Diagnosed last Monday (Squamous Cell -throat cancer)

pk

Chefdaddy said:

Dearest Glenna,My daughter
Dearest Glenna,

My daughter was reading your post with me and when it can to where you wrote "I hope this doesn't sound to cold hearted of me" my daughter quickly said "Oh heck no!" She and I are both livid as to the serious psychological ramifications that she has put on my son.
He has already shown signs of going backwards from the progress he had acheived through a years intense counseling. His greatest fear of being kidnapped again has returned.

I'm not sure what the Kid's attorney has planned, but I'm hopeful it will bring anymore of this behavior and unwanted contact to a final end.

I hope we get to meet you one day Glenna, I think it would be a treat for my kids.

Your friend

Mike

Dear Chef
I am just back from 2 weeks in FL and catching up on all of you here on CSN. It is unfathomable to me that you are able to handle all that you are going thru right now. You and your children continue to be held in my heart, and I daily pray that the best will come to all of you. You are the ultimate survivor!!! Blessings on you!
Phyllis

Skiffin16

Chefdaddy said:

Dearest Glenna,My daughter
Dearest Glenna,

My daughter was reading your post with me and when it can to where you wrote "I hope this doesn't sound to cold hearted of me" my daughter quickly said "Oh heck no!" She and I are both livid as to the serious psychological ramifications that she has put on my son.
He has already shown signs of going backwards from the progress he had acheived through a years intense counseling. His greatest fear of being kidnapped again has returned.

I'm not sure what the Kid's attorney has planned, but I'm hopeful it will bring anymore of this behavior and unwanted contact to a final end.

I hope we get to meet you one day Glenna, I think it would be a treat for my kids.

Your friend

Mike

Keepin Us Posted Mike
Thanks for the updates Mike, hoping it works out for you soon.....

PK, you mean you were here and didn't look me up, LOL. just teasing, the weather has been pretty crappy for us now for awhile. But I guess that's always subjective compared to where you came visiting from....

JG

pk

Skiffin16 said:

Keepin Us Posted Mike
Thanks for the updates Mike, hoping it works out for you soon.....

PK, you mean you were here and didn't look me up, LOL. just teasing, the weather has been pretty crappy for us now for awhile. But I guess that's always subjective compared to where you came visiting from....

JG

JG
Where in Florida are you?? I was in the Fort Myers area. I go on a "girlfriends trip" each year to Fort Myers and it's always a good time. I agree the weather was a bit rainy for a few days, but we managed to get in enough sun to turn our white selves a golden brown. My husband and I will leave in another 2 weeks for St. Simons Is.,GA and stay until the 20th of April. Love it there too.
PK

Skiffin16

pk said:

JG
Where in Florida are you?? I was in the Fort Myers area. I go on a "girlfriends trip" each year to Fort Myers and it's always a good time. I agree the weather was a bit rainy for a few days, but we managed to get in enough sun to turn our white selves a golden brown. My husband and I will leave in another 2 weeks for St. Simons Is.,GA and stay until the 20th of April. Love it there too.
PK

Florida
I'm near Tampa, a bit North of where you were....

St. Simon's is very nice from what I've heard. I have a Hewes Redfisher boat, and there's a Captain and few other's on that forum (Maverick, Hewes, Pathfinder) that live and or guide up there.

They photo's I've seen look really nice, and the fishing sounds great as well.

John

Skiffin16

Chefdaddy said:

Dearest Glenna,My daughter
Dearest Glenna,

My daughter was reading your post with me and when it can to where you wrote "I hope this doesn't sound to cold hearted of me" my daughter quickly said "Oh heck no!" She and I are both livid as to the serious psychological ramifications that she has put on my son.
He has already shown signs of going backwards from the progress he had acheived through a years intense counseling. His greatest fear of being kidnapped again has returned.

I'm not sure what the Kid's attorney has planned, but I'm hopeful it will bring anymore of this behavior and unwanted contact to a final end.

I hope we get to meet you one day Glenna, I think it would be a treat for my kids.

Your friend

Mike

Calling Chefdaddy Mike
Good Morning Mike,

Haven't heard from you in a few days and just checking in on you....let us know how you are and what's your status.

John

Hondo

Daddy Mike
Like John said, It has been a few days and you have not posted anything, I know you are starting treatment and might not feel like saying anything; just let us know you are still there.

Thanks my friend

Chefdaddy

Hondo said:

Daddy Mike
Like John said, It has been a few days and you have not posted anything, I know you are starting treatment and might not feel like saying anything; just let us know you are still there.

Thanks my friend

Hi my friends,
I have been
Hi my friends,

I have been bouncing all over the place, especially at the hospital.

What I thought was an infection in the upper and lower gums turned out to be jaw bone chips trying to work their way out of the gums. This morning the Oral surgeons numbed me up and started pulling out bone chips. I'm glad these guys are not the ones that did my Whipple surgery, leaving parts of intestines, stomach and pancreas floating around. Sorry....starting to acquire a non-friendly attitude towards some medical "experts". FYI Definition of Expert: "Ex" is a "Has Been" and a "spurt" is a "Drip Under Pressure"

We are still in an uncomfortable transition. My son has severely regressed physiologically and has again returned to self-inflicting physical harm and damage to himself due to his returned fear that he is going to be kidnapped again and will never see us again. He is now under 24 hour watch.

The Radiology department had to make a 2nd mask for me last Monday, as the first one was too big after the swelling in my face went down from the teeth extraction and last night at 8:00PM they radiated me again using the new mask and it didn't fit because the swelling had returned due to the bone chips trying to leave the gums. It was a very painful session as they had to force the mask onto my jaw so they could clamp it down. I hope I can return the favor one day lol.

I now look like I'm hitting puberty again; the Erbitux has already put sores and rashes all over my face and scalp. I occasionally embarrass my poor daughter when we are in the hospital's elevator and it's full of loud, obnoxious people. I tell her in a semi-loud voice that the Disease Control people didn't want me to leave the room but I'm hungry! The elevator gets really quiet and people start getting off the elevator earlier than the floor that they pushed the button for....go figure.

It's difficult to get time on the computer where we are staying. I'm really hoping things get straightened out by Monday; this has been very difficult on all of us, especially my son.
I can handle it, I'm a tough old fart, but kids shouldn't have to go through this kind
of @*%$%)*!!!

That's my "EXPERT" opinion! lol

I know, I know, counselling is in order!


Your friend

Mike

Hondo

Chefdaddy said:

Hi my friends,
I have been
Hi my friends,

I have been bouncing all over the place, especially at the hospital.

What I thought was an infection in the upper and lower gums turned out to be jaw bone chips trying to work their way out of the gums. This morning the Oral surgeons numbed me up and started pulling out bone chips. I'm glad these guys are not the ones that did my Whipple surgery, leaving parts of intestines, stomach and pancreas floating around. Sorry....starting to acquire a non-friendly attitude towards some medical "experts". FYI Definition of Expert: "Ex" is a "Has Been" and a "spurt" is a "Drip Under Pressure"

We are still in an uncomfortable transition. My son has severely regressed physiologically and has again returned to self-inflicting physical harm and damage to himself due to his returned fear that he is going to be kidnapped again and will never see us again. He is now under 24 hour watch.

The Radiology department had to make a 2nd mask for me last Monday, as the first one was too big after the swelling in my face went down from the teeth extraction and last night at 8:00PM they radiated me again using the new mask and it didn't fit because the swelling had returned due to the bone chips trying to leave the gums. It was a very painful session as they had to force the mask onto my jaw so they could clamp it down. I hope I can return the favor one day lol.

I now look like I'm hitting puberty again; the Erbitux has already put sores and rashes all over my face and scalp. I occasionally embarrass my poor daughter when we are in the hospital's elevator and it's full of loud, obnoxious people. I tell her in a semi-loud voice that the Disease Control people didn't want me to leave the room but I'm hungry! The elevator gets really quiet and people start getting off the elevator earlier than the floor that they pushed the button for....go figure.

It's difficult to get time on the computer where we are staying. I'm really hoping things get straightened out by Monday; this has been very difficult on all of us, especially my son.
I can handle it, I'm a tough old fart, but kids shouldn't have to go through this kind
of @*%$%)*!!!

That's my "EXPERT" opinion! lol

I know, I know, counselling is in order!


Your friend

Mike

Daddy Mike
Through it all I am glad to see you still have your sense of humor, I am just happy to hear you are all OK.

Skiffin16

Chefdaddy said:

Hi my friends,
I have been
Hi my friends,

I have been bouncing all over the place, especially at the hospital.

What I thought was an infection in the upper and lower gums turned out to be jaw bone chips trying to work their way out of the gums. This morning the Oral surgeons numbed me up and started pulling out bone chips. I'm glad these guys are not the ones that did my Whipple surgery, leaving parts of intestines, stomach and pancreas floating around. Sorry....starting to acquire a non-friendly attitude towards some medical "experts". FYI Definition of Expert: "Ex" is a "Has Been" and a "spurt" is a "Drip Under Pressure"

We are still in an uncomfortable transition. My son has severely regressed physiologically and has again returned to self-inflicting physical harm and damage to himself due to his returned fear that he is going to be kidnapped again and will never see us again. He is now under 24 hour watch.

The Radiology department had to make a 2nd mask for me last Monday, as the first one was too big after the swelling in my face went down from the teeth extraction and last night at 8:00PM they radiated me again using the new mask and it didn't fit because the swelling had returned due to the bone chips trying to leave the gums. It was a very painful session as they had to force the mask onto my jaw so they could clamp it down. I hope I can return the favor one day lol.

I now look like I'm hitting puberty again; the Erbitux has already put sores and rashes all over my face and scalp. I occasionally embarrass my poor daughter when we are in the hospital's elevator and it's full of loud, obnoxious people. I tell her in a semi-loud voice that the Disease Control people didn't want me to leave the room but I'm hungry! The elevator gets really quiet and people start getting off the elevator earlier than the floor that they pushed the button for....go figure.

It's difficult to get time on the computer where we are staying. I'm really hoping things get straightened out by Monday; this has been very difficult on all of us, especially my son.
I can handle it, I'm a tough old fart, but kids shouldn't have to go through this kind
of @*%$%)*!!!

That's my "EXPERT" opinion! lol

I know, I know, counselling is in order!


Your friend

Mike

Humor Arfff
LOL, glad you made it back to us Mike....

I love the elevator bit, definitely my sense of humor. Keep that through your treatment and you'll go far my friend. I have seen so many angry and miserable people, it does you no good nor anyone around you. Sometimes that's all you have and nothing can take that from you. In a situation like you have been dealing with, it's to the point that all you can do is laugh about it.

I keep saying this and I hope you believe me and keep the faith...IT WILL GET BETTER!!!!

Stay in touch bud, let us know when you need some people that have shared your pain. Like the military or other rough things in life. Unless you've walked the same path it's just hard for others to relate to what you are going through. Like you are now, we have been there, done that or are going through it.

John

ygfilart

I am yllette, was dignosed
I am yllette, was dignosed w/ squamous tongue cancer. I had 1/4 of my tongue cut september last year, but the cancer recurred last month and spread almost all over my tongue. Doctors said they need to cut my entire tongue. That same day, I did research and found out about a hospital in china. I flew there right away. I am now recuperating from several treatments. I have so much improvement and not a single part of my tongue was cut-off.

I would be very glad to see you get well.

Glenna M

Chefdaddy said:

Hi my friends,
I have been
Hi my friends,

I have been bouncing all over the place, especially at the hospital.

What I thought was an infection in the upper and lower gums turned out to be jaw bone chips trying to work their way out of the gums. This morning the Oral surgeons numbed me up and started pulling out bone chips. I'm glad these guys are not the ones that did my Whipple surgery, leaving parts of intestines, stomach and pancreas floating around. Sorry....starting to acquire a non-friendly attitude towards some medical "experts". FYI Definition of Expert: "Ex" is a "Has Been" and a "spurt" is a "Drip Under Pressure"

We are still in an uncomfortable transition. My son has severely regressed physiologically and has again returned to self-inflicting physical harm and damage to himself due to his returned fear that he is going to be kidnapped again and will never see us again. He is now under 24 hour watch.

The Radiology department had to make a 2nd mask for me last Monday, as the first one was too big after the swelling in my face went down from the teeth extraction and last night at 8:00PM they radiated me again using the new mask and it didn't fit because the swelling had returned due to the bone chips trying to leave the gums. It was a very painful session as they had to force the mask onto my jaw so they could clamp it down. I hope I can return the favor one day lol.

I now look like I'm hitting puberty again; the Erbitux has already put sores and rashes all over my face and scalp. I occasionally embarrass my poor daughter when we are in the hospital's elevator and it's full of loud, obnoxious people. I tell her in a semi-loud voice that the Disease Control people didn't want me to leave the room but I'm hungry! The elevator gets really quiet and people start getting off the elevator earlier than the floor that they pushed the button for....go figure.

It's difficult to get time on the computer where we are staying. I'm really hoping things get straightened out by Monday; this has been very difficult on all of us, especially my son.
I can handle it, I'm a tough old fart, but kids shouldn't have to go through this kind
of @*%$%)*!!!

That's my "EXPERT" opinion! lol

I know, I know, counselling is in order!


Your friend

Mike

Glad your back
Mike,

It's so good to hear from you again. Like many others I was also starting to worry about you and your kids. Glad to hear you are doing okay considering everything you have been through lately and it's good to hear that you are able to still make jokes and laugh through all of it. Humor is the only thing that gets you through some of the tough times so never lose it.

I'm sorry to hear that your son has regressed, hopefully the doctors and counselors will be able to help him through this and he will start to improve daily. It would be nice if the courts could see what your ex has done to her own son and they would finally do something to protect him from her.

I will keep you and your children in my prayers. Stay strong and hang in there, right now you may not believe it but things will get better. Like my doctors (and many others) have said "things are going to get worse before they get better, you will feel like you can't go on but you will because you have to". These words are so true, and yes, you will get through it like all of us have.


Stay strong and keep your sense of humor :-)

Your friend,

Glenna

Hondo

ygfilart said:

I am yllette, was dignosed
I am yllette, was dignosed w/ squamous tongue cancer. I had 1/4 of my tongue cut september last year, but the cancer recurred last month and spread almost all over my tongue. Doctors said they need to cut my entire tongue. That same day, I did research and found out about a hospital in china. I flew there right away. I am now recuperating from several treatments. I have so much improvement and not a single part of my tongue was cut-off.

I would be very glad to see you get well.

Hi ygfilart
Welcome to CSN, I am glad to hear you did not have to loose anymore of your your tongue, keep strong and keep posting.

Take care

debbiejeanne

Chefdaddy said:

Thank you Kent.
Three years
Thank you Kent.

Three years ago this last week, my son, who was 11 at that time, was diagnosed with leukemia, a year ago my son was given two months to live after one of the chemo treatments gave him cirrhosis of the liver, a few months later I learned my kids were being severely abused by my ex's boyfriend. My son is now in remission, his daily chemo regimen ends April, his liver has turned itself around, astonishing his doctors and I successfully confronted 5 of my ex's past attorneys and 4 judges and I now have sole custody of both kids and I am horrible in the court room arena ....Yup! we are definitely believers!

My difficulty is remembering the light when it gets very dark, but I'm working on that.

Thank you for your prayers Kent, please keep them coming.

Chefdaddy

Chef
Chef, how are you and your family doing? Last I heard you were dealing with illness and court. I hope your plate has empited out some and you are freer to take care of the illness parts. I pray you and your family are doing well and that God is taking good care of each of you! Please give us an update.
God Bless You,
Debbie

Chefdaddy

Hondo said:

Hi ygfilart
Welcome to CSN, I am glad to hear you did not have to loose anymore of your your tongue, keep strong and keep posting.

Take care

Hi guys and gals,
Brief
Hi guys and gals,

Brief update. We are still in a transitional state and it's becoming more difficult for my son, causing more reversal behavior. I've also been told that I appear to have started showing reactions to the radiation and the Erbitux a couple weeks earlier than expected. My tongue is covered with burns and I'm having difficulty with talking, swallowing, dry mouth and throat and mucous build-up.

I'm afraid I'm going to have to start using the PEG very soon as I'm dropping weight. They don't know if it's the blood disorder that made me burn so quickly. The Erbitux has me covered with blisters all over my scalp and zits on my face. The little suckers are very painful for being small.

I'm going to ask the radiation doctors if they have things lined up properly as both my eyes are dark red with bloodshot. They are extremely light sensitive and very dry. I don't know if the Erbitux can cause this but it started right after my first radiation sessions started.
I'm on my second mask because the first one never lined up correctly due to the swelling in my mouth from the teeth extractions.

I don't know how I'm going to do in court this week, unable to talk. It should be interesting.

I thank all of you for being here for me and your concern for my kids.

Your friend always

Mike

Hondo

Chefdaddy said:

Hi guys and gals,
Brief
Hi guys and gals,

Brief update. We are still in a transitional state and it's becoming more difficult for my son, causing more reversal behavior. I've also been told that I appear to have started showing reactions to the radiation and the Erbitux a couple weeks earlier than expected. My tongue is covered with burns and I'm having difficulty with talking, swallowing, dry mouth and throat and mucous build-up.

I'm afraid I'm going to have to start using the PEG very soon as I'm dropping weight. They don't know if it's the blood disorder that made me burn so quickly. The Erbitux has me covered with blisters all over my scalp and zits on my face. The little suckers are very painful for being small.

I'm going to ask the radiation doctors if they have things lined up properly as both my eyes are dark red with bloodshot. They are extremely light sensitive and very dry. I don't know if the Erbitux can cause this but it started right after my first radiation sessions started.
I'm on my second mask because the first one never lined up correctly due to the swelling in my mouth from the teeth extractions.

I don't know how I'm going to do in court this week, unable to talk. It should be interesting.

I thank all of you for being here for me and your concern for my kids.

Your friend always

Mike

Daddy Mike

You are correct the radiations affects normally don’t start till the 3rd week, but you did start your Chemo early so that too can be causing the radiation affects to show sooner.

The eyes will get dry this is both chemo and radiation, just check to make sure the radiation doctor knows about this, ask him to prescribe some eye drops, I am told that you should not use Visine so ask the doctor he should know best.

Take care my friend, I am here for you anytime you need

sweetblood22

Chefdaddy said:

Hi guys and gals,
Brief
Hi guys and gals,

Brief update. We are still in a transitional state and it's becoming more difficult for my son, causing more reversal behavior. I've also been told that I appear to have started showing reactions to the radiation and the Erbitux a couple weeks earlier than expected. My tongue is covered with burns and I'm having difficulty with talking, swallowing, dry mouth and throat and mucous build-up.

I'm afraid I'm going to have to start using the PEG very soon as I'm dropping weight. They don't know if it's the blood disorder that made me burn so quickly. The Erbitux has me covered with blisters all over my scalp and zits on my face. The little suckers are very painful for being small.

I'm going to ask the radiation doctors if they have things lined up properly as both my eyes are dark red with bloodshot. They are extremely light sensitive and very dry. I don't know if the Erbitux can cause this but it started right after my first radiation sessions started.
I'm on my second mask because the first one never lined up correctly due to the swelling in my mouth from the teeth extractions.

I don't know how I'm going to do in court this week, unable to talk. It should be interesting.

I thank all of you for being here for me and your concern for my kids.

Your friend always

Mike

hang in there chefdaddy
Just wanted you to know that I have been reading your posts, and praying for you, though I have not posted to you before.

Because I have a blood disorder, Fanconis Anemia, chemo was not an option for me. Though, they did try and give it to me anyway, and I said no. Then they recommended Erbitux, and I declined that as well. I decided only to do the radiation.

My radiation symptoms started the first week. By day 14 into treatment, I was only using my PEG. By the end of radiation, I could not swallow liquids, either.

I am sorry that you have to go thru this battle, and a battle for your children at the same time. My heart aches, for you and the kids. I am a child of divorce, and remember my parents custody battle all to well. It was fierce. I also know about divorce, but I never had kids. I came home from work one day, and found out my husband had cheated on me after 15 years of marriage. That was in Sept 2007. By October 2008, was feeling almost normal again, to only find a lymph node that was swollen. That started my battle with cancer. I would have never made it thru these years without the power of prayer, the support of the many friends, relatives, and complete strangers who were so kind.

Wishing you God's Grace and Blessings.

Skiffin16

Chefdaddy said:

Hi guys and gals,
Brief
Hi guys and gals,

Brief update. We are still in a transitional state and it's becoming more difficult for my son, causing more reversal behavior. I've also been told that I appear to have started showing reactions to the radiation and the Erbitux a couple weeks earlier than expected. My tongue is covered with burns and I'm having difficulty with talking, swallowing, dry mouth and throat and mucous build-up.

I'm afraid I'm going to have to start using the PEG very soon as I'm dropping weight. They don't know if it's the blood disorder that made me burn so quickly. The Erbitux has me covered with blisters all over my scalp and zits on my face. The little suckers are very painful for being small.

I'm going to ask the radiation doctors if they have things lined up properly as both my eyes are dark red with bloodshot. They are extremely light sensitive and very dry. I don't know if the Erbitux can cause this but it started right after my first radiation sessions started.
I'm on my second mask because the first one never lined up correctly due to the swelling in my mouth from the teeth extractions.

I don't know how I'm going to do in court this week, unable to talk. It should be interesting.

I thank all of you for being here for me and your concern for my kids.

Your friend always

Mike

Eyes
You know you should keep them shut while getting zapped...LOL, just teasing you bud. I used to worry about cause and effec on my eyes as well, but I did make sure to keep them shut. I've had them cjecked since treatment has finished and at least for now, nothing seems to have changed, same prescribtion as before.

They had to make me another mask before I started radiation. They made my first before I even started the nine weeks of Chemo. By the time I started the concurrent chemo and rads, I lost enough that my face was smaller. But also, the tumor I had originally had in my neck was gone as a result of the CHemo as well.

Every Monday for the seven weeks of Chemo, first think they'd do would be shoot an X-Ray before starting treatment and check the fit. If it was out they needed a new mask. I think they had to make another once again during treatment. T also fad a consult with the Rads MD every Monday as well.

Glad you're hanging in there, sorry for the pain, but you know what they say, No Pain, No Gain.... Just think as I did, whatever pain as I was going through the cancer was also. I'll be damned if the pain is going to kill me before it dies....

JG

Chefdaddy

Skiffin16 said:

Eyes
You know you should keep them shut while getting zapped...LOL, just teasing you bud. I used to worry about cause and effec on my eyes as well, but I did make sure to keep them shut. I've had them cjecked since treatment has finished and at least for now, nothing seems to have changed, same prescribtion as before.

They had to make me another mask before I started radiation. They made my first before I even started the nine weeks of Chemo. By the time I started the concurrent chemo and rads, I lost enough that my face was smaller. But also, the tumor I had originally had in my neck was gone as a result of the CHemo as well.

Every Monday for the seven weeks of Chemo, first think they'd do would be shoot an X-Ray before starting treatment and check the fit. If it was out they needed a new mask. I think they had to make another once again during treatment. T also fad a consult with the Rads MD every Monday as well.

Glad you're hanging in there, sorry for the pain, but you know what they say, No Pain, No Gain.... Just think as I did, whatever pain as I was going through the cancer was also. I'll be damned if the pain is going to kill me before it dies....

JG

Hi Everyone
Thank you Hondo and John,


Hello Miss Sweetblood22, I have been following some of your postings as well and my prayers go to you my dear. My blood disorder is Coproporphyria, a hereditary blood disorder caused from either a mutated or a missing enzyme in the blood making process.

My daughter has it as well and her symptoms are different and does not allow her to be in direct sunlight. My symptoms is severe nerve damage, I have no feeling in my legs or hands. I spent 4 years in an electric wheelchair until I taught myself to walk again without feeling. I do good until someone turns the lights out and then I fall down. lol

I'm terribly sorry to hear about the cause of your divorce, sometimes people that have our complete trust tosses it out for something new. I can tell that you are a strong survivor and that you have God on your side.

I admit my faith has been rocked lately by everything that's been hitting us repeatedly, but with the help of some very special friends on here it's getting stronger.

Take care my friends and I will check in soon.

Mike

stevenl

Chefdaddy said:

Hi Everyone
Thank you Hondo and John,


Hello Miss Sweetblood22, I have been following some of your postings as well and my prayers go to you my dear. My blood disorder is Coproporphyria, a hereditary blood disorder caused from either a mutated or a missing enzyme in the blood making process.

My daughter has it as well and her symptoms are different and does not allow her to be in direct sunlight. My symptoms is severe nerve damage, I have no feeling in my legs or hands. I spent 4 years in an electric wheelchair until I taught myself to walk again without feeling. I do good until someone turns the lights out and then I fall down. lol

I'm terribly sorry to hear about the cause of your divorce, sometimes people that have our complete trust tosses it out for something new. I can tell that you are a strong survivor and that you have God on your side.

I admit my faith has been rocked lately by everything that's been hitting us repeatedly, but with the help of some very special friends on here it's getting stronger.

Take care my friends and I will check in soon.

Mike

Prayers
Hey Mike, I never have posted you before either, but I just wanted to tell you that I am praying for you too man. I ask God every day to tell me when I forget that I am not alone. I ask him to reassure and show me that his power is lifting me up. I ask this for not only me, but everyone here.
God Bless You,
Steve

Hondo

Chefdaddy said:

Hi Everyone
Thank you Hondo and John,


Hello Miss Sweetblood22, I have been following some of your postings as well and my prayers go to you my dear. My blood disorder is Coproporphyria, a hereditary blood disorder caused from either a mutated or a missing enzyme in the blood making process.

My daughter has it as well and her symptoms are different and does not allow her to be in direct sunlight. My symptoms is severe nerve damage, I have no feeling in my legs or hands. I spent 4 years in an electric wheelchair until I taught myself to walk again without feeling. I do good until someone turns the lights out and then I fall down. lol

I'm terribly sorry to hear about the cause of your divorce, sometimes people that have our complete trust tosses it out for something new. I can tell that you are a strong survivor and that you have God on your side.

I admit my faith has been rocked lately by everything that's been hitting us repeatedly, but with the help of some very special friends on here it's getting stronger.

Take care my friends and I will check in soon.

Mike

Daddy Mike
Just to let you
Daddy Mike

Just to let you know we are thinking about you. I know you might be feeling down with all the other problems you have going on at the same time as you are doing treatment, please just hang in there and don’t give up, there are too many people who need you my friend.