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Newbie From Miami area
I am a new member of the semi-colon club and look forward to sharing thoughts and ideas with other members. My story is a little different, though, as the day after my surgery (in late October), when I was sitting in a chair in recovery, I had a heart attack and came pretty close to dying (by the way, I am a "young" and…
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just want to chat
March 2nd my mom passed away. We used to talk on the phone often. She always listened. Back in Feb of 09 she found out she had AML (cancer of the blood). I stoppped working and moved in with her to take care of her. She never gave up!! I'm having a really hard time now that shes gone. i tryed to prepare everyone around us…
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looking for support groups in Tampa Bay Florida
Having a hard time finding cancer support groups for those infected. Moffitt has one Tues at 1 o'clock but other than that I have found nothing. Chat room here which has been good but looking for more to chose from. Tues is my blood work up day normally. Just found out I have non hodgins lymphoma and done first chemo and 5…
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52 year old gay male with stage 4 melanoma and stage 4 liver cancer seeks friends
I have stage 4 melanoma and stage 4 liver cancer, they gave me 3 to 9 months to live, I am now going on 10 months and feel better then ever, go figure, Im back at the gym, no signs or smptoms yet, have drs stumped, also im poz as well, im a medical mess but im a medical wander!!!! they cant figure me out, im just going…
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New in SF with Liver Cancer
Hi, guys... I was diagnosed about 3 weeks ago with liver cancer and I'm still just getting very basic info. Just filled out my advance care directives and in a couple of hours will be having dinner with my partner and the other 2 guys backing him up on the form. I want to keep it upbeat, but I just feel tired... hell,…
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Support Group in SF -- "Jeffrey's Place"
Last week I attended a drop-in support group for GBT men with dealing with Cancer. It was small, but very good. There were two facilitators, one is a survivor, the other a caregiver. Besides myself the other two who showed up included another guy who was newly diagnosed and another who has been fighting his cancer for 5…
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Sex after recovery
My partner is a survior of rectal cancer. He finished his treatments 9 months ago and it has been a full year since the ordeal started. He has lost all interest in sex. We go weeks, even months without having sex. I try to be as understanding as I can, but I don't know what to do to help give him back the "desire" to have…
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Anyone got financial advice?
Hi everyone. I was diagnosed last week with colon cancer. I am scheduled to have colon re-section 12/22 and was told I will be out of work about 6-8 weeks. I have great insurance that is going to cover medical bills, but I only have 2 weeks of vacation time to help pay other bills. I don't want to end up homeless after…
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Thinking of Limey
Hi All, I took the liberty of copying this from the colon cancer forum. For those of you that know Mark, please send some good vibes his way. Thanks, Susan H. Greetings, Troops! Appears as though we have another soldier needing the support that only this group can offer. Known here as "Limey," Mark is having some painful…
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My Partner is blocking me out.
My partner of 20 years just got done with radiation treatments for tongue cancer. He had part of his tongue removed along with some surgery on his neck to remove some lymph nodes The radiation treatments have made it uncomfortable to talk . He also is battling with HIV and his T-Cell count has dropped below 50. When I try…
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Double whammy
My partner of 15 years has stage 4 renal carcinoma with mets in his lung and brain, and so far I have been able to be the caregiver he needs and the caregiver i knew I could be, which has been great. A # of weeks ago I was rushed into emergency surgery for a tumor on my small intestine, and as a reult was given a diagnosis…
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New Here
Hi guys. just joined CSN because I'm desperate to connect with people who can relate to my experience. My partner of three and a half years who was my main support decided to leave me recently. I was diagnosed in May 2005 and finished treatment in April 2006. Now trying to figure out how to live. I appreciate any feedback,…
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A little lost
Hi all; My partner of 14 years has benn diagnosed with stage 4 renal carcinoma that has metastisized in the brain, he has gone downhill very fast, and I know I am going to lose him soon. I just wondered if there is anyone out there who has gone through this and would like to talk, or just listen it would be a great help.…
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Troubled Angeleno cancer survivor who doesn't want to resume life as normal
i'm a 22 year old gay testicular cancer survivor in culver city, i went to LMU and work in santa monica area, and am happy to be alive and happy to have gotten the cancer that i got because it has such a high survival rate if you catch it in stage one, but i've been emotionally scarred by the whole thing and am having…
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test
please disregard
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Recurring Prostate Cancer in Indianapolis
Is anyone around in Indiana with similar situation. Undergoing Lupron hormone therapy and Casodex. Recently joined a small mixed support group which is allright, but would like a one to one discussion with others.. I am 68 and live on eastside... Thanks John
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Peyronies Disease
Hey guys, hope everyone is doing well. I suspect that my erection problems that have been diagnosed as Peyronies disease resulted from the radiation I had aimed at my pelvic region for rectal cancer. Has anyone else ever had this and have you had successful treatment?
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ct/pet scan update
Hi all, it has been a while for me posting but wanted to send an update. quick history. Feb 2004 stage II CC had resection and all great. re-occurance one year later. stage IV spread to my Peritoneum. I am currently on my 5th go at chemo. Further surgeries are no longer an option. I had my CT pet scan today and not great…
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Update.
Hi All. I had another scan today and the cancer is showing progression on my left side and a new spot outside my lung. Oncologist feels the Xeloda has stopped working so I will start on Irrenoteacan (sp) next week. The tumor is pushing on my colon wall and causing a fair amount of discomfort so I am hopefull this regime…
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Hello out there!
Although I have a post on the colorectal board it is great to find some gay men who are going through what I am going through. It has been difficult to find men with rectal cancer who are willing to talk about what is happening to them let alone gay men. You would think that in NYC, it wouldn't feel like I'm the only one.…
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Boston support
My name is Paul. I am an anal cancer survivor (4 yrs). My partner, Peter, is also an anal cancer survivor. We are available to any gay men in the Boston area for support with cancer treatments and recovery. Especially anal-rectal cancer. I will check here periodically to see if there is anyone interested in support.…
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update on my status
I posted my status on the colorectal board today. below is a copy of that post. Had my CT/Pet today and not the news I wanted but then again, I am still breathing and still smiling. Tumor load was maintained but no reduction with this round of chemo so far. With more time on the Xeloda, I may see some tumor reduction. They…
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43 year old recovering from LAR
It is too bad that as a gay man, I can't seem to much support information concerning cancer. However, I am glad to see this discusion group. On my 43 birthday (past Jan) I found out I had a villous polyp than showed cancer. They were unable to removed the complete polyp, and I was told that to remove it part of my sigmoid…
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good news
Hi All. Just got back from the Onc and it was good news. My web page has the details on my cancer. So anyway, the good news. Liver tumor - for sure gone gone gone. Tumors in my abdomen - NED. last tumor was on my pelvis and the rediolisigst wrote that he was not willing to clasify it as a tumor now as it does not show…
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PET scan comming up
Hi all, I have another PET scan comming up on the 21st of this month and am a bit concerned. I have been having more pain than usual in my colon area and my hips, and I am wondering if there is growth. I am currently on Xeloda and will more than likely ask to stop for the summer as I have had more than enough of the side…
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keeping the lines of communication open
Hi all, just checking in. All is o.k. Chemo is chemo but am getting through it this time alright. don't hesitate to post if you have questions, comments or concerns.
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Happy weekend
Hi everyone, it is a beautiful day here in sunny MN. Tomorrow is supposed to be in the high 80's Yipee. take a day this weekend and put your pains and troubles aside and just enjoy. I plan to waddle on down to the lake and watch the loons. Life is still pretty good if you make it. Peace Limey
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keeping the chat alive
Hi all you gay men that have or are affected by cancer. I just want you to know this stage4 semi-colon is out here fighting a good fight and finding ways each and every day to live life not just survive. I have been on xeloda and avastin since dec and have one more round before my next PET scan. I am loosing the skin on my…
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The pain has been terrible, when will it end?
I am a 30yr old gay male, who is also HIV+. Finding out that I had anal cancer after battling HIV for 9yrs was quite a blow, but I made it through. The tumor is completely gone and the pain has eased tremendously, considering. However, when standing I feel this terrible pressure, like gravity pulling at my anal area. This…
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Decisions to make
Hi all, I am 45 y/o first diagnosed with stage II colon cancer in 2004 I did a resection and 6 months of chemo 5fu. Re-diagnosed Nov 2005 Stage IV. the plan was to do Chemo and then surgery. I did 5 months of FOLFOX and wend NED so they could not do surgery for the cancer as they could not find it. I did have surgery at…