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All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
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afp rise
hi just a quick question in July 2012 i was diagnosed with tc and and afp of 444000 after 16 weeksof chemo and one major op i was told NED it reoccured in april afp Of 1200 one chest lymph node and one spot of my psoas muscle after tip and a chest op again i was giveln ned afp 14 however my afp started to rise so i had a…
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blaming yourself?
do you ever find yourself blame yourself for getting testicular cancer? i admit, i sometimes do... (no, not drugs... thank God!) just wanna know that im not alone.
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one hangs lower
Hey guys, Michael here. I noticed that one of my nuts hangs lower than the other. In texts, the animated diagrams always show the nuts hanging at the same level. Anyone else out there with a nut that hangs lower, and is there more of a chance to develop tumors this way. Is there a higher incidence of testicular cancer in a…
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blood in semen
Hello, I'm new to this forum. My best friend was recently diagnosed with spinal and testicular cancer (I don't know the specific details but I know it's mastecized and tumors are inoperable). He has had many weird symptoms and I've been trying to note them down but recently he has had spontaneous erections pretty much…
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Its been a hard long road
hello everybody. Im wanting to share a story about the long road me and my boyfriend have had. we are both 21 yrs old, and my boyfriend has testicular cancer.He was diagnosed back in December of 2011. It all began with him having left shoulder pain,so bad to the point where he was unable to sleep and do most daily…
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question after chemo
hi guys, im recently going thru my 4th and last chemo round (Ep) my question is even tho the doctor said be my cancer wasn't high risk, and that i ll practically be under surveillance. will i nee RLPND? let me explain my situation, i was diagnosed back in december 2012 with stage 2b TC, spreaded to 2 lymph nodes than 5cm…
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Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
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Sex: The Elephant in the Room
My husband was diagnosed with Stage III Testicular Cancer almost two years ago and underwent four rounds of chemo and an RPLND (among other surgeries like the initial orchiectomy and a lung wedge ressection) over the second half of 2012. 2013 was all about recovering from surgery and he's still in a lot of pain every day…
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Intestinal Issues Years Later
Hey everyone, I am new here. SO, I had testicular cancer around 7 years ago, had the first surgery where one of my jewels :-P was removed and then another, (since it had spread) that opened up my stomach from rib cage to right above my crotch, (do not know the name of the surgery). So the issue I have been having, really…
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CSN study FAQ
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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Stem cell transplant
For those who have a Stem Cell transplant.... my husband will be having this procedure done for the first time, he is of couse scared, not knowing what to expect. can someone share there experience and what to expect from this procedure? thank you so much, Valery
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help needed
Hi All, About two weeks ago I noticed some pain in my left testicle and left groin. I went to the DRs and they did not find any lumps. I have an ultrasound this week. I did notice the pain is worse when wearing jeans. i did a self examination and there is a little lump that is not attached to the testicle that if squeezed…
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Assistance
I was wondering if any of you have suggestions for getting assistance to pay for treatment of testicular cancer, I know someone who has no insurance and has already received the first bill for 52,000 and treatment isn't finished yet. He is not able to work due to treatments. He is receiving treatment at MD Anderson in…
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My hairgrowth after chemo
Hi, last year I had chemotherapy for testicular cancer. One of the big questions for me was; what's gonna happen to my hair? Ofcourse I knew that it would fall out, but I was curious how it would return. People get all kinds of hair back, different from how they had it during their entire life. I started to look for…
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I HAVE A DREAM...
...that one day we will have a pink heart shaped pill that cures all cancers and our biggest complaint will be that it comes only in 6 different flavors. Please, join me in this dream and until then god bless us with nothing but happy hopeful days. Laz
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Did you have radiation?
Just wanted to share my husband's story in hopes that it not only gives others hope, but also makes them aware... My husband had testicular cancer 12 yrs ago and had surgery followed by radiation. He had follow ups for 10 yrs and all has been good. We have had 2 children naturally since diagnosis - one right before surgery…
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PLEASE HELP!
Hi. First of all, I do not want to mislead anyone, but I registered this to get help for my brother.He is 24 and last year was diagnosed with testicular cancer and had to have one removed. He went through a month or two of radiation therapy. Recently, he went for a check-up and more blood tests, only to get bad results. He…
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Neuropathy After Chemo
I'm all done my chemo treatments. I'm 32 years old. I had 4 cycles. My side afecs were mild during treaments. Now 3 month after chemo is done i'm experiencing tingling and numbless in my hands and feet. I never had it during treatments. Is this posible well after treatment? My feet are cold and tingling all the time! What…
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Ready For Treatment
ok, so im going to see the oncolgist tomorrow , it has been 3 weeks since my orchioctomy. ct scans show 2 enlarged Lymph nodes in my "tummy " area about 2 cm the urologist said most likely im faced with chemo, RPLND, or both. the oncologist should be able to tell me when i talk to him, im also having bloodwork in about 2…
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surgery in 2 days
so here is my story: about 2 moinths ago i felt a little "hard" area in my right testicle, i almost ignored it . it must have been god that made me be at a house working , while the lady watched a show featuring tom green , something inside me freaked out..immediatly i called and made an appointment , had a US and the…
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Easy Question
Hey everyone thanks in advance for a reply. I woke up Thurs AM at 3 with TERRIBLE right testicular pain. Wen tot ER at 7AM, had ultrasound. Ultrasound revealed RIGHT torsion, AND they found a mass in side my left testicle. They did emergency surgery to correct torsion, and orchiotomy on left testicle. I am home from…
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New guy in town needing some advice
Well my recent sudden journey started Friday October 12th, actually earlier but I didn't realize I had a ticket for this ride until then. I had been feeling off for a month or two but between working, going to school full time, being married and having 2 children I wrote most my symptoms off to stress, fatigue or what have…
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Testosterone levels: low? high?
Hi. I only recently found this web site and group. I'm Jim, age 40. I was diagnosed with embryonal cell carcinoma of the right testis in 1996; orchidectomy, lymphanodectomy, and chmotherapy followed. The chemo pretty much wiped out the Leydig cells of the remaining testis, so they decided on testosterone replacement…
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TC and the liver
I'm not exactly sure if I should post this here or on the liver section but I'll start here. I was diagnosed with TC and had a right orchiectomy in April of last year. After the surgery I did 20 days of radiation therapy, and since then trips to my oncologist every 6 months. I went for my annual physical Tuesday of last…
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Chemo effects
Hi I lost my testicle 10 weeks ago and had one shot off carob platinum chemo 2 weeks after its been 8weeks now last week I got a cough and a sore chest and throat plus a upset stomache the second night of catching this I was sick every 30 mins I feel bait better now but still poorly it's been like 6 days every1 keeps…
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Poking my nose in to say hi!
I wanted to stop by and say hello to everyone. I was diagnosed with Testicular Cancer on July 18th, 2007 and have been cancer free since November 2007. I hope to offer more support and learn much more from all of you very shortly. Later, Brendan
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unresectable / treatment resistent Mediastinal Germ Cell tumor (yolk sac)
Hello, My boyfriend (we live together) was diagnosed with Mediastinal NSGCT (metastastes to liver, spleen, bone) about 11 months ago, after several rounds of different types of chemo, stem cell transplant, radiation to the spine...the mediastinal mass shrank only a bit (16cm to 12cm). Some metastastes responsed to chemo &…
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Having kids
What are the chances of having kids after 4 cycles of chemo and a testicle removed?
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How do I date again?
I have been fighting cancer for 11 years now, have had great highs and the lowest lows now I won't to find a partner to go though life with but I am having no luck I get alot of pity and that's not what I won't. I have lost my confidence. Be cause cancer has takin allmost everything from me and I feel like I have nothing…