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update
Hi Its been a few months since I have been on here. Its been one thing after another. It seems like it never ends. Was just recently discharged from the hospital from being admitted with 102.5 fever so they had to change my stent and then found out I have pneumonia. Which I still have. Trying to be positive.
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New web site:"Scienceofcrc.org"&&&&&Check this other site
haven't checked it out yet so don't know if useful or accurate but its here www.scienceofcrc.org As its run by the Angiogenesis Foundation i guess that's where their emphasis will lie in regards to Tx.....
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"The Ketogenic Diet and Hyperbaric Oxygen Therapy Prolong Survival in Mice with Systemic Metastatic
this is a nontechnical version,link at bottom to original study from plosone www.sciencedaily.com/releases/2013/06/130605190158.htm
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Social Security
I finally said heck with it and applied for Social Security Disabilty on May 9th, Today, I got approved. That was processed faster then I ever antcipated. Still have to wait 6 months but going on State Disablity for now. Ive been a year on chemo, my hands and feet are purple, just need to take some time and get healthy.…
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colonoscopy help for syblings
Hi All, i was wondering if any of you new were to go to get help for a coolonoscopy. I have staget 4 and all the Dr. keep telling me to have my brother and sister checked out but the problem is that they are both out of work at the moment and have to insurance. is there somekind of probono work that Dr. can do for people…
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Good read. Liver transplants.
http://www.thehbsn.org/article/download/1882/2623
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Colostomy reversal
I am going in for surgery June 17th to reverse my colostomy. There is nothing in my colon as far as cancer (read my story as to why I have the colostomy). I am not having my usual treatment next weekend because of this. I know some people take tagumet, etc. before/after surgery. I this something I should be doing, even…
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Immunotherapy and colorectal cancer:Theory and practice
Here'a a rather lengthy but informative article on immunotheraphy as it relates to CRC www.discoverymedicine.com/Bo-Xiang/2013/05/24/colorectal-cancer-immunotherapy/ and here's a current attempt to put ideas into practice www.bavarian-nordic.com/investor/announcements/2013-13.aspx
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New member
I was just diagnosed with a carcinoid tumor in the terminal ileum. is anyone familiar with this, am very worried. thanks for any help...
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Beef Eaters!!!! Something you may want to digest before you eat "mechanically tenderized beef"
www.fsis.usda.gov/News_&_Events/NR_060613_01/index.asp
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JEN2012 - Sundance and Big Billy Story Still Under Consideration From Coping Magazine:) *****UPDATE
Hiya, Jen:) What's happenin', baby! I hope you got your ears on this morning, LOL! Well, Memorial Day came and went.....and I had not heard back from Coping magazine....they had said it would be about 8-weeks before I heard something. I was going through my emails and found the one she sent me stating this. We were 'one'…
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Financial Assitance for Co-Pays for Chemotheraphy
Does anyone know of any valid, current programs to help with co-pay assistance for chemotherapy? I have gone through the following: CancerCare Co-pay Assistance Program - out of money Drug Company (for 5FU) Patient Assistance Program - they referred me to Partnership for RX assistance - they referred me to Community Health…
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Gamechanger from ASCO conference:Stop using calcium and magnesium with oxaliplatin
www.medscape.com/viewarticle/805232 Something you might want to discuss with onc perhaps PS: when i was doing oxi i don't recall knowing about calcium/mag and i can't remember at what point the neuropathy kicked in
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Planned CSN outage
CSN will be down for a couple of hours this morning beginning at 3:00 AM Eastern Time for planned maintenance. We apologize for any inconvenience. Best to all, greta aka Your CSN staff
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What should I expect? - FolFuri, Irinotecan + Avastin
It took 4 or 5 days for me to come to grips with with the terrible results of PET scan. Well, it's official... I remain inoperable. CEA climbed from 4 to 21 in a few months, one tumor in the liver grew, the others remain the same.... but the spread to the pelvic area and bones continues. a few spots on the acetabulum,…
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Good PET
Good news on my PET scan last Wed. I'll recap a little for the new folks. I've had stage IVb colon CA met to the liver. a lymph node close to the aorta and a lymph node close to the tracheal branch (carini) since Sep 2008. I went through 3 1/2 yrs of Folfiri/5FU, 6 mo of Folfox/5FU (that didn't work well). I was doing fine…
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What A Grandmother Is!!
Hello My Friends, First, I wanted to let you all know that the results of JBG's scan were good. I spoke with her today & she said it shows shrinkage in the lung mets. She's having a great deal of trouble with her feet(redness & swelling) relative to "Hand & Foot Syndrome" caused by the Xeloda so her dosage has been reduced…
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Prayers needed
Mom has her annual scan on Tuesday. All of us are in scanxiety mode.
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Need ideas on managing Dad's fecal incontinence - Stage IV Metastatic - Sigmoid Colon
Dad is not mobile having spent 3 weeks in the hospital for pneumonia contracted during initial radiation treatment (9 days). He can use a walker for about 20 feet - to get from the house to the car to the Dr's office. Unable to know when he has to make a bowel movement and there's alot of pain/cramping. He wears Depends…
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Xeloda- severe stomach pain
Hi everyone, My mum has been diagnosed with colorectal adenocarcinoma stage I, her rectum and a part of colon was removed with only 4 lymph nodes reactiva found. Her onc prescribed her Xeloda 2000 mg per day 14/7. She started taking the drug two days ago and last night (still goin on) she had severe stomach pain every two…
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Tomorrow
Well.......tomorrow is my CT scan. I was diagnosed in July 09; stage 4 with mets to liver. Liver Resection in April 2010.......so far so good. I am a nervous wreck and it will be a long day. I pray that this awful disease will be cured one day and that people will not have to be faced with the problems linked with it. This…
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Maxicat - you ok?
Hey Maxicat - are you ok. I know you were having some tests done in May/June. I know we both have additional concerns as signet cell colon cancer people. Just let me know that you are ok.
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No Avistan
I just had my 13th folfox tx this weekend. I have been doing very well on it, liver mets shrinking and I seem to be going in the right direction. This weekend I didn't have Avastin because I have having my colostomy reversed two weeks from tomorrow. I am worried about being off Avistan for a period of time (four weeks…
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happy birthday tumour, rest in pieces, its my third anniversary today
yes 3 years ago to the day, I saw the blood in the toilet bowel. still alive, still here and still fighting. and possibly causing trouble! another great day ends, I wonder what tomorrow will bring! hugs, Pete if your interested in my extreme therapies, ideas, newest research well have a have, if your conservative well I…
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Radio frequency ablation on lung metastasis
I have one tumor 20mm in one lung and three in the otherNay has anyone had RFA. iOslo, what size were tumours and what location? I live in Australia and am looking at best place to have done if posBile. I'm hoping to go to the USA end of year to visit son too? thanks, any info,appreciated Regards. Sue
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rectal pain after excision
my tumor base was excised 3 and one half weeks ago about 2 cm up from the rectal verge just opposite the prostate. The excision was about the size of a 25 cent piece or 50 cent piece or in between, and the surgeon says he went all the way through the wall and stitched the hole with disolvable stitches. Well it's been very…
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Quitting Chemo
I have finally got my husband to understand my need to quit chemo. Doctor wants to see me Thursday and I am sure he will try to convince me to get chemo. But my quality of life just isn't these. This is a hard decision but I think the best one for me
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ASCO highlights, EXERCISE proven again
Long-Term Tamoxifen Benefit for Breast Cancer Confirmed Anna Azvolinsky, PhD Women diagnosed with estrogen-receptor (ER)-positive breast cancer who took tamoxifen for 10 years as adjuvant therapy had lower risk of late recurrence and lower risk of death compared to those who took the drug for 5 years. These results…
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Am I Doing Enough?
To all, I am looking for advice. I had my 1 yr colonoscopy in Jan that found a pre-c polyp that was removed. Had a flex sigmoid in May that found some pre-c cells at that same area. Doctors all say to continue to monitor. I was Dx'ed 3b/signet cell 1/13/12, had rt hemicol surgey 1/31/13 and 12 rounds of Oxi and 5fu. All my…
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Chemo Nightmare
Just an update: I had my first infusion of oxalaplatin on May 23 and just got up now. It has been a solid week of nausea, cramps (both leg and abdomen), pins and needles in my hands feet and lips, cold sensitivity. I did not eat for 5 days: bites and sips but nothing substantial. The onc first checked to see if he had…