Geting back into routine
I just recently went back to work on Wednesday and worked 8 hours that day and the next. I was so bone weary tired on Friday I had to call in. You don't really know how it's going to be until you try to get back into the same routine. I have to sit down and test AED's (automatic external defibrillator) so I was in a certain postion all day. I got up and walked around and then my feet started to hurt. I had a 3 day weekend so we will see how it goes. I now know what Marge said about a big vat of Ben Gay for our bodies. lol
Has it been o.k. for most of you to get back?
Living with hope,
Sharon
Comments
-
I work from home on the computer, & worked throughout chemo.
I don't know if I could have worked 9 to 5 in a regular office, although I did work throughout my treatment. When my hemoglobin was way down and on the 4th & 5th days after chemo when I was achy, I would work but take long breaks and even lay down. I plan to really cut back my work hours during radiation, and have someone trained and willing to cover for me. I will be curious to know how long it will be after treatment until I am back to my old self, working 60 hours a week and living hard, full-steam-ahead, the rest of the time.
Listen to your body. That's all you can do.0 -
worklindaprocopio said:I work from home on the computer, & worked throughout chemo.
I don't know if I could have worked 9 to 5 in a regular office, although I did work throughout my treatment. When my hemoglobin was way down and on the 4th & 5th days after chemo when I was achy, I would work but take long breaks and even lay down. I plan to really cut back my work hours during radiation, and have someone trained and willing to cover for me. I will be curious to know how long it will be after treatment until I am back to my old self, working 60 hours a week and living hard, full-steam-ahead, the rest of the time.
Listen to your body. That's all you can do.
I went back to work early on - about 8 weeks after surgery and worked throughout chemo - first at fulltime then cut back to 80%. I work in an office (clinical social work) so work is not physically taxing. I think it has helped me psychologically. Being home gives me too much time to think and worry.
Mary Ann0 -
Sharon hope Monday was better for you
Sorry to hear you had such a tiring time at work the first two days. Hope after your three days of rest you are feeling better. Hope you can work something out with your employer for maybe shorter work days, or fewer work days.
I am a nurse and had worked 12 hour shifts. I should not be around the infections in the hospital, and I don't think I could work the 12 hours right now, so I am not working. It is nice to be able to rest when I feel like it. Could not do that working 12 hours. I've gotten pretty lazy since I don't have to get up at 5:30 anymore.
Take care and hope you are feeling better.0 -
Monday work is overRo10 said:Sharon hope Monday was better for you
Sorry to hear you had such a tiring time at work the first two days. Hope after your three days of rest you are feeling better. Hope you can work something out with your employer for maybe shorter work days, or fewer work days.
I am a nurse and had worked 12 hour shifts. I should not be around the infections in the hospital, and I don't think I could work the 12 hours right now, so I am not working. It is nice to be able to rest when I feel like it. Could not do that working 12 hours. I've gotten pretty lazy since I don't have to get up at 5:30 anymore.
Take care and hope you are feeling better.
Hi Ro, I made it through today and I will just see how the rest of the week goes. I just get so stiff even with doing stretching exercises in the morning. I try to keep limber but it still is hard to deal with. I am going to try to take a Tylenol before work and see how that goes. I get up at 4 a.m. and start work at 6. You being a nurse and work on your feet all the time, what is the best shoes to wear in your opinion. I still have problems with the bottoms of my feet hurting. Hope you can help in the shoe department. lol
Hoping you are having no problems, and have a great day.
Sharon0 -
Stiffnessfuzzytrouble said:Monday work is over
Hi Ro, I made it through today and I will just see how the rest of the week goes. I just get so stiff even with doing stretching exercises in the morning. I try to keep limber but it still is hard to deal with. I am going to try to take a Tylenol before work and see how that goes. I get up at 4 a.m. and start work at 6. You being a nurse and work on your feet all the time, what is the best shoes to wear in your opinion. I still have problems with the bottoms of my feet hurting. Hope you can help in the shoe department. lol
Hoping you are having no problems, and have a great day.
Sharon
I wonder if the stiffness will ever go away. I'm afraid to sit for to long and when I do I'm cautious on getting up. Not sure whether my muscles are going to move or the bottom of my feet are going to hurt. Ohhhh, please give me that vat of Ben Gay!
Hang in there and hope all are doing well.
MIND, BODY AND SOUL!
Hugs.0 -
Shoesfuzzytrouble said:Monday work is over
Hi Ro, I made it through today and I will just see how the rest of the week goes. I just get so stiff even with doing stretching exercises in the morning. I try to keep limber but it still is hard to deal with. I am going to try to take a Tylenol before work and see how that goes. I get up at 4 a.m. and start work at 6. You being a nurse and work on your feet all the time, what is the best shoes to wear in your opinion. I still have problems with the bottoms of my feet hurting. Hope you can help in the shoe department. lol
Hoping you are having no problems, and have a great day.
Sharon
Sharon glad you made it through Monday, and hope you can make it the rest of the week. I do not envy you getting up at 4:00. That would be so hard to do. Sorry about your stiffness and sore feet. When your feet hurt, you feel miserable all over. I always liked Nurse Mate shoes, but lately had been wearing tennis shoes that have good support. I always felt tie shoes gave me better support, too. I never had trouble with my feet, except when I had plantar's fascitis. Luckily that went away.
My radiation treatment was cancelled on Monday, as they were having trouble with the machine. I hope they got it fixed for today's treatment. Don't know what that will mean for the treatment plan. If they will add a treatment at the end or what.
Take care Sharon, and I hope the Tyelonal worked to help you make it through the day easier. Hope you can rest when you get home.0 -
I feel the same wayshortmarge said:Stiffness
I wonder if the stiffness will ever go away. I'm afraid to sit for to long and when I do I'm cautious on getting up. Not sure whether my muscles are going to move or the bottom of my feet are going to hurt. Ohhhh, please give me that vat of Ben Gay!
Hang in there and hope all are doing well.
MIND, BODY AND SOUL!
Hugs.
Hi Marge, I feel the same way you do, I get up from my chair at work slowly and it takes a few minutes to get the muscles to work. I did take a Tylenol last night and then today it wasn't so bad so maybe it is getting better, but I think the stiffness is going to be around for awhile.
I at least don't have to stand on my feet at work, so that is a good thing.
I am pushing myself, not in a bad way but making the best out of the situation and maybe going back to work is keeping my mind off of a lot of things.
Hanging sorely, but hanging in there.
I have peach fuzz too it feels so weird. lol
Hugs to you too, we need a new picture of the hair that you have to comb.
Sharon0 -
sore feetRo10 said:Shoes
Sharon glad you made it through Monday, and hope you can make it the rest of the week. I do not envy you getting up at 4:00. That would be so hard to do. Sorry about your stiffness and sore feet. When your feet hurt, you feel miserable all over. I always liked Nurse Mate shoes, but lately had been wearing tennis shoes that have good support. I always felt tie shoes gave me better support, too. I never had trouble with my feet, except when I had plantar's fascitis. Luckily that went away.
My radiation treatment was cancelled on Monday, as they were having trouble with the machine. I hope they got it fixed for today's treatment. Don't know what that will mean for the treatment plan. If they will add a treatment at the end or what.
Take care Sharon, and I hope the Tyelonal worked to help you make it through the day easier. Hope you can rest when you get home.
I think I might just get some inserts like the gel ones so I can be gell-in all the time. lol I love those commercials.
I also may try a pair of Croc's I see some nurses with them on, have you ever worn them.
I can't wear shoe that tie because one foot swells at the end of the day and it gets to tight.I have slip on Sketcher's right now and they are o.k.
One of my radiation treatments was in the middle of a holiday so they just added it on to the end. I sure hope they fix that machine in a hurry for you. You still have chemo treatments too right?
Well take care and have a wonderful day.
Hugs to you too.
Sharon0 -
Machine fixed todayfuzzytrouble said:sore feet
I think I might just get some inserts like the gel ones so I can be gell-in all the time. lol I love those commercials.
I also may try a pair of Croc's I see some nurses with them on, have you ever worn them.
I can't wear shoe that tie because one foot swells at the end of the day and it gets to tight.I have slip on Sketcher's right now and they are o.k.
One of my radiation treatments was in the middle of a holiday so they just added it on to the end. I sure hope they fix that machine in a hurry for you. You still have chemo treatments too right?
Well take care and have a wonderful day.
Hugs to you too.
Sharon
I had treatment number 9 today. The doctor said they would just add the treatment on the end. I had blood work drawn today, too, but won't have the results until tomorrow when I go for treatment. I have never worn Croc's. They do not look like they would give me enough support. I know lots of nurse's that really like them. I have some arthritis in my feet and the orthopedic doctor told me the soles of the shoes should be very stiff to help prevent the bending of the foot and help reduce the arthritis pain. I still have 3 more chemo treatments after I finish all the external and internal radiation.
sharon I hope you have a good day tomorrow. Keep up the tyelonal. Take Care.0 -
I have 3 pair of Crocs: LOVE them!
For me, Crocs are almost as good as going barefoot. I wore high heels to a bridal shower Sunday and was almost limping when I got home, and they were a pair of heels that I used to wear all the time! My feet were even RED on the bottom, and the neuropathy that is usually confined to just a few toes seemed to be all over the balls of my feet when I took the heels off. Buy the real Crocs, not any cheap imitations, and I think you may be pleasantly surprised, so much wiggle room for your toes! My husband thinks they are, quote, "butt ugly" but they are so darned comfortable that I am spoiled for anything else. All the nurses at my chemo center wore them. I have a couple pairs of the warm lined ones for winter and the open ones for summer. Love them. As for the gel inserts, I used them in my work-out shoes ("gellin' like a felon") when I used to go to the gym every day and they really did feel good, although they make your shoes feel tighter.0 -
Crocslindaprocopio said:I have 3 pair of Crocs: LOVE them!
For me, Crocs are almost as good as going barefoot. I wore high heels to a bridal shower Sunday and was almost limping when I got home, and they were a pair of heels that I used to wear all the time! My feet were even RED on the bottom, and the neuropathy that is usually confined to just a few toes seemed to be all over the balls of my feet when I took the heels off. Buy the real Crocs, not any cheap imitations, and I think you may be pleasantly surprised, so much wiggle room for your toes! My husband thinks they are, quote, "butt ugly" but they are so darned comfortable that I am spoiled for anything else. All the nurses at my chemo center wore them. I have a couple pairs of the warm lined ones for winter and the open ones for summer. Love them. As for the gel inserts, I used them in my work-out shoes ("gellin' like a felon") when I used to go to the gym every day and they really did feel good, although they make your shoes feel tighter.
I wore the Crocs when I worked in the cath lab and loved them while working. They were also very convenient for changing in and out of scrubs. However it seemed like my feet hurt at the end of the day when I took them off. So, I am not sure how much support they were providing?! I have heard from several of my nurse friends that MBT's are amazingly comfortable and supposed to be very supportive for your feet, as wells as knees, hips and low back.They are some kind of Swiss brand and are very expensive and I had actually ordered a pair right before my surgery. Then I didn't go back to work as planned and they were delivered while I was in the hospital. I had forgotten all about them and tried them on the other day. They are too small and it's about 7 months too late to return them. Oh well... I guess I will sell them on ebay. Anyway, I'm told they are well worth the money. I have a male nurse friend who has arthritis in feet, ankles and knees and he swears by them.
Well, I hope all of you are doing great. I wonder how Peggy is doing... we haven't heard from her in a while. I pray that she and her family are getting along okay.
I have a CT scan tomorrow....yuck! The last one was a disaster with the IV infiltrating the contrast into the tissue in my arm and the whole trip to the ER the day after my first chemo. Kinda puts a bad taste in your mouth and makes you a little more nervous about having another one. Suppose I should get used to it since we have to have them so often. So I say my prayer and mentally prepare for hopefully an uneventful scan tomorrow! Hopefully they will be able to access my port this time. It has worked like a gem for all of my chemo treatments. Then the waiting for the results begins. Last time I didn't hear anything for a week and had to call them. This time, I am going to call them each day, so they don't forget! LOL
Sharon, I hope you are still feeling okay and making it through your work week. My hair started to grow back with my 2 week chemo delay and it has just fallen out again. I kinda liked that peach fuzz and you are right, it feels funny. Maybe we could all just keep it that way and start a fashion statement!
Linda, how is the progress with your hair? Is it growing back yet?
As always, you are all in my thoughts and prayers.0 -
I have transparent peach fuzz, invisible but I can 'feel' it!
My husband asked if my hair was growing back at all, and laughed when I said "yes" and whipped off my baseball hat to show him. There is the tiniest peach fuzz on my head, as transparent, tiny, and babyfine as the hair you typically have on your face: invisible. I still get a reflection off my head from overhead lights, so I guess I am still very bald. It'll be 4 weeks tomorrow from my last chemo so I think it's too soon to be looking for hair.
DEANNA: I'll be thinking of you and holding you in prayer today as you have your CT-scan. I hope it goes more smoothly. They had to call in the IV Team to get my needle in for my 'positioning CT' last Friday, after a couple of people tried and I ended up having to use a vein on the inside of my arm, leaving me looking like a junky afterwards with all these new bruises. But I think I have until July until I go through it again. Like you, I know it has to be done so I try and shake it off and forget. Let's allow TODAY's good experience to wipe out the memories of last time for you!0 -
Peach Fuzzlindaprocopio said:I have transparent peach fuzz, invisible but I can 'feel' it!
My husband asked if my hair was growing back at all, and laughed when I said "yes" and whipped off my baseball hat to show him. There is the tiniest peach fuzz on my head, as transparent, tiny, and babyfine as the hair you typically have on your face: invisible. I still get a reflection off my head from overhead lights, so I guess I am still very bald. It'll be 4 weeks tomorrow from my last chemo so I think it's too soon to be looking for hair.
DEANNA: I'll be thinking of you and holding you in prayer today as you have your CT-scan. I hope it goes more smoothly. They had to call in the IV Team to get my needle in for my 'positioning CT' last Friday, after a couple of people tried and I ended up having to use a vein on the inside of my arm, leaving me looking like a junky afterwards with all these new bruises. But I think I have until July until I go through it again. Like you, I know it has to be done so I try and shake it off and forget. Let's allow TODAY's good experience to wipe out the memories of last time for you!
Fun to watch how the hair grows back. Mine started out all white, I thought for sure I was going to be completely grey. Now, all the black has come in and my hair is starting to get thick. I still rub my head and run my fingers through my hair. I shaved my head completely on January 17 so in three months I now have to start combing it and going to purchase some gel to keep it from sticking up. Very Exciting!!!
I took two asprins before my walk last night and that help alot with my feet and ankle pain. I'm cranking out two miles with no problem and would like to go further but my feet and ankles don't want me to. 30 to 45 minutes of walking is about all I can do. I go back for my 3 month check up next week (the 29th) and going to ask the oncol lots of questions about the foot pain and muscle stiffness.
Deanna, praying everything goes well with your CT scan today.
MIND, BODY AND SOUL!!!
Hugs to all.0 -
dyedeanna14 said:Crocs
I wore the Crocs when I worked in the cath lab and loved them while working. They were also very convenient for changing in and out of scrubs. However it seemed like my feet hurt at the end of the day when I took them off. So, I am not sure how much support they were providing?! I have heard from several of my nurse friends that MBT's are amazingly comfortable and supposed to be very supportive for your feet, as wells as knees, hips and low back.They are some kind of Swiss brand and are very expensive and I had actually ordered a pair right before my surgery. Then I didn't go back to work as planned and they were delivered while I was in the hospital. I had forgotten all about them and tried them on the other day. They are too small and it's about 7 months too late to return them. Oh well... I guess I will sell them on ebay. Anyway, I'm told they are well worth the money. I have a male nurse friend who has arthritis in feet, ankles and knees and he swears by them.
Well, I hope all of you are doing great. I wonder how Peggy is doing... we haven't heard from her in a while. I pray that she and her family are getting along okay.
I have a CT scan tomorrow....yuck! The last one was a disaster with the IV infiltrating the contrast into the tissue in my arm and the whole trip to the ER the day after my first chemo. Kinda puts a bad taste in your mouth and makes you a little more nervous about having another one. Suppose I should get used to it since we have to have them so often. So I say my prayer and mentally prepare for hopefully an uneventful scan tomorrow! Hopefully they will be able to access my port this time. It has worked like a gem for all of my chemo treatments. Then the waiting for the results begins. Last time I didn't hear anything for a week and had to call them. This time, I am going to call them each day, so they don't forget! LOL
Sharon, I hope you are still feeling okay and making it through your work week. My hair started to grow back with my 2 week chemo delay and it has just fallen out again. I kinda liked that peach fuzz and you are right, it feels funny. Maybe we could all just keep it that way and start a fashion statement!
Linda, how is the progress with your hair? Is it growing back yet?
As always, you are all in my thoughts and prayers.
My mom had an anaphylactic reaction to the IVP dye for CATscan for kidney stones which showed the endometrial thickening in October(which resulted in her dx) and she wound up in the ER and tele overnight-double whammy- so now they give her oral contrast and she has not had a problem. Hope the results come sooner. Bonniesue0 -
CT is over!shortmarge said:Peach Fuzz
Fun to watch how the hair grows back. Mine started out all white, I thought for sure I was going to be completely grey. Now, all the black has come in and my hair is starting to get thick. I still rub my head and run my fingers through my hair. I shaved my head completely on January 17 so in three months I now have to start combing it and going to purchase some gel to keep it from sticking up. Very Exciting!!!
I took two asprins before my walk last night and that help alot with my feet and ankle pain. I'm cranking out two miles with no problem and would like to go further but my feet and ankles don't want me to. 30 to 45 minutes of walking is about all I can do. I go back for my 3 month check up next week (the 29th) and going to ask the oncol lots of questions about the foot pain and muscle stiffness.
Deanna, praying everything goes well with your CT scan today.
MIND, BODY AND SOUL!!!
Hugs to all.
Well, it was a lot better than last time, but still some complications. They couldn't get my port accessed and thought it was clotted. Thank goodness it wasn't. They were able to get an IV started in my wrist and it held up for the CT scan. Yeah! Then I had to go to the doctor's office to have a clot buster put in the port, but when they got the needle in, it flushed just fine and gave good blood. So, they just didn't have it accessed right in xray. I am so glad that it wasn't clotted!
I have to go in Monday for labs prior to chemo, so I hope they will have the results of the CT by then.
Thanks for all of the positive thoughts and prayers. I still have some peach fuzz on my head, but my eyebrows and eye lashes are almost gone. Makes me look a little ghostly!
Hugs,
Deanna0 -
good luck with CTdeanna14 said:Crocs
I wore the Crocs when I worked in the cath lab and loved them while working. They were also very convenient for changing in and out of scrubs. However it seemed like my feet hurt at the end of the day when I took them off. So, I am not sure how much support they were providing?! I have heard from several of my nurse friends that MBT's are amazingly comfortable and supposed to be very supportive for your feet, as wells as knees, hips and low back.They are some kind of Swiss brand and are very expensive and I had actually ordered a pair right before my surgery. Then I didn't go back to work as planned and they were delivered while I was in the hospital. I had forgotten all about them and tried them on the other day. They are too small and it's about 7 months too late to return them. Oh well... I guess I will sell them on ebay. Anyway, I'm told they are well worth the money. I have a male nurse friend who has arthritis in feet, ankles and knees and he swears by them.
Well, I hope all of you are doing great. I wonder how Peggy is doing... we haven't heard from her in a while. I pray that she and her family are getting along okay.
I have a CT scan tomorrow....yuck! The last one was a disaster with the IV infiltrating the contrast into the tissue in my arm and the whole trip to the ER the day after my first chemo. Kinda puts a bad taste in your mouth and makes you a little more nervous about having another one. Suppose I should get used to it since we have to have them so often. So I say my prayer and mentally prepare for hopefully an uneventful scan tomorrow! Hopefully they will be able to access my port this time. It has worked like a gem for all of my chemo treatments. Then the waiting for the results begins. Last time I didn't hear anything for a week and had to call them. This time, I am going to call them each day, so they don't forget! LOL
Sharon, I hope you are still feeling okay and making it through your work week. My hair started to grow back with my 2 week chemo delay and it has just fallen out again. I kinda liked that peach fuzz and you are right, it feels funny. Maybe we could all just keep it that way and start a fashion statement!
Linda, how is the progress with your hair? Is it growing back yet?
As always, you are all in my thoughts and prayers.
Deanna,
Good luck with CT tomorrow. When I had my CT recently I asked if they could use the port and they said, only if I had a "super port" - which I don't. It would be great if the port could be used to avoid that horrible experience you had.
Best wishes, Mary Ann0 -
Super Margeshortmarge said:Peach Fuzz
Fun to watch how the hair grows back. Mine started out all white, I thought for sure I was going to be completely grey. Now, all the black has come in and my hair is starting to get thick. I still rub my head and run my fingers through my hair. I shaved my head completely on January 17 so in three months I now have to start combing it and going to purchase some gel to keep it from sticking up. Very Exciting!!!
I took two asprins before my walk last night and that help alot with my feet and ankle pain. I'm cranking out two miles with no problem and would like to go further but my feet and ankles don't want me to. 30 to 45 minutes of walking is about all I can do. I go back for my 3 month check up next week (the 29th) and going to ask the oncol lots of questions about the foot pain and muscle stiffness.
Deanna, praying everything goes well with your CT scan today.
MIND, BODY AND SOUL!!!
Hugs to all.
Hi Marge,
Good job on the walking - it's been a challenge for me to get back in the routine of exercise. I still have a hard time even getting out of the car!!! But I dragged my butt out of bed today and 6 and walked 2 miles. It felt good afterward
And I too am excited about my velvety gray cap - it's starting to curl a little and even get "messed up". Isn't it crazy to get excited aobut stuff like that!!
Mary Ann0 -
Deanna, Glad all went welldeanna14 said:CT is over!
Well, it was a lot better than last time, but still some complications. They couldn't get my port accessed and thought it was clotted. Thank goodness it wasn't. They were able to get an IV started in my wrist and it held up for the CT scan. Yeah! Then I had to go to the doctor's office to have a clot buster put in the port, but when they got the needle in, it flushed just fine and gave good blood. So, they just didn't have it accessed right in xray. I am so glad that it wasn't clotted!
I have to go in Monday for labs prior to chemo, so I hope they will have the results of the CT by then.
Thanks for all of the positive thoughts and prayers. I still have some peach fuzz on my head, but my eyebrows and eye lashes are almost gone. Makes me look a little ghostly!
Hugs,
Deanna
Deanna, Glad all went well for you today. Hope you are dancing with NED soon.
Mary Ann0 -
CTdaisy366 said:good luck with CT
Deanna,
Good luck with CT tomorrow. When I had my CT recently I asked if they could use the port and they said, only if I had a "super port" - which I don't. It would be great if the port could be used to avoid that horrible experience you had.
Best wishes, Mary Ann
Thank you for the good luck wishes. I did have my CT today and they were not able to use my port. It is a power port, but they were not able to access it and thought it was clotted off. They started an IV in my wrist and were able to complete the CT... thank the Lord! I went to my gyn/onc office after the CT and they were able to access it, get a good blood return and flush it easily. So, I think the nurses trying to access it for the CT scan just didn't have enough experience with ports. It all worked out okay and it is done, so that is the important thing. Now, the hard part is waiting for the results.
Prayers and hugs to you Mary Ann0 -
Deanna glad the CT scan was a positive experience todaydeanna14 said:CT is over!
Well, it was a lot better than last time, but still some complications. They couldn't get my port accessed and thought it was clotted. Thank goodness it wasn't. They were able to get an IV started in my wrist and it held up for the CT scan. Yeah! Then I had to go to the doctor's office to have a clot buster put in the port, but when they got the needle in, it flushed just fine and gave good blood. So, they just didn't have it accessed right in xray. I am so glad that it wasn't clotted!
I have to go in Monday for labs prior to chemo, so I hope they will have the results of the CT by then.
Thanks for all of the positive thoughts and prayers. I still have some peach fuzz on my head, but my eyebrows and eye lashes are almost gone. Makes me look a little ghostly!
Hugs,
Deanna
I hope you get good results from the CT scan, too. Hope your blood work is good next week for you to get your chemo, too. Hang in there and have a good restful weekend. I am glad your port was not clotted. Do they have you on a small dose of coumadin to keep your port from clotting?0
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