HNC Superthread. A collection of links with answers to frequently asked questions. EXCELLENT INFORMA

sweetblood22

HNC Superthread. A COLLECTION OF HELPFUL LINKS ONLY. (please post only informative links here) Help for some FAQ.


Head and Neck Superthread.  ***PLEASE ADD ONLY INFORMATION IN THE FORM OF LINKS ON THIS THREAD****   There is a separate thread for any commentary about this one.   I would like this one to be just a place for people to get information only.    Thank you all. 


A 'Sweet'  Superthread:  Helpful Links For HNC Patients Before, During, & After Treatment.  My goal is to have all of us contribute and post helpful info that we have found invaluable when it comes to our cancer journey on one informational thread.  Please feel free to add a link to any product, article, or thread that you have found invaluable or a staple or an inspiration to you relating to the cancer journey. 

MAKING SENSE OF YOUR DIAGNOSIS
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ORAL CANCER FOUNDATION

Has tons of info for HNC patients from what to expect thru treatment, side effects, after care and support. 

NAVIGATING CANCER. HEAD AND NECK CANCER


CANCER SUPPORT. GILDA's CLUB

HEAD AND NECK CANCER QUESTIONS AND ANSWERS

SUPPORT FOR PEOPLE WITH ORAL AND HEAD AND NECK CANCER

HEAD AND NECK CANCER SITE MICHAEL DOUGLASS WAS ENDORSING


I JUST FOUND OUT I HAVE CANCER

HOW LONG WE HAVE SURVIVED


YOU ARE NOT ALONE. ON ANY GIVEN DAY...

RADIATION SIDE EFFECTS:
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ESOPHAGEAL STRICTURES

Strictures can be a side effect with radiation. Sometimes dialations can remedy this severe side effect. 



SIDE EFFECTS OF RADIATION LIST

DYSPHAGIA PROBLEMS SWALLOWING

ORAL HEALTH

SIDE EFFECTS OF RADIATION FOR HNC

GUIDELINES DURING TREAMENT

SHOULD I DO RADIATION AND/OR CHEMO?
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TO RADIATE OR NOT RADIATE that is the question

IF THEY CANNOT FIND THE PRIMARY TUMOR DO WE RADIATE?

TIPS FOR HANDLING THE MASK:
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SURVIVING THE MASK

RADIATION MASK ADVICE

FIRST DAY OF RADIATION TIPS


PRODUCTS AND TIPS THAT HELP SIDE EFFECTS:
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GLUTAMINE


ARTICLE ON BENEFITS OF GLUTAMINE

ABOUT MAGIC MOUTH WASH or MAGIC SWIZZLE FOR MOUTH PAIN

STRETCHING AND NECK MESSAGE INSTRUCTIONS

GLUTAMINE

ARTICLE ABOUT GLUTAMINE AND THE PREVENTION OF MUCOUSITIS IN BMT PATIENTS

NESTLÉ CANCER NUTRITION PRODUCTS


NEW AND ABOUT TO START RADIATION

RAPIALEX WORKS TO SOOTH AND PREVENT RADIATION BURN

SWALLOWING EXERCISES

NATIONAL LYMPHADEMA NETWORK


To PEG or NOT to PEG that is the question:
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PEG TUBE NEED TIPS

GETTING OFF THE PEG TUBE

SKIN CARE AROUND THE PEG TUBE

THOUGHTS ON GLUTAMINE, AMIFOSTINE, AND PEG


ASK THE EXPERTS.  SHOULD MY HUSBAND GET A PEG TUBE?

GUIDANCE DOCUMENT FOR PROPHYLACTIC GASTRO FEEDING TUBES FOR HNC PATIENTS

EXPLAINATION OF PEG TUBE PLACEMENT. EXACTLY HOW PROCEEDURE IS DONE

MALNUTRITION PLAYS A KEY ROLL IN MORBIDITY FOR HNC PATIENTS

SIDE EFFECTS FROM HNC CHEMOTHERAPY AND RADIATION. Malnutrition and nutrition.  


NUTRITION / HEALTHY EATING / LIQUID NUTRITION TIPS:
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TRACKING CALORIES AND NUTRIENTS WITH MY PYRAMID TRACKER

CONTAINS ADVENTURE BOB's TUBE FOOD RECIPE

LUCY's REAL FOOD. How to make real food for tube feeding instead of using canned

LIVESTRONG nutritional guidelines for HNC

Livestrong has become a great resource for great articles on nutrition and healthy lifestyle. 



BEST WEIGHT GAINING DRINKS
These are good tips and recipes if you can only manage liquids. 


THE 30 HEALTHIEST FOODS



HEALTH BENEFITS OF VEGETABLE JUICE


JUICER RECIPES


JUICER REVIEWS

DR OZ  GREEN SMOOTHIE


SMOOTHIES

EASY TO SWALLOW COOKBOOK


HOW TO ADD WHOLE GRAINS TO YOUR DIET

EASY SLOW COOKER VEGETARIAN DISHES

WHITE WHOLE WHEAT

BENEFITS OF FLAXSEED

CANCER FIGHTING FOODS


ADVANTAGES OF EATING ORGANIC FOODS

JAMIE OLIVER VEGETARIAN RECIPES

HOW TO EAT HEALTHY ON A LOW BUDGET

An article on ask dr sears . com called THE ANTI CANCER DIET


VITAMIX  Emulsifier Blender. It is my understanding they will give a discount for cancer patients.


HEALTHMASTER EMULSIFIER


WHAT IF I CANNOT WORK?:
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DISABILITY GUIDE


HNC COMPASSIONATE ALLOWANCE

DISABILITY AND WORKING GETTING PAID?

SOCIAL SECURITY DISABILITY


CHEMOTHERAPY:
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CHEMOTHERAPY SIDE EFFECTS SHEET

The above link is from The National Cancer Institute. 
This series of chemotherapy side effects sheets has medical advice and practical tips to help you during chemotherapy. Learn about self-care, medical problems to call your doctor about, and questions to ask your doctor.

NUTRITION DURING CHEMO

COOKING FOR A CHEMO PATIENT


NECK DISSECTIONS:
-----------------------------


CLASSIFICATION OF NECK DISSECTIONS

NECK DISSECTION PATIENT INFORMATION

The above answers tons of questions about neck dissections. 


ACTUAL PEG TUBE PHOTO:S
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PHOTO OF MIC-Key BUTTON

The above is a great option if you can get it.  No long hose attached and lays flat under clothing.  Very comfortable. 


PHOTO OF A PEG TUBE

MIC-KEY BUTTON LOW PROFILE FEED TUBE Kimberly Clark Site


IMRT RADIATION:
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LESS  XEROSTOMA WITH IMRT RADIATION WITH HEAD AND NECK CANCER

OVER VIEW OF IMRT RADIATION

THE ROLE OF IMRT IN HEAD AND NECK CANCER (PDF)


Da VINCI SURGERY:
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DaVINCI SURGERY HEAD AND NECK


HPV AND HEAD AND NECK CANCER:
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HPV INFORMATION

VACCINATING BOYS WITH GARDASIL

A PDF of HPV AND HEAD AND NECK CANCER


INFORMATION ABOUT GARDASIL



BEST US HOSPITALS:
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US NEWS BEST HOSPITAL RANKINGS

TUMOR STAGING:
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EXPLANATION OF HNC TUMOR STAGING pdf (long)



THREAD ON TUMOR STAGING

HNC TUMOR STAGING smaller article


DENTAL ISSUES AFTER RADIATION FOR HNC:
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Osteoradionecrosis of the Mandible
Talks about ORN and whether HBOT work when having to extract teeth after radiation.  Some pictures, you may not want to see if you are squeamish. 

IMPORTANCE OF A DENTAL APPROACH IN HNC THERAPY

RADIATION THERAPY AND ORAL CARE

Tooth removed today POST radiation


CONTRIBUTIONS FROM OTHER CSN MEMBERS:
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HEAD AND NECK CANCER KIT. adventurebob's thread on the kit that every HNC patient could use.

Where in the World Are You
Map of CSN members made by John G

A LIST OF QUESTIONS THAT YOU CAN TAKE TO YOUR DOCTOR BY DADDISGIRL


SCAMBUSTER's ALTERNATIVE CANCER TREATMENT WEBSITE

LIST OF ACID AND ALKALINE FORMING FOODS. Link provided by Scambuster

WIFEFORLIFE's HUSBAND RECOMMENDS THIS JUICE+ SUPPLEMENT


WEBSITE FULL OF HELPFUL LINKS FOR HNC:
-------------------------------------------


A WEBSITE OF A LIST OF "THE BEST HEAD AND NECK CANCER WEBSITES"

:


GLOSSARY OF SOME TERMS
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Definitions of commonly used abbreviations and terms.

We all use abbreviations here and new-comers sometimes have a hard time understanding them. 

SCC - Squamous Cell Carcinoma
Dx - Diagnosis
Rx - Prescription
Tx - Therapy? Treatment?
BOT - Base of tongue
PEG - Percutaneous Endoscopic Gastrostomy aka feeding tube

HPV - Human papillomavirus
rad - radiation
ENT - Ear, nose, throat Doctor aka Otolaryngologist
Glossectomy - Removal of tongue
Metastasis - (mets) Spreading of the cancer
XRT - Conventional external beam radiation therapy aka EBT
IMRT - Intensity modulated radiation therapy

PET - Positron emission tomography scan
CT/CAT - Co-axial tomography scan
EBT - External beam radiation therapy aka XRT
OCF - Oral Cancer Foundation
NED- No Evidence of Disease 

HBO - Hyper-baric oxygen Patient given oxygen under pressure prior to dental surgery.
Stage - Development of the cancer

TNM - System for describing the cancer (tumor, nodes, mets)

Margins - Refers to the margins of biopsied tissue; clean margins indicate that all the visible cancerous cells were removed.
Biopsy - Removal of sample or whole of suspect tissue

Xerostomia - Dry mouth resulting from reduced or absent saliva flow

RO - Radiological oncologist
MO - Medical oncologist
DO - Dental oncologist

Tumor Board- team of doctors that meet to discuss your treatment. Some hospitals have these teams.  Made up with ENT, Radiologist Oncologist, Hemotologist Oncologist, Dentist, gastroenterologist, nutritionist...


(for search purposes: Superthread Superthread Superthread  Superthread Superthread   Superthread Superthread Superthread Superthread Superthread Superthread Superthread )

RushFan

posting to the top..

posting to the top..

sweetblood22

RushFan said:

posting to the top..

posting to the top..

Hi. While I appreciate
Hi. While I appreciate the wanting to bump up this thread, you really don't need to, as I will always keep it on the first page. I know I sound like a pain in the butt, but I really want to just keep the thread free of any extraneous posts and or chatter. So, when someone posts, and I want to clear it, I need to copy the whole thread, delete this one, then repost a new superthread and then resave the new one in my favorites and delete the old. It kinds causes me a lot more work. (in addition to the work I already do maintaining, updating, and keeping it on the first page.

Hoping this explains why it's just easier if I just keep bumping it up on my own. This way all I need to do is edit my own blank post and I'm done. Thanks again for trying to help tho. I appreciate that.

Sweets

RushFan

sweetblood22 said:

Hi. While I appreciate
Hi. While I appreciate the wanting to bump up this thread, you really don't need to, as I will always keep it on the first page. I know I sound like a pain in the butt, but I really want to just keep the thread free of any extraneous posts and or chatter. So, when someone posts, and I want to clear it, I need to copy the whole thread, delete this one, then repost a new superthread and then resave the new one in my favorites and delete the old. It kinds causes me a lot more work. (in addition to the work I already do maintaining, updating, and keeping it on the first page.

Hoping this explains why it's just easier if I just keep bumping it up on my own. This way all I need to do is edit my own blank post and I'm done. Thanks again for trying to help tho. I appreciate that.

Sweets

Was not aware that doing
Was not aware that doing this would be a problem. Sorry about that...best to leave well enough alone I guess.:)

Best to you,
Chuck.

sweetblood22

RushFan said:

Was not aware that doing
Was not aware that doing this would be a problem. Sorry about that...best to leave well enough alone I guess.:)

Best to you,
Chuck.

I'm sorry Chuck. I do appreciate what you were doing...
Chuck, I know you weren't. No worries. I'm sorry if I come across like a right b!tch, cause I don't mean to.
I just figure if I explain my stupidity and method to madness then there will be less posts to the thread, there fore less for me to do. It probably would be easier for me too, if I had an actual Internet connection and a computer. I am always using a very weak iPhone connection, so I often have issues posting, texting, etc.