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my heart is breaking NG tubes everywhere
its 3am level 8 saint vincents hospital. i think my pain killers have kicked in at last. i just walked up the hall to loosen my bowels. what did i see ? well level 8 is the colorectal floor. today and tomorrow are big op days here. so many sweet old people with ng tubes and a few younger ones. all the beds are full here.…
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I need help with appetite
I feel like I shouldn't need this kind of help when I have been in treatment for so long, but I rarely had appetite problems before. Now it seems to be an on-going problem, off and on. The dietician at my cancer centre has given me all kinds of samples to try - ensure, boost + several others. None of these appeal to me. I…
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I forgot
I was busy catching up on the forums and had forgotten to mention - I am home form MSKCC! What a good feeling that is! Things are moving along. I even mowed the lawn yesterday. It took all day and it is normally a one hour event, including the trimming, but I count it as a major accomplishment considering I had been home…
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No Chemo or Chemo Lite if you were in Remission?
Got some good scan results today. Doctor says I'm in remission, said all the tumors melted away. He gave me a choice of a chemo vacation or chemo lite. I choose the lite, just a little scared to be completely off of if. What would you do if it were you? Do you think I choose the right thing? Thanks for your opinions! Viv
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New regimen - Folfiri w/ Avastin - help please??
Hi all, I'm asking for a little help tonight... Unfortunately, Rick's scans today revealed tumor spread in the peritoneal cavity, so he'll be starting back on chemo in a couple of weeks. We met with both his oncologist and HIPEC surgeon today, and they indicated that it's just a wait and see approach now in terms of future…
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Jaundice
Hello, I have recently been diagosed with Jaundice. I go into hospital tommorrow for a scope to see if my gallstones are blocking my bile ducts. My daughter told me this past weekend that my eyes were yellow. I told her that was not nice to say to someone with liver cancer. My skin has been very itchy to where it wakes me…
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update on bloated abdomen
Well finally got a call back from Onc. He wants me to do a ultra sound and complete blood work when I return to Michigan from Florida in two weeks. I have had this bloated abdomen since my 12th folfox treatment back in March 2011. I was declared again NED after ct scan in March as well. CEA less than one and liver normal.…
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6 vs 12 treatments Folfox 5FU Oxal
Hello everyone, I was diagnosed in Jan with 3b, had surical resection and am only scheduled 6 treatments, part of clinical trial, anyone else involved? I am still not sure if I want to participate or if I should drop out of clinical trial and go for the 12. Appreciate anyone experience or thoughts! Thanks so much CJ
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Treatment centers
Just wondering if anyone has been to The Issels Treatment center in Santa Barbara Ca or Sloan Kettering in NY. If so what did you think of the care/protocol? Thanks JP
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more questions
if a Dr. says "6 months left to live and you've already used 2 of those" what can I expect? I mean, I know that they don't really know "when" but they have to be semi-close, right? (this is for my Aunt who has stage 4 colon cancer and it's already spread to various other organs including throughout her liver). the Dr. also…
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anyone know % of people with KRAS
I'm happy for Linda's son that he about to start Erbitux. I think the way it works is a good arsenal against fighting the tumors. I was highly disappointed yesterday, found out I have KRAS-mutation, not the "wild" type. I will not be able to use Erbitux. I'm feeling really low, nothing goes my way. Have to start on…
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now you can call me porky, guess who has bioactive pig stomach mesh in his hernia repair ? oink oink
how interesting ............... luckily i have always loved pork belly. ironic that i don't eat pork now. now i can research bioactive pig stomach mesh and orthoplex collagen pro. and interesting article on hernias link only below the key to avoiding hernia appears to be good scar tissue. helping our body heal well is so…
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Bruising/bleeding
Husband has been treated for stage 4 colon/liver for last 20 months. He is now on erbitux every 2 weeks. Has been bleeding a good bit from stoma, had a clear colonscopy last week. But they don't say why he is bruising so much, and bleeds so much from any little tear in the skin as well. Constantly has spots on his arms,…
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Back to work tomorrow.
Well after radiation/Xeloda, ostomy surgery & 12 rounds of folfox infusions a year later my Onc released me to go back to work. Still not NED as have a CT scan coming in July and another colonoscopy for sept. (praying and keeping fingers crossed) Really didnt think my company would still have my position open (hired a…
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Started Folfox for the second time today
Well started back on folfox + avastin today. Everything went smoothly, no problems. But about half way through oxi infusion I could feel the cold sensitivity starting, It wasn't painful or anything could just feel the subtle change as I was drinking cold water. I did get the cal/mag infusion both before and after the oxi.I…
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Maglets
I am doing very well Maggie...our magazine and related business has really taken off this year. I have been traveling for the past month and leave again tomorrow to go to Quilt Market (B2B show) in Salt Lake City. I still have residue from chemo - bad memory, bad hips, etc. But I am not complaining. I know how lucky I am.…
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Mets to liver
Just an update on my mets to liver which were noticed in January by Hospital 1 on cat scan taken because of er admittance for diviticulitis. No contrast by mouth on this one. So my onc is at Hospital 2 and he ordered a c scan in February (prior to that I had one in October 2010, supposedly ok. at Hospital 2) Febr scan…
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Here I sit
Here I sit. Tired and sore and wishing I was home. MSKCC is a wonderful hospital with great staff and facilities. I am sure I could not have recovered from the surgery as quickly at home, but I have become restless and this place has begun to wear on me. I am scheduled to go home tomorrow, probably late afternoon. What an…
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A good laugh, at my expense
Little off topic, but I figure as the old saying goes, "Laughter is the best medicine", sooooo...Here's one at MY expense :D I've found proof that electrical impulses in the body travel faster than the speed of sound. Here's my empirical evidence... We've been having a HORRIBLE time with mice recently, and had purchased a…
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Son starting Erbitux-who has experience with it and how it works
My son is starting Erbitux tomorrow, I was curious what others know about it. He will be on it and the irontican (I think I just misspelled that)for however long this works. This will make his third round of treatments. The first worked for about 9 months, the second only 4 months, truely hope we have beeter success with…
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Countdown begins again
My mom had her CT results and they showed no new growth and what was there is either unchanged, smaller or undetectable (great news going into Mother's Day weekend). Our spirits have been much lifted! She will continue with the chemo every other week with another CT in 2 months. Hoping for good news again in 8 weeks.
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could use some input here
hey guys, will give the short version, i had my 2nd colon resection in feb, there were 2 small tumors that they couldnt get to one on the abdominal wall the other on my diaphram, was a candadit for cyberknife but that was ruled out, now its radiation, but they also want to chemo as well, i had 10 rounds of chemo after the…
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Hey Pepe
You gonna go see the live "Angry Birds" game in Barcelona ???? Hugs, Angela
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clinical trial adomet (SAMe) helps heal folfocked liver damage UPDATE not phase 3 study
hope for all new folfoxers sorry but folfox can really damage your liver, in case your onc failed to advice you. see the study, this is from 2003 and a more recent from 2011 why am i the only digging up the relevant trials that can save our butts. our survival is supposed to be a team effort. posted this on colonclub as…
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Buzz!! Where are you? How are you, i missed you last weekend!
Evereything going fine with your dometic problems?. Hugs!
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Getting ready for Erbitux
Hello all! Although I rarely post, I consider all of you my friends. You all keep me going and give me a wealth of information. I am getting ready to start Erbitux and just wanted to hear some of the side effects you all have experienced and how severe. Thanks for all info. Love you guys!
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still waiting
not too sure how to use this site yet. Its so wonderful to get all this support. I really need it. I live in NE Penna. I have been a widow for 13 years and I have chosen NOT to tell my 2 daughters until I know for sure. Ive been sitting on this for over a week and its killing me. I called the oncologist yesterday, a PA…
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still waiting
DO YOU BELIEVE I AM STILL WAITING TO HEAR ABOUT THE PET SCAN FROM FRIDAY. I JUST CALLED HIS OFFICE. RIDICULOUS
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Pete
Pete how are you doing? How is the fever, what about the infection? Thinking of you. Love and hugs, Gail
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Surgery #2 with cimetidine, details, details, UPDATED
Wife's 2nd surgery starts shortly. There have been hassles, trying to arrange extra testing at long distance, Admissions is contract staff preoccupied by marketing games, and double checking the pre-op preparations. I had easily gotten the surgeon's agreement to use cimetidine instead of their regular proton pump inhibitor…