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still hurting after 1 year
Thankfully my husband got a positive report after his 1 year postop from colorectal resection surgery for stage I cancer, unfortunately his problems with painful and hyper-frequent trips to the bathroom haven't improved much. He has tried fiber, no fiber eliminating certain foods etc. Nothing seems to help. Does anyone…
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Post Surgery Update on Dad
Surgery went well yesterday. They were only able to do about half laproscopically the rest had to be done old way. No need for colostomy which was great news. Dr said everything looked good as far as he could see. But we all know we we need the path report to tell us what's what(about 10 days he said) and Dad needs to go…
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first time to any chat room...
Hello .... I have had small cell colorectal cancer twice -- initially in 2/03 and then a return of cancer in 2/05 to the outside of the rectal wall. The first time around I had chemo (carbo platin and VP16) and radiation. The second time I had surgery with internal brachy (sp?) radiation, then two sessions of chemo. I…
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scared
I called my nurse to see if she could give me the results of my pet scan.She didn't. The last time she did this it was bad news. To refresh your memory, I have been on chemo for 6 months trying to get rid of 2 smal tumors in the psoas muscle. The chemo shrunk one but the other grew a little bit. The pet scan was to…
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GOT SOME GOOD NEWS
Say my surgeon on Monday, 14 May for a follow-up visit to my colon reconnection surgery of 27 Feb 07 and I FINALLY heard the words I have been waiting to hear. YES I CAN BEGIN WEIGHT LIFTING. Hurray. I will be gym shopping this weekend.
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Really rough nite for us
Sadly, our 11 year old faithful German Shepard, Shadow, died tonite suddenly. I guess it was better that she died at home with us then having to bring her to have her put down. Right now , my heart is very heavy . She was primarily my husband's dog and devoted to him and he is taking it very hard. In all these years I've…
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Juicing
I was looking into juicing? I'm really not very good at eating all my fruits and veggies,and I've been looking into a juice machine and maybe a recipe book on all different kinds of juices. I don't how to start so I'll take any and all advice. Lately I've been craving sweets so I would like a healthy way of getting rid of…
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Interview with Stage IV survivor.
Hi! I just wanted to share this radio interview with you all. My friend Suzanne who is an 8 year Stage IV survivor with metastatic disease was interviewed. It may be of interest to some of you because she discusses SirSpheres, helpful websites, etc. Cheers, Susan…
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upcoming scan
Hi all, As many of you know I have started to be a bit more active lately on the board. What you may not know is that I also post on another board called Gay Men talk about Cancer. I mention this for two reasons. First if you know of anyone that this board may benefit please direct them there. Also I have a PET scan next…
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How do you stand insurance issues?
Hi - So I just checked my insurance online and my 4/11 PET scan was "denied"! Reason - this charge is not one your provider is allowed to bill! OK, this has to be a clerical error (perhaps an error on purpose?). Why do I need to go thru this stress. Can't talk to a human until during the day tomorrow. I absolutely HATE…
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Sores in Throat and Mouth from Chemo
Hello, My grandmother was just diagnosed with rectal cancer about a month ago. Her treatment so far has consisted of 5FU and Leucovorin for 5 days, Radiation for 6 wks, and then another 5 days of the chemo. She has gotten these terrible sores in her mouth and throat and is unable to eat or hardly drink anything. Dr. has…
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Dancing the happy dance!
Hi all, Well just got back from my onc.. and got the results of my PET/CT that I had done last Tues.. once again, God has blessed me.. and I am NED. I was dx in July 2003 with Stage IV that was on the outside of my colon and spread to my ovary. I had surgery, a colonostomy for 18 mos. which I had reversed. And 5FU and…
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CT Scan/ MRI APPROVED!!!
Finally, my scans are approved, and scheduled for tomorrow (Tuesday) and Wednesday!!! The insurance gal called this afternoon and had the imaging center on the other line...set both up...so, now we can get to the 'bottom' of this..heeheehee! Thanks for all your good vibes and well wishes! Hugs, kathi
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Free Greensboro, North Carolina Patient/Caregiver Seminar
Conversations about Colorectal Cancer: Finding HOPE (Healing. Options. Peer Support. Education.) in your Community presented by the Colon Cancer Alliance are free one day seminars intended for colorectal cancer survivors and caregivers. These seminars will offer information about the latest treatment advances and give…
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My family letter - is my mom dying everyone?
HI ONLINE FAMILY, AS I SIT HERE AND BALL UNCONTROLLABLY... DON'T KNOW WHAT TO THINK OR HOW TO FEEL. WE JUST CAME BACK FROM MY MOM'S CLINIC APPT. SO; PLEASE READ BELOW... I JUST WANTED TO GET ANYONE'S THOUGHTS, OPINIONS, SUPPORT, WHATEVER ON THE NOTE BELOW THAT I JUST GOT DONE WRITING TO MY FAMILY REGARDING MY MOM SO...…
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hello everyone from the sunny....
Hey Guys, Wanted to check in. I am in the sunny Caribbean on a cruise with my family. I am celebrating my 3 years ned. I wish you all could be here with me. To all newbies there is hope, I was stage 2 May 04, colon blocked had temp bag than resection,6 months chemo. Attitude and a lot of faith a big part of beating this…
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Getting a LITTLE mad...and sad....
Well, tomorrow will have been a week since my onc asked for a CT Scan...STILL no word!!! On Thursday, I called to ask if anything had happened, I was told "Nothing yet...But it was ONLY Monday"....sigh....I patiently explained that 2 hours after leaving the office, I had a raging case of canceritis, and I had it in my mind…
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3 weeks off chemo and walked 5K
I just wanted to give hope to others. I was dx in Oct 06 with stage iiic colon cancer, just finished up 6 months of chemo and today walked in the Soleburner for Cancer research in Appleton, WI where I live. Yesterday got my NED results. Yes there is hope, keep praying and think positive.
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And So It Begins
Hello everyone. Although I have not posted, I have followed this board daily. All I can say is wow I feel very informed. Thank you. Thursday my Father will undergo his colon resection. We are praying that the surgeon will be able to do the surgery using the laproscopic method as my Father will have a much shorter recovery…
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New message - nowhere
Hi all - I posted a new message - it didn'g show up anywhere - just trying this as a test. Anyone else have this happen? Betsy
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To ahamilton2/Question for You
Hello: I am writing to you because I saw your response to someone about your stage IV colon cancer. My dad has stage IV. He was diagnosed in 2002 (multiple surgeries and treatments since then). One of our surgeries took place at Johns Hopkins so we are familiar with that hospital and love it. Until September 06, his cea…
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bleeding..
Well..I'm back from my mini vacation to Puerto Rico !but something happened twice while there...I bleeded after #2...I was kinda constipated...actually it hurted a lot....hemorroids, maybe ??? Scouty, Kathy...glad to hear about your results !!! My pet scan is on Tuesday...pleaseeeeee send some good vibes to texas... Thanks…
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for newbies or stage 2'ers
Sorry I have not been around to answer some questions guys n gals but I thought a little reassuring comments might be worth a mention. My profile briefly; Dx'd stage 2 aug. 03 with sigmoid cancer, 3/4 blockage, surgery for high anterior resection, 6 months chemo(5FU/ leucovorin). Status now; NED( no evidence disease)…
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oxy side effects
hi everyone, just a question about my folfox treatment. Ive had three treatments and my forth on Monday . it seems the sensitivity to cold lasts longer with each treatment. the last treatment lasted ten days. the first two treatments lasted about five days. I wonder if it something I'm doing or not doing or is it normal to…
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NED after 7 months of chemo
I just got my CAT scan results and I am NED after 7 months of . I am celbrating tonight.
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neuropathy update
Hi all, Wanted to give you all an update on the neuropathy cream I have been using. I have been trying to find an effective dosage after infusion of FOLFOX and Avastin. I used the cream before starting my chemo treatment last Wednesday. I didn't have nearly as strong of tingling and cold sensitivity as normal. I would say…
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Still Dancing with the hunk, NED
I just got my results. It was the first time I went to the 6 month interval for testing and I was pretty nervous. Brief history, stage IV with mets to liver and left lung....stopped chemo in Oct. of 2004. My oncologist says I am only one of a few patients of his that has gone this long in "non-surgical remission", it is…
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To all the Moms & Daughters & Sons
Happy Mothers Day. I know that for many of us, the day will have it's joys and sadly it's sorrows. To those who have experienced the loss of a mother or child, I sincerly hope your wonderful memories will make the day a good one for you. I still miss my Mom a lot, (especially now ) although it's been almost 10 years . She…
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Post Takedown
I'm 10 months out from my ileostomy takedown, and Im happy to say the insanity has passed. I was going up to 30 times a day for 6 months plus with incredible burning pain. Not hard to imagine why the burning! I have dialed in a pretty good diet. Can still have a few hours a day to work things out, but nothing like before.…
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Pet Scan Results - Not Good
Well, my dad got his results today and we do not have good news. Diagnosed 05/2002. Multiple surgeries. As of 6/06 - NED with a cea of 5.5. In September 06, pet showed multiple spots in liver (did not give number or size - find this odd). At that point cea was 55. CEA climbed to 189 by end of October, very aggressive. Went…