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? for those with high CEA's
I'm stage 4 with numerous mets to liver and lungs. My CEA has always been bonkers. After a short break from folfiri/Avastin it nearly double to 429 after the first post-break treatment. Now, it is 361. My question is, for those in the long haul and with high CEA's, do you ever see it going down significantly and if so what…
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Fulfuri
Hi, Been reading for quite awhile lately as I dislike writing when things aren't going so well:( Have been praying for all of you!I was wondering how many treatments of Fulfori you have recieved? I'm doing my 10th on monday. Cea has been rising and PET/CT shows rising SUV to 9.3 on one of my liver mets. K-ras test is…
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Secondary Bone Cancer
Hi I am new to the support group. I have just been diagnosed with secondary bone cancer. I would really like to understand the path this is likely to take or learn from other people who have had a similar experience.
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Use of other doctors
I have been having terrible pain in my right hip. I have been controlling it with an old prescription for Vicodin that I hadn't used. I know I need morepain meds and wonder if I should just go to an orthopedist. I have been on SSDI for four years with arthritis diagnosis so I guess it is mainly a question of age or the…
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Breathing
Hi everyone, Yes, breathing is always a good thing! Hope everyone is doing great and staying positive. I am currently NED and will not have an appointment until December at which time I will have a CT scan. When I was having chemo, (5FU and Leucovorin) I experienced some breathing issues- was very wheezy at times. I do…
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CTscan tomorrow, Friday
I'm having my 3 month CTscan tomorrow and will find out the results on Wednesday, Oct 1st. Please keep me in your thoughts and prayers that my scan shows nothing new. I'll keep you posted. Thank you! Hugs, Cheryl
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dodged the hughest bullett on my life
Hi All, Well I'm a new person on this site. I wanted to find some place or somewhere to tell my story. Well you guys judge if it qualifies or not. I recently had a colonoscopy done last Wednesday. The reason for this was their was some bleeding going on you know where. Any way that aspect of things stopped with medicine.…
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some questions
Hi you all! I come to this board almost every day, although I don't write much. Today I aws told that my CEA is 3.4 by my Dr.'s office. A month ago it was 2.9. After my third surgery April this year, the number was 0.8 - 2.3 - 2.9 - 3.4 while I was taking xeloda. The good thing is the last CT I had less than two months ago…
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testosterone ...
... and it's link to appetite. My fathers doctor is checking my fathers testosterone level to see if his appetite can be improved. Has anybody out there (who is on chemo) been tested for the testosterone level (to figure out how to fix the appetite)?!?
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treatment
I am on 11th day of cycle one of Xeloda, am i on the right track or should i consider the normal chemo, i have the 4th small liver tumor show up - the other three were ablated
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Beta-glucans
Does anyone use this or have info on this type of supplement? I've done some internet research on this particular topic and have found very interesting information. It seems it's not too common here in the states but is routinely used for adjuvant treatment for CC in Japan and has been for many years. I've actually…
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Xeloda/Erbitux
Hi gang: Has anyone had any experience with Xeloda/Erbitux as a chemo combination? Monica
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ANY STAGE 4 METS TO LIVER KIDNEY AND STOMACH WITH A TUMOR IN COLON
iS THERE ANYONE OUT THERE WITH CANCER LIKE MY HUSBANDS ?
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How do you?
Okay, I'm still not completely oriented to this new format here. How do I add someone to my buddy list? And can we still email people here? *feeling befuddled* Gail
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I am a GRANDMOTHER!
Yes, my first born has just given birth to her first born! I was able to be there for the birth and it was amazing! These are the experiences that make this fight worth it! I am staying with them to do housework while they bond with their baby! She is just so cuddly sweet I am going to have a very hard time when it comes…
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xeloda and headache
Hi. Has anyone experienced severe headache as a side effect of xeloda pills? I'm hoping the headache I am experiencing is due to something else (something simple. like stress ha ha). I'd appreciate any sharing on this issue. If you did have headache as side effect, any medication prescribed which helped? Thanks. Tara
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Getting back to "old" life
Well, I have 2 more treatments to go then I'm done! I have been out of work since April "08 and I will be returning November 3. My boss is being great (I am lucky and blessed) he has held my position and will work with me as to how many hours a day I can get through when I return. My questions & concerns, for those of you…
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pet scan results
So. I got pet scan results for my mom this morning. They show that there is something suspicious in her thyroid so the oncologist is sending her to an ear, nose & throat doctor. He said he could feel something there, but not to get too excited until we see what it is. The rest of the pet came back to show nothing…
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Waiting again for results
Bob's(my hubby) PET/CT was on Thurs. We hope to get results Wed. Many probably recall that we are in limbo again, waiting to see if a spot in the liver is a reoccurrance. We elected to wait the 6 weeks or so to see if a determination can be made since biopsy wasn't possible, before possibly undergoing a second liver…
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CoQ10 warning
Hi, While I was getting my chemo this past week, a few of the patients were talking about various things they thought helped or didn't during their chemo treatments. One patient mentioned taking CoQ10 (Coenzyme Q 10)... anyhow, the onc. nurse chimed in that she doesn't know about the affects of some of what they spoke of,…
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Great Weekend Get-A-Way
So many have implied about wanting couple time alone, so below is the link to the Pocono Resorts Website. http://www.caesarspoconoresorts.com/
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What do you do for YOU?
We all know what it's like to go through treatments, appts., more appts., waiting, scans, waiting for results that don't come through quick enough, fear, tears, pain, lack of appetite, nausea and the list goes on and on. It wouldn't take much to find that cancer and it's treatment becomes the centre of our lives because we…
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started round 2 chemo yesterday
hello to all my fellow cancer troopers. I'm new, just registered today. Not new to cancer though. I had a colon resection back in April 07, had to take my spleen out too. Incision got infected in ICU. Tumor was 4.5cm by 4.0cm at descending/sigmoid area. They took out 14 inches and 20 out of 22 lymph nodes tested positive,…
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Anniversary Weekend
My husband and I spent our 26th wedding anniversary at the Poconos (24-28 Sept 08) and had a WONDERFUL TIME. We ate and ate and ate way too much. Relaxed, cuddled, and played some couples games. We won the 8 ball pool tournament and didn't do so well with the "guess who" pictures of celebrties and sports figures. My brain…
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Anniversary Weekend
My husband and I spent our 26th wedding anniversary at the Poconos (24-28 Sept 08) and had a WONDERFUL TIME. We ate and ate and ate way too much. Relaxed, cuddled, and played some couples games. We won the 8 ball pool tournament and didn't do so well with the "guess who" pictures of celebrties and sports figures. My brain…
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Has anyone had this symptoms?
Hi, I am a 5 yr survivor of Stage IV colon cancer... for those of you who don't know me.. DX in 2003, surgery, radiation, 5FU contn. with a pump for 6 wks, and then 6 mos of oxaliplatin 5FU, and leucovorin. All my PET scans of been NED since then, and I am so grateful. My sweet husband was just dx in June of this year,…
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Friday Riddle - ANSWER
This week's winner is krystiesq. CONGRATS !!!!!!!!!!!!!!!!!!!!!!!! RIDDLE: Which triangle has a bigger area: 1. A triangle with sides measuring 300, 400, and 500. 2. A triangle with sides measuring 300, 400, and 700. ANSWER: A triangle with sides measuring 300, 400 and 500 is correct. Triangle 2 does not exist.
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Done with round 2 of folfox
Hi everyone, Friday I got my pump taken off so round 2 is officially done. I felt a few more side effects this time, the cold from touching anything in the fridge, the tingling in my fingertips, the dreaded constipation and then the diarrhea after (this time I took immodium which helped control the diarrhea and gave me a…
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This is for you men that have had Low anterior resection surgery
Ok, sorry girls, but I don't think you can help me. I'm not even sure the guys can help, but here we go. My husband had low anterior resection surgery on the 15th, the doctor had explained to us that there could be damage to the nerves that control erections, but he said that he rarely had this problem with his surgeries.…
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What do you think you did that help you beat this disease?
Hi, I am recently diagnosed with rectal cancer in August 08 (likely stage 3). I just started neo-adjuvant radiation and chemo today and am interested in what you think you did that helped you beat this terrible disease. So the question for all survivors out there, is what things you did (maybe list the top 3 or more if you…