Diagnosed last Monday (Squamous Cell -throat cancer)

Chefdaddy said:

Dearest Glenna,My daughter
Dearest Glenna,

My daughter was reading your post with me and when it can to where you wrote "I hope this doesn't sound to cold hearted of me" my daughter quickly said "Oh heck no!" She and I are both livid as to the serious psychological ramifications that she has put on my son.
He has already shown signs of going backwards from the progress he had acheived through a years intense counseling. His greatest fear of being kidnapped again has returned.

I'm not sure what the Kid's attorney has planned, but I'm hopeful it will bring anymore of this behavior and unwanted contact to a final end.

I hope we get to meet you one day Glenna, I think it would be a treat for my kids.

Your friend

Mike

Skiffin16 said:

Keepin Us Posted Mike
Thanks for the updates Mike, hoping it works out for you soon.....

PK, you mean you were here and didn't look me up, LOL. just teasing, the weather has been pretty crappy for us now for awhile. But I guess that's always subjective compared to where you came visiting from....

JG

Chefdaddy said:

Dearest Glenna,My daughter
Dearest Glenna,

My daughter was reading your post with me and when it can to where you wrote "I hope this doesn't sound to cold hearted of me" my daughter quickly said "Oh heck no!" She and I are both livid as to the serious psychological ramifications that she has put on my son.
He has already shown signs of going backwards from the progress he had acheived through a years intense counseling. His greatest fear of being kidnapped again has returned.

I'm not sure what the Kid's attorney has planned, but I'm hopeful it will bring anymore of this behavior and unwanted contact to a final end.

I hope we get to meet you one day Glenna, I think it would be a treat for my kids.

Your friend

Mike

Chefdaddy said:

Hi my friends,
I have been
Hi my friends,

I have been bouncing all over the place, especially at the hospital.

What I thought was an infection in the upper and lower gums turned out to be jaw bone chips trying to work their way out of the gums. This morning the Oral surgeons numbed me up and started pulling out bone chips. I'm glad these guys are not the ones that did my Whipple surgery, leaving parts of intestines, stomach and pancreas floating around. Sorry....starting to acquire a non-friendly attitude towards some medical "experts". FYI Definition of Expert: "Ex" is a "Has Been" and a "spurt" is a "Drip Under Pressure"

We are still in an uncomfortable transition. My son has severely regressed physiologically and has again returned to self-inflicting physical harm and damage to himself due to his returned fear that he is going to be kidnapped again and will never see us again. He is now under 24 hour watch.

The Radiology department had to make a 2nd mask for me last Monday, as the first one was too big after the swelling in my face went down from the teeth extraction and last night at 8:00PM they radiated me again using the new mask and it didn't fit because the swelling had returned due to the bone chips trying to leave the gums. It was a very painful session as they had to force the mask onto my jaw so they could clamp it down. I hope I can return the favor one day lol.

I now look like I'm hitting puberty again; the Erbitux has already put sores and rashes all over my face and scalp. I occasionally embarrass my poor daughter when we are in the hospital's elevator and it's full of loud, obnoxious people. I tell her in a semi-loud voice that the Disease Control people didn't want me to leave the room but I'm hungry! The elevator gets really quiet and people start getting off the elevator earlier than the floor that they pushed the button for....go figure.

It's difficult to get time on the computer where we are staying. I'm really hoping things get straightened out by Monday; this has been very difficult on all of us, especially my son.
I can handle it, I'm a tough old fart, but kids shouldn't have to go through this kind
of @*%$%)*!!!

That's my "EXPERT" opinion! lol

I know, I know, counselling is in order!


Your friend

Mike

Chefdaddy said:

Hi my friends,
I have been
Hi my friends,

I have been bouncing all over the place, especially at the hospital.

What I thought was an infection in the upper and lower gums turned out to be jaw bone chips trying to work their way out of the gums. This morning the Oral surgeons numbed me up and started pulling out bone chips. I'm glad these guys are not the ones that did my Whipple surgery, leaving parts of intestines, stomach and pancreas floating around. Sorry....starting to acquire a non-friendly attitude towards some medical "experts". FYI Definition of Expert: "Ex" is a "Has Been" and a "spurt" is a "Drip Under Pressure"

We are still in an uncomfortable transition. My son has severely regressed physiologically and has again returned to self-inflicting physical harm and damage to himself due to his returned fear that he is going to be kidnapped again and will never see us again. He is now under 24 hour watch.

The Radiology department had to make a 2nd mask for me last Monday, as the first one was too big after the swelling in my face went down from the teeth extraction and last night at 8:00PM they radiated me again using the new mask and it didn't fit because the swelling had returned due to the bone chips trying to leave the gums. It was a very painful session as they had to force the mask onto my jaw so they could clamp it down. I hope I can return the favor one day lol.

I now look like I'm hitting puberty again; the Erbitux has already put sores and rashes all over my face and scalp. I occasionally embarrass my poor daughter when we are in the hospital's elevator and it's full of loud, obnoxious people. I tell her in a semi-loud voice that the Disease Control people didn't want me to leave the room but I'm hungry! The elevator gets really quiet and people start getting off the elevator earlier than the floor that they pushed the button for....go figure.

It's difficult to get time on the computer where we are staying. I'm really hoping things get straightened out by Monday; this has been very difficult on all of us, especially my son.
I can handle it, I'm a tough old fart, but kids shouldn't have to go through this kind
of @*%$%)*!!!

That's my "EXPERT" opinion! lol

I know, I know, counselling is in order!


Your friend

Mike

Chefdaddy said:

Thank you Kent.
Three years
Thank you Kent.

Three years ago this last week, my son, who was 11 at that time, was diagnosed with leukemia, a year ago my son was given two months to live after one of the chemo treatments gave him cirrhosis of the liver, a few months later I learned my kids were being severely abused by my ex's boyfriend. My son is now in remission, his daily chemo regimen ends April, his liver has turned itself around, astonishing his doctors and I successfully confronted 5 of my ex's past attorneys and 4 judges and I now have sole custody of both kids and I am horrible in the court room arena ....Yup! we are definitely believers!

My difficulty is remembering the light when it gets very dark, but I'm working on that.

Thank you for your prayers Kent, please keep them coming.

Chefdaddy

Chefdaddy said:

Hi guys and gals,
Brief
Hi guys and gals,

Brief update. We are still in a transitional state and it's becoming more difficult for my son, causing more reversal behavior. I've also been told that I appear to have started showing reactions to the radiation and the Erbitux a couple weeks earlier than expected. My tongue is covered with burns and I'm having difficulty with talking, swallowing, dry mouth and throat and mucous build-up.

I'm afraid I'm going to have to start using the PEG very soon as I'm dropping weight. They don't know if it's the blood disorder that made me burn so quickly. The Erbitux has me covered with blisters all over my scalp and zits on my face. The little suckers are very painful for being small.

I'm going to ask the radiation doctors if they have things lined up properly as both my eyes are dark red with bloodshot. They are extremely light sensitive and very dry. I don't know if the Erbitux can cause this but it started right after my first radiation sessions started.
I'm on my second mask because the first one never lined up correctly due to the swelling in my mouth from the teeth extractions.

I don't know how I'm going to do in court this week, unable to talk. It should be interesting.

I thank all of you for being here for me and your concern for my kids.

Your friend always

Mike

Chefdaddy said:

Hi guys and gals,
Brief
Hi guys and gals,

Brief update. We are still in a transitional state and it's becoming more difficult for my son, causing more reversal behavior. I've also been told that I appear to have started showing reactions to the radiation and the Erbitux a couple weeks earlier than expected. My tongue is covered with burns and I'm having difficulty with talking, swallowing, dry mouth and throat and mucous build-up.

I'm afraid I'm going to have to start using the PEG very soon as I'm dropping weight. They don't know if it's the blood disorder that made me burn so quickly. The Erbitux has me covered with blisters all over my scalp and zits on my face. The little suckers are very painful for being small.

I'm going to ask the radiation doctors if they have things lined up properly as both my eyes are dark red with bloodshot. They are extremely light sensitive and very dry. I don't know if the Erbitux can cause this but it started right after my first radiation sessions started.
I'm on my second mask because the first one never lined up correctly due to the swelling in my mouth from the teeth extractions.

I don't know how I'm going to do in court this week, unable to talk. It should be interesting.

I thank all of you for being here for me and your concern for my kids.

Your friend always

Mike

Chefdaddy said:

Hi Everyone
Thank you Hondo and John,


Hello Miss Sweetblood22, I have been following some of your postings as well and my prayers go to you my dear. My blood disorder is Coproporphyria, a hereditary blood disorder caused from either a mutated or a missing enzyme in the blood making process.

My daughter has it as well and her symptoms are different and does not allow her to be in direct sunlight. My symptoms is severe nerve damage, I have no feeling in my legs or hands. I spent 4 years in an electric wheelchair until I taught myself to walk again without feeling. I do good until someone turns the lights out and then I fall down. lol

I'm terribly sorry to hear about the cause of your divorce, sometimes people that have our complete trust tosses it out for something new. I can tell that you are a strong survivor and that you have God on your side.

I admit my faith has been rocked lately by everything that's been hitting us repeatedly, but with the help of some very special friends on here it's getting stronger.

Take care my friends and I will check in soon.

Mike