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Avastin & Taxol
Hi all - new to posting, but did find this site helpful when first diagnosed in Oct. 2011 wi/NS lung cancer in both lungs. At first was told Stage 1, but then was told if in both lungs it is technically stage IV. Have had about 3 treatments with certain chemo's, but they kicked my butt and lowered all my blood counts and…
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Lung surgery questions - stage 2B Adenocarcinoma
I have just been diagnosed with stage 2B. I have one 6cm mass in my lower left lung and one, possibly 2, affected lymph nodes in the chest. The bronchoscope was only able to reach the one lymph node for a posititve diagnosis. Both the lymph node and mass lit up on the pet scan. The doctors want to do another surgery where…
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Happy and Hopeful
Last week I got results from the biospy gene mutation. I am positive to carry the EGFR! Will start Tarceva soon. I had a lot of family and friends praying for me. Thank you all. I am so Happy. :)
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chemo didn't work
Just had my repeat CT and it showed no improvement, but the oncologist didn't say it was a lot worse. Next week need another bronchoscopy since the pulmonologist didn't take enough tissue the first time. They need DNA to first check to see if the cancer is EGFR or another acronym that are genetic.....he said 5% of lung…
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Pain in hands and feet. Clubbing?
Has anyone experienced pain in hands and feet? I wake up in the morning and my hands are stiff and hurt especially in my fingers. Also my feet hurt especially when I first get up in morning and after I have been sitting. My doctors says I am also starting to experience clubbing in my fingers with HPOA Hypertrophic…
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Gemzar
Has anyone used Gemzar? If so, how long before the cancer began to progress again? What side effects did you experience? Thank you
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Coughing first symptom?
Hello, I have been reading all of your stories and have a question for those of you that have primary lung cancer....I have had a dry cough for 2 weeks now. It is the kind that you get the first day of a respiratory infection where your chest feels tight and you just keep feeling like you need to cough. Usually it develops…
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New Member - Waiting and Hoping
Hello my name is Marty. I am new to this board. I have Stage IV NSCLC-Adenocarcinoma. I was diagnosed in November 2011. Finished 6 rounds of chemo March 2, 2012. I was taking Cisplatin and Alimta. The tumor shrunk 25% after the second treatment. Oncologist wanted to keep me on maintenance Alimta but I really needed a break…
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Stage 4 Lung Cancer
I would love to hear from someone who has been diagnosed with stage 4 non small cell cancer. My husband was diagnosed in Nov. He seems to be doing well, but I just really don't know what to expect..it would be nice to hear of other experiences....thanks!
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Lung Cancer Recurrence w/Brain Lesions
I am a 46 year old female. In Sept., 2002 I was diagnosed with breast cancer. Two weeks after that diagnosis, during routine pre-op testing, a spot was discovered on my lung. A biopsy diagnosed a separate non-small cell lung cancer. I had a lumpectomy on the breast, clear margins, and no nodes involved. Two weeks after the…
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MK-3475 clinical trial
Anyone else out there joining the Merck MK-3475 trial? After passing all the screening, I am starting next week. I would be interested to keep in touch with any other NCSLC Stage IV participants (previous trials have been with melanoma patients).
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Update PET Results from Dr Visit Tuesday / Gemzar?
Hi All! First some good news! My husband is going on 11 months and he was here to greet his newest grandson! He arrived 5 weeks early and is doing well with the exception of being able to suck, swallow, and breath at the same time but he is learning quickly and will be able to leave NICU once that is accomplished. We have…
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Lets go back to the spine and radiation late effects
Hello Family! Not sure if I am satisfied with what is going on here... Lets go back to the spine and radiation late effects. My T6/T7 vertabrae are compressed a bit from late effects of radiation 1.5 years ago on back and chest to treat the RL Upper Lobe tumor and chest lymphs. It is not cancer mets as far as they can tell…
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I just celebrated being a 5 years living with Stage IV Lung cancer and doing GREAT!
March 30th 2007, I was diagnosed with Stage IV Lung cancer and was not given a very good outlook by my doctors. I was on first line drugs for 2 years and then switched to a trial at Sloan Kettering. That only lasted 6 months before it spread, so started a 2nd line drug, Alimpta which has since been considered 1st line.…
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Questions about my dear friend's diagnosis
Hi everyone--I'm actually on the breast cancer forum here with Stage IV breast cancer with bone mets. I have a friend (actually my Chemo Angel) who was just diagnosed with "inoperable Stage 3 lung cancer." She has had symptoms for 2 years, with periodic testing but nothing showed up until this past March. Apparently, one…
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mother lost her battle with lung cancer on sunday
Mother lost her battle she fought it hard. She wanted to live but told me it was her time to leave this world and be with her loved ones that have gone on before. She was calling for her mom at the end I guess we always want our mothers when we are hurting. She was 83 and had lived a good life. She had 8 kids three had…
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PET-CT scan results. What they mean?!?!?!
Hi My name is Sheila and I just had a PET test done and I got the sheet with the results but I don't understand what it means. Does it mean I have cancer or not?! My dr is out of town until next week and I cna't wait. I need to know but have no insurance and she's hte only one htat will see me on payments. So, if any of…
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Questions re: post op chemotherapy for stage 1b (T2A)
My father (75, smoker) just underwent a VATS lobectomy of his lower left lobe where a 4cm tumor was located. His diagnosis - stage 1b (T2A) adenocarcinoma. The surgery went well and his recovery is progressing nicely although he'd tell you he feels exhausted much of the time (on par with what the doc said). His doc is…
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Questions.. pls someone answer
Hi, I posted yesterday my PET scan results. I went to the dr today and he said that it's not positive that I have it and wants me to wait 3-4 months for another ct. Said because ofmy age that he doesnt think i have it. than goes to say only way to know is if i have a biopsy and he wont schedule one saying im to young. wtf?…
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low grade disease
I was wondering what investigations are carried out to find out if the cancer I have in my lung is low grade or not. It's metastatic from somewhere else so it's not lung primary but I'm guessing that the lung investigation routine is the same. Would appreciate some information ... :)
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new and don't know what to do.....
Hello, my name is Stacy and we just found out last month that my husband has stage 2 lung cancer.....he had a biopsy done on 5-9-12 and we are waiting for the results to find out if it is small cell or non small cell... how this all came about was that he was caughing up blood and went to the er, they did an xray of his…
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Complimentary/ alternative treatment for stage 4 lung cancer?
Hi, My father just got diagnosed with stage 4 lung cancer, which has metastisized to the liver and lymph nodes. We have to start the chemo soon - combination of Carboplatin, genzar and taxol. I was wondering what the is expected survival rate if chemo goes well. And are there any other alternatives? He is 71, but mas, in…
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CAV - Questions
I've been on this board before and everyone has given me great feedback. So, here I am again, hoping for help. My husband is starting his third line of chemo on Monday - CAV. Second line of Topotecan was ineffective, so now he has three new tumors. If anyone has had CAV, could you please tell me whatever you can - side…
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melanoma mets question
Does anyone know about melanoma that mets to lung? have been reading through alot of post and don't find any discussion of melanoma. Perhaps I don't know what I am looking for (termnology).
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been a rollercoaster ride lately
As you all know a month ago I went on the fentanly patch for my pain. It was working great...no pain. Then one night I started acting very weird. I was nasuea, unsteady on my feet, my head felt like it was going to explode. My husband ripped the patch off and put me to bed. I sleep 20 hrs straight. Felt better the next…
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Just Checking In with My "Homies"
I wanted to let everyone know that as I am coming up on my 2 year anniversary that I am doing well. What an incredible roller coaster the past 2 years have been. VATS, chemo, radiation, remission, mets to spine, Tarceva, met to spine reduced, and as of last week no new tumors, spine looks good, brain and lungs look good…
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Am new here with stage 4 nonsmall cell lung cancer with bone and lymph node mets
Hello, I just found this Board, and am hoping to learn from all of you as I venture along this journey. After 2 weeks of testing, a port-a-cath insertion, etc I began treatment on Friday the 13th with carboplatin and alimta. The weekend was pretty unremarkable except for inactive nausea and fatigue, but the "metal mouth" I…
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Clean Pet w/metastatic disease - should treatment be continued?
First time posting, so may botch this up. Diagnosed w/Stage IV NSCL in April '11. No lung tumor found, but malignant pleural effusion and spread to lymphs. Went on cisplat/alimpta/avastin - sick as a dog for 2 cycles. Switched cis to carbo - sick a lot less and have been doing that since. For the effusion, had to get the…
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Herna
Well I have been complaining of a chronic cough since the end of Dec 2011. No doctor could tell me why! I guess they thought it was in my head. In Mar I started getting heartburn reall bad, along with vomiting bile at times. They told me I know had GERDS. So I got Nexium 40 mg. I have had a pain under the left breat and…
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Vertabrae Damage due to Radiation?
Hello Family.....I have no mets in the spine, but they say the radiation from 1.5 yrs ago is causing "abnormalities" in my T6/T7 vertabrae. It causes back pain and muscle spasms. Not much they can do I guess at this point until it gets real bad, then maybe orthopedics to get involved. Anyone have something similar? Thanx…