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Side affects of Radiation / List up-date

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

Does anyone have the Full list of Radiation Side effects, it seams like every time I go to a doctor about a problem I am told it is Radiation side effects. At what point do they stop blaming it on the treatment and start being doctors again and looking.

Just asking to see if anyone else is having this same problem.

terryscarlett's picture
terryscarlett
Posts: 143
Joined: Aug 2010

No, we get the same answer, takes time, radiation takes time to heal, blah, blah, blah, blahhhh. I get tired of spending good money to hear we don't know, to takes time, you are a mystery case, never seen that, so on and so on. Makes you wonder sometimes what is the point of follow up if you can't get any answers to problems. Hope you are doing well Honda.
Dave had a good day yesterday was able to eat his first real meal in over 5 months now, but today he is back to the tube. His throat fills swollen shut on him again and the dreaded thick mucous... It is very depressing for him and myself at times. You think you have turned a corner only to find you have stepped backwards 3 steps. Time, time, and more time, is all you get. Have a wonderful day! wow.....

BrianKrashpad's picture
BrianKrashpad
Posts: 188
Joined: Jan 2011

It seems the list is endless, dunnit?

I'm sure that the headaches I'm getting are related to the radiation, but my zap doc pooh-pooh'd that as unrelated, even though these headaches are unlike my typical headaches. According to him they are due to stress or something else, but not the radiation.

In the end I guess it doesn't matter what causes them. I'm pretty much staying doped up for the next couple weeks either way.

Good luck and take care.

Be well!

Hal61's picture
Hal61
Posts: 656
Joined: Dec 2009

Hi Hondo, sorry to hear you are still fighting the infection and the doctors. Short-term side effects are well documented. Long term effects actually make a fairly short list.

Harry Quon, MD, MS (CRM), Assistant Professor of Radiation Oncology at the Abramson Cancer Center of the University of Pennsylvania, answered the very question this way:

"The long-term effects of radiation depend on the technique of irradiation, the dose and the location that was irradiated.

Typically, most head and neck squamous cell cancers are locoregionally advanced, requiring treatment of both sides of the neck. In the past, this was accomplished with two large radiation fields on both sides of the neck, matched with a third field coming from the front to treat the lower neck. This resulted in a larger volume of normal tissues being irradiated and accounted for many long-term side effects. It is helpful to summarize the long-term side effects by considering the normal tissues in the head and neck that were included in the treatment field. This is also helpful to understand how newer techniques, such as IMRT, can reduce the side effects of head and neck irradiation.

Among these side effects is injury to the parotid glands (salivary gland) on both sides of the neck, which can lead to xerostomia, or dry mouth. Dry mouth is a concern because it makes swallowing difficult when you can't properly lubricate food. The absence of saliva and change in composition of any remaining saliva increases the risk of dental complications, because saliva helps to kill bacteria on the teeth.

Most patients receive a dose of radiation to the mandible (lower jaw bone), which raises concerns for most dentists that subsequent dental extractions may lead to problems with wound healing over the jaw bone. This is why most dentists want to evaluate patients before they start radiation therapy.

Radiation, particularly when combined with concurrent chemotherapy, can result in edema (swelling) of the tissues in the mouth and throat. This can be further complicated if neck surgery is done after chemoradiation, as surgery further impairs the normal lymphatic fluid drainage of the neck. This persistent edema can make swallowing more difficult.

Lastly, there can be fibrosis (scarring) that can affect various normal functions, depending on where it is located. If it is in the soft tissues of the neck, particularly if surgery is performed, then the range of motion of the neck can be limited, such as when looking over the shoulder while driving. If it is in the back of the tongue and upper voice box, then the ability to move food from the mouth into the throat can be limited, and patients can feel that they can't "get the food back" when swallowing. If the cancer was in the throat area beside the voice box, then patients can often describe food sticking and not passing a point in their throat. Sometimes, a procedure that stretches the throat can help with this, but if the muscle of the swallowing tube has been scarred down, it may not be reversible."

I know you've covered all this ground, and your current problem isn't listed. We all know that doctors are generally a lazy and shiftless breed. I don't know how to get them to think.

best, Hal

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

editorial comment at the end of your post, Hal! And, you know, it is indicative of the C med community. A lot of us have the same side-effects along the road of recovery, but it's not like they forewarn you about much of anything, in spite of the pre-treatment Dental exam. Seems like all they wanna know about concerns symptoms that might tell them where the C has a presence, which is good; however, they really should help us to prepare for the aftermath better. As for me: I count my blessings that most of my side-effects have diminished to the point of not being major issues.

Suggestion: somebody should compile a list of all the common, and not-so common, side-effects we have experienced, post-treatment. L'Hermittes and tooth damage are the only ones active with me right now, but I've experienced the cranial nerve, thyroid chills, dry mouth, canker sores on the tongue sides from exposed bone in my lower-back mouth, etc. There really should be a numbered list for all those nearing the end of treatment to better prepare them, and how best to deal with them. Maybe we can call it Hondo's List, as it's his idea, and a good one.

kcass

CajunEagle's picture
CajunEagle
Posts: 363
Joined: Oct 2009

My one and only huge, MAJOR complaint in this whole ordeal is that I, or my wife, were not informed of the unbelieveable amount of misery that one must go through after all the treatment is "officially" over. And, yea....I know, everybody's different. But.... !!

Larry

kingcole42005's picture
kingcole42005
Posts: 177
Joined: Oct 2010

Wow that is a pretty strong statement about doctors! Though I would agree with you on my last 2 doctors the one I have now is absolutely incredible. I will let you all know if you want an excellent doctor with impeccable training it is Dr. Eisele at UCSF. UCSF is also a CCC(Comprehensive Cancer Center)So your case is not just discussed by one doctor you have up to 20 or 30 at a time discussing and deciding your treatment. He is the only doctor that I've had that I felt I could trust 100%. The last ones misdiagnosed my cancer and I had it for 3 years before it was finally taken care of. I was told I had a blocked salivary gland by 2 Kaiser doctors, they were so wrong.

Hal61's picture
Hal61
Posts: 656
Joined: Dec 2009

No offense to your or anyone's doc Carole. They've saved my life, and I've had some good ones, especially my primary physician who didn't hesitate to send me for biopsy when I showed up with swollen lymph glands. I told her they had been up for almost three weeks and she sent me directly for a biopsy, didn't put me on antibiotics. Saved me time.

best, Hal

ekdennie's picture
ekdennie
Posts: 231
Joined: Aug 2010

as my radiation was a little higher, my palate and sinuses. the side effects I was told to watch out for were: dry mouth, thick mucous, sores on my skin, dry skin, eczema, memory loss, slowed reactions, lack of focus, confusion, apathy, hearing loss, vision changes, dry nose, sores in mouth, throat, or nose, headaches due to radiation and/or infection, hairy tongue (from lack of food), loss of voice, loss of ability to swallow, sore jaw, which could lead to inability to open jaw, new allergic reactions to food and/or environment, chills (from loss of weight), weight loss, weight gain, swelling on face, jaw, or neck, tooth decay from lack of saliva, tender gums (from lack of saliva), fatigue, bursts of energy followed by extreme fatigue, decreased immunity to colds and infection, slower healing in areas of radiation, moist skin (which needs to be seen by dr immediately...where the skin feels wet), blisters, hair loss (possibility permanent), change in sense of taste, change in sense of smell, other tumors, nausea, vomiting and irritability and depression.
I was told that there could be other side effects that were less common.
hope this helps. I may have forgotten a couple...but I think this is most of them!

fisrpotpe's picture
fisrpotpe
Posts: 1344
Joined: Aug 2010

I do not and I am not sure anyone is keeping track over the years and everyone reacts differently is some ways.

What kind of problems have you asked that they responded this way.

John

davidgskinner's picture
davidgskinner
Posts: 81
Joined: Dec 2009

You don't even get any cool superpowers or anything! I was hoping at least to glow in the dark. But no. How come Peter Parker got to be a Spiderman?
Sorry to be a smart a**. Maybe that's my side effect...

fisrpotpe's picture
fisrpotpe
Posts: 1344
Joined: Aug 2010

Glow in the dark came from my chemo, it showed up in a green bag and I still glow green after many years.

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

I sometimes think the Docs purposely do not inform you of the rough road ahead in case it might scare you off so 1. They scare you too much causing undue stress, 2. you run off and avoid the treatment and or 2. they lose a patient.

My Rads Onco certainly watered down the effects and dismissed hair loss, taste loss, saliva loss as "it will all come back in a few months".

Not sure whether to appreciate their approach or despise them for it, and if it would have made a difference either way.

Scam

rozaroo
Posts: 667
Joined: Apr 2010

Thank you for all of the information. I was told of Dry mouth,damaged taste bud's, hair loss & fatigue. I am experiencing a few more & learning to live with it as we all do. I just wish I was better prepared. Thank you so much all of you wonderfull people on CSN.

timreichhart
Posts: 195
Joined: Aug 2010

See I am starting to be like Hondo starting to have late side effects from radiation now I am dealing with this: shoulder problem on right side where lymph node was taken out, neck problems,jaw problems,ear problems and losing more hair in the back and also dry mouth. Every time I ask about the doctors dont have a freaking clue what the problem can be and they always say its muscles or something with treatments can be causing this. I mean what freaking gives here?

Thanks Tim

Hal61's picture
Hal61
Posts: 656
Joined: Dec 2009

Hi Scam, I've thought the same thing. If possible symptoms had been described in more detail, I would have made the same choices. I don't think that might be true for everyone, but for me, yes . . . but I have to amend that. If I had been clear about the hearing loss (permanent), and tinnitus, I would have asked about a switch to Carboplatin on my last chemo visit. My rad onc used to rub squish her rubber doc gloves between her fingers a few inchs from each ear to gauge possible hearing loss. I can still hear rubber gloves being rubbed a few inches from either ear just fine, I just can't hear people talking near as well.

I'm trying an acupuncturist now for the tinnitus, lot of anecdotal "evidence" of potential help there. I'm still on your vitamin starter regime too Scam, five or six you mentioned as system boosters. My acupuncturist said the B12 was better taken sub lingual, and I will switch to that. I also have a niece who is a doc, and she recently finished specialty training and certification in nutrition and aging. It required both written and oral testing for completion, so it was rigorous. She now it absolutely convinced from study that we are advised way too little Vitamin D by the FDA, and that we require 5,000 to 6,000 at least, daily.

best, Hal

RayTodd's picture
RayTodd
Posts: 187
Joined: Aug 2011

What cancer ribbon is that i am a novice to all thos

fisrpotpe's picture
fisrpotpe
Posts: 1344
Joined: Aug 2010

Maroon and White are the color's used for head and neck cancer. The tattoo is for support for all those fighting the fight and caregivers who are endless in their love and support for the survivors.

I used it from the Survivors of Head and Neck Cancer group on Facebook and shortened one side for my hand.

just something i felt like doing

John

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

Thanks for all the info, I like Kent’s idea to make a list but don’t want to call it Hondo’s List, just something we can all have to understand what the doctors don’t tell us, so far this is the side affects I am having.

Radiation Twice and Chemo once to the Head & Neck for NPC, I am right at 8 years from First Treatment and 6 year from Second

1. Weakness
2. Weight loss
3. Headaches
4. Loss of Hearing in both ears
5. Loss of seeing going blind in both eyes
6. Sinus Infection
7. High Blood Pressure
8. Low Blood Pressure
9. Memory loss
10. Mouth Dryness
11. Teeth Problems
12. Jar problems
13. Skin irritation
14. Constipation
15. Loss of Sex desire
16. Walking into the walls
17. Problems eating
18. Problems swallowing
19. Problems sleeping

Please add to the list if you like

Thanks
Hondo

D Lewis's picture
D Lewis
Posts: 1546
Joined: Jan 2010

The worst side effects of all, and, an earlier topic of discussion on these boards, albeit, using the wrong technical terminolgy:

"Carotid stenosis" and
"Carotid blowout"

I found these on an internet search of the effects of H&N cancer treatment including surgery, chemotherapy and radiation together. Not a happy find. Hey, at least it would be quick, eh?

Deb

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

Carotid Blowout Syndrome in Patients with Head-and-Neck Cancers: Reconstructive Management by Self-Expandable Stent-Grafts

I had Rad twice to the head and I don't like the sound of this at all. I thing I will get my heart doc to start checking me every 3 months

Thanks for the heads up
Hondo

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

20. Loss of Gum Tissue
21. Nerve pain w/head movement (L'Hermitte's Sign)
22. Camker sores
23. Facial pain in rad areas

kcass

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

24. Severe Fatigue
25. Loss of taste
26. Cough and constant dry tickle
27. Thyroid issues
28. Immobility issues with neck. Radiation over scar from neck dissection makes it even tighter.
29. Mouth sensitivity
30. Scarring in esophagus and or stricture.
31. Edema
32. Loss of skin resilance on radiated areas.
33. Scalded tongue.

timreichhart
Posts: 195
Joined: Aug 2010

34. Major Wax Build Up in the inner ear
35. Ear Infections
36. Sore Throat
37. Mucus Build Up

oopsydoopsy
Posts: 3
Joined: Feb 2011

I've been feeling and experience,, unvolunteraly movement for my neck or head,, I am not sure,, but it moves by itself when I am on certain position like doing yoga with my head down on the floor,, it moves like I am shaking it,, weird and funny feeling or I feel my nerves is pinching me from left front neck to right neck,, is that L'Hermitte's sing? is that dangrous?

thank u

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

That doesn't sound like L'Hermittes to me. Your head doesn't move or twitch on it's own with that. It's more like when you look down or move your head in a certain way, you get a tingly electric shock feeling.

Your question is sort of buried in this thread, you may want to repost your symptoms and question as a new topic on the board and see if anyone has experience with this. More people will see it that way than buried in an old thread. :)

BarryD59
Posts: 1
Joined: Sep 2011

Its been 3 years since treatment [Chemo and Rads no surgery] and i have just recently been experiencing what feels like involuntary head shaking. I think its moving but i am told it is not obvious to others. At first i thought it was the start of parkinsons. I have since found that the main muscles on each side of the neck are twitching involuntry most of the time and can be easily seen. I am in the process of trying to track down a way to stop the twitching. Yes it is annoying but it only is noticeable to me when i am not occupied. I am trying Chiro but it is not having any effect. There has not been much discussion on this type of neck twitching and wondering if anyone else is experiencing this and if anyone has found a solution.?

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

Welcome to the forum Barry....

Sorry for your situation....I don't remember anyone mentioning this before, but doesn't mean it hasn't been.

I'm sure some others will chime in soon.

You might want to start a new post for yourself as this original topic is pretty old...and it would be easier for yourself and others to concentrate on you and your question.

Also, look for the SuperThread post put up and updated frequently form Sweetblood22. It's a compilation of information and links associated with H&N treatments and recovery.

Best,
John

charles55's picture
charles55
Posts: 87
Joined: Aug 2010

38. Permanent voice alteration
39. Lethargy/activity intolerance

Chefdaddy
Posts: 169
Joined: Dec 2009

40. Deterioration and loss of bone matter in skull and sinus cavity.
41. Erratic heart beats (PVC's)
42. Complete stoppage of the stomachs digestive function.
43. Complete stoppage of the colon and small and large intestine "nerve to muscle"
function.
44. Erratic "nerve to muscle" function of colon and intestines.
45. Peristaltic movement failure
46. Chronic intestinal blockages.
47. Chronic malnutrition.
48. Chronic bleeding out of mouth with unknown cause.
49. Weakening of lung function.
50. Excessive skin loss to throat and neck and scaring.

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

So glad to see you posting my friend

Take care my prayers are with you

buzz99's picture
buzz99
Posts: 404
Joined: Sep 2010

51. "Brain, spinal cord or nerve damage causing alteration of thinking ability or memory, and/or loss of strength, feeling or coordination in any part of the body." That is a direct quote from the written information we were given.

MS009
Posts: 5
Joined: Mar 2011

Hi Everyone,

This site is great and full of helpful info. I just joined. My husband, 45 yrs old, finished 33 radiation treatments with 3 chemo rounds for SCC stage 4 in tonsils. He went to Sloan Kettering. My question is that he is now 6 weeks after treatment and he is now suddenly vomiting/diarrhea and cramping. He does have the PEG but even that liquid gets him sick. But our chemo doc said this is something other than radiation. Did anyone experience this about 6 weeks after radiation?

fisrpotpe's picture
fisrpotpe
Posts: 1344
Joined: Aug 2010

52 - necrosis from radiation any where in the zone
53 - depression do to slow recovery and not getting back to same as before normal
54 - anxiety
55 - daily reminders weather the cancer will come back and what are options if it does
56 - loss of friends you thought we friends/loss of family you thought we family
57 - loss of options for heath insurance providers
58 - high risk of job loss or being able to do job required

seenanN
Posts: 24
Joined: Oct 2009

59 Muscles cramp
60 Problem speaking
61 Problem driving
In 61 side effects I got 32 of them and just like JUDYV5 said to be alive is fantastic.

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

I thought having 32 sounded like a lot so I counted how many I had and apparently I have 32 right now also, at almost 21 months out I think that sucks. Lol.

Secretgardentour
Posts: 2
Joined: Jul 2011

Side affects of Radiation / List up-date

1. Weakness
2. Weight loss
3. Headaches
4. Loss of Hearing in both ears
5. Loss of seeing going blind in both eyes
6. Sinus Infection
7. High Blood Pressure
8. Low Blood Pressure
9. Memory loss
10. Mouth Dryness
11. Teeth Problems
12. Jar problems
13. Skin irritation
14. Constipation
15. Loss of Sex desire
16. Walking into the walls
17. Problems eating
18. Problems swallowing
19. Problems sleeping
20. Loss of Gum Tissue
21. Nerve pain w/head movement (L'Hermitte's Sign)
22. Camker sores
23. Facial pain in rad areas
24. Severe Fatigue
25. Loss of taste
26. Cough and constant dry tickle
27. Thyroid issues
28. Immobility issues with neck. Radiation over scar from neck dissection makes it even tighter.
29. Mouth sensitivity
30. Scarring in esophagus and or stricture.
31. Edema
32. Loss of skin resilance on radiated areas.
33. Scalded tongue
34. Major Wax Build Up in the inner ear
35. Ear Infections
36. Sore Throat
37. Mucus Build Up
38. Permanent voice alteration
39. Lethargy/activity intolerance
40. Deterioration and loss of bone matter in skull and sinus cavity.
41. Erratic heart beats (PVC's)
42. Complete stoppage of the stomachs digestive function.
43. Complete stoppage of the colon and small and large intestine "nerve to muscle"
function.
44. Erratic "nerve to muscle" function of colon and intestines.
45. Peristaltic movement failure
46. Chronic intestinal blockages.
47. Chronic malnutrition.
48. Chronic bleeding out of mouth with unknown cause.
49. Weakening of lung function.
50. Excessive skin loss to throat and neck and scaring
51. "Brain, spinal cord or nerve damage causing alteration of thinking ability or memory, and/or loss of strength, feeling or coordination in any part of the body." That is a direct quote from the written information we were given
52 - necrosis from radiation any where in the zone
53 - depression do to slow recovery and not getting back to same as before normal
54 - anxiety
55 - daily reminders weather the cancer will come back and what are options if it does
56 - loss of friends you thought we friends/loss of family you thought we family
57 - loss of options for heath insurance providers
58 - high risk of job loss or being able to do job required
59 Muscles cramp
60 Problem speaking
61 Problem driving
62 Blood shot eyes

palmyrafan's picture
palmyrafan
Posts: 398
Joined: Mar 2011

63. Loss of taste, smell, touch, hearing or vision (hopefully not all at the same time)
64. Worsening of IBS or Crohn's
65. Weakness or paralysis on one side of body or affecting a certain area
66. Inability to return to work
67. Losing control (occasionally) of an arm or leg which insists on doing its own thing.

I apologize if these are repeats from above, I looked and I didn't see them listed.

Someone needs to show this list to a neurosurgeon and a radiation oncologist as well as the chemo docs. I think they would be surprised at what they are reading.

lynn316
Posts: 1
Joined: Jul 2010

lymphedema and not finding a doctor to treat it

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

Sorry to here you got this stuff, my brother had it about 12 years ago. He died but not from the lymphedema but from a bad staff infectionhe he got. If you are looking for a good doctor go to MD Anderson or Mayo Clinic, I think they are the best.

Wishing you well and welcome to CSN
Hondo

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

Welcome Lynn, actually around here we call that being a member of the Turkey Neck Club. It is pretty funny that it wasn't mentioned above, LOL....though edema was mentioned.

L'Hermette's Syndrom is another side effect that we often get after radiation. Both seem to kick in around the 2nd - 3rd month post rads. But also both seem to pretty much go away within the first 9 - 12 months.

On the SuoerThread there is mention of both and massage therapy and techniques that might give some benifit and relief.

Again, welcome to the club...

Best,
John

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

I am not sure why when I read Lynn post my mind was seeing Lymphoma not lymphedema, I hate having this dyslexia crap it makes me read things that are not there depending on how my brain what’s to see it.

Sorry Lynn but John is right I too had the Turley Neck thing and still have a little of what was left behind..

Hondo

Sam44646
Posts: 9
Joined: Feb 2013

Whew..................   So I might have lost track at 62 and counting but I didn't see a response for my latest gift from my radiation treatments.  I too did chemo and rad.  About 21 months out from treatment and I'm experiencing facil spasms on the left side of my face (where most of the radiation was).  Started about 2 months ago as muscle cramps running from my cheek to my neck.  Now they are confined to my left jaw, very strong, uncomfortable and are affecting my ability to talk during one.  I've heard about accupuncture.  Will that help?  Any ideas?  These are really driving me to the edge..................................

fisrpotpe's picture
fisrpotpe
Posts: 1344
Joined: Aug 2010

welcome Sam44646, sorry you have had to join us because of the problems you are having. 

i did not have facial spasms but i did have neck spasms for many many years, i checked with doc's, had physical therapy try to help me, tried warm and cold treatments with no help. doc's just look at me with the look of just do not have a guess for you. 

my experience from the side effects from the gift (radiation ) that keeps on giving is time. i have many different cramps, pains and spasms and the only fix i found was time.... ha you say. well 17 years ago were my treatments and about 3-5 years ago most all of the challenges i was dealing with went away with time. so my answer would be time and to learn to accept what you have. 

wish i had a better answer for you and fix, but that is all i found that worked for me. 

by the way you would probably get more reply/activity to your post if you started a new post, most of the time replying to older posts for some reason do not get the same attention as for me i see i have posted already and more on to the next post for other problems

prayers going out that your can find anything to help some or all of the problems you are dealing with

john 

Crazymom's picture
Crazymom
Posts: 318
Joined: Nov 2011

After reading that you have these side effects six years later, it makes me wonder if I really want to do Chemo/Rad. I don't know how you have done it Hondo. This sounds terribly painful and that is does not seem to go away.

Ann

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

Yep I have a lot of pain and problems but remember I been radiated twice and then got a very bad Mastoid infection on top of everything, mainly the reason for all my problems and pain. But somehow when I look at it and realize I enjoy being here to see my grandchildren grownup; it makes it worth all the pain.

With you doing Rad and Chemo only once you should pull through it with flying colors, believe me it is very well worth it for them.

God bless and keep you in his care
Hondo

JUDYV5's picture
JUDYV5
Posts: 392
Joined: Jun 2010

Isn't it weird with all those side effects we could/do suffer from it is still absolutely fantastic to be alive.

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

Yes, Judy- it is fantastic. Fortunately, a number of the listed side-effects are temporary-
we experience only during the treatment, and/or a little while after, but in time go away. I was hoping for a list of just the post-treatment side-effects, as during treatment it's "come what may." Scalded tongue, for instance, which I do remember well, but is not part of my life after. Yes, Judy- it is fantastic to be alive.

kcass

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

The only thing is, every major hospital is having cancer meetings tomorrow, of all the effects of cancer and chemo...I wonder where they came up with all this stuff, and charge us $85.00 and send the rest to our Insurance Company..we are sometimes the doctors and they learn from us...lol, they have no idea what to feel and what we go threw

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Kent, those are my post treatment side effects, save the thyroid issues. My tongue still feels as if I just drank 212 degree boiling water. :/

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

Sorry to hear that. For me, it was flesh-colored stripes running lengthways down my tongue at the end of week #1, but was just caused by the rads interacting with the chemo (I think), and my body got it healed, post-treatment. Still a little more sensitive than it used to be, but no big deal. Thing is, Sweet, I'm NPC, so our C is different, as was what the Drs. dished out. Hope in time things get better, girl.

Believe

kcass

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