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Happy Birthday Brian
Today is my husband's 55th birthday, and although he is spending it in the chair getting his erbitux infusion, I'm just happy he is here for another one. Hoping for many, many more for him, and for everyone fighting!
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10 additional months of survival when continuing with Avastin at progression, study suggests
This may be highly relevant to some of you who are stage IV and using bevacizumab (Avastin). From July 2011 Issue of Hematology & Oncology Title: Highlights in Metastatic Colorectal Cancer From the American Society of Clinical Oncology Annual Meeting June 3–7, 2011 Chicago, Illinois At the 2011 American Society of Clinical…
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I feel like Job
Just found a lump in my breast. Very suspicious and my oncologist agrees. I'm signed up for a mess of tests on Thursday (mammogram, MRI, biopsy). On the one hand, I feel strangely calm -- I'm not someone with no history of cancer for whom this isthe first news. Also, I'm already in treatment -- this will just be another…
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Social Security payments
Hi! It's been a while for me to post anything I hope and pray for everybodies health and Peacefulness throughout these struggles. I'm currently holding on in remission I still have Side affects but tolerable. I'm so sorry to hear We lost Lisa she was a great inspiration I'm very Happy she is at rest in heaven with our…
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first PET scan for me. What to expect ?
Hi y'all ! I got the appointment set up -finally- and will go for my first PET scan next week to get some clear understanding of where I stand. This uncertainty has driven me bonkers and I am looking forward to at least knowing what I am up against after 7 months of this rollercoaster. However, as this is the first one, I…
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I get so depressed.....
Hello Everyone, I've been lurking for about a week now and I've learned SO MUCH from you all, Thank You! This is kind of long but if you'll help with this problem I promise not to have long posts in the future, but I felt you needed to know a little about me first. I'm married to Jim, who is absolutely WONDERFUL dealing…
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scan thursday-accepting all prayers
This will be my first scan since my wife has left me 2 weeks ago. Under a lot of stress past 2 weeks but hoping for positive results. I have a lot of friends pulling for me, but I know the people on this forum know exactly how I feel. thanks chuck
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A doctor's rap on importance of colonoscopy:
healthcarecommunication.com/Main/Articles/Watch_this_colon-cancer_rap_video_8479.aspx
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Count Down to Lung Resection!
March 1st- thoracotemy to get rid of the tumor. It still seems surreal that I am going thru a big surgery and the ensuing recovery for a small spot and for something I have NO symptoms of. Am I being naive, that, compared to what I orginally went through, this is "no biggie"? It's like, I feel I should be far more diseased…
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BUN question
Hi everyone..... Today Carls BUN spiked to 44 he isn't getting all the iv fluids he was before and they aren't giving him anything for swelling like before when this happened and it is higher than ever before. I noticed today they ran 3 extra tests than normal concerning the area. His urine is testing positive for…
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Vectibix/Erbitux
Has anyone had a sore mouth/tongue as a side effect. I feel like I burned the roof of my mouth and tongue. It is sore all of the time, especially when I eat. Salt, viniger, mouthwash are almost unbearable. Your comments/suggestions would be greatly appreciated. Jeff
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Anyone have rectal resection and liver resection as one surgery?
If you have any experience, what should we expect? Thanks
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My niece
I wrote here in October of 2010 when my 28 year old niece with a one year old baby was diagnosed with colon cancer that had metastasized to her perinea. She has been through two courses of the type of chemo that causes loss of sensation in the feet and hands, but you don't loose hair. She went in for another CT scan…
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I'm back!!!
Hello all. I have not posted lately, but read almost daily. For those of you who do not know me or remember me, I was diagnosed with Stage 4 CC with mets to liver in July of 2009 at the age of 38 with an immediate colon resection that month. I then did 4 months of Folfox with Avastin. I was sent to Miami and was told I…
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Colonoscopy tomorrow
Hugs family no news on my scan results yet, hopefully today or tomorrow might hear something as my main cancer nurse has come back from holiday. Tomorrow have a colonoscopy, last one I had was when they found the tumor in 09. I know everyone is going through so much, feel like a fraud for asking but appreciate any…
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Update on my mom.....Granny Smith
Sorry I haven't posted anything in a while. Things are not good for my mother now. She was admitted to the hospital last Saturday for throwing up uncontrollably and they had to do emergency surgery. Her tumor on her colon was blocking her intestines. They had to do surgery to give her a colonospocy. There were other things…
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HI mates it is FRIDAY any interesting plan for the weekend?
Weather is excellent here probably go to beach house to take a look and put things in order for Easter holidays . Sunday Family Lunch with mum. What about you?
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Questions for Stage IV with KRAS Mutation
for those of you who are Stage IV and Kras-mut, how has your Onc delt with not being able to use EGFR inhibitors (eg erbitux)? what is (or was) your treatment plan beyond 1st line therapy? thanks peter
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Telemarketers
Well, the phone rings, just can tell it's one of those calls...we're intalling windows etc in your area would you like a free quote. This time it was a woman, selling garbage bags for colon cancer research!!! What?? Really??? She was saying "colon cancer" in a tone like no one hears of this....she sounded all prepared for…
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post surgery xeloda?
my husband (37) just started his post surgery chemo. he had resection & temp. illeostomy. the results after surgery were good (T3N0M0) and an almost complete response to treatmnet with 2-3 found dead cancer cells and nothing in lymph nodes. our onc decided that he will give him around 5 months of chemo. initially before…
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A quote I thought you might like.
Despite the high cost of living, it still remains popular.
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Shaved head today.
Tried to hold off as long as I could but was getting tired of dead hair in face on pillow ect so had it all shaved today. My neighbor had a electric kit & did the honors. Had a little fun 1st, cut to a mowhawk style for a few hrs to freak some people out then cut it all off later. Feels much better now.
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cancer family
I have an unbelievable support system with my wife, family, friends, employer, and great doctors but as supportive as they are they will never fully understand the emotions that I have experienced 24/7 for the past 6+ years and I will experience for the rest of my life. And I hope they never do have to experience it. Evan…
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Anyone know of a treatment for Mets confined to inside the peritoneum
My wife is currently NED (for about a month). She was on irinotican and xeloda and avastin. Is there something more I should be doing with her to pursue perhaps a better treatment regime? Right now the Dr. is considering it palliative Rx. I want a hope for a long term NED and even cure (though Dr. says no cure for stage…
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I miss Lisa
Hi Friends, I am finding it hard to come here. I can't believe Lisa is gone. I miss her. I miss her friendship and her support. She was here for me for the past 3 years and I just can't believe cancer took her from us and even more from her wonderful family. I can't believe her family is without her. I miss her spirit, I…
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NCCN Colon Cancer Guidelines
NCCN GUIDELINES NCCN = National Comprehensive Cancer Network Apparently these are new, so it should be an up to date guide to the disease and the current standard of care. Blake
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Dennis Update and my funk...
Dennis is two weeks and two days out from liver resection... He is still moving very slow but did go to the barn today to brush his horse and then to the local tavern for lunch. The main nurse from UW Madison called all excited to say that his labs that were drawn last week were excellent (CEA that was 44 is now 18) which…
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staring into the abyss of mCRC
The following is about me. If you can relate to this great, however, as Phil likes to point out, we are all different and my story may not hold any relevance to you or your disease. From the time I was diagnosed I believed my cancer was a little more benign than that of others whom I met and read about. Most who had a…
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Feet and Friends Fighting Colon Cancer
American Cancer Society’s second annual “Feet and Friends Fighting Colon Cancer” event takes place on Saturday, April 21, 2012, at Hudson Mills Metro Park, in Dexter, MI. There will be a 5k run/walk and an 8k run. All ages and skill levels are welcome to participate and all proceeds from the race will be directed solely to…
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Help
I have had slowly rising CEA and liver enzymes for a year now. LFTs 4x normal. CT normal last June. I was sent by onc to liver specialist who wanted to test for autoimmune disease; then, if neg, proceed to MRI of liver and possible biopsy. This week, Autoimmune results came back positive. Liver specialist now wants to…