CSN Login
Members Online: 10

H&N Kit?

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Hey Guys,

I'd like to create a kit for the newly diagnosed H&N brothers and sisters in my area. Like a "You're not alone in this, here are some things that you will probably need soon" basket. Knowing that almost all will receive chemo, chemo/radiation or radiation and will experience some combination of side effects soon. I was hoping you all could help me with suggestions. I was thinking of putting in a little bottle of good lotion for radiated skin, maybe a little box of green tea. What would you have liked to receive shortly after diagnosis that would have been helpful? Or maybe there was something you did receive that was just perfect. Caregivers too. What could I put in there that would really help a new caregiver? I've already thought of puppies and kittens so no need to suggest that; there will be one of each in each kit. Thanks guys,

Bob

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

Biotene and Aquaphor, Bob, and a small notebook for the diary/log. Thing is- such as a kit was given to me by the Onco people when I started, with a thermometer and biotene, and bandages. The Aquaphor was given away in Free Sample size at the Rad place. They had two woven baskets on counter tops, there, and was told to take as many as I wanted. For places that don't have such, a kit like this is a very good idea.

kcass

DJG1
Posts: 122
Joined: Jun 2010

Maybe some baking soda, salt and peroxide for the mouth sores.

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Thanks Debbie. I'll see if I can locate mini's of all 3 of these and include the mixing directions. Great idea.

Bob

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Thanks Kent. The logbook and thermometer will definitely be in there. Great ideas.

Bob

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

A few from the top of my head.... (that just sounds funny)....

Biotene - spray, mouthwash and gum
Baking Soda
Hydrogen Peroxide (mixing a little of both in water for a mouth/throat rinse)
Imodium - for those certain days
Thermometer - temperature should be monitored closely (we all know the 100.5 speech)
Ensure Plus - sample bottle
Bottled Water
Journal

Those ae a few just thinking at the moment

John

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Thanks John. Gotta get Biotene in for sure. A good water bottle too. Perfect.

Bob

KTeacher
Posts: 991
Joined: Jan 2011

Great Idea. Definitely Aquaphor. Cotton hankie, I couldn't stand the creases in my neck touching. Hard candy, sometimes kept the saliva during times that you couldn't keep the water bottle handy, and a note with this website listed.

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Thanks KT. A cotton hankie is one I hadn't thought of. Maybe I can have this website embroidered on it. Great idea.

Bob

KTeacher
Posts: 991
Joined: Jan 2011

There was an article in my newspaper about a woman making fleece hats for cancer patients.
That same day there were new hats at my treatment center made by this same lady. I contacted the paper and gave them my number, it was passed on the the lovely lady. She is in her 80's, never had cancer but wanted to do something. I have sent her a gift certificate from the local fabric store, she was very greatful. Many cancer patients have contacted her thanking her. I didn't loose any hair until after treatment and it was at the nape of my neck. I was so cold this past winter, always had a fleece scarf around my neck. So many people with different talents. My mother made more than 750 afgans for a hospital in S.F. She said that she could never visit but every time there was a news article on the local TV channel, her friends would call and let her know that they saw her afgans.
Any gift will be appreciated.

luv4lacrosse's picture
luv4lacrosse
Posts: 1409
Joined: Jul 2010

matbe some packets of Juven. I know it did help me with healing along the way as I was radiated on both sides of my neck.

Greta idea you have here.

Best!!

Mike

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Thanks Mike. Definitely putting L-Glut in. Just right. Is Juven small packets of L-Glutamine?

Bob

CajunEagle's picture
CajunEagle
Posts: 363
Joined: Oct 2009

One of those home Blood Pressure monitors.
Pair of good house shoes.
A Caloric in-take monitor.
Multiple coupons for Frosty's at Wendys. (1st thing I could ever get down easily).
Stock portfolio with many certificates of Kimberly-Clark Corp. (maker of Kleenex).
And....and good garden hose to practice for bi-monthly nose scopes. :)

ratface's picture
ratface
Posts: 1254
Joined: Aug 2009

potatoe chip bag keep fresh spring clamp.

DrMary's picture
DrMary
Posts: 527
Joined: Nov 2010

Useful as spit cups when you're at the "thick mucus" stage and handy to scatter around the house as emesis cups when you are at the "throwing up every 30 minutes or when I cough/sneeze/breathe wrong" stage.

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Thanks Mary. Gotta do something with all that mucus right? Great idea.

Bob

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Thanks for the suggestions. What would these items be for? I can think of uses but not sure exactly.

Bob

ratface's picture
ratface
Posts: 1254
Joined: Aug 2009

the ace bandage is to wrap around the torso to help hold the feeding tube upright and safely secure out of the way.

The spring clip is for holding a small towel together around the neck as you shower to keep the water off the radiation burns.

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

I'll include an instructional note with them. Thanks,

Bob

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

I'll include an instructional note with them. Thanks,

Bob

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Thanks CajunEagle. Is there a specific caloric intake monitor you found useful? The frosty coupons are a great idea.

Bob

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Thanks guys. The kit is getting bigger. I'll let you all know when I have it finished. Maybe we can add it to the HNC Superthread so newbies can go out and get it. Not sure how to fit the garden hose in though.

Bob

SIRENAF42's picture
SIRENAF42
Posts: 204
Joined: Oct 2008

My oncologist referred me to this site to get this free book, it had everything you can imagine it it. Recipes, how to deal with side effects, a side effect log that you can show your doctor, a log to track you medicine, mouth and sinus rinses... etc.

I kept it with me every where I went. It was my "how to" during treatments. I recommend it to everyone that needs it. They have other free information as well, along with volunteers who have been where we all have been.

http://www.spohnc.org/guide.php
(Book is called "We Have Walked In Your Shoes - A Guide to Oral, Head and Neck Cancer")

http://www.spohnc.org/index.php (Main webpage)

Sirena

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

I will put this on the superthread next time I update. :)

Also, the American Cancer Society will send a package of useful things for free. They will even reimburse you for mileage.

Trying to think of more stuff.

rozaroo
Posts: 667
Joined: Apr 2010

Lip gloss! Our cancer dental dept provided it here when needed & could not manage without it! I love your thoughtfull idea!

rozaroo
Posts: 667
Joined: Apr 2010

I meant the medicated lip gloss! I am such a twit!

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

I would also have a bottle of Stoppers4 as I can't sleep with out it.

Great Idea
Hondo

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Thanks Hondo. Stoppers4 is a must item. Perfect suggestion.

Bob

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Thanks Roz. Is there a brand that you found to work better than others?

Bob

rozaroo
Posts: 667
Joined: Apr 2010

My Dental team had their own made up! I bet your dentist at the cancer centre has something similar. It was so helpfull & something I used constantly!

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Thanks Sweet. What mileage would they reimburse for?

Bob

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Thanks Sirena. The book will be perfect for the kit.

Bob

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

List of local resources like American Cancer Society, Support groups, Gilda's club or Wellness Community, drugstores with specialty items (like wraps and accessories for feeding tubes), organic food sources, supplement stores, some restaurants with "treatment friendly" foods, etc.

List of websites to peruse (like this one!!)

Encouraging bit of prose.

It's great of you to think of this, Bob

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Thanks Pam. The list of restaurants is a fantastic idea. I remember having difficulty deciding early on.

Bob

Ron49's picture
Ron49
Posts: 91
Joined: Dec 2010

Hi Bob,

Robyn here, maybe a water bottle for the baking soda, salt mixture. Ron has it with him 24/7. The one he is using is pink and we got it in the chemo class at Kaiser before treatment. I tried buying him a green one that looked more masculine but the pink one works better so that is what he is using. I love this idea and I think anything that helps one to feel that someone is reaching out to help relieve or assist them as they journey through the treatment is just awesome. We also have found that the calendula cream (all natural made from marigolds) has been great for the burns on his neck. Our radiation nurse gave us a sample and I was able to get it at Henrys. It is very light and not much fragrance so good for a man to use.

That is all I can think of for now

Robyn

Ron49's picture
Ron49
Posts: 91
Joined: Dec 2010

You could suggest some books, I have read so much since all of this started....I just bought a book from Amazon that I think is fantastic. It is called Creating a Cancer Fighting Kitchen by Rebekka Katz. It is loaded with lots of good info about how taste buds work and how to wake them up, which spices and foods help for certain ailments, all kinds of great suggestions and basically how to create a foundation of foods and spices during and after treatment. Ron will not be eating for sometime however the education of foods and knowing which ones help to fight cancer is invaluable and will be something I will be using in our future.
Robyn

KTeacher
Posts: 991
Joined: Jan 2011

Great Cookbook and more. You can google her name and get some recipes online. Magic Mineral Broth got me through some rough times. Her website is great. When I find out that she is speaking in the S.F. area again I am going to see her for sure. I am diabetic and needed to find out the carbs. She e-mailed me back in less than a day.

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

The magic mineral broth was a Godsend to me too. It was the only thing that tasted good for awhile. Great stock for making other soups too. Have you tried the Emerald City? Mmmm. My favorite.

Bob

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Thanks Robyn. The book is a wonderful idea. Rebekka lives here in Marin where I live. I used "One bite at a time" through chemo. It really helped. I'll see if she might be willing to donate some books or maybe even discounted. Calendula is perfect too. I'll see if Whole Foods stocks little bottles.

Bob

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Sorry. Didn't you understand what I didn't say? It made perfect sense in my head. :)

AMERICAN CANCER SOCIETY

They will reimburse up to $150 for travel to and from hospital during treatment only.

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

WTH? That link is correct but will not work. Here:

http://www.hhs.state.ne.us/hew/owh/docs/CancerSupportPrograms.pdf

janymac
Posts: 31
Joined: Feb 2010

Sterimar nasal spray- a real life saver

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

Here you go Dawn...

Cancer Support Programs

You are linking to a link or something, not sure.

John

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

John, the link is correct when you look at it while im typing it. It's that link, but it doesn't go to the right place. This happened to me the other day when I tried to link to YouTube. Why does that do that?

Anyway, my dentist trip today had me thinking about an extra soft bristle tooth brush, the foam brushes on a stick when even the tooth brush hurts. I used to get those in the hospital. Not sure if they have them in stores. I've seen them on line.

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

When you hover over your link,you can see something about CSN node,with something on the end after the .pdf....double check the code in your link....can be as simple as a misplaced or forgotten < " or .

Even myself, I get it wrong sometimes and have to try a few times to make it work the way I intend...

JG

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Same exact link won't open right here, but works on another site. I don't get it. This also happened to me a couple times sending a PM. won't work there, but if I copy and paste somewhere else, it's fine.

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Got it. Foam tooth brush. Didn't think of that one. Great call. Thanks,

Bob

GraceLibby's picture
GraceLibby
Posts: 88
Joined: Jul 2010

I'd add paper tape, waterproof tape, and some 2x2 gauze bandages for the PEG.

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Thanks Grace. Those will all be useful and much appreciated I'm sure.

Bob

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Roz, I think mentioned lip balm. I am now addicted to C.O. Bigelow lip balm.:

FAVORITE LIP BALM FOR DRY SORE LIPS AND DRY MOUTH

If you are putting together actual baskets I would buy 9 of these with my next check to send you to put in baskets. If you would like that, PM an address that I can send them.

rozaroo
Posts: 667
Joined: Apr 2010

I used baby soft wash clothes on my neck! They have them at the dollar store. They are soft & gentle & less painfull!

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network