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Colorectal Cancer

12/12/12...4 years ago
it was 12/12/2008 and we found out it was cancer. Robert is still kicking. Here's to seeing 12/12/13 with my love. Angela
Molecular Profiling of cancer – Has anyone had this done?
In helping my sister with her uterine cancer diagnosis, I have found that her surgeon sent off samples and had a molecular profiling done at the cost of over $12,500. Of course the insurance paid ZERO, so guess who will get the bill! To top it off, the requesting surgeon recommended the "gold standard" chemo treatment,…
Pet scan-liver mets to lymph nodes
Tomorrow I have a pet scan. After 4 chemo treatments before 2 surgeries and four after I have 2 new small liver mets and a lung nodule grew. Scan was clean in August so at least I had 3 months of strengthening and an appetite! The question I have: Is there a strong possibility of mets in the lymph nodes? I did not have any…
New Historic Low for My CA19-9 Test
"74" The reference marker is good for anything under <55 But, this is the very best number I've been able to achieve in just over 8.6 years of fighting. In my early days, I was in the high 600's....over the past year or so, I've still trended between 174-260. So, as I was reviewing my new CEA level...2.8 and trending a…
DNA testing in England for 1000's
SteveD I was watching BBC news tonight and saw a story about England being the first country to start DNA testing for thousands of patients....the docs that I saw seemed to think it had great implications for cancer patients. They said they hoped to be able to target cancer with more specific chemo among other benefits....…
Another Kick in the Balls
No typo in the subject title. I got my CEA today and it jumped again for 613 to 937. We are keeping in mind that this is after only one treatment of Zaltrap, the problems I've been having lately and accounting for dead cancer cells. I've also been pretty concerned about the severe and increasingly painful edema I've had in…
Seeking Advice
Last summer, I was diagnosed with autoimmune hepatitis. This seems to be complicating my CRC follow up. My CEA, previously dependable for me, appears no longer so. I have been told my slowly rising CEA is due to the hepatitis. Scans of my liver are also confused by the hepatitis. I am concerned that what I previously…
Molecular Profiling of cancer - has anyone had it done?
In helping my sister with her uterine cancer diagnosis, I have found that her surgeon sent off samples and had a molecular profiling done at the cost of over $12,500. Of course the insurance paid ZERO, so guess who will get the bill! To top it off, the requesting surgeon recommended the "gold standard" chemo treatment,…
my aunt's CEA, way up from July 7
I haven't posted in a very long time. Just wanted to give a quick update for those who remember me at all. Took my aunt to the dr. yesterday...I'll start from earlier. March her cea was 11.5, April it was 13.1, May 15.0, (don't recall June), July was 58.7, since her cea kept steadily going up he removed her from all chemo,…
going it alone
New to posting, but I have been following everyone for a little while. I have stage 4 in remission for 2 years!! no treatment, feeling really good. last few years heave been very difficuly physically and emotionally- you have to count in the crazt menopause. Anyway, my normally wonderful husband has been very distant since…
New drugs for my aunt Irinotecan & cetuximab
Irinotecan and cetuximab anyone hear of these? Any experiences. I'd like to hear anything anyone has to say on either or both of these please.
Life After FOLFOX -When does the hand/foot syndrome go away?
Hello Everyone! As you may recall, my Dad finished his last treament of Folfox about a month ago. He is still complaining about his hands and feet. He said his hands look like wax, and he doesn't really have any feeling in them. His feet feel swelled, but they look normal. He's heard that this may never completely go away,…
are you planning for RETIREMENT
This may seem insensitive.. but I was speaking with my brothers the other day.. and we were talking about retirement planning they are both approaching retirement as they are older than me.. I am 49... I have a modest 401k and some life insurance with my job and stage 4 rectal cancer... Metastisis in my lungs... I stated…
A Hole lot deeper..
The hole was deeper than imagined.. Well I had my outpatient surgery on friday to repair my Raggedy Ann Bottom that never healed proper becauae of irradiated tissue when my anus and rectum were remover 1 1/2 years ago.. the skine had twisted and what had appeared to be the end of the hole was not on the other side of the…
I've been 'graduated'....
Only once a year appointments now with the doctor!!! She was emoting over my labs, my scans....EVERYTHING....she said "You know, for a person who has never had cancer, you are healthy...but for you, after 2....WOW! this is fantastic!" Dancing! Hugs, Kathi
Hi Mates it is FRIDAY here,any interesting plan for the weekend?
I'm going to Christmas shopping , do you ladies have any suggestion for my wife? She deserves a great present . Also will be having lunch on Sunday with my family except for my sister an husband who are in London . What about you Mates?
Gastrectomy + Whipple after colectomy
I know it's a long shot...but has anyone out there had to have a gastrectomy and a Whipple following a colectomy? My husband already deals with the short gut issues from the colectomy (with J-pouch and ileoanal reanastamosis). We worry about the long term consequences of removing so much from the gut. He is 38 with FAP.…
Scan results...
Mixed bag, but of course the "bad" is getting my attention. I have rectal -- mets to liver. Last scan showed liver mets dead...caput. That still looks good. But my diahrea/constipation has increased, as well as frequency -- kind of like when I got dx 10 months ago. Anyway, the onc said it looks like the rectal tumor has…
Scan had concerns - very discouraged
Well returned from my CT and Dr.'s visit and radiologist had not read report. She said she had concern about the liver -a spot in the same area of last tumor removal. The liver surgeon had already called her to say he could do surgery again. She mentioned some type of radiation procedure to burn the tumors starting with an…
What to tell the kids
It isn't my place, since I am only the grandmother. My daughter is the one with the cancer, and she is understandably protective of her kids, ages 12 and 14. I want to tell them they can talk to me about it, and let them know I value them enough to include them in the discussion, but I don't want to go against my…
Scan result
Mentioned recently was in for scan results this week along with several others. Was all clear. It was first postop scan since amputation and as such was really meant to just document a baseline to compare future scans to if worried and not expecting problems but still doesn't stop the anxiety that they will show…
"And Now For The Rest Of The Story"
Hello All, I have been mostly silent for the last month. I have been swept up in another horrible tornado, just as I was back in 2008, when Johnnybegood uttered those words "Mom, I have colorectal cancer." At my hubby's insistence, we had not told her the news. She is feeling better, and her platelets are rising, and may…
Severe dehydration on folfox
Has any body has severe dehydration whilst on folfox. My husband has just been hospitalized as he is not recovering from his last treatment. He has his next one(no.5) in three days. They have put a saline iv up and he is being rehydrated. His blood glucose is all over the place. From talking with colleagues this can be…
Rick has passed
I'm simply heartbroken...my wonderful man passed early this morning. I held his hand as he slipped away from me, but we were able to express our deep love for each other right to the end. He had a difficult time passing since he just didn't want to go. After all, he was only 45 yrs. old with two young children. He was the…
STILL flogging a dead horse, vit d3 again, mainly for the newbies
http://www.naturalnews.com/037663_chemotherapy_drugs_vitamin_D_deficiency.html I know this is an altnerative news source, but its worth a read, gee we have discussed d3 here for years, I don't think its standard practice to be offered a top up by conventional onc's. they say 10,000 a day keeps the mets away. well it did…
Need some advice - Dad diagnosed with stage iv
Hi all - been following this board for awhile now reading everyone's stories and have been finding it a great sense of positivity seeing how many ppl have stage iv and are doing well and even NED. My dad is 63 and up until this summer has always been very healthy. Started with what we thought was IBS, then they said rectal…
what to ask the surgeon - updated - holding off on surgery
Meeting with the surgeon tomorrow -after my husbands first pet scan. He's had 6 folfox treatments...only 3 with avastin. We will be asking about his experience with the surgery. He seems to be a good surgeon, all speak highly of him...he was referred by a doc friend. another local hospital does davinci but this one does…
Three years ago tonight....
My dear friends, As many of you know, my Rick passed away on Thanksgiving morning. But it was exactly this date and time three years ago that Rick was initially diagnosed with colon cancer. He had arrived home after spending a wonderful day with his son at a Boston Pops concert. He brought me home two signed CD's by the…
What to expect after stent insertion ?
Hi, Some background: For last two years, my mother is undergoing treatment for stage-4 cancer. She has had in total 23 chemo sessions and two radio sessions so far as cancer detected three times now. First it appeared on surface of liver and abdominal region that followed surgical removal and chemo sessions. Than it…
I need help...
My wife is diagnosed with what I believe is stage 4 colon cancer. It was discovered when early one morning she had severe pains on her right side. It turned out to be several abnormal growths on her liver that was causing the pain. Now, she is experiencing the same kind of pain on her left side. She can't even lay down it…

Colorectal Cancer

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