-
Update on my niece
I heard from my brother today through his conversation with my husband, and the news is not good. Claire is still in hospital on morphine drip and pain killers on top of that, but she wants to go home - which I can well imagine. She had a lot of trouble with her CT scan, threw up the liquid and they had a terrible time…
-
Tears...
I hate this disease! I hate what it's doing to my son, my family, our friends. I hate feeling helpless...desperate for a cure.. I hate this...I hate this ...and did I mention "I Hate This"!!!!
-
Our local fundraiser and awareness event...
In Canada, we don't seem to do much for CRC awareness month but we do have this activity coming up in June in our city. My daughter is running in it. http://ed12.uncoverthecure.org/site/PageServer?pagename=ed12_homepage Sorry, I don't know how to link. Tricia
-
For those with liver mets, no spread elsewhere:
This artilce is rather comprehensive and current as to options for those with mets only in liver; the two shorter items cited at end should also be read: Can Metastatic Colorectal Cancer Be Cured? at: cancernetwork.com/print/article/10165/2044871?printable=true Those squeamish about stats be forewarned as authors are blunt
-
Again issues with OXY.
Did you ever got severe bloated stomach while in OXALY? it's quite painful and always coincides with diarrhea episodes and lack of appetite. Your experiences will be wellcome.
-
starting hyperthermia with iv vit c, thank god, what a nice xmas present.
god works in mysterious ways. i got news today that i can start down melbourne to iv vit c and hyperthermia. its a 12 hour drive, i may take the kids and our little 4wd motorhome as i think the protocol is 6 sessions over 6 weeks. i will know more on monday when i call to book appointments. now i think i can relax this…
-
who has had very bad side effects from oxyaplatin???
dad is back on oxy with xeloda pills following for 2 weeks...this time the oxy is kicking him in the butt!!!!! he feels like he has the flu and tired...he also has the neuropathy with the cold...did anyone ever have bad side effects from oxy and if so what and how long did they last? hes discouraged (when you don't feel…
-
fermented soy anyone aka haelen 951 tastes like poison
so a $80 a bottle its very very expensive, but my doctor said he wanted me on it so i buy. this stuff tastes like poison, its the foulest tasting substance i have ever tasted. so it must be good for me. alot of interesting research. i am taking 30 ml a day. http://www.haelanproducts.com/ now ironically my other functional…
-
Husband is in OR as we speak
Hello everyone. Remember me! We found out my husband has Colon Caner Aug of 2011. Our lives have been a hot mess every since with other family personal issues. We have lost his dad and I lost my grandma. Just so much stress. He went through 12 rounds of chemo. Thank the lord he got through it and did not have many side…
-
Hello My Semi-Colons
I haven't been posting much, I'm sorry and I will catch up. I have been tending to my uncle on hospice care and we had his funeral on Tuesday. He had a wonderful life having come from very poor beginnings. The love of his life passed away 8 months ago. They were married 55 years. My uncle was 95 years old. He loved…
-
not looking promising
Hi everyone I got my warning call the other day and then 2 days later prep call telling me it was time to come back to Denver. I got here 6 a.m. yesterday morning drove all night to get here, spent all day in meetings between the kidney team, liver team his surgical team and the palliative care dr. His kidneys and liver…
-
Emotions
My husband was diagnosed with Colorectal cancer when he was 29. It had spread to his pancreas and kidney. After surgery and chemo he was told the tumor was gone and hopefully the chemo had got rid of any cells remaining. He was always very strong and positive. Then after the chemo was finished, life really changed. He…
-
CEA
Hey guys should I be worried Jorge's count this month is 1.3 and last month it was at 1.2 and in jan.it was 1.0 I don't want to worry but sometimes I can't help it
-
CEA variation - real change, or not?
there are many posts here expressing concern about changes in CEA. Having a lab background early in my career I know that all analytical results have a variation associated with them, and that results which fall within that variation cannot be considered to be different. hence, for examaple, it may be that there is no real…
-
Hi mates ,it is FRIDAY , any interesting PLAN for the weekend ?????
I will be unplugged of my port today so we will see but my idea is have Lunch Saturday on my wife's parents house and sunday with my family and mum.May be some shopping walk in between ! What about you mates?
-
Surgery
Hi everyone! My husband is scheduled to have rectal surgery in 3 weeks. He had liver surgery on 11-30-11. I was just wondering if anyone had any advice, things to expect, what to do or not to do. The plan is for him to get a temporary ileostomy also. I wondered if this surgery is going to be as bad as the liver surgery or…
-
Sunburn
Howdy all y'all! Last Saturday, I went down to Phoenix Arizona to visit my daughter and go to the Renn Fair they hold there every year. I asked her if she could put some sunscreen on me when we got out of the car and after we got parked, everyone forgot about it. I didn't remember that I needed it until way too late. In…
-
mets to abdominal skin
Has anyone had mets to the abdominal skin. My husband's cancer was in his transverse colon. Restaged 8/10 to stage 4 with mets to liver and lung. on chemo for 1 year, holding his own and then found out yesterday he has met to the skin above his transverse colon (or what used to be there) And to top it all off right above…
-
Fishing for treatment
Howdy all y'all! Awhile ago I had mentioned a fishing retreat for men with cancer and I wanted to post the information. It's called Reel Recovery and the website is http://www.reelrecovery.org physical address is 160 Brookside Road Needham, MA 02492 phone 800-699-4490. Any guys wanting to go on a retreat in their area can…
-
winter marie
I read your stoey yesterday while getting treatment. What a great story. You are just more proof that the doctors can't predict how long we are going to live and that we need to be in control of our treatments and doctors. It is awesome that you are now working on a degree.That is just another way of slapping cancer in the…
-
NIH Library of Medicine PubMed site
a good resource PubMed at NIH
-
what was my lucky number this test, when i played cea roulette ?
and after 6 weeks of no conventional treatment and intense alternative therapy the number is 28 now thats an increase of 11 over 6 weeks. i am seeing the onc tonight. my full bloods were exceptional, the best ever, so thats good news. and my blood pressure is back to 120/69/59 which is good and back to normal after being…
-
Check out this NEW site by the College of American Pathologists at :mybiopsy.org
Interesting.......site set up to help those with advanced crc,if you haven't checked it out,with updated,current info
-
Varmint5
Have not seen any recent posts from you and was just wondering how your daughter is doing. Hope all is going well. Luv, Wolfen
-
rising cea again!
Hi everyone, i am back, cause i am waiting again. After a good scan a few months ago my cea is creeping up again. from 2.0 to 4 in 3 months. bilirubin is up a bit 1.00 to 1.5. I am on the 7th round of xeloda with the last to be next month. now i have to go early on dec. 2nd for blood work so they have the next cea reading,…
-
Some heavy-duty articles
being that this is CRC awareness month alot of interesting stuff out there: cancernetwork.com/colorectal-cancer/content/article/10165/2044889 "Metastatic CRC:A Curable Disease" ecancer.org/news/2570 "A mutation in EGFR that confers cetuximab resistance in CRC" medicalnewstoday.com/releases/242796.php 5th item, on RAS -and…
-
Good scans!!
Well, picked up copy of my scans, these really had me on edge as it's been six months since I've had any chemo. So, now I suppose surgeon is gonna recommend colonoscopy.
-
stage iv survivors?
i know minni asked about the stage 3 ones that is gave me the thought, everyone i have talked to outside this board has said that stage iv is treatable and they can make you comfy whle your life lasts but it is not cure able i need to know that there is a chance to go ned and that some have gotten past the 5 years most are…
-
Bad News ? CEA Flare?
Stage IV with 12 threatments planned. folfox w/avastin after 6th chemo CEA is up from just over 300 to just over 500. had leveled at about 300 after 2nd treatment and stayed there until now. pre chemo was 1800. has anyone had a good outcome yet seen their CEA values go up like this during treatment? just got this news and…
-
Colonoscopy results
Well I was very nervous, all I could think of was the last time I had a colonoscopy in 09 I got the news that they had found a tumor. Even the consultant knew I was nervous, he asked if the prep had worked and all I could hear was polyp lol. Procedure was painful even though I had sedation. Apparently nurses said I was so…