars, but said "he could not bite it and threw it away." Thanks! ($5.49 a box) Everytime I go to get something I KNOW was in the fridge an hour ago, it has disappeared! It's like a magicians' box! Arghhh! I know how you feel! It was a great that your friend got you your own fridge.
One thing I will never understand is the lack of understanding and compassion, especially seeing you at 88 lbs! I am picturing you doing the tarantella on the old lady's head! Lmao!
As I said, I am TRYING to get those calories in, but not always successful. The VHC drinks are 560 each, so I make up with them. I try to have those creamy found the "Soupman" -like on the sitcom Seinfeld, and they make delicious high calorie creamy soups! It is difficult to find high calorie food, with all this "obesity crap" going on here in NYC.
I hope you are bulking up sweet, and I admire your strength... you keep me going!
Keep eating, and know you are in my thoughts and prayers. Love, Patty (Almost Fatty) :)

rozaroo
Posts: 667
Joined: Apr 2010

After reading your posts on food & not knowing wether to laugh or cry! I hope someone can answer this question. I never get hunger pain's & I am wondering if this is normal. I am on the peg in the morning but trying to replace afternoon & evening feeding with shakes or ensure. I really want rid of this tube but I never feel hungry. I am trying to make sure I
don't loose an weight etc.My Dr said if I eat for a month steady he will take the tube out.
It is so difficult when the only thing that tastes ok is the sweet shakes or ensure. I miss
real healthy food but my taste bud's are not back yet. I am two month's post treatment.
Thank you
Roz

CajunEagle
Posts: 353
Joined: Oct 2009

Yea, I think it is fairly normal to not have hunger pangs (or is it pains?) when using the tube. I know I really never thought about having the desire to put more liquid nourishment down the peg tube, I just followed the hourly schedule that my wife had set up for me. I used 4 8oz. containers of Boost Plus and 5 cans of Two-Cal (480 calories per can) a day during the four months that I was strictly on the tube. Roz....It took me six months after treatment to ween myself of the tube, being that i went through 3 months of therapy to re-learn how to swallow. Once I got the knack of eating solids and drinking teas and water, it took me another month and a half to stabilize my weight.....then two more weeks to get the tube removed. I realize that the tube is a real pain in the behind, and is a mess to put up with, but.....JUST TAKE YOUR TIME. It really won't be long before you will start on salads and sauted veggies. Took me an hour to eat this huge Ruebin sandwich today....but gaaaa-lee that was good. It's gonna take awhile, but you're gonna learn to adapt to a very different lifestyle and types of foods. I seem to put olive oil on so many things that I eat now that I would never touch before. Everyday is a new challenge and I have a great time looking forward to it.

Larry

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

i would like to say my room does not look like oscar's. i would like to, but i would probably be lying. you have to move here tho....i don't wanna go back to NYC. it is so quiet and private, green and beautiful, and no people around here. i like it that way now.

debbiejeanne's picture
debbiejeanne
Posts: 2233
Joined: Jan 2010

when you open that home, put me at the top of the list who want to join...lol. Sounds like it would be a sampling of what Heaven is.
Take care all and God Bless,
debbie

beaver1
Posts: 7
Joined: Apr 2010

By all means you shoud apply. Here is a website that might help. Do not feel like you are on the dole.

Go for it. You Deserve it and owe it to yourself ! ! !

http://www.socialsecurity.gov/compassionateallowances/

https://secure.ssa.gov/apps10/poms.nsf/lnx/0423022190

https://secure.ssa.gov/apps10/poms.nsf/lnx/0423022015

When i was diagnosed with a node on my neck this time around i went to the social secutity office right away. Fortunatly i was accepted within two months. It was truly a blessing and will start receiving payments the middle of June. Just knowing that i have the extra funds coming in has releived the stress and tensions from wondering how i was going to handle things financially. Head and neck cancer is one of the compassionate allowances. When one has a compassionate allowence it takes their application and moves it to the front of the line speeding up the process.

I have other sites from the social security web site if needed.

I am new here and have not ben on for a few days. Hopefully i will get to know a few people here over time and undoubtebly pick up some good ideas and advice.

Tomorrow i go for third radiation third radiation treatment and two to follow.

Take care and God Bless.

stonepepper
Posts: 2
Joined: May 2010

thanks to all of you. my husband just got Dx a month ago, & we are still in that foggy phase. It does look bleak with out insurance, but I feel better having read all your notes. we also applied right away, for SSD, the Doctors told us to. i was afraid it could take up to 9 months to find out. but it sounds we should know real soon now.

MarineE5
Posts: 744
Joined: Dec 2005

Beaver1,

Thank you for posting that information about the Compassionate Allowances. That is good information for the future Head and Neck cancer patients.

When I was going thru this nearly 6 years ago, Social Security denied me my claim as the Doctor's said I would be back to work within 6-8 months. At the time, we had to out of work for longer then one year to be concidered. I see that Social Security started this newer program in 2008.

Again, thank you for posting this most helpful information for future patients. I have bookmarked it for future use for others.

My Best to You and Everyone Here

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

I have had a rough week, and my antidepresents didn't work and i crashed, so, I am still taking the hyperberic treatments, i amd working with the hospital and there dissapibilty paper work from the doctor, i can't seem to get them to lick the stamps and get the dam thing in the mailbox...all i hear it's done and in the mail...WHERE?, so no SSI yet, I go see my Doctor (Cancer) to see what he feels I can take this trach out, his assistant is an airhead, still wants to know why I'm taking hydros for pain, because i enjoy a hole in my throat...DUH, and the rubbing against my sore neck feels good. I am so glad there's people here that will put up with me, I am so sorry, but June 2nd, marks for my first years of this trip starting with cancer, they say I have turned around and teh air is opening, cancer is gone, I eat like a horse and no weight gain, weak, attitude sucks, i am working part time, but the bills are going to catch up, thank god for my wifes insurance, it would have sunk our household, since i pay the bils what i can make. In ending, you girls put a smile on my face, and this site took me away reading other peoples problems.....thank you all for a 5 minute vacation from my troubles....Dennis

finz2lft
Posts: 43
Joined: Jun 2010

Everybody go to the Social Security Disabiliyt-SSD- site, and go to "Compassionate Allowance"--type it in the search box-it is a relatively new process that SSD has to process SS Disability. It fastracks cerain illness' for SS review. You do have to ask them to process it under the Compassionate Allowance-CA-as they will not automatically do it. If your illness is on the list, then they will process the app in as little as 6 days to give you an answer. You do have to do some leg work, but it speeds up the whole SSD process for approval. If you fit into the criterea, that is listed on the site, then you are suppossed to be automatically approved for SS. I do fit in, and have my meeting next week. They tell you what qualifies you, and what documents you need. It is suppossed to greatly reduce the amount of paperwork and Pyscian exams needed to qualify for SSD. I will keep all posted, but my Social Worker, whom is an angel, told me about it. So, this is a viable and working program. You just have to SPECIFICALLY ask for the program! God Bless you all

JUDYV5's picture
JUDYV5
Posts: 392
Joined: Jun 2010

I applied on line (by myself) and was approved for social security disabilty the first time I applied in 5 weeks. I never actually received a check (I was able to go back to work - so I cancelled it). When they called for the interview - I couldn't talk (to painful) and my husband told her so. When I sent in the orginal paperwork they requested
(to verify income) I also sent in a copy of my orginal pathology report, maybe that helped.
The only reason I applied in the first place was that I was receiving disabilty from my job and they requested that I did.

PattyNC's picture
PattyNC
Posts: 65
Joined: Oct 2006

I found the compassionate allowance (I think) -- & verbatim it says:

#22) Head and Neck Cancers - with distant metastasis or inoperable or unresectable.

Since my brother hasn't been to a doctor since Oct 2009 & his PET was clean then, without a current PET or MRI I believe we will get denied. So I have to get him re-evaluated somehow but other than dropping him at the emergency room, I am not having success with the clinics so far. Besides, # 22 seems so grim ... you have to be almost certified terminal to get SSD or am I misinterpreting? Doesn't seem fair since people get it for back pain, etc. I do agree back pain should qualify ... but you don't DIE usually from back pain. Am I wrong here about interpreting #22? I'm very frustrated since Michael will not be willing to go to the emergency room unless he feels it is a true dire emergency, so I'm suck at this point and if I don't get him to a doctor, the claim will probably be denied. Then to pour salt on my psychic wounds, the Charlotte newspaper yesterday ran a front page article on "health care for the unemployed in Charlotte" and it told glowing stories of people getting free eye glasses and free weight loss counceling and free help with diabetes and free nutrition. It specifically mentioned the grandmother that doesn't speak English and can't answer when they asked her what she had for dinner. The article says "she glances over at her young grandchild who is busy TEXTING & the grandson interprets back to the nurse what she had for dinner." Boy, she can't speak English but she is more adept at working the system than I am!!!! I'm not as smart as I think I am. I called that clinic and they said Michael hadn't lived here six months yet so he was ineligible. Sorry for venting again. This is a very bad time to be unemployed, uninsured and trying to survive cancer. Poverty sucks and cancer sucks --- together they are trying to suck the joy from my universe. But I have only begun to fight. I've got Michael's back and they all better prepare for a battle royal. He will get HELP if I have to kick a** & take names and get written up in the Char Obs myself.

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