Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

ROLL CALL 2019 - CLOSED, CLOSED, CLOSED!!!
PLEASE READ ROLL CALL 2019 Fourth UPDATE November 26, 2019 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. ROLL CALL…
Treatment Update
Just a quick update. I am starting radiation treatments tomorrow Friday the 27th and if I don’t miss any I will be done Feb. 7th 2020. They are avoiding as much as possible my old radiation areas and my throat, spine, mandible, etc. and just trying to do what is absolutely necessary to give me a good outcome and not cause…
Hope This Helps Folks Get Past a Bump in the Road
Saw this at the health campus yesterday and I enjoyed the message and wanted to share it.
"FT Or Not" thread for Charmin50
I saw your two posts in the middle of the long FT thread dating back to 2013, and advise you get your answers in a new thread. Magic Mouthwash is a combination of ingredients the Pharmacist has to mix. As for getting the FT because of your drastic weight loss, it really is a matter between you and your Dr./medical team. I…
Tinnitus
Hello to the group, it's my first post. I am 4 months post treatment for HPV+ SCC in the left tonsil. I also had one lymph node on the same side excised which was how the cancer was discovered. Fortunately, the cancer was encapsulated within the lymph node. I was diagnosed as Stage I with the new staging system. I did 33…
Feeding tube or no tube?
I've been reading this board since the end of January, when my husband was diagnosed with stage 4 laryngeal cancer, spread to 2 lymph nodes. He doesn't do much on the internet, so I'm our designated forum user. This forum has been invaluable to us, some of the best information we have gotten. Thank you all so much, and…
A Christmas Blessings Invite Post For All CSN Folks
To join on this post and send Christmas Blessings and Thanks to H & N members or anyone else you may have on your heart. Or you can just say what you are thankful for during this Christmas season. I want to thank my wife #1 as she watches over me and takes care of me, knows when I am weak and strengthens me, stands by my…
Chyle Leak
Hi. Has anyone here ever seen expereience a "Chyle Leak" after a Neck Dissection? Had my Neck Dissection surgery on 12/10/19. I had 20 lymph nodes removed and they showEd no active cancer! I had chemo(3 cisplatin) and 35 radiation treatments on left side for Stage IV Oropharyngea, HPV 16. I've been placed on a 2 week…
Scared family member
Hi all, I am just looking to get some advice on how to go about getting a stubborn person to seek treatnent. My mother in law, a long time smoker, has had a sore throat/ear pain for over 2 months now. she also doesn't have health insurance due to a recent job change. She went to urgent care and her ears look clear, so…
Checking in
Hi all I'm a long timer which possibly makes me a senior citizen of this website. (Everybody has to be sonething) Yesterday was my ten year anniversary of a full neck disection and today I return to the University of Pennsylvania for a yearly check because last year the **** showed up in my right lung. I see a lot of new…
Worried that I have neck/throat cancer
Hi Everyone, I am looking for some help or possibly some guidance/insights (apologies for the long post but I would greatly appreciate any help): -My troubles started about two months ago when I woke one day and felt a bit of soreness on the right side of my neck under the jaw (it's really hard to describe the feeling…
tongue burning
I had 40 rad and 6 chemo treatment for throat cancer, the last radiation was 4/3/07 but still have fairly acute sensistivity to spices especially pepper with my tongue and to some extent the back of my mouth or palate. I thought this would be gone by now, but still dealing with it on top of lack of taste and dry pasty…
Fluid in middle ear post radiotherapy
About 2 weeks before I finished my 7 week radiotherapy course I noticed my right ear felt blocked. I was hoping it was just wax but apparently I have fluid in my middle ear. This is a radiotherapy side effect and I'd like to hear(pardon the pun) if anyone can tell me if this goes away by itself. The specialist was already…
Pills that cannot be crushed for Feeding Tube
Asked 2 Pharmacists, one w/CVS, if the meds I am on are okay to crush, mix with water and shoot into FT. One did not know. The other thought one was okay, but another one he didn't. So, I did some searching. ismp.org/recommendations/do-not-crush ismp stands for Institute for Safe Medical Practice. The one med I was told by…
Food TEXTURE (not taste)
Hello all, I'm new here, even though I've just finished my treatment protocol. I'm a 44 year old female, mother of 2, career as a veterinarian, diagnosed with nasopharyngeal carcinoma back in June. I recently completed 35 rounds of radiation (on 9/20) + 3 rounds of chemo (various protocols, stopping early due to side…
Sore throat so soon, normal? Location of symptoms? Also remedies?
I woke up yesterday with the sore throat I was told to expect. The thing is, it is pretty bad and I have only had 11 out of 33 radiation treatments. For some reason I was under the impression that the side effects only got bad for the last two weeks or so. I'm seeing my radiation oncologist today, so I will ask her too,…
Can nasopharyngeal carcinoma be treated without radiation?
Hi, I was diagnosed stage 4c NPC with mets in September. Was told 5-10% chance of survival with no chance of curing the disease. Have finished 3 rounds of neoadjuvant chemo (Cisplatin,Taxotere, 5FU). I also have worked the last month with a healer. A month ago, after the 2nd round of chemo, I decided not to do radiation,…
Best Drinks
I know there was a recent discussion here about the best drinks for calorie intake. Not homemade but stuff you can purchase. I think there was a mention of a variety of boost that was extra high calorie but I can't remember the exact name. Maybe someone here remembers. Maybe boost HQ or something like that. Whatever it was…
Mucus everyone hates
How to make Thanksgiving livable
3 days of radiation left. Last one Wednesday before Thanksgiving. Last chemo cisplatin will be decided on on Wednesday and given on Friday if he is able. Not eating. Barely doing 4 cans of tube feeding per day. my husband fee absolutely awful. How can I help him?
Metastisized SCC, HPV & Occult Primary
Just found this site and Discussion Board today and am hoping someone can share their experience with similar scenario. My 73 year old husband was diagnosed in July with SCC, HPV16 with Occult Primary in the neck. It had metastisized to his lymph nodes on the left side of the neck. He had surgery in Ocotber, removed a…
Skin help neck radiation
Suggestions for helping pain and healing for neck radiation skin.
Adding to Superthread
As many of you know, I am on a FT for the rest of my life. The Superthread does not have the option of adding. There is a section dedicated to Feeding Tubes, but I do not see 2 critical issues: 1) Amount of calories/day and water, based on height & weight, and 2) Crushed or liquid medicines put into FTs relative to the…
Best Health Insurance
Thank you all for your advice on my previous post regarding my mother in law that we think might have some sort of throat cancer and no health insurance. She is seeing the ENT in a week and will be paying for that appointment out of pocket. She is looking at Obamacare plans currently, but that won't kick in until 1/1/20.…
Best cancer center for H & N?
I would love to hear recommendations for great H & N cancer centers. Currently, I am being worked up at Moffitt and was quite satisfied with the way things were progressing up until last week. The main issues I am facing are lack of transparency in communication and a sense that am being manipulated. These two issues are…
ROLL CALL 2019 - THIRD UPDATE OCT. 22, 2019
PLEASE READ ROLL CALL 2019 Third UPDATE October 22, 2019 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. ROLL CALL Guidelines:…
Radiation burn healing environment: Moist vs Dry
I am suffering from some pretty bad radiation burn -- moist desquamation over a pretty large area. It is by far my worst side effect so far. I have two rounds of radiation left to go. I am considering requesting a referral to a wound care expert, because I am more and more convinced that my radiation oncologist is not…
Change?
How far into radiation did you notice tumor changes?
Neutropenia delay cisplatin second dose. Scared it will lessen curative radiation.
My husbands second dose of cisplatin is delayed due to neutropenia. How many of you experienced this? We are fighting HPV tonsil cancer.
Treatment options
I have metastisized HPV positive 16 throat cancer in my lungs now. I have been given two treatment options. * Fifteen treatments of radiation first and then follow-up with chemo or immunotherapy as denoted by testing. * Chemo or immunotherapy as denoted by testing The radiation is "out of the box" as being offerred by my…

Head and Neck Cancer

Discussion List

Discussion Boards