ROLL CALL, January 2010
HAWVET
Member Posts: 318
My apologies for not being on the board as often. We started this in August 2008. The purpose was to account for those who volunteered to be on Roll Call. Every six months, they were supposed to check in. You can just log in and state your presence. Update your status if there is a change.
The below are the last status of those who have at one time checked in. If you wish to be added, just indicate your home state, the year of your cancer, the type and your status.
If there is sufficient interest, the next roll call will be in July 2010.
Name, State, Year and type of cancer.
Bughunter, Tennessee, 2007 Stage IV tonsilar, last treated 03/28/2007, Home St: Michigan
Byzas, New York. 2007, Checked in 05-12-2009, Left tonsil, stage III
Christmas, California, 2004, Nasopharyngeal, Checked in 07-08 Just had yearly check up, all clear after five years. Checked in again 02-08-2009 very happy to be alive…58 years old
Craig_Griffin, Indiana, 2008, Mass Squamus Carninoma (tongue base), checked in Feb 4, 2009
Cwctcher, Virginia. 1997, Tonsilar
Delnative, Delaware, Year Unk, Checked in 11-25-09 and still alive. No details
Devildawg, Michigan, 2004, Nasopharyngeal
Fishinggirl, State Unk, 2009, Checked in 11-27-09. Last radiation Oct 09, diagnosed w/ squamous cell carcinoma (Cindy)
Garyr, New Mexico. 1999, Throat & Lymph glands
Geezer, Florida, 2006, Tonsilar
Glenna M, New Hampshire, 2009, Checked in 11-29-2009. Treated for SCC in larynx and carcinoma in left lung, Reported in September 2009 that Scan due in December - no report yet.
Hawvet, Hawaii, 1998, Nasopharyngeal 12 years ago
Hondo, Louisiana, 2002, Checked in 11-28-2009. Had NPC and next scan was due December 7. No report since.
Jagged, Washington, Breast 2005, Esophagus 2007, Lungs 2008
Jestawoman, Oregon, 2006, Checked in 12-01-2009. Reported brother Troy with NPC in 2006. In treatment for past six months. Recurrent NPC, stage IV. We all need prayers, but please extend a special prayer for Troy.
Jkinobay, Arizona, 2007, HPV16 positive lymph nodes. Lives and works in Mexico, 04-21-2009 Happy to report 18 month pet/CT scan. Checked in 09-07 Still around
Jodyman, Texas, 2008, Current, squamous cell carcinoma at base of tongue. Lung Cancer in 2005
Kent Cass, State Unk, 2008, Checked in 12-07-09. Diagnosed NPC and completed treatment. In April 2009 report that Petscan due early 2010. Alive and life is good.
Landranger25, Michigan, 2009, Checked in 11-28-09. Diagnosed in June 2009 w/SCC in base of tongue. Doing well and next pet scan due (Mike)
Ljoy, Texas/Minnesota, 2005, Tonsil, 2005 PET scan good. Checked in 01-20-2009, still doing fine
Lolojldunn, Montana, 2007, Stage 4 Tonsilar (last treated 8/16/2007)
Lorileona, Wisconsin, 2005/2008 Wife of Ron w/Tongue and lymph nodes (Spouse)
Luckyfl, 2009, Checked in 05-13-2009, Just started, left tonsil and lymph. Nodes removed pass Monday, Name: Roxie
Marymoo, Alabama, 2008, SCC of tongue and lymphnodes current at time of posting, Age 39
Moondreamer, Phoenix, cancer unk, Originally from Indiana, checked in 02-06-2009. Caregiver, daughter in law brain/bone cancer
Marywiz15, Colorado, 2007, epithelial myo-epithelial carcinoma
MLC53, State Unk. 2007?, Checked in 11-27-09. Had been 2 1/2 years since post treatment.
Nidociv, Ohio, 2008, Checked in 12-11-2009. Diagnosed w/SCC left BOT. Completed treatment in October 2008. All scans have been clean. Only starting to eat now. Still w/PEG tube.
Oldejack, State and cancer unk. Reported 05-26-2009 only saying “I’m alive”
PBAILEY, Virginia, 2008, Checked in 03-25-2009, named Patti. Operation in November 2008. Esthesioneuroblastoma. Followup radiation should be in June. Checked in 07-25-2009, last MRI good
Pattyanny, New York 2009, Checked in 11-27-09. Undiagnosed primary head and neck in July 2009. Completed radiation October 2009. Awaiting scan
Paula002, Montreal, 2007, Nasopharyngeal
Pie123, State unk, 2007, Squamuous cell cancer behind the left tonsil
Pmfennell, NE/Florida 6 mos, Checked in 07-24-2009 after 6.5 years clear, Name: Pete
Slickwilly, Michigan, 2003. Difuse Large B-Cell Lymphoma. Checked in 01-20-2009, had 25 doses radiation in 12-2003
Sash, Florida, 1999/2000, Squamous cell carcinoma, stage 4, removed base of tongue. Checked in okay, Jan 20 2009. Checked in okay, 11-30-2009
Sassyque-Betsy, Pennsylvania, 2003, Cancer of the tongue, Checked in 01-22, Steeler fan, Checked in 07-29-2009 good and steeler fan
SIRENAF42, Texas, 2008, Checked in 02-06-2009, Esthesionueroblastoma of the Ethmoid Sinus and Naspharnyx,,
Name Sienna Finch. Checked in 03-25-2009, doing okay
Skiffin 16, State Unk, 2009, Checked in 11-20-2009. Treated for SCC, right tonsil diagnosed in January 2009. Treatment completed June 2009. Followup. PET and CT were clean. (John)
Smithmama2, Georgia, 2009, Checked in 12-06-2009. Husband Kevin diagnosed Stage 4 SCC in base of tongue. Early December 2009, had clean PET/CT scan. Completed treatment in October 2009. (Karen)
Souplady, Washington, 2009, Tonsil Stage 4 removed last Monday, checked in May 13, 2009
TereB, Texas, 1987, Milignant Paraganglioma (started as glomus jugulare tumor) still Fighting
TIM_WWJD, Oregon, 2009, Checked in 01-28-2009, Tonsil cancer, just diagnosed. Checked in 07-24-2009, Six weeks post treatment
Tom55, Michigan. 2006, Medullary thyroid
Train-nut, Oklahoma, 2007, hupopharyngeal (piriform sinus), Checked 01-22-09
Victor53, Rhode Island, 2008, Erbituz Carboplatin Taxol, Lives in Costa Rica (Victor Brown). Pet Scan, April 23 2009, Back in Costa Rica. Reported 04-30-2009 on scan results….Okay, needs another CAT scan in 3 mos, PET in six. Back to Costa Rica in August for month, then back In Jan-Jun 2010.. 11-28-2009 - Feeling great and quitting smoking. Checked in 07-062009, Still Okay
Wboaz, Oregon, 2006, Squamous cell cancer of left tonsil. Checked in 05-12-2009. Spot showed in right lung at followup. Another scan In two months. Name Wayne
PASSED AWAY
Hunpot, Massachusetts, Mom passed away, August 18, 2008 (Squamous cell carcinoma top voice box). Checked in Jan 2009 Name Tracy
MOM674, Passed away in December 2008. Was a brief member, fought hard…reported by jkinobay
Bany, Canada, 2008, Dad (TR2), SCC of the maxillary sinus (located near Canada) (Dad)Checked in 07-30-2009, follow up on dad. Dad completed treatment 03-2009, No results from MRI. Or CT scan, Lost 70 pounds. In December 2009, Reported dad passed away on 11-02-2009
(Bany, thank you for the report. My sincerest condolences for your loss)
The below are the last status of those who have at one time checked in. If you wish to be added, just indicate your home state, the year of your cancer, the type and your status.
If there is sufficient interest, the next roll call will be in July 2010.
Name, State, Year and type of cancer.
Bughunter, Tennessee, 2007 Stage IV tonsilar, last treated 03/28/2007, Home St: Michigan
Byzas, New York. 2007, Checked in 05-12-2009, Left tonsil, stage III
Christmas, California, 2004, Nasopharyngeal, Checked in 07-08 Just had yearly check up, all clear after five years. Checked in again 02-08-2009 very happy to be alive…58 years old
Craig_Griffin, Indiana, 2008, Mass Squamus Carninoma (tongue base), checked in Feb 4, 2009
Cwctcher, Virginia. 1997, Tonsilar
Delnative, Delaware, Year Unk, Checked in 11-25-09 and still alive. No details
Devildawg, Michigan, 2004, Nasopharyngeal
Fishinggirl, State Unk, 2009, Checked in 11-27-09. Last radiation Oct 09, diagnosed w/ squamous cell carcinoma (Cindy)
Garyr, New Mexico. 1999, Throat & Lymph glands
Geezer, Florida, 2006, Tonsilar
Glenna M, New Hampshire, 2009, Checked in 11-29-2009. Treated for SCC in larynx and carcinoma in left lung, Reported in September 2009 that Scan due in December - no report yet.
Hawvet, Hawaii, 1998, Nasopharyngeal 12 years ago
Hondo, Louisiana, 2002, Checked in 11-28-2009. Had NPC and next scan was due December 7. No report since.
Jagged, Washington, Breast 2005, Esophagus 2007, Lungs 2008
Jestawoman, Oregon, 2006, Checked in 12-01-2009. Reported brother Troy with NPC in 2006. In treatment for past six months. Recurrent NPC, stage IV. We all need prayers, but please extend a special prayer for Troy.
Jkinobay, Arizona, 2007, HPV16 positive lymph nodes. Lives and works in Mexico, 04-21-2009 Happy to report 18 month pet/CT scan. Checked in 09-07 Still around
Jodyman, Texas, 2008, Current, squamous cell carcinoma at base of tongue. Lung Cancer in 2005
Kent Cass, State Unk, 2008, Checked in 12-07-09. Diagnosed NPC and completed treatment. In April 2009 report that Petscan due early 2010. Alive and life is good.
Landranger25, Michigan, 2009, Checked in 11-28-09. Diagnosed in June 2009 w/SCC in base of tongue. Doing well and next pet scan due (Mike)
Ljoy, Texas/Minnesota, 2005, Tonsil, 2005 PET scan good. Checked in 01-20-2009, still doing fine
Lolojldunn, Montana, 2007, Stage 4 Tonsilar (last treated 8/16/2007)
Lorileona, Wisconsin, 2005/2008 Wife of Ron w/Tongue and lymph nodes (Spouse)
Luckyfl, 2009, Checked in 05-13-2009, Just started, left tonsil and lymph. Nodes removed pass Monday, Name: Roxie
Marymoo, Alabama, 2008, SCC of tongue and lymphnodes current at time of posting, Age 39
Moondreamer, Phoenix, cancer unk, Originally from Indiana, checked in 02-06-2009. Caregiver, daughter in law brain/bone cancer
Marywiz15, Colorado, 2007, epithelial myo-epithelial carcinoma
MLC53, State Unk. 2007?, Checked in 11-27-09. Had been 2 1/2 years since post treatment.
Nidociv, Ohio, 2008, Checked in 12-11-2009. Diagnosed w/SCC left BOT. Completed treatment in October 2008. All scans have been clean. Only starting to eat now. Still w/PEG tube.
Oldejack, State and cancer unk. Reported 05-26-2009 only saying “I’m alive”
PBAILEY, Virginia, 2008, Checked in 03-25-2009, named Patti. Operation in November 2008. Esthesioneuroblastoma. Followup radiation should be in June. Checked in 07-25-2009, last MRI good
Pattyanny, New York 2009, Checked in 11-27-09. Undiagnosed primary head and neck in July 2009. Completed radiation October 2009. Awaiting scan
Paula002, Montreal, 2007, Nasopharyngeal
Pie123, State unk, 2007, Squamuous cell cancer behind the left tonsil
Pmfennell, NE/Florida 6 mos, Checked in 07-24-2009 after 6.5 years clear, Name: Pete
Slickwilly, Michigan, 2003. Difuse Large B-Cell Lymphoma. Checked in 01-20-2009, had 25 doses radiation in 12-2003
Sash, Florida, 1999/2000, Squamous cell carcinoma, stage 4, removed base of tongue. Checked in okay, Jan 20 2009. Checked in okay, 11-30-2009
Sassyque-Betsy, Pennsylvania, 2003, Cancer of the tongue, Checked in 01-22, Steeler fan, Checked in 07-29-2009 good and steeler fan
SIRENAF42, Texas, 2008, Checked in 02-06-2009, Esthesionueroblastoma of the Ethmoid Sinus and Naspharnyx,,
Name Sienna Finch. Checked in 03-25-2009, doing okay
Skiffin 16, State Unk, 2009, Checked in 11-20-2009. Treated for SCC, right tonsil diagnosed in January 2009. Treatment completed June 2009. Followup. PET and CT were clean. (John)
Smithmama2, Georgia, 2009, Checked in 12-06-2009. Husband Kevin diagnosed Stage 4 SCC in base of tongue. Early December 2009, had clean PET/CT scan. Completed treatment in October 2009. (Karen)
Souplady, Washington, 2009, Tonsil Stage 4 removed last Monday, checked in May 13, 2009
TereB, Texas, 1987, Milignant Paraganglioma (started as glomus jugulare tumor) still Fighting
TIM_WWJD, Oregon, 2009, Checked in 01-28-2009, Tonsil cancer, just diagnosed. Checked in 07-24-2009, Six weeks post treatment
Tom55, Michigan. 2006, Medullary thyroid
Train-nut, Oklahoma, 2007, hupopharyngeal (piriform sinus), Checked 01-22-09
Victor53, Rhode Island, 2008, Erbituz Carboplatin Taxol, Lives in Costa Rica (Victor Brown). Pet Scan, April 23 2009, Back in Costa Rica. Reported 04-30-2009 on scan results….Okay, needs another CAT scan in 3 mos, PET in six. Back to Costa Rica in August for month, then back In Jan-Jun 2010.. 11-28-2009 - Feeling great and quitting smoking. Checked in 07-062009, Still Okay
Wboaz, Oregon, 2006, Squamous cell cancer of left tonsil. Checked in 05-12-2009. Spot showed in right lung at followup. Another scan In two months. Name Wayne
PASSED AWAY
Hunpot, Massachusetts, Mom passed away, August 18, 2008 (Squamous cell carcinoma top voice box). Checked in Jan 2009 Name Tracy
MOM674, Passed away in December 2008. Was a brief member, fought hard…reported by jkinobay
Bany, Canada, 2008, Dad (TR2), SCC of the maxillary sinus (located near Canada) (Dad)Checked in 07-30-2009, follow up on dad. Dad completed treatment 03-2009, No results from MRI. Or CT scan, Lost 70 pounds. In December 2009, Reported dad passed away on 11-02-2009
(Bany, thank you for the report. My sincerest condolences for your loss)
0
Comments
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Michael 'Mick' Morris
Michael 'Mick' Morris, California. SCC unknown origin stage IV (lymph mets) Dx 12/09. Treatment (so far) surgery; rads and chemo to come. Very much alive.0 -
Glenna Mmicktissue said:Michael 'Mick' Morris
Michael 'Mick' Morris, California. SCC unknown origin stage IV (lymph mets) Dx 12/09. Treatment (so far) surgery; rads and chemo to come. Very much alive.
Glenna M, New Hampshire, diagnosed May '09 with NSCLC adenocarcinoma in left lung and SCC of larynx. Finished chemo and rads in Sept.'09. First scan and another biopsy shows I'm in remission. I'm still here and I'm still fighting!!0 -
Tim G. Oregon, diagnoisedGlenna M said:Glenna M
Glenna M, New Hampshire, diagnosed May '09 with NSCLC adenocarcinoma in left lung and SCC of larynx. Finished chemo and rads in Sept.'09. First scan and another biopsy shows I'm in remission. I'm still here and I'm still fighting!!
Tim G. Oregon, diagnoised January 2009, squamous cell carcinoma stage 4 in left tonsil, seven months post treatment last ENT visit clear, chest x-ray clear. Removing PORT next week. I hope God blesses everyone as he has me through this.
P.S. Thank you Hawvet for keeping this going.0 -
Roll CallTIM_WWJD said:Tim G. Oregon, diagnoised
Tim G. Oregon, diagnoised January 2009, squamous cell carcinoma stage 4 in left tonsil, seven months post treatment last ENT visit clear, chest x-ray clear. Removing PORT next week. I hope God blesses everyone as he has me through this.
P.S. Thank you Hawvet for keeping this going.
Steve T. Texas, diagnosed January 2010 SCC Stage 4 in right tonsil. Am currently still undergoing treatment. God Bless0 -
Roll callstevenl said:Roll Call
Steve T. Texas, diagnosed January 2010 SCC Stage 4 in right tonsil. Am currently still undergoing treatment. God Bless
cwcad diagnosed Feb. 2007. Completed 7 weeks of chemo and radiation treatments for stage IV tongue cancer June 07. Latest ct/pet san on 1-12-10 says no hot spots and free of cancer. Life is good today!!0 -
Roll Call
Cancer NPC, State Louisiana, Last PET Dec 2009 results positive but not growing same as the last 4 years. On going follow-up with local primary doctor changed from 3 to every 6 months, doctor’s advice keep doing what ever you are doing. MD Anderson doctors believe that left over scar tissue from NPC is the reason for the false positive PET.0 -
Roll Callljoy said:Roll Call
Right Tonsil cancer completed treatment Sept. 05. Still doing fine. No other signs of cancer.
SCC Base of Tongue. Completed treatment Oct 2009. Next PET in April. Doing fine.
Mike0 -
Roll CallDazey said:Roll call
NY -DX SCC unknown primary- One lymph node removed/IMRT 30 TX only/no chemo/no peg- Tx completed 10/26/09 - follow up CAT scan "perfectly normal" - 14 weeks post tx - doing very well - Dazey
Oregon, Husband Dx June 2009 SCC, occult primary. Finished treatment Sept 2009. Clean pet scan December 2009. Getting more energy daily and interested again in life!! Linda, Wife0 -
New to Roll Calltrain-nut said:Roll Call
Oklahoma, SCC of the hypopharynx, 2 1/2 years post-treatment, enjoying life. Sorry we lost a few. Happy to see most are doing okay, my compliments on your success. Rich
KY, SCC BOT IV dx 10-26-2009; finished induction chemo (TCF), then started 7 weeks radiation with concurrent Carboplatin 01-25-20100 -
Same TreatmentPam M said:New to Roll Call
KY, SCC BOT IV dx 10-26-2009; finished induction chemo (TCF), then started 7 weeks radiation with concurrent Carboplatin 01-25-2010
Hi Pam M, looking at your therapy, it's exactly the same as I just finished, though I had Tonsil Cancer SCC HPV stage III...
John0 -
Thank youSkiffin16 said:Same Treatment
Hi Pam M, looking at your therapy, it's exactly the same as I just finished, though I had Tonsil Cancer SCC HPV stage III...
John
Thank you for the updates. It will be reflected in the July 2010 Roll Call. Starting on this list, you should have noted that I have placed the date of when the person last checked in. I will show two separate listings next time.
The first will be those who are current. The second are those who had not returned in a year. If they do not return, they will be considered AWOL (lol) at the next listing after that. They will then be dropped from the rolls.
I will try and return to the board more than in the past. My prayers to all of you and I thank the man above for allowing us to still be around.
Mahalo and Aloha0 -
Kurt, 39 Atlanta, Ga. SCCHAWVET said:Thank you
Thank you for the updates. It will be reflected in the July 2010 Roll Call. Starting on this list, you should have noted that I have placed the date of when the person last checked in. I will show two separate listings next time.
The first will be those who are current. The second are those who had not returned in a year. If they do not return, they will be considered AWOL (lol) at the next listing after that. They will then be dropped from the rolls.
I will try and return to the board more than in the past. My prayers to all of you and I thank the man above for allowing us to still be around.
Mahalo and Aloha
Kurt, 39 Atlanta, Ga. SCC of Base of tongue and neck. 35 Rads and 3 rounds of cisplatin. Finished treatment 12-29-09. First Pet Scan is 2-24-09. Doing Great.0 -
Kurt Pet Scandoitforoj said:Kurt, 39 Atlanta, Ga. SCC
Kurt, 39 Atlanta, Ga. SCC of Base of tongue and neck. 35 Rads and 3 rounds of cisplatin. Finished treatment 12-29-09. First Pet Scan is 2-24-09. Doing Great.
Kurt 24 February is my birthday, so hopefully you'll have great results and be clean and free....0 -
Roll callSkiffin16 said:Kurt Pet Scan
Kurt 24 February is my birthday, so hopefully you'll have great results and be clean and free....
Delnative, Delaware, diagnosed 7/11/08, Stage III SCC right tonsil (HPV-derived), rads, Cisplatin, modified radical neck dissection, PET scan December '09, cancer-free, whoopee!0 -
New Roll Callstaceya said:Roll Call
New
Dx Dec 2009
Stage 1 NPC. on day 9 of 35 rad txs.
Thanks for all of the support on this site!
Frank
Stage 3 NPC, EBV positive State : VA
Was treated in Kuala Lumpur Malaysia with 35 rads concurrent with 4 times chemo. Finished treatment January 9, 2010.0
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