Triple-Negative Breast Cancer

Crystal Lady
Crystal Lady Member Posts: 2
in Breast Cancer #1

Recently diagnosed w Triple-Negative Breast Cancer Stage IIA.  Very sad to discover that Chemo Radiation and Surgery are my only options. It also seems that the more I read, I realize this type almost always comes back. Any other TNBC Ladies here? Im slightly freaking out...

Comments

  • jessiesmom1
    jessiesmom1 Member Posts: 915 Member
    #2
    Triple Negative Breast Cancer

    I was diagnosed with TNBC Stage IIa almost 8 and a half years ago. I had surgery followed by chemotherapy - 4 rounds of A/C and 12 rounds of Taxotere. I did not have radiation. I obviously know how you are feeling right about now. While having  TNBC is not ideal it DOES respond well to chemotherapy. You can find a lot of information on TNBC on the website of the Triple Negative Breast Cancer Foundation at tnbcfoundation.org. 

    If you have specific questions, I would be happy to try and answer them for you. Freaking out is pretty normal after a cancer diagnosis but I've never heard that TNBC "almost always comes back." So far I'm doing pretty well and only go to the oncologist once a year. You CAN do this.

    IRENE 

  • Beepositive
    Beepositive Member Posts: 259 Member
    edited March 2018 #3
    CRYSTAL LADY

      SORRY THAT YOU are here ..but you are still here!! ask lots of questions of your doctors/onclogist and options..you are the final decision on what treatments are done...

    its scary when you first hear those words..I had to gather myself for a few days ..left breast removed) but realized Things could have been l lot worst.

    try not to beat your self up that will not help anything..focus on what you can do for now..thats questions questions to onclogist on the treatments and options.

    Good luck with everything  prayers and hugs to you...you are not alone...

    Beepositive 

  • SLS100
    SLS100 Member Posts: 37
    #4
    local recurrence

    I am triple negative and my cancer came back in less than a year. the only thing you can do is go through it. people keep telling me to br brsve but its hsrd.  good luc.

  • Juls4
    Juls4 Member Posts: 7
    #5
    I'm 35 and I was stage 2A TN

    I'm 35 and I was stage 2A TN when dx but like SLS100, it recurred in less than a year and is now in my liver and lungs. While it's true that TN tends to have a poorer prognosis, there are people who go a decade or more without a recurrence, it really just depends on whether you caught it in time. After treatment, it can be really hard to live with the stress of wondering whether your next scan will show it spread, but know that you're not alone!  My suggestion to you is to get more than one opinion for treatment, and if possible, try to get the opinion of a cancer center where you can speak to an oncologist who is up to date on the latest research. It's terrifying, depressing, and overwhelming to process your diagnosis and options for treatment and I found that understanding everything as much as possible and why chemo, etc was necessary made me feel better and more confident about going forward with treatment.  It also kept me from having regrets later on, despite my recurrence.  I know that I did the treatment recommended by a major cancer center and I felt good about the plan.  A lot of people go online looking for answers about which treatment is best or why the treatment recommended by their doctor doesn't match what other people online have received, but you really can't compare yourself to other people because everyone's cancer is different and everyone's health/age situation is a little different. All you can control is what you do from here, so making sure you're happy with the plan is so important! Good luck and I hope you have many years of remission ahead of you!

  • peterz54
    peterz54 Member Posts: 341
    #6
    Multi-modal treatment of TNBC which might be of help....

    Here is a paper describing the use of low dose chemo combined with several non-toxic treatments which appeared to eradicate metastatic cancer including TNBC https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5589510/pdf/cureus-0009-00000001445.pdf

    It is in large part based on the Press-Pulse technique developed by Prof. Seyfried of Boston U.   

    The Press-Pulse concept is elaborated upon at a 2017 cancer conference in Paris.  Video link of talk below.  The key points are discussed starting at about 13 minutes in (First part is cancer related  biology).   The TNBC cancer case is discussed at 22 minutes in:

    https://www.youtube.com/watch?v=3TZnjC7SR_w

    The basic approach is:

    Diet and stress control as a foundation:  A low carb diet, slightly calories restricted, especially leading into each chemo or rad treatment.   Protein is also low to moderate.

    Periodic  (pulses) treatment using low dose chemo (or radiation), Hyperbaric oxygen, glucose inhibitor, and glutamine inhibitor

     

     

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