-
My followup appt. is Tuesday
I have only posted a few times but I find strength reading other posts and am encouraged by what I read. I completed my last internal radiation treatment on May 18, 2009. I have a followup dr. appt. with my radiologist and oncologist on Tuesday, June 16th. I have/had clear cell uterine cancer and my doctor told me that it…
-
Mom's Oncology Visit Today
I took my mom to the oncologist today. It was a bit more hopeful today. He even aplologized for me feeling so upset last week. No blood draw today but she did receive Procrit. He feels if her bone marrow recovers she may resume chemo in small doses. The carbo may have to be discontinued but the Taxol can be resumed in…
-
Had my appointment with medical onocologist
Today was my appointment with the medical onocologist in Illinois. She was very upbeat and listened to my previous experiences with the chemo treatments. She too will give the two drugs over the 8 hours that I needed previously to prevent reactions. My next chemo treatment (number 4) will be June 17th. She is doing more…
-
New at this also
Hi, my name is Caz, I'm 54 and I had a da Vinci hysterectomy on May 20th for endometrial cancer. The diagnosis was complete shock to me (as I am sure it is to everyone) I went to my doctor on April 2nd as I had a very small amount of pinkish discharge and was worried about it, having been in menopause for a couple of…
-
You won't believe this!
Still no chemo today. My platelets are still 93 and they won't give me chemo until they are 100 or more. So, I go back again next Wednesday for another lab draw. I pray that next week I will finally be able to get chemo #6 !!! Waiting patiently (that is the lesson, right)! LOL
-
New to this site and scared
My mom was diagnosed with Stage 3 uterine cancer in February. She has received three cycles of chemo so far. The problem is that her blood counts are so low in between cycles that she has been hospitalized for blood and platelet transfusions. We saw the oncologist on Friday and he feels the chemo should stop because she…
-
Please keep my SIL in your prayers.
We just found out that my SIL has a mass on her right ovary. They live in a small town in Missouri and will be coming her to see a surgeon. She is scheduled for next Friday morning. Please keep her in your prayers that it is benign!
-
met with my surgeon today
Hi all. I met with my surgeon today and wanted to pass on a couple of things he said about UPSC. He had just returned from a major cancer conference. I asked him if there is anything new with UPSC treatment. As you all know- we are a small population and that means we don't get a lot of attention in the research field, but…
-
NexProfiler Tool (Treatment Decision Tools)
Hi Everyone! Did anyone ever try to check out the NexProfiler Tool (Treatment Decision Tools)? I checked it out and it has all the information I need to answer all of my questions!!! I use treatment decision tools that explained to me about chemotherapy and what are the side effects, etc. All you have to do is to answer…
-
Other Forum Suggestions?
Does anyone participate in any other uterine/endometrial forums? If you do, would you mind terribly posting the link? I'm having trouble finding any that are really active & need some fresh reading to sift through. Thanks in advance! :)
-
after 25 external beam and 3 brachytx nausea and diarrhea
Anybody with advice for nausea and diarrhea after radiation?? How long do you feel bad and does it go away? When does the tiredness dissipate and weight stabilize? Emotional drain go away?
-
Newbie on board!
Hi, I am a newbie here, diagnosed with uterince cancer on Feb. 24, 2009. Just wanted to say hello to everyone and that I can't wait to begin reading your posts! Brenda
-
Still no chemo today!
I still wasn't able to have chemo today. Many of my counts were worse this week than last! My platelets went from 41 thous. to 60 thous., but my WBC, RBC, HGB and Magnesium went down. So I got more IV mag today, 2 units of blood and a Neumega shot. I have to go back for the next 4 days and get Neumega shots. They didn't…
-
Back to work
Well I went back to my job on Tuesday. I was so excited to be back. Lots of my coworkers emailed me and sent cards during my surgery and treatment but I never expected a welcome back party. People stopping by my cube all day to ask how i was doing and to welcome me back. I must say I was suprised. By the end of day one I…
-
DEANNA: get your last (LAST!) final (FINAL!) chemo today?!
Please tell me that you were able to get your last chemo!!! I am so happy for you to be completing the final leg on your treatment protocol, with 3 long months stretching luxouriously ahead of NO DOCTORS APPOINTMENTS, no needles, and reclaiming your life!! :D I had a much (MUCH!) smaller milestone today: MASCARA! I almost…
-
transfusion
Hello. I was told during my last chemo treatment that I may need a blood transfusion. Has anyone had this experience? They have been giving me the shot for red blood cells for the past 2 weeks but I guess it isn't working enough. I constantly hear my heart beating in my ears in addition to being exhausted. I am hoping that…
-
Gene therapy & P53, and Anti-HER-2/neu-targeted therapy
This piece of research is really hard to understand, but builds on some earlier research I did on epidermal growth factor type II receptor. This 'factor' can be tested for with fresh tissue samples taken during your hysterectomy, and KNOWING you had this factor would be VERY important information, as there are drugs that…
-
Farah
Did any of you see Farah's story on TV? She has suffered so much. I had wondered if she was going to be able to let go after her show was aired. I was astonished at some of the treatments she had to have. Also there was a special on our local TV Kare 11 about a rare cancer and the Dr that was treating it. It was very…
-
My Sisters progress and Undifferentiated Cells
Hello, Haven't posted in a while. Just a quick follow-up on my Sister's progress that I posted earlier here: http://csn.cancer.org/node/165724 She had surgery on Feb. 26th We got the final staging results in late march. They took out 31 lymph nodes and the good news is she's a stage 1B. But the bad news is 10% of the cells…
-
My Gyn/onc visit-UPDATE
Wow, what a difference in doctors! He was calm, cool, collected, informative, and took the time to actually educate me. He allowed me time for questions, and best of all he made me laugh!! Great bedside manner. In a nutshell, he explained my pathology. Yes, endometrial tissue was taken from my uterus, but there is no way…
-
rectal bleeding
Just finished 25 pelvic radiation treatments. Yesterday started bleeding from rectum - heavily - when I have a bowel movement - same thing today (sunday) - and very sore rectum. Cannot find rectal bleeding in regular side effects. Has anyone else experienced this - and is it serious? Start localized radiation to just tumor…
-
Found women with my diagnosis & a TY to ShortMarge
Guess where I found them?? Hystersisters! So a huge thank you ShortMarge for the recommendation! ((HUGS)) I love that website. :) It turns out BOTH women who had the same exact dx as me ended up having endometrial cancer. One was a Stage I requiring no further treatment, the other was a Stage III needing…
-
Relay for Life
Just wanted to share because I am excited. I will be walking the survivor lap at Relay for Life tomorrow night. My Mom, a friend of hers and a friend of mine will be walking together. Next year I am going to start up a team, I wanted to this year but just wasn't up to it yet. Should be fun!
-
New things I learned from my talk with radiation oncologist
I was under the impression that once you received radiation on a certain part of your body, that area could never be radiated again. Apparently, with IMRT, that isn't true. Just as the IMRT allows the technicians to lessen the radiation as the machine moves over bones and uninvolved vital organs, should I need radiated…
-
TREATMENT DONE
I am DONE. After a hysterecomy, 25 IMRT and 4 HDR treament I am now done with treatment. I have a 2% chance of the endrometral cancer coming back but I can live with those odds. I was diagnosised with endrometral cancer on 1/20 and had surgey via DeVinic robot on 2/20 was found to have grade 2 stage 2b. Due to the staging…
-
Lymphadema
http://www.lymphnotes.com/article.php/id/313/ This is the best site I've come across explaining swelling and drainage issues. There are many, many site to site references. Here's just a sample: Starting Treatment: The Intensive Introduction An intensive, which is also known as an intervention, is the beginning phase of…
-
PET finally APPROVED for UPSC - Insurance denial OVERTURNED after long FIGHT!!!!! Tips on dealing w
I was SHOCKED yesterday when I got the call from my Aetna case manager - the insurance company had reversed their long-standing denials of my PET. Two days ago I received a special delivery letter from them that we were to go to a hearing on May 14th about this very issue. Don't know what happened that they changed their…
-
Sharing something very beautiful...
I was sent this link by a dear friend, and wanted to share it with each of you, to inspire you and brighten your day. It's really beautiful. You may want to have your sound on LOW. Click on the word LIFE on the opening page, and ENJOY: http://www.greatdanepromilitary.com/Life/index.htm (It made me cry. I think I am overly…
-
Who has had a D&C question and update on my doc's visit:
First thing I have to know is who has had a D & C and do you have a copy of the pathology report? Here is why I ask: My D & C pathology shows specimens of endometrial curettings and endocervical curettings...yet my doc said I dont have dysplasia in my uterus, only in my endocervix, that he didnt take samples from my…
-
UPSC - aspiring new discussion member - recurrance last year - Mary Ann in San Francisco
Hi, Ladies. I was diagnosed with UPSC in February 2006, when I could not find a discussion like this. I have never met, in person or on line, anyone else with UPSC. They found recurrence in July 2008. I've finished my second series of 6 carboplatin-taxol chemo on March 17 and have the barest fuzz of hair back. My doctor is…