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any thoughts? ??
hey y'all been a long time... been reading some posts & there us some newbies out there... well I have been NED since Feb 22/10... my cea started off 1.1 and had gone up & down to 2.61. its now a 1.8.. in nov10 I had a c.t. that picked up a small node in my liver but a pet in Dec was all negative..now this was in my local…
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any other men not able to ejaculate after radiation?
I guess I was not prepared for this. I have finished al my treatments including 2 rounds of chemo and a radiation series. But being left unable to perform is shocking and hard to deal with. I am also living with a bag and neuropathy, and now facing depression. But I guess Im supposed to rally in the joy of just being alive…
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FYI - in case anyone is in the area and interested
A Research Study of Intravenous Vitamin C in Combination With Irinotecan Versus Irinotecan Alone for Advanced Colorectal Cancer This study is currently recruiting participants. Verified March 2012 by Thomas Jefferson University First Received on February 23, 2012. Last Updated on March 7, 2012 History of Changes Sponsor:…
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pain will not go away...
Hi all, It has been 8 months since my surgery which consisted of the removal of all of my colon because of the tumor(right side) and Lynch syndrome positive. For the last 2 months I have been having pain on the upper right portion of my abdomen. When I tell my onc and surgeon, they tell me not to worry that it is probably…
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update on my husband.
Morning to you all, how are you all doing, just sending my thoughts to you all. We are 20 months into this life changing experience! Its so hard some days, and other times we are on a high. My husband is on a chemo break from having 2nd line, oxaliplatin, avastin and xeloda for 8 cycles for one liver met one lung met and…
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Just curious, how many here actually take asprin everyday?
http://news.yahoo.com/studies-aspirin-day-keep-cancer-bay-000306036.html Three more new studies showing the benefits of asprin against cancer. Ive heard this before but who on here is actually doing it? If not, why not? I haven't yet but I plan on starting. CJ
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Aspirin in the news
Good thing I started back on my low dose aspirin a month ago... if it helps, all the better! http://www.nytimes.com/2012/03/21/health/research/studies-link-aspirin-daily-use-to-reduced-cancer-risk.html?_r=1 better info Studies Link Daily Doses of Aspirin to Reduced Risk of Cancer By RONI CARYN RABIN Published: March 20,…
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CP Update-Husband Surgery
God is good! My husband went into surgery on Monday. Not long after they started one of the surgeons came out and sat done and said, I have something to tell you. I thought OMG! He said we will not have to do two surgeries, we can get it all now. It looks pretty good. I just need you permission to do one. I said, I wish my…
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“The Trials and Struggles of This Journey That We Call LIFE” (NEW UPDATE to the UPDATE)
I have much I want to say – much I don’t want to say. Where do I begin? My thoughts are racing around inside my head like the Indy 500. I wrote this post and a couple of others in my head on the way in this morning and now I can’t put my hands back on ‘em…they’ve sped away – out of sight – out of mind. Some good stuff…
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48 hr Fasting before Chemo - #2
This post is a followup to a post by Gabrielle (loveandhope). posting new so as not to get buried... There is quite a lot more research than I expected on the issue of fasting and cancer/chemo and, in my layman's opinion,, some of it looks promissing. For those who are interested, a good review of the topic was written by…
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Mild Hepatomegaly with fatty liver? Scared..
Hi My mom finished chemo/rad treatment for stage3c Rectal CA in Dec. She had her third month follow up of ultrasound scan of abdomen and pelvis today and the report says "Mild Hepatomegaly with fatty changes".liver size is 158mm with increase in echotexture. IHBR and CBD are normal. What does this mean? Is it the…
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are we doing enough??
My mom was diagnosed with stage 4 colon cancer with mets in liver in april 2011. Wow - you never think this can happen to you, but I was so glad to find this site and find others who are living this same nightmare. I am her only child age 42 and she just turned 65. She was a single mother, and she and I have always been…
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Now What...?
I have been having areas of my body go numb. strange areas.... Like the tip of my left shoulder blade....my hands tingle and feel like they are asleep as do my feet when I sit on the toilet. I have noticed a weakness in my elbows....so much so that it is noticeable when I hold a drink in my hands. Last night I noticed the…
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In memory of my mother
Donna Lorene Alexander Smith, July 14, 1944 - March 16, 2012 In memory of my mother You were a precious gift from God above, so much beauty, grace and love. You touched our hearts in so many ways, your smile so bright even on the bad days. You heard God's whisper calling you home, you didn't want to go and leave us alone.…
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anyone else want to do this course with me mind body mastery by ian gawler
just check it out if your keen, i signed up a few days ago because some of my mates from the october retreat i went on joined up and they said it got them back into meditation. i thought what the heck , something else to try. just posted it here in case anyone else is interested in meditation rather than medication. of…
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Update on my niece
I heard from my brother today through his conversation with my husband, and the news is not good. Claire is still in hospital on morphine drip and pain killers on top of that, but she wants to go home - which I can well imagine. She had a lot of trouble with her CT scan, threw up the liquid and they had a terrible time…
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Tears...
I hate this disease! I hate what it's doing to my son, my family, our friends. I hate feeling helpless...desperate for a cure.. I hate this...I hate this ...and did I mention "I Hate This"!!!!
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Our local fundraiser and awareness event...
In Canada, we don't seem to do much for CRC awareness month but we do have this activity coming up in June in our city. My daughter is running in it. http://ed12.uncoverthecure.org/site/PageServer?pagename=ed12_homepage Sorry, I don't know how to link. Tricia
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For those with liver mets, no spread elsewhere:
This artilce is rather comprehensive and current as to options for those with mets only in liver; the two shorter items cited at end should also be read: Can Metastatic Colorectal Cancer Be Cured? at: cancernetwork.com/print/article/10165/2044871?printable=true Those squeamish about stats be forewarned as authors are blunt
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Again issues with OXY.
Did you ever got severe bloated stomach while in OXALY? it's quite painful and always coincides with diarrhea episodes and lack of appetite. Your experiences will be wellcome.
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starting hyperthermia with iv vit c, thank god, what a nice xmas present.
god works in mysterious ways. i got news today that i can start down melbourne to iv vit c and hyperthermia. its a 12 hour drive, i may take the kids and our little 4wd motorhome as i think the protocol is 6 sessions over 6 weeks. i will know more on monday when i call to book appointments. now i think i can relax this…
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who has had very bad side effects from oxyaplatin???
dad is back on oxy with xeloda pills following for 2 weeks...this time the oxy is kicking him in the butt!!!!! he feels like he has the flu and tired...he also has the neuropathy with the cold...did anyone ever have bad side effects from oxy and if so what and how long did they last? hes discouraged (when you don't feel…
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fermented soy anyone aka haelen 951 tastes like poison
so a $80 a bottle its very very expensive, but my doctor said he wanted me on it so i buy. this stuff tastes like poison, its the foulest tasting substance i have ever tasted. so it must be good for me. alot of interesting research. i am taking 30 ml a day. http://www.haelanproducts.com/ now ironically my other functional…
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Husband is in OR as we speak
Hello everyone. Remember me! We found out my husband has Colon Caner Aug of 2011. Our lives have been a hot mess every since with other family personal issues. We have lost his dad and I lost my grandma. Just so much stress. He went through 12 rounds of chemo. Thank the lord he got through it and did not have many side…
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Hello My Semi-Colons
I haven't been posting much, I'm sorry and I will catch up. I have been tending to my uncle on hospice care and we had his funeral on Tuesday. He had a wonderful life having come from very poor beginnings. The love of his life passed away 8 months ago. They were married 55 years. My uncle was 95 years old. He loved…
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not looking promising
Hi everyone I got my warning call the other day and then 2 days later prep call telling me it was time to come back to Denver. I got here 6 a.m. yesterday morning drove all night to get here, spent all day in meetings between the kidney team, liver team his surgical team and the palliative care dr. His kidneys and liver…
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Emotions
My husband was diagnosed with Colorectal cancer when he was 29. It had spread to his pancreas and kidney. After surgery and chemo he was told the tumor was gone and hopefully the chemo had got rid of any cells remaining. He was always very strong and positive. Then after the chemo was finished, life really changed. He…
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CEA
Hey guys should I be worried Jorge's count this month is 1.3 and last month it was at 1.2 and in jan.it was 1.0 I don't want to worry but sometimes I can't help it
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CEA variation - real change, or not?
there are many posts here expressing concern about changes in CEA. Having a lab background early in my career I know that all analytical results have a variation associated with them, and that results which fall within that variation cannot be considered to be different. hence, for examaple, it may be that there is no real…
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Hi mates ,it is FRIDAY , any interesting PLAN for the weekend ?????
I will be unplugged of my port today so we will see but my idea is have Lunch Saturday on my wife's parents house and sunday with my family and mum.May be some shopping walk in between ! What about you mates?