3 years NED

z810840b
z810840b Member Posts: 207 Member
edited August 2011 in Anal Cancer #1
Hi all-Today ..August 14th is 3 years since I finished my last treatment.I am so grateful and wish the same to all of my CSN friends.Hugs..alyse
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Comments

  • Granny55
    Granny55 Member Posts: 12
    #2
    Hi!
    today i will be seeing my Reg doctor and will get the orders put in for ct scan and staging and the EUS tests to be done and also she will tell me who my cancer doctor will be to make an appt with him/her wow this is so new to me LOL but i feel i will go though it with a smile my sister passed away 5 years ago from stage 4 colon cancer i'm so happy to hear that you are now 3 years without cancer keep up with the news i love to hear how people are doing it keeps me going let you all know how it went today.

    HUGS Mary
  • Berri
    Berri Member Posts: 7 Member
    #3
    Congratulations
    Congratulations on 3 yrs out... I know what a relief this is on your mind... this is wonderful. I'm 11 years out !! positive thoughts and prayers coming your way.
  • mp327
    mp327 Member Posts: 4,440 Member
    #4
    Congratulations, Alyse!
    3 years--that's awesome. I hope you are planning to celebrate this important milestone. I will be 3 years NED on September 9th., so we are almost "cancer twins." I am counting down the days. I wish you continued good health and may you have many, many more happy anniversaries with NED!
  • z
    z Member Posts: 1,414 Member
    #5
    Alyse
    This is great news, and this news gives everyone hope. I wish you well Lori.
  • Memphis Mary 49
    Memphis Mary 49 Member Posts: 52
    #6
    So happy for you!
    Congratulations, Alyse!

    I am so happy for you and cannot wait till I can post the same!

    Mary

    PS What does NED mean? Do you feel 100% normal now? (I'm only 3 weeks out)
  • mp327
    mp327 Member Posts: 4,440 Member
    #7
    Memphis Mary 49 said:

    So happy for you!
    Congratulations, Alyse!

    I am so happy for you and cannot wait till I can post the same!

    Mary

    PS What does NED mean? Do you feel 100% normal now? (I'm only 3 weeks out)

    NED
    No Evidence of Disease--what we all want to hear on our scans and follow-ups!
  • Memphis Mary 49
    Memphis Mary 49 Member Posts: 52
    #8
    mp327 said:

    NED
    No Evidence of Disease--what we all want to hear on our scans and follow-ups!

    Thank you MP - I should have
    Thank you MP - I should have figured that out!!
  • RoseC
    RoseC Member Posts: 559
    #9
    Congratulations!!!!!
    Congratulations!!!!!

    I'm also almost 3 years out - Oct 31st will be 3 years since treatment ended.
  • sandysp
    sandysp Member Posts: 868 Member
    #10
    Thanks
    Nice to know I can share this anniversary with someone - especially YOU! Finished mine up today with one last "kick ****" radiation treatment. After suffering this weekend from his last one I could not believe I marched in there today. I attribute it to Sloan's great staff and my husband who drove me. I never even think about driving any more.
  • sandysp
    sandysp Member Posts: 868 Member
    #11
    Granny55 said:

    Hi!
    today i will be seeing my Reg doctor and will get the orders put in for ct scan and staging and the EUS tests to be done and also she will tell me who my cancer doctor will be to make an appt with him/her wow this is so new to me LOL but i feel i will go though it with a smile my sister passed away 5 years ago from stage 4 colon cancer i'm so happy to hear that you are now 3 years without cancer keep up with the news i love to hear how people are doing it keeps me going let you all know how it went today.

    HUGS Mary

    Smiling
    Just to let you know you belong here and are welcome whether you are smiling or not. I've done a lot of being very far from a smile and everyone prayed for me and/or passed on helpful hints for helping me get through. I am so sorry about your sister. You are both in my heart and prayers. But you will get through this just fine. You are a long way from colon cancer even though it seems close by. The time you are in is very difficult. Please stay close to us. Everyone here will do what we can to help you. The good news is this cancer is very very treatable and it sounds like you are being lined up with doctors who can help you. Don't be afraid to get more than one opinion. The first doctor told me there was no way I could avoid surgery and suggested it as the first option for treatment. I just finished my 30th radiation treatment. We'll know in six weeks if I need surgery, but the chances are minimal. Take care.
  • z810840b
    z810840b Member Posts: 207 Member
    #12
    Memphis Mary 49 said:

    So happy for you!
    Congratulations, Alyse!

    I am so happy for you and cannot wait till I can post the same!

    Mary

    PS What does NED mean? Do you feel 100% normal now? (I'm only 3 weeks out)

    NED
    Hi Mary-NED means no evidence of disease...
    congratulations to you too for completing your treatment.I don"t feel 100% normal..i have a "new normal". There are residual side effects... but certainly tolerable. Most important ..I am here and have a very good prognosis. Positive thoughts your way.... Hugs..Alyse
  • z810840b
    z810840b Member Posts: 207 Member
    #13
    sandysp said:

    Thanks
    Nice to know I can share this anniversary with someone - especially YOU! Finished mine up today with one last "kick ****" radiation treatment. After suffering this weekend from his last one I could not believe I marched in there today. I attribute it to Sloan's great staff and my husband who drove me. I never even think about driving any more.

    Anniversary
    Wow!!! you are done! Smooth sailing ahead...I remember so well the day i finished my last treatment.Its amazing that 3 years have gone by.I am equally thrilled to share my anniversary with you.I hope you have an easy recovery.Hugs..alyse
  • Gulamin
    Gulamin Member Posts: 134
    #14
    z810840b said:

    Anniversary
    Wow!!! you are done! Smooth sailing ahead...I remember so well the day i finished my last treatment.Its amazing that 3 years have gone by.I am equally thrilled to share my anniversary with you.I hope you have an easy recovery.Hugs..alyse

    Congratulations
    That is wonderful news for all of us and gives us hope. I am now 7 months NED... thank you! Wishing you all the best!
  • z810840b
    z810840b Member Posts: 207 Member
    #15
    mp327 said:

    Congratulations, Alyse!
    3 years--that's awesome. I hope you are planning to celebrate this important milestone. I will be 3 years NED on September 9th., so we are almost "cancer twins." I am counting down the days. I wish you continued good health and may you have many, many more happy anniversaries with NED!

    Twins
    I am proud to have you as my cancer twin...We both know what it took to get to this point.Its nice to be able to reassure others that they will be "ok".I have a friend who is 7 years out..I look to her for assurance of my future.So lets celebrate and make a toast to all of us! Hugs..alyse
  • z810840b
    z810840b Member Posts: 207 Member
    #16
    z said:

    Alyse
    This is great news, and this news gives everyone hope. I wish you well Lori.

    hope
    Hi Lori...this is exactly why I posted it....Hugs..alyse
  • Memphis Mary 49
    Memphis Mary 49 Member Posts: 52
    #17
    sandysp said:

    Thanks
    Nice to know I can share this anniversary with someone - especially YOU! Finished mine up today with one last "kick ****" radiation treatment. After suffering this weekend from his last one I could not believe I marched in there today. I attribute it to Sloan's great staff and my husband who drove me. I never even think about driving any more.

    Bless your heart!
    Oh, Sandy. I know how you feel. I didn't drive either. You will start healing now!!! My mouth got so dry and so metallic at this point. Biotene is available at Walgreens/CVS to help with dry mouth, and sugar-free hard candy helps too. Soaking in the tub is good. You really will be better very soon!!! We are here for you!
  • Angela_K
    Angela_K Member Posts: 374 Member
    #18
    sandysp said:

    Thanks
    Nice to know I can share this anniversary with someone - especially YOU! Finished mine up today with one last "kick ****" radiation treatment. After suffering this weekend from his last one I could not believe I marched in there today. I attribute it to Sloan's great staff and my husband who drove me. I never even think about driving any more.

    Celebration!
    Alyse, Sandy . . .what a wonderful day! Thanks for sharing such beautiful news!
    Love to all.
    Angela
  • mp327
    mp327 Member Posts: 4,440 Member
    #19
    z810840b said:

    Twins
    I am proud to have you as my cancer twin...We both know what it took to get to this point.Its nice to be able to reassure others that they will be "ok".I have a friend who is 7 years out..I look to her for assurance of my future.So lets celebrate and make a toast to all of us! Hugs..alyse

    Twins
    I'm glad you have another friend who is 7 years out--that is so encouraging! I have met so many wonderful people because I had cancer--one of the few benefits--but it's huge!
  • lizdeli
    lizdeli Member Posts: 569 Member
    #20
    Angela_K said:

    Celebration!
    Alyse, Sandy . . .what a wonderful day! Thanks for sharing such beautiful news!
    Love to all.
    Angela

    Alyse
    Congratulations on your 3 year NED results! I'm approaching 2 years, tests at MDA on Monday and Tuesday and I'm both excited and anxious.

    I'm also very sad right now. We lost our 16 year old Jack Russell Terrier on Tuesday. It was all very sudden, he was healthy, active and playful until that day. Then he had a seizure. My heart hurt so much and I've been crying since Tuesday. Sorry to unload here about that, I know there are bigger issues in life. I just hurt so bad right now.

    thanks for listening and NED wishes to one and all.
    hugs,
    Liz
  • z
    z Member Posts: 1,414 Member
    #21
    lizdeli said:

    Alyse
    Congratulations on your 3 year NED results! I'm approaching 2 years, tests at MDA on Monday and Tuesday and I'm both excited and anxious.

    I'm also very sad right now. We lost our 16 year old Jack Russell Terrier on Tuesday. It was all very sudden, he was healthy, active and playful until that day. Then he had a seizure. My heart hurt so much and I've been crying since Tuesday. Sorry to unload here about that, I know there are bigger issues in life. I just hurt so bad right now.

    thanks for listening and NED wishes to one and all.
    hugs,
    Liz

    Liz
    Hi Liz, I'm sorry for the loss of your dog, 16 years is a long life for a dog, and he probably loved you dearly, as you love him. He must have had a great life.

    I have you in my thoughts and prayers for your tests, and I bet they'll be good results.

    I wish you well. Lori

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