-
Neuropathy that seems to be worsening 18 months after last Chemo treatment
Hey GuYs, Have any of you experiencme worsening of neuropathy ? Now, 18 months after last chemo Gemzar after roundsofcarbo taxol and Carbo Doxil, my toe tingling numbishmess seems to be creeping up my legs to my calfs now. My doc just kinda shrugged. As if Stage IvB grade3 Clear and Undifferentiated Cell Adenocarcinoma…
-
CA 125continues to rise
In the last 10 weeks my CA 125 went from 554 to 672. I was going to be happy if it was less than 700, so I was very happy. As before I have no symtoms and feel good. I have joint pains from the Aromasin, but I can deal with that. i also continue my daily blood thinner shots. My onocologist in Florida said he would not do a…
-
DOXCIL
Is anyone taking doxcil treatments? I had carbo and taxol after they found my cancer. Started those treatments in January 2012 and finished in May 2012. Everything was good until February 2013 and now have cancer in the abdomen area. Started on doxcil and have experienced mouth sores and hand and foot syndrome. Now after…
-
Mom diagnosed with stage 4b- anyone else??
I guess I'm just wanting to hear experience from others. My mom was diagnosed on Valentine's Day with stage 4b, grade 1 uterine cancer (her surgeon said he was shocked to see it graded 1 since it had spread so far)- they told me it was in her uterus and omentum. When we had the CT, it was also found in her lungs and lymph…
-
codes
Would anyone know the medical code numbers for the BRCA 1 and BRCA 2 genetic testing and if Medicare will pay for the tests? Thanks, Debra
-
MMMT Recurrence
My 77 yr old mother felt a mass in her abdomen in 2011 and was told after gyn exams by gyn and gyn onc that it was likely cancer. After surgery in June 2011, dx was MMMT. Taxol/carbo was started in Aug 2011, but had to be changed to doxci/carbo due to poor tolerance/ bad rxn to taxol after the 1st round. Mama had a total…
-
stent question
My mother had surgery for USPC 2 weeks ago (clear PET scan; after surgery doc said stage 1, then said, "Well, technically stage 2 since pathologist saw microscopic cells in cervix"...all else was "clear"...nothing in lymph, abdomen, omentum, and so on). She is preparing for sandwich therapy, and the home health nurse…
-
FANTASTIC ARTICLE - PLZ SHARE WITH YOUR FRIENDS
News Release: A Call to Action on Behalf of Women with Below the Belt Cancer We know women’s lives are saved when we look at cancer through a pink lens. How many more could be saved if we included all the colors representing cancers unique to women? Each year, some 90,000 women are diagnosed with “below the belt” cancers;…
-
Bladder issues after "pelvic floor surgery"
I've cancelled 2 appointments with the urogynecologist because I just don't want to go there! So I'm coming here instead to learn what, if any, bladder issues you have had following what my pcp refers to as "pelvic floor surgery". Here's mine: I have stress and sometimes urge incontinence, up many times during the night to…
-
Anything positive come from your cancer (other than the pathology report, haha)?
I consider myself a cynic at heart, and tend to see the poop that's fertilizing the rose garden rather than the blooms. But one thing that surprised me is how much good came out of my diagnosis/treatment. I don't want to appear flip, or to be insensitive to those having a rough go of things, but I wonder if it will help if…
-
How times have changed....just had to post!
CONGRATULATIONS TO ALL BORN IN 1930's, 1940's, 50's, 60's, 70's and Early 80's !!! First, you survived being born to mothers who smoked and/or drank while they carried us. They took aspirin, ate blue cheese dressing, tuna from a tin, and didn't get tested for diabetes. Then after that trauma, your baby cots were covered…
-
naturopath specializing in oncology
Post the completion of my chemo and internal radiation therapy i had an appointment with my naturopath with extended oncology training. I thought i would share the information she provided along with the testing she has done and treatment we are starting little background - diagnosed 11/2012 with Uterine Cancer. 12/12/12…
-
Does it get easier to go for your doctor appts?
Ladies, I am hoping you, and anyone from any board can chime in, does going to the doctor ever get easier? I am only in about 6 months of the monitoring now and get very anxious when I have to go see the surgeon for my follow ups. I am not talking about the physical exam, I am talking about the unknown. My next visit is…
-
favorite ways to make water taste good
Hello all, I'm doing platinum based chemo treatment again and am wanting to drink more water, but have had trouble with the taste. Usually I love just plain water but it seems to get more "chemo" taste just straight. I've been trying some different experiments this week and thought I'd share. been using organic fruit and…
-
Second opinions
Hello fellow warriors! I am new to this support community, and have just passed my one year "anniversary" of diagnosis! It is good to know you are all out there! I was diagnosed with endometrial cancer, stage 3C, and have done the surgery, chemo (carbo and taxol) followed by radiation (external beam and brachytherapy.) I…
-
Another birthday
I am 67 today and happy to see it. 15 months ago I wondered if I'd see 70. Now with the help of NED, my medical team, and all of you, I am counting on it and hope for many more after that.
-
new discussion board
A new discussion board is available to report and discuss technical problems. Please give it a try. It is the last discussion board listed on the page with all the boards, please bookmark it for future use. The URL is http://csn.cancer.org/forum/200. Best, Greta aka Your CSN staff
-
Very encouraging!
Very encouraging! Keep your fingers crossed ladies! This could very well be a breakthrough http://www.nypost.com/p/news/national/testing_starts_creates_homegrown_4jSHWpWFBEkczPTFque7VM Stanford researchers are on track to begin human trials of a potentially potent new weapon against cancer, and would-be participants are…
-
Now what!?!?
2013-07-09 This post qualifies as 'now what'! PET/CT colorful around ureterer, possibly Ca encroaching. Some docs said yes! others said fibroids from scar tissue from radiation, as was previously reported to help 'with one hand' and 'cause Prblems later on', my story exactly. now rad scar tissue seems to be blocking,from…
-
Friend with Uterine cancer. VERY CONCERNED!!
Hi Ladies, I'm coming over from the OVCA board with a question regarding a close friend. My friend had surgery a few months ago for stage 3 uterine cancer. She underwent 25 radiation treatments. She completed those about a month ago. About ten days ago she developed a high fever (103). A medical doctor put her on…
-
Something Silly to share
Hola, I just wanted to share with everyone something very silly. I just came back from the grocery store, and while there I meet Charlotte Gerson. She was so sweet to talk to me for a little short period of time. She told me that the best anticancer vegetable, though expensive, was asparagus. She also mentioned the…
-
Radiation and chemo help!? ( 3b endometrial cancer)
Radiation and chemo help!? I have stage 3b endometrial cancer, and recently had a hysterectomy. Next up in a month or so I start treatments. I am underweight NOW so am concerned how much I can tolerate. I also wonder if I can choose the amount of treatments (they are recommending 5-6 weeks rad and 6 chemo) I would like to…
-
Osteoporosis after Chemo
I am sure we have talked about this before, but I cannot find the thread. I was diagnosed with osteoporosis in my spine and osteopenia in the hips and neck, right after I finished chemo. I told my doctor to give me some time to recover, so I did not have to take any prescription medication. I am now having back and chest…
-
Anyone have atypical pap results after being NED for awhile?
I had my six month appointment with my doctor on May 31st. Since I had not had a scan for a couple of years, he ordered chest x-ray and Ct of abdomin and pelvis. Got those results last week. All results were unremarkable. My doctor did a PAP on the 31st. Yesterday, June 20th, I get a call from the office with regard to my…
-
Paging Dr. Beila
Beila - just checking in to see how you are doing. Please let us know how you are doing. Last I heard you were going to spend some time with hubby - hope you are still enjoying time with him. Just say hi - we all worry about each other! JanH
-
new to this... and pretty freaked out
hi, i am new to the board and not fighting my own battle but fighting hard for my Mom. She was diagnosed with stage 111c uterine cancer in October 2009 and had surgery including lymph node removal - there was cancer found in 3 of the 30 taken. She went through 6 rounds of chemo in 2010 and we waited with fingers crossed.…
-
A glimmer of hope on the horizon...
If it works on ovarian cancer...maybe it will work on UPSC which is said to be similar. Full article here: http://www.thespec.com/news-story/3845131-cancer-breakthrough-new-drug-shown-to-prevent-cancer-growth-ready-for-human-testing/ Excerpts from article: Cancer breakthrough: New drug shown to prevent cancer growth ready…
-
Not sure what chemotherapy options will be?
Going to drs. today to discuss chemotherapy for my second reoccurence of endometrial carcinosarcoma.They removed 1.9 tumor from my liver about 4 weeks ago.I feel pretty good.Somewhat concerned about chemo,because dr. said we were in uncharted territory now.I've only had chemotherapy once for this cancer,which was…
-
New Dz UPSC 3C
I'm fairly new to all this.UPSC stage 3C.I had my post op visit today,will be getting a port a cath on Thurs and first chemo Rx next Friday. Treatment plan is for sandwich method with external radiation. This is scary business.Wish me luck.
-
Nursing Field
I know this is way off the topic of our cancer, but figure I have a varied group of gals on these boards and possibly someone can pitch in to help. My daughter, 21 yrs, is at college working on her business degree, emphasis in marketing. Been working this summer at a financial corp as an intern, but wondering if this is…