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CT results and shingles update
I had a CT scan last Monday...the initial reading was compared to an older (june) scan instead of the more recent one in August. So it took a while to get complete results. Got the email from the onc...."stable, maybe slight improvement". Two of the lymph nodes are .2mm smaller, the rest remain unchanged. So we will…
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ice caps
hi, my daughter was recently diagnosed with stage 2 breast cancer. She has incredibly curly long hair and is considering using an ice cap (penguin). would really appreciate some input on this. thanks
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Comfort Quest side sleeping pillow
Has anybody used the Comfort Quest side sleeping pilow? I am going to have dbl mastectomy with reconstruciton and would like to order one. Just not sure of how to get correct size. where do you measure the distance between breasts?
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Best Article on Lymphedema I've Ever Read
Lymphedema is the dirty little secret of breast cancer. No one wants to talk about it. I was assured by both my BS and PS that with only sentinel nodes removed I wouldn't get it. They were wrong. The ensuing months of trying to get someone to help me, listen to me was infuriating! I found the step up speak out website and…
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OT - anybody having problems viewing ABC?
Waiting for Once Upon a Time, no screen, just audio. Is it us or the network?
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Preparing for visits
I was diagnosed with DCIS almost a month ago. Even after the initial shock began to go away, just dealing with all the information being thrown at me was incredibly overwhelming! I'm still in that phase of what seems like never-ending consultations and second opinions with so much information to digest. I’ve started trying…
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Good visit with my surgeon
Had my appointment with my surgeon today. After re-reading the PET report, examining me, doing an ultrasound in his office and calling and conferring with my medical oncologist, the feeling is that whatever is showing up on the PET in my left axillary region is post-op in nature from my recent mastectomy. He saw no…
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finally healing!!
Finally starting to heal up from bilateral mastectomy 6wks ago, did have a rupture in suture line that will probably be healed by the time i go back to surgeon. Got to go see my dad, hard trip by myself but well worth it. I can't say enough good about this site, when talking to my extended family they were impressed by how…
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Today is Katz77's Birthday!
Happy, Happy Birthday! Hope you have a fun day filled with lots of cake & tons of surprises! much love, Jenny
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Today is Sinai's Birthday!
Sending Happy Birthday wishes your way - hope your day is filled with everything you like best and love all around you! much love, Jenny
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Dizzy spells...
What would cause dizzy spells? my meds? drop in the barometer? full moon? (HAHAHAA) I am going to the doc this tues but it just bewilders me..why now? Cindie
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I had a great experience yesterday!
Several weeks ago my friend had a yard sale at my house. Since I have no hair it is obvious I am an onc patient...this woman comes up to me and starts asking me questions. Then she gives me her business card and explains that she works for a company that teaches estheticians how to care for/treat oncology patients. She…
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OT Veterans Day - free meals at many chains
I know there are a few of us Veterans and probably a lot more who have Spouses/SOs/brothers/sisters/parents/friends who are Veterans. This Sunday is Veterans Day (officially observed on Monday). There are quite. A few nation wide restraunts that are giving free meals to Veterans on one of those days. Locally, Applebees,…
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rib tenderness
Hi all, I haven't been on in a long while. I never use to pay too much attention to little aches and pains. Just not a doctor person UNTIL breast cancer last year. So, I passed my one year anniversary of my dx on Aug 11. I am now waiting to see an endocronologist bcuz a rather fast growing nodule was found on my thyroid.…
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Have I told you about my black boxing gloves?
A package arrived for me one day (with a little pink angel known as Ayse's return address). Low and behold--there were my Everlast black boxing gloves! They are studded with pink and silver and glittery "diamonds" and one says "Renee" in pink glitter and the other says "Believe" in pink glitter. I totally love them. Ayse…
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Abscess and infection
7 weeks to the day of my double mastectomy I had to go back in to surgery. I developed severe swelling and was in a lot of pain. PS felt he needed to go back in and clean things up. He found I had an abscess. We also removed my expanders and will revisit reconstruction at a later date. Although tramatic this is the best I…
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I seen my doctor still con fussed what to do
Thanks for your replys.The Dr. Is doing a Colonoscopy Nov.29. I don't know if he is still concerned like he should be.He said I dint need any extra prep.When I wasn't cleaned out when he did scope two months ago.I told him about my throat giving me problems.He said it may be my esophagus and he could stretch it.I really…
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Sloan-NYC co worker suggested 2nd opinion
A coworker who has had BC 2 x suggested I get second opinion. She gave me the # etc. IF I do...i am sure long wait-do I call now? Do I wait to see what goes on Next wed at surgeons consultation? not sure what to do, when or how? will my insurance cover 2nd opinion? I think so...would new place check my coverage?…
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Miss Renee .. How are you dear Sister in PINK?? We are thinking and praying for you ..
Gentle hugs for you, as well as prayers. Hoping you found something fun to do to help you with 'waiting' for your doctor's appointment. Please post when you can. Strength, Courage and HOPE for a Cure.
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Finding love after Breast Cancer
I Have been Cancer free for almost 3 years now and yes had to have a Mastectomy to save my life, it was the last thing i wanted to do but had no choice. I really didn't give much thought about how things would change in my personal life once that happened, i knew it would be hard at times but i guess i always thought if…
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Need some good advice please
I am torn with a decision.Would like your opinion please.Some of you know me from 3yrs. Ago when I had Breast Cancer.I have been doing pretty good.But a couple months ago I have this issue that has come up with my stomach.I do Weight watchers and have lost 75 pounds.So I eat right .I go for walks like I should.Started…
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Afinitor
Hi Everyone, This is my first day on CSN. My first diagnosis was 2004 with a 2009 recurrance at my sternum and now many bone mets. I am on Afinitor and having trouble with my blood sugar and attitude. Do any of you take Afinitor/Exemestane combo platter?
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Happy Belated Birthday Ladyg!
Hope your birthday was fantastic! Filled with lots of cake and icecream! Wishing you a happy, healthy year! much love, Jenny
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Radiation same spot more then once???????
I could swear I was told by a Dr-that you can only have radiation to body part ONLY ONE TIME...I am having issues with same breast-unsure what yet..seeing surgeon this week. But wondering what happens if the need for radiation on same breast? DID i get wrong info? Denise
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ORNAMENT EXCHANGE - Please send me your info
Hi everyone, I was going to wait until November, but it seems everyone is anxious to get started with our ornament exchange. Below is the post the ChenHeart sent out 2 years ago regarding the ornament exchange. Nothing has changed, except to private message ME with your information at Jean 0609. Let me know if you have any…
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Breast Cancer Mastecomy and Now chest pains and abnormal EKG
Hi all. I was diagnosed with breast cancer stage III September 2011. Just finished all my treatments and rad's in July of this year. Now I am having issues with chest pains and discomfort. My primary doctor gave me an EKG and it came back abnormal and indicates a had a silent heartattack and referred me to a cardiologist.…
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Happy Belated Birthday Cats_toy
Hope your day was wonderful!!! Filled with many nice surprises! Best wishes for a year filled with health and happiness! -Jenny
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Happy Belated Birthday roseann4
Happy belated Birthday wishes to roseann4 (Nov 4) Hope your day was filled with lots of fun and love all around! -Jenny
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Today is Lafera12's Birthday!
Sending BIG Birthday wishes your way! Hope you have a wonderful day! -Jenny
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Triple Negative: Lifestyle Changes to Reduce Risk of Recurrence
Here is a link to download free either a MP3 file or a Power Point file from a Living with Breast Cancer Teleconference. Their site also has many other interesting BC topics to download:…