Stage IV Good News!

mom_2_3 Member Posts: 953 Member

I met with my most wonderful doctor this past week. Latest scan results in. All clear. That now makes 3 years and 11 months in remission since my February 2009 colon resection and liver resection. I told her that I could kiss her! I told her I would consider myself 4 years in remission and she said it was close enough. Scan schedule just changed from once every 4 months to now every 6 months. She did say that if my next scan was clear we could discuss removing my HAI pump but I am in no hurry to do so.

A recap of my diagnosis is that my colon cancer was discovered during a c-section for my youngest daughter. An attending physician was "feeling around" beneath my uterus after the baby was removed. The doctor felt a suspicious lymph node and an oncological surgeon was called in to take a biopsy. I laid there for about 2 hours as we waited for him and then while they did a quick pathology and asked for another sample. Very nerve-wracking. Blood tests revealed a CEA of almost 300 and a CT and colonscopy exactly one week later confirmed adenocarcinoma with spread to the liver. The first oncologist I consulted with told me I could expect 22-24 months until I would succumb. We had already setup an apppointment with Dr. Wonderful at MSK who was a colleague of my husband's cousin. This first doctor told us we could consult with Dr. Wonderful but basically she was a dinosaur and had archaic methodology. We kept our appointment at MSK regardless of what he said.

At my first meeting with Dr. Wonderful, she laid out a plan for my treatment and after 5 FOLFOX treatments I was scheduled for a simultaneous liver resection and colon resection with placement of the HAI pump. We would use the HAI pump as a way to hopefully prevent future recurrence in my liver. The surgery, although very long, went very well and 8 days later I walked out of the hospital. I completed 7 more months of treatment and since then (November 2009) have been in scan mode every 3-4 months.  My surgeons were and  I LOVE THEM!!!

I post this news to do two things. First, I craved good news like this when first diagnosed and would write a list in my notebook of every name I found of someone that was a long-term survivor. I would read the list every night before bed and it helped calm my nerves and gave me hope. I hope that my story can give others hope. I am so grateful that I just celebrated my little one's 4th birthday as I didn't think way back then I would have seen her at this age. 

And second, for those with liver involvement that are considered inoperable, please seek a second opinion. If I had just relied on the word of that first doctor, who knows what my path may have been. I have seen amazing results at MSK with my Dr. I have read people here say that their doctor said they were inoperable because they had liver mets on both sides of the liver. Well, I had them on both sides. People have posted that their doctor said their mets were too large. Well, my largest was 5 cm. If you have numerous mets on the liver (upwards of 10 or so), consider the HAI as a method for reaching operability. I have met numerous folks in the waiting room at MSK that had too many to count and were currently NED after HAI treatments and resection.  If you have multiple liver mets and want to know more about HAI please check out this video at  This is my doctor in the video and can you tell that I LOVE HER!!!???  ;) 

Don't ever give up.


PS (cross-posted at ColonClub as well)


  • wawaju04976
    wawaju04976 Member Posts: 316 Member
    Thank you for posting this.

    Thank you for posting this. Yes, we need to hear from survivors!!!


  • Chelsea71
    Chelsea71 Member Posts: 1,169 Member
    Thank you for this
    Thank you for this information. My husband has liver metastasis on both lobes. Biggest is 4 cm. Told by first liver surgeon, no way. No resection, no RFA. 4 cm tumor is too big. After tumors are cut out, there wouldn't be enough healthy liver left. Went to another surgeon and it was totally different. Was told a two stage resection may be possible. Once tumor is cut out there will be lots of healthy liver left. 4 cm is no big deal. His concern was more in the location of one of the tumors. (Junction of right hepatic vein and vena cava). Hopefully something can be done for him. You're right. Get a second opinion. If necessary a third and forth. I guess every surgeon has his comfort zone. We live in Ontario, Canada. This surgeon is in Quebec. Ideally, we would go to MSK and try and get the HAI pump. Insurance will not pay. Hopefully something can be done here. If not, we will consider going to MSK for a consult. Congrats on four years of remission. Thanks for sharing.

  • Momof2plusteentwins
    Momof2plusteentwins Member Posts: 509 Member
    You are so right, I love reading these stage IV stories. I am also stage IV, but only 7 months out from my surgery. It really does give me hope that I can be here for years. Thank you!
    Sandy :)
    stage IV Rectal Cancer
  • jen2012
    jen2012 Member Posts: 1,607 Member
    Thanks Amy and congrats!
    Thanks Amy and congrats! Your post made me cry. My husband was diagnosed in august when our youngest was 11 months. It is really scary but i love stories like yours. Continued good health!
  • tachilders
    tachilders Member Posts: 313
    Awesome news, and congrats!!!

    Awesome news, and congrats!!!

  • abrub
    abrub Member Posts: 2,174 Member

    And I'm in love with Dr. Paty as well.  I'm 5 1/2 years in remission (stage 4), with him as my surgeon.

    MSK has some brilliant physicians.


  • Brenda Bricco
    Brenda Bricco Member Posts: 579 Member
    Thank you Amy! I remember

    Thank you Amy! I remember when my husband was dx 2 years ago I NEEDED to hear these sort of wonderful results.


  • marbleotis
    marbleotis Member Posts: 720 Member

    I love these stories.  I just celebrated 1 year NED and I cannot get enough of these!

  • gizzyluv
    gizzyluv Member Posts: 143
    I didn't realize....

    Hi Amy! I was reading your last post, not realizing it was "you" until I saw the name & your picture. I too am here looking for those "good outcome" stories, & I haven't been disappointed yet! Yours is just another one that has certainly given me hope for my husband Jason & for that I say THANK YOU with all my heart! I keep reading about "CEA"....what is that? I'm sure the dr. will tell us tomorrow, but I'm just curious. Thanks again for making my day a little brighter! (oh & Jason's too....I'm sharing all these stories with him & it is really making him feel better....=) Take care & God Bless, Kris

  • Southernhope
    Southernhope Member Posts: 5
    Amy, thank you for posting

    Amy, thank you for posting your brings hope to all of us. Somedays I think I can beat this and other days it brings me's so good to read these stories. There is life after cancer. Bless you and your family.


  • Glammom
    Glammom Member Posts: 21
    I am newly diagnosed. I too

    I am newly diagnosed. I too went to MSK and had my surgery to remove my right colon on 1/3/13 my doctor was wonderful.  I am starting chemo on 2/8/13 and scared of all that I will have to face the next 6 months.   I thank you for your story of encoragement, it made me cry to read it.  I'm hoping one day I can write a post that will encourage another too. 

  • hippiechicks
    hippiechicks Member Posts: 509 Member
    Congrats to you and your

    Congrats to you and your continued success!! That is a truly wonderful story! Laughing