ROLL CALL, January 2010

Ron49

Just Diagnosed
I am new and not even sure I know the right terminology to use, sorry been gone a few days as I had surgery yesterday. Here is my info:

Ron Adams
San Diego Ca
1st biopsy Dec 5, 2010
Diagnosed Dec 10, 2010 - SCC metasized to left lymph node - golf ball size lump
2nd biopsy Dec 28, 2010 - path report diagnosis is Epitheleal Neoplasm
Surgery - Jan 3, 2011 - tumor and lymph gland removed tested positive for cancer, removed tonsils and now waiting for results.

Pam M

HAWVET said:

Update on roll call
Am starting to slowly update the roll call data. It is difficult to include all the miscellaneous information about your cancer so I will use a simpler format.

For first time enrollees, please indicate on the first line your state, date diagnosed if known and type of cancer. If you include your city, it will be published. On subsequent lines, you can include information on your status so others may receive updated information about you. This information will not be published but information for the readers only.

I had thought of giving it up since many have not checked back in. If you have already enrolled and had not reported back in since July 1, 2010, please report or you will be considered AWOL (LOL).

Aloha and Haouoli Makahiki Hou (Happy New Year) to all.

HAWVET

Pam M Update
Pam M; Erlanger, KY; dx 10-24-2009; SCC Base of Tongue T2N2; Stage IV

dx 10-24-09 at age 44 SCC BOT Stage IV, T2N2. Open biopsies and Tonsillectomy (rt. only) 10-24-09. Induction Chemo (5FU, Taxotere and Cisplatin) Nov. 2009 - Jan. 2010. PEG installed 12-24-09; removed 07-27-2010. Chemo (Carboplatin) with Radiation (IMRT) Jan. 2010 - March 16 2010. MRND 12-21-2010. Amifostine injections for first half of radiation, until allergic reactions got too bad.CT/PET done 06-28-10, results 07-02-10. Primary and formerly very large node now non-issues. Formerly enlarged node still slightly enlarged (but smaller than before), and showing slight metabolic activity on PET (SVU was 9, now 2). RO recommended doing a watch and wait on the node still showing activity. November PET and CT showed the node resisted treatment, size and PET activity had both increased; modified radical neck dissection done 12-21-2010 (all nodes on right side taken; the one we knew about was the only cancerous node). All food in by mouth since May. Lost nearly 70 lbs during tx - OK, since I went in 80 lbs overweight. Seems my body tolerated chemo/rads very well; will need to work on dissection "issues". Hoping we all do well.

Hondo

HAWVET said:

Update on roll call
Am starting to slowly update the roll call data. It is difficult to include all the miscellaneous information about your cancer so I will use a simpler format.

For first time enrollees, please indicate on the first line your state, date diagnosed if known and type of cancer. If you include your city, it will be published. On subsequent lines, you can include information on your status so others may receive updated information about you. This information will not be published but information for the readers only.

I had thought of giving it up since many have not checked back in. If you have already enrolled and had not reported back in since July 1, 2010, please report or you will be considered AWOL (LOL).

Aloha and Haouoli Makahiki Hou (Happy New Year) to all.

HAWVET

Up-date
Hondo Still alive and doing well in 2011
Lafayette Louisiana NPC Cancer March 2011 will make 5 years from last treatment

Agatha

New to Roll Call
Agatha
Toronto, Canada
Diagnosed October, 2010 with Stage IV tongue cancer on left side (Non-smoker, non-drinker, HPV negative) 26 years old. Removed November 1, 2010, margins were clear, 2 of 37 lymph nodes were positive. Skin graft from left arm. Currently undergoing radiation treatment (30 sessions) T2N2M0

buzz99

Roll Call
66 year old male in New Mexico, diagnosed in August 2010 with BOT cancer with 1 lymph node involvement, 2 rounds of Taxotere,Cisplatin, 5-FU. Then Erbutux with radiation started in November. As of today, 1 Erbutux treatment to go and 4 radiation treatments.

BrianKrashpad

New
Home state: Florida

Status/date diagnosed: Left Tonsil, + 2 lymph nodes, T1N2bM0. 11/18/10

Discovered in surgery to take out what was thought to only be a cyst, which turned into radical neck dissection on left side only, tonsillectomy + 20 lymph nodes removed. Diagnosis/surgery date: 11/18/2010. Non-smoker, unknown HPV status.

In midst of both once-weekly chemo (carboplatin) and daily (M-F) radiation. Have had 4 chemos and 13 radiations as of today, have another 4 or so chemos and 22 zap-lab visits to go!

God's blessings on everyone.

Be well!

sweetblood22

HAWVET said:

Update on roll call
Am starting to slowly update the roll call data. It is difficult to include all the miscellaneous information about your cancer so I will use a simpler format.

For first time enrollees, please indicate on the first line your state, date diagnosed if known and type of cancer. If you include your city, it will be published. On subsequent lines, you can include information on your status so others may receive updated information about you. This information will not be published but information for the readers only.

I had thought of giving it up since many have not checked back in. If you have already enrolled and had not reported back in since July 1, 2010, please report or you will be considered AWOL (LOL).

Aloha and Haouoli Makahiki Hou (Happy New Year) to all.

HAWVET

update
sweetblood22, pennsylvania, dx 12/08, SCC HNC unknown primary stage 4

fanconis anemia patient. modified radical neck dissection on left side, 23 lymphnodes removed, 3 cancerous. 30 IMRT, 200 CGY per day. 6,000 total, 5000 reg, and 1,000 neck boost 4-6-09 to 5-15-09. peg removed 9/10.

HAWVET

BrianKrashpad said:

New
Home state: Florida

Status/date diagnosed: Left Tonsil, + 2 lymph nodes, T1N2bM0. 11/18/10

Discovered in surgery to take out what was thought to only be a cyst, which turned into radical neck dissection on left side only, tonsillectomy + 20 lymph nodes removed. Diagnosis/surgery date: 11/18/2010. Non-smoker, unknown HPV status.

In midst of both once-weekly chemo (carboplatin) and daily (M-F) radiation. Have had 4 chemos and 13 radiations as of today, have another 4 or so chemos and 22 zap-lab visits to go!

God's blessings on everyone.

Be well!

Thank you
Thank you for enrolling. All entries before this have been noted and will be included in the roll call update. Will check again before posting the roll call.

HAWVET

areomech

HAWVET said:

Thank you
Thank you for enrolling. All entries before this have been noted and will be included in the roll call update. Will check again before posting the roll call.

HAWVET

new
Mike Cincinnati Oh, T1N0M0 Lt Tonsil T2N0M0 Rt Tonsil. Diagnose on 9-24-2010 tonsils removed 10-5-2010 started treatment on 11-15-2010 and finish 01-04-2011 35 rads and 3 cisplatin.

Skiffin16

Skiffin16 - Update
Skiffin16 ~ John

Still kickin and fishin when not workin...
Lakeland, Florida - Diagnosed January 2009
Tonsil Cancer, SCC STG III HPV+
Cisplatin, Taxotere, 5FU, Carboplatin and 35 Rads

Skiffin16

BrianKrashpad said:

New
Home state: Florida

Status/date diagnosed: Left Tonsil, + 2 lymph nodes, T1N2bM0. 11/18/10

Discovered in surgery to take out what was thought to only be a cyst, which turned into radical neck dissection on left side only, tonsillectomy + 20 lymph nodes removed. Diagnosis/surgery date: 11/18/2010. Non-smoker, unknown HPV status.

In midst of both once-weekly chemo (carboplatin) and daily (M-F) radiation. Have had 4 chemos and 13 radiations as of today, have another 4 or so chemos and 22 zap-lab visits to go!

God's blessings on everyone.

Be well!

Florida
Where are you in Florida Brian....

vermontliz

Skiffin16 said:

Skiffin16 - Update
Skiffin16 ~ John

Still kickin and fishin when not workin...
Lakeland, Florida - Diagnosed January 2009
Tonsil Cancer, SCC STG III HPV+
Cisplatin, Taxotere, 5FU, Carboplatin and 35 Rads

Roll Call
My soul mate and husband diagnosed with SCC of the Base of Tongue stage IV December 2009. He is 57. Live in VT, treatments included induction chemo and the 35 rads to neck. Peg came, peg went. No cancer in the head and neck but showing up in bones.

Currently in a new chemo. I appreciate this network, reading about your experience - and so thankful for you all and every day. I come to this website often.

Positive energy is powerful and I am sending it all around with all of my might.

luv2cut1

Skiffin16 said:

Skiffin16 - Update
Skiffin16 ~ John

Still kickin and fishin when not workin...
Lakeland, Florida - Diagnosed January 2009
Tonsil Cancer, SCC STG III HPV+
Cisplatin, Taxotere, 5FU, Carboplatin and 35 Rads

NEW TO ROLL CALL - JANUARY 2011
luv2cut1-Myka Landry, Colorado. Hubby Pat SCC supraglottis May 2008, recurrence in neck March 2009, chemo radiation 2008, radical neck dissection and chemo reirradiation finished Sept 2009. Scan Nov 2010 clean for SCC! Doing well, taking it one day at a time. Love everyone here on this board and thinking and praying for all of you always.

rozaroo

luv2cut1 said:

NEW TO ROLL CALL - JANUARY 2011
luv2cut1-Myka Landry, Colorado. Hubby Pat SCC supraglottis May 2008, recurrence in neck March 2009, chemo radiation 2008, radical neck dissection and chemo reirradiation finished Sept 2009. Scan Nov 2010 clean for SCC! Doing well, taking it one day at a time. Love everyone here on this board and thinking and praying for all of you always.

Roll Call
Rosalind Sudbury, Ontario Canada. Diiagnosed Dec 18th 2009 stage 4b cancer of the toncil.
Treatment began on January 15th 2010 ended March 16th 2010 35 radiation & 3 chemo.So far so
good!

pascotty

rozaroo said:

Roll Call
Rosalind Sudbury, Ontario Canada. Diiagnosed Dec 18th 2009 stage 4b cancer of the toncil.
Treatment began on January 15th 2010 ended March 16th 2010 35 radiation & 3 chemo.So far so
good!

Roll Call January 2011
SCC Right Tonsil T1N1M0 Stage II, diagnosed Nov 09, treatment - Tonsils removed, 9 back teeth removed, 2nd March 2010 Started 34 Radiation Treatment IMRT, 3 cisplatin, finished 23rd April, first pet scan showed all clear, yipee. Follow up appointments so far so good. Managed treatment really well, no peg, no sore throat. Lost taste buds and saliva, taste returned 3 weeks after treatment (not a great deal of sweet flavours though) Saliva about 60% back. Smoker and light drinker 44 yo female from Bunbury Western Australia. Found lump on right side of neck while rubbing hands across neck to put hair up in a ponytail, from there life turned to pooh. All good again now, back on track, positive and hopeful and looking forward to my future whatever it throws at me.

stevenl

pascotty said:

Roll Call January 2011
SCC Right Tonsil T1N1M0 Stage II, diagnosed Nov 09, treatment - Tonsils removed, 9 back teeth removed, 2nd March 2010 Started 34 Radiation Treatment IMRT, 3 cisplatin, finished 23rd April, first pet scan showed all clear, yipee. Follow up appointments so far so good. Managed treatment really well, no peg, no sore throat. Lost taste buds and saliva, taste returned 3 weeks after treatment (not a great deal of sweet flavours though) Saliva about 60% back. Smoker and light drinker 44 yo female from Bunbury Western Australia. Found lump on right side of neck while rubbing hands across neck to put hair up in a ponytail, from there life turned to pooh. All good again now, back on track, positive and hopeful and looking forward to my future whatever it throws at me.

Still Here
Steve Thompson Texas

DX Jan 2010 SCC rt.tonsil with mets to nodes. Doing Great!!