starting to feel

LaCh

better. 

RoseC

Awesome

Very glad you are feeling better.

mp327

Yay!

Great to hear! 

sephie

wonderful

great!!!!!!   hug your dog.... sephie

eihtak

LaCh

It happens to the best of us!

pializ

eihtak said:

LaCh

It happens to the best of us!

LaCh

Yes!!! Really happy for you.  Me too, although it has been a bit tricky since treatment ended to get used to managing radiation enteritis. I was lucky to not have suffered too much during treatment, which I think was due to all the advanced help and advice from this site and Macmillan.

Don't forget though, you/we are still recovering and need to take it easy.

 

LaCh

pializ said:

LaCh

Yes!!! Really happy for you.  Me too, although it has been a bit tricky since treatment ended to get used to managing radiation enteritis. I was lucky to not have suffered too much during treatment, which I think was due to all the advanced help and advice from this site and Macmillan.

Don't forget though, you/we are still recovering and need to take it easy.

 

to all....

A genuine and sincere thank you....  and to pializ, yeah, there's no doubt, I'm not "there" yet, just on my way.  Still have pain (but less) still have urgency issues (but somewhat more predictiable) still on a peculiar and restricted diet (with focus on what feels the least painful coming out) and the fatigue isn't all gone but better than it was.  All in all, when I look back to a week ago, I see improvement.  I try to keep to a schedule with the oxycodone and if I forget, the pain returns to remind me.  Reading this post, it doesn't sound all that good, but I do, in fact, feel better.  I thank all for their past and continued support.  It's very, very gratifying.    (Also... what's Macmillan?)

Lorikat

LaCh said:

to all....

A genuine and sincere thank you....  and to pializ, yeah, there's no doubt, I'm not "there" yet, just on my way.  Still have pain (but less) still have urgency issues (but somewhat more predictiable) still on a peculiar and restricted diet (with focus on what feels the least painful coming out) and the fatigue isn't all gone but better than it was.  All in all, when I look back to a week ago, I see improvement.  I try to keep to a schedule with the oxycodone and if I forget, the pain returns to remind me.  Reading this post, it doesn't sound all that good, but I do, in fact, feel better.  I thank all for their past and continued support.  It's very, very gratifying.    (Also... what's Macmillan?)

I am so glad that you could

I am so glad that you could post a "with-it" happy face!  I remember when I got to that place where I still felt lousy and yet the better felt so good..  Smiles!

jcruz

Yay!  and Yay!

Yay!  and Yay!

Kraut

So glad to hear that you are

So glad to hear that you are on the mend.  It surely takes time, yet my husband and I were very surprised at how quick the external healing took place.  It will take you some time to heal inside.  He still has issues but at least all the pain is gone.  Hope you are staying warm in snowy New York, snuggle your fur baby.

Marynb

LaCh
Now that is great news. Hoping that each week gets a little bit better than the last! Stay warm and rested! It is so good to be done, isn't it!

pializ

LaCh

Macmillan. Org.uk Cancer support. I live in Wales. Another Anal cancer group.

LaCh

pializ said:

LaCh

Macmillan. Org.uk Cancer support. I live in Wales. Another Anal cancer group.

Lorikat, jcruz, Kraut, marynb, pializ

A heartfelt "thank you!" for everyone.  Yes, it's good to be done and able to focus on the road ahead rather than being utterly consumed by pain. I know that it's not nearly "over" but I'm feeling more human and that's a real mental boost.  I still have pain but feel better able to deal with it (and not like it's "dealing" with me).  I think that with time will come a better sense of objectivity in which I'll be better able to reflect on the treatment experience.  It already has a cloud of unreality attached to it, I suppose because of a mental retreat from what was happening and in large part because of the level of pain that I had.  The last week and a half during which I could no longer walk to treatments and had to talke cabs already has a dreamlike quality to it.  I think that there will be positive things to be gleaned from the experience that will come with time, reflection and introspection.  Maybe that's the next phase, who knows.  Right now I just need to keep doing what I'm doing and if that means taking the easy way out (like it did the other day when I sent out my laundry rather than doing it myself) then that's what I'll do.  I hope that with time I'll be pain free and able to untether myself from the bathroom. I hope that  I'll soon be able to start some gentle walking on a treadmill when I'm able to walk pain-free (when the external burns are completely healed).  In any case...  I'm feeling better and expect to feel better still with the passage of time and send out a very heartfelt "thank you" to everyone.   

mp327

LaCh said:

Lorikat, jcruz, Kraut, marynb, pializ

A heartfelt "thank you!" for everyone.  Yes, it's good to be done and able to focus on the road ahead rather than being utterly consumed by pain. I know that it's not nearly "over" but I'm feeling more human and that's a real mental boost.  I still have pain but feel better able to deal with it (and not like it's "dealing" with me).  I think that with time will come a better sense of objectivity in which I'll be better able to reflect on the treatment experience.  It already has a cloud of unreality attached to it, I suppose because of a mental retreat from what was happening and in large part because of the level of pain that I had.  The last week and a half during which I could no longer walk to treatments and had to talke cabs already has a dreamlike quality to it.  I think that there will be positive things to be gleaned from the experience that will come with time, reflection and introspection.  Maybe that's the next phase, who knows.  Right now I just need to keep doing what I'm doing and if that means taking the easy way out (like it did the other day when I sent out my laundry rather than doing it myself) then that's what I'll do.  I hope that with time I'll be pain free and able to untether myself from the bathroom. I hope that  I'll soon be able to start some gentle walking on a treadmill when I'm able to walk pain-free (when the external burns are completely healed).  In any case...  I'm feeling better and expect to feel better still with the passage of time and send out a very heartfelt "thank you" to everyone.   

LaCh

It makes me feel very good to wake up on a Sunday morning and read your post.  You are just going to get better and better as each day comes!

LaCh

mp327 said:

LaCh

It makes me feel very good to wake up on a Sunday morning and read your post.  You are just going to get better and better as each day comes!

mp327

You're so kind....  I've received support from people I didn't expect to and not received support from those who I thought would give it, but I never expected such support from strangers who simply shared the same experience as mine.  It's made a huge difference in the process and brings into sharp focus the fact that sometimes, the difference between "making it" and not making it can be as thin as the thread of having or not having support.  Thank you for such kind thoughts for someone you don't know and probably never will.  It's a testament to the humanity in all of us, that doesn't always come to the fore, but has for me, here.  Thanks.  (PS  I made a second version of MP327 Soup, this time without the chicken stock, every vegetable I could throw in and potatoes.  It's a great, tasty, healthful way to eat right now, delicious going in and very tolerably painful coming out.  I thought of you when I was making it.)    

eihtak

LaCh said:

Lorikat, jcruz, Kraut, marynb, pializ

A heartfelt "thank you!" for everyone.  Yes, it's good to be done and able to focus on the road ahead rather than being utterly consumed by pain. I know that it's not nearly "over" but I'm feeling more human and that's a real mental boost.  I still have pain but feel better able to deal with it (and not like it's "dealing" with me).  I think that with time will come a better sense of objectivity in which I'll be better able to reflect on the treatment experience.  It already has a cloud of unreality attached to it, I suppose because of a mental retreat from what was happening and in large part because of the level of pain that I had.  The last week and a half during which I could no longer walk to treatments and had to talke cabs already has a dreamlike quality to it.  I think that there will be positive things to be gleaned from the experience that will come with time, reflection and introspection.  Maybe that's the next phase, who knows.  Right now I just need to keep doing what I'm doing and if that means taking the easy way out (like it did the other day when I sent out my laundry rather than doing it myself) then that's what I'll do.  I hope that with time I'll be pain free and able to untether myself from the bathroom. I hope that  I'll soon be able to start some gentle walking on a treadmill when I'm able to walk pain-free (when the external burns are completely healed).  In any case...  I'm feeling better and expect to feel better still with the passage of time and send out a very heartfelt "thank you" to everyone.   

LaCh....

Still love reading your posts, and this is especially good! I too felt blessed by the help and support from total strangers and maybe thats what drives us to continue paying it forward. Have a good restful day and continued healing!

mp327

LaCh said:

mp327

You're so kind....  I've received support from people I didn't expect to and not received support from those who I thought would give it, but I never expected such support from strangers who simply shared the same experience as mine.  It's made a huge difference in the process and brings into sharp focus the fact that sometimes, the difference between "making it" and not making it can be as thin as the thread of having or not having support.  Thank you for such kind thoughts for someone you don't know and probably never will.  It's a testament to the humanity in all of us, that doesn't always come to the fore, but has for me, here.  Thanks.  (PS  I made a second version of MP327 Soup, this time without the chicken stock, every vegetable I could throw in and potatoes.  It's a great, tasty, healthful way to eat right now, delicious going in and very tolerably painful coming out.  I thought of you when I was making it.)    

LaCh--

Your words are very thoughtful and kind--thank you!  I have believed from the beginning of this cancer journey that paying it forward allows me to somewhat, but not fully, understand why I got this crappy disease.  I will never understand it completely, but have accepted it as just another part of my life.  As you know, we are a small group.  Put all the people in this world under a microscope and our little group would probably not even be seen.  That's how small we are to the rest of the world.  But inside of this space, we are huge! 

I'm glad you are become a "souper" soup maker!  Enjoy!

pamela_preib

Congratulations

So happy for you.  That means I can't be too far behind you.  I was doing better, but yesterday was awful.  I got thru the day okay, but was in tears in the afternoon.  I think part of it is just frustration.  I want away from this painful toilet .

 

mp327

pamela_preib said:

Congratulations

So happy for you.  That means I can't be too far behind you.  I was doing better, but yesterday was awful.  I got thru the day okay, but was in tears in the afternoon.  I think part of it is just frustration.  I want away from this painful toilet .

 

Pam

I had days like that too--one bad one, for no reason, cropping up after a string of good ones.  I told myself that it was just my body's way of keeping me in check and not getting too ahead of myself.  Those days will happen less often as you go along.

jcruz

getting better

Reading on the posts on this thread have me both smiling and crying.  Thank you all for sharing, for taking care of each other here.

Three and ½ months after treatment.  I am comfortably sitting on my couch, having retired my waffle cushion, appreciating something this simple and remembering when I would just cry with pain and frustration that I couldn't sit, something we all do for hours every day.  Still dreading the trips to the bathroom but even that's gotten better since I became more mindful about eating a low-fiber diet which goes completely against the way I used to eat.  Once I get through the first few hours of the day, I know I can confidently leave the house and I am hoping in time that I will lose that fear (or at least be able to manage it) of being too far away from a bathroom.  For those of you with less healing time than I have please believe it really does get better. And it is so good for me to hear from those who are ahead of me especially those who are years ahead. Thank you all.

mp327

jcruz said:

getting better

Reading on the posts on this thread have me both smiling and crying.  Thank you all for sharing, for taking care of each other here.

Three and ½ months after treatment.  I am comfortably sitting on my couch, having retired my waffle cushion, appreciating something this simple and remembering when I would just cry with pain and frustration that I couldn't sit, something we all do for hours every day.  Still dreading the trips to the bathroom but even that's gotten better since I became more mindful about eating a low-fiber diet which goes completely against the way I used to eat.  Once I get through the first few hours of the day, I know I can confidently leave the house and I am hoping in time that I will lose that fear (or at least be able to manage it) of being too far away from a bathroom.  For those of you with less healing time than I have please believe it really does get better. And it is so good for me to hear from those who are ahead of me especially those who are years ahead. Thank you all.

jcruz

I'm so happy you are much improved since finishing treatment.  I'm glad that you are taking time to appreciate those little things that all of us used to take for granted.  The lingering bathroom issues will continue to get better and soon you will be leaving the house without those types of things being so heavy on your mind.  I thank you for giving encouragement to those who are just out of treatment--things really do get better!