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New to the Board Worried about CT Scan Results possible focal fatty infiltration, but can not rule o
Hi Everyone, my name is Hope. I was diagnosise with Stage IIIA colon cancer in Sept 2012. I started on Folfox in October, but have had allergic reactions to the Oxiliplatin, so have been on a desense program, where it is administered over a 10hour period of time in ICU. My CT scan in October was clear, but my reent…
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Cannot post from my phone anymore
I am at my daughters and she has a laptop. I wanted to Thank everyone for the beautiful Christmas cards. i also wanted to share the good news that I went to see my onc in Jan, he ordered an abdominal CT SCAN....results were No sign of cancer. Liver,abdomen,bottom of lungs the way I understand it.I was so relieved as I know…
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NED 1 Year
It makes me very happy to post that tomorrow, 1/31/13, I will be 1 year NED. But......this did not come without a bump. Had 1 year colonoscopy on Monday and a polyp was found. Yikes, tick, tick, tick...wait and wait...... Dr called and it was not cancer, just a polyp, but based on my history, wants to check me with a…
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great scans report! would like hipec info
jan 26th i had pet/ct scans. (i was dx dec 2010 with sigmoid cancer-stage 3. i had surg & then 12 tx of folfox6 from jan-july 2011. june 2012 i was dx with metastatic tumors in the liver, 2 abd, right ovary & lots of tumors in the peritoneal). i completed 12 tx of folfiri with avastin jan 2nd 2013. the scans showed no…
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Lift therapy
Has anyone been a part of gift or lift therapy trials?? http://hstrial-mcrump.homestead.com/index.html http://nextbigfuture.com/2011/05/leukocyte-infusion-therapy-clinical.html?m=1
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Anniversary
Two years ago today I took my husband to the ER where he was dx as stage lv colorectal (many mets to the liver), after colon, liver resections, rfa and temp ileostomy we are NED at this time. I can barely stand to call upon the memories of the day and I can't believe that after two years of fighting I am still such a wimp.…
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Pat is starting Folfiri and Avastin
Can anyone tell me about their experiences with Folfiri and Avastin? Pat (my husband) will start this on Feb 1st. The onc stopped the CPT-11 and Erbitux today because Pat's most recent CT scan is showing growth in both the lungs and the liver. Any insights would be most welcome! Ellen
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Avastin Study
In case anyone is interested.... http://fightcolorectalcancer.org/c3_news/2013/01/avastin_users_wanted_for_new_research_study
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Darn, wish I could have found blue ribbon fabric
I embroidered around the ribbon and added the word HOPE and did the no-sew for this pillow I made for my sister-in-law (she is in a breast cancer reoccurance), and I'm busy embroidering a blanket for her as well, but alas, no blue ribbon fabric for us, I looked!!! Winter Marie
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Just Call Me Numb
I don't really know what else to say. We met with MDA doc today. The cancer in the lung is adenocarcinoma, while the cancer in the mouth & lymph nodes is squamous cell. No chemo can be started until urology problems are addressed. I managed to get a urologist appt. for next Thurs. morning. Due to his serious heart issues,…
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No hair!
Hi everyone, well my husband is still fighting, and now to add to the battle is his hair loss!! We knew the new drug after 3 weeks of being in his system he could lose his hair, but still a shock, any tips on coping with this? Take care all.
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I'm still here
Hello everyone, I have not posted in such a very long time, to be be honest I forget I had cancer sometimes. Yes it is possible to actually go a few days forgetting that I have been through thell and back and it usually reminds me in a not so kind way when I eat something I shouldn't have and spend way too much time in the…
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Dutch Coronation Kathi
Kathy, Will you be able to attend the Netherlands coronation of the Prince? How exciting if you are!
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HI all, I'm new here
Hi everyone. I'm new here, been reading a lot of your posts and have found you all to be such a supportive group and full of really good information. I hope that you don't mind a Canadian in your midst, I'm a Canadian, and havent' found a lot of information on Canadian forums to help us. Heres my story: My 51 year old…
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ASCO 2013 Gastrointestinal Cancers Symposium Roundup ENJOY friends
http://view.email.cmpmedica-usa.com/?j=fe5e16727762037f711c&m=feca15707d60027f&ls=fdff10717161077d72107277&l=fecf157775640c7d&s=fe221c717562077c7d1d79&jb=ffcf14&ju=fe261678766c037d751c75&r=0 Not exactly my cup of tea, but interesting ...... more for those interested in cheno. I guess this is where the oncologists focus is.…
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Jayhawk Dan? Joemetz? Anybody heard from them or others MIA?
Just have not seen anything by them in a while. I was glad to see that Ray (Doc) posted, and also Jeff (Steve and Nat). I am trying to keep up with things but have such a hard time because this site is so difficult for me to log on to, and if I do get on, so hard to post. It all just takes more time than I usually have. I…
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Almost killed by chemo
This is something I had happen to me recently, and I thought it may be useful to let others know. I had a baxter chemo bottle attached to my port, and somehow it got unscrewed. It must have been off for maybe 15 minutes, and I only noticed when one of my kids alerted me. By that time I found myself lying in a pool of…
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New numbers
I got my new numbers today and my CEA dropped from 1706 two weeks ago down 1546 this week. That's more than 400 since the all time high of 1984 a month ago! Also, my magnesium level is finally in the normal range for the first time in I don't know how long. We first started checking that in mid-May and it was dangereously…
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Lung nodules stage 4
Hello all, I am new to the forum and need help. Have been diagnosed with stage 4 rectalcancer ,solitary liver met a year ago. Had rectal/ liver resection with clear margins. Had 3 lung nodules from the beginning, stayed stable ( 6-7 mm) on xelox 12 . Was on avastin/ xeloda maintanance for 3 monthsm and just found out that…
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What to expect moving forward? Dad dx with stage 4 Colon Cancer...starting chemo
Hello again folks, I dont know what i would have done without this site. As many of you have given me information that has helped us process Dad's dx. Just to give you the story so far, Dad went to the ER after a few days of stomach pain and unable to go to the bathroom. Drs dx him with Colon Cancer stage 4 after running…
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diet and nutrition, folate and colon cancer - for supplementers
http://www.lef.org/news/LefDailyNews.htm?NewsID=18022&Section=Vitamins&utm_source=DailyHealthBulletin&utm_medium=email&utm_term=Vitamins&utm_content=Top+ContinueReading&utm_campaign=DHB_130126 Studies from University of Cairo Yield New Information about Diet and Nutrition Dear Colorectal Friends Interested in Supplements,…
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Bone mets
So my husband had a bone biopsy 2 weeks ago. I emailed the onc's nurse last week for results and she said she'd check with the doctor. I emailed the doctor last night because I hadn't heard. I just got a reply from the nurse saying the doctor would see him tomorrow when he's goes for blood work. I know it's not good news.…
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Bleeding in the Stool
To all those who have rectal cancer, do you guys have bleeding in the stool? Just curious to know. Sometimes, people think that its just a bad case of hemmorhoids.
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Neuropothy help?
I'm new to the sight so there is probably a lot of info out there about neuropathy. I have stage 4 appendix cancer that spread throughout my abdominal cavity. Did the 12 hour debulking surgery, HIPEC and 12 rounds of chemo. I was told I got the same chemo that is given for colon cancer. I'm done with all that now and would…
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Radiation to pelvis
Wondering if anyone could help with information about radiation to the pelvis? Where the side effects manageable, and what were they? Did the treatments work? Was it used while NED or to shrink tumors? Did the treatments create any scar tissue for you that you are aware of? I have never had radiation before and I am in the…
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“Cancer Never Sleeps – How It Acts Out Through Our Subconscious”
You might think that the further you get down the road in the cancer journey, that you would be able to find some peace and contentment somewhere along the path. I’m here to tell you that can be the furthest thing from the truth there is….it’s predicated on where you are standing right then, in your life journey. Oh, there…
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Anyone has mild side effects taking Xeloda Chemo pills???
My husband will begin taking daily Xeloda Chemo pills for five weeks. Has anyone had just mild side effects? Please share your experience. Thank you kindly!
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No More Sense Of Humor
My Friends, My positive attitude I try so hard to keep and my sense of humor have now left the building. About ten days ago, I came down with stomach virus. Was living in the bathroom, couldn't eat or sleep due to respiratory part. Three days later, hubby went into CHF. I tried to get him into the truck to go to Emg.…
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Our cruise: from disappointment to joy!
The re-route on our cruise is FANTASTIC!! Overnight in Haifa (instead of one day in Haifa, next day in Ashdod) means that we can do Israel on our own...even staying in Jerusalem if we so desire....no 'bed check' with the ship!!! DANCING!!! Hugs, Kathi
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It's raining ferociously here, and the wind is blowing VERY strong....
It's raining ferociously here, and the wind is blowing VERY strong.... but, of course, my friend, ever the strong Dutchman, says "It's just a bit humid!"....How I LOVE the Dutch!!!! *grin* (they have a language rule that to make something small, they add a "je" to the end of the word...'kopje koffie', for instance...but…